MORE BULLSH$%!!! AND DRAMA ON MYSELF AND CHRONIC PAIN ISSUES..ALONG WITH MY HOME ETC..

 I AM BATSHI! CRAZY!! I HAVE JUST ABOUT LOST MY MIND, PHYSICALLY MENTALLY AND EMOTIONALLY!!! BETWEEN ALL THE MESS WITH MY HEALTH, HAVING TO PUT OFF SURGERIES, NOW TRYING TO STAY WELL SO CAN GET THE PAIN PUMP REPLACE (BEEN TRYING SINCE IT WENT OUT ON DEC 20TH, 2022)... BROKEN COLLR BONE NEEDS SURGERY, THART RIGHT SHOULDER IS A FLIPPIN' GRAND HOT MESS!! AND MY LEFT THUMB, THE LUMP ON IT BETWEEN IT AND MY WRIST, BOTH HANDS ARE KILLNG ME! I am probably SURGERY ON IT!!!! PLUS I DID NOT HAVE A UTI THANK GOODNESS BUT I HAVE CRYSTALS SO THE SEVERE PAIN IN MY LOW BACK, FLANK AREA, AND DOWN THROUGH MY HIPS OFF AND ON.... COULD BE KIDNEY STONES OR MY LOWER BACK I MUCH WORSE!! I WAS SUPPOSED TO HAVE LOWER BACK SURGERY AND COVID HIT!!!!! WE WERE GOIN TO DO THAT AND REPLACE MY ALREADY REVERSE REPLACED RIGHT SHOULDER AND COVID HIT AGAIN, THEN LUPUS COLITIS HIT, THEN ALL THE ULCERS THAT WERE INFECTED WTH STAPH, & PNEUMONAS. took 8 weeks or more to get those well, MY HOUSE IS A FLIPPIN' DISASTER. I NEED A ROOF, A WALK IN SHOWER, MY FLOORS REDONE IN MY KITCHEN THE NEW LAUNDRY ROOM NEVER GOT DONE NOW MY CARPORT IS LEAKING AND MY DRIVEWAY DUE TO THE WAY THE CITY HAS THE ROAD IN FRONT OF MY HOUSE DONE, IT RAINS AND WATERS RUNS ALL THE WAY UNDER MY CARPORT!!! FOR THE 1ST TIME IN 4 MONTHS OR MORE I WENTTO THE MARKET MYSELF, OUT IT ALL IN THE BASKET, CHECKED IT OUT WITH SELF CHECK, TOOK T TO THE CAR, PUT IT IN THE CAR ... GOT HOME, UNLOADED IT AND PUT IT UP... THEN SUFFERED WITH MY DAMNED SHOULDERS AND BACK...BUT I CAN'T AFFORD TO CONTINUE TO PAY THE DELIVERY FEES..... NOT WTH THE PRICE OF GROCERIES UP AGAIN, YEAH I AM A FLIPPIN' AZZ3D HOT MESS!!! SORRY I HAVE GOT TO WRITE IT SAY IT OR SOMETHING.... AND A LUPUS FLARE LAST WEEK... I TRY MY BEST TO BE POSITIVE AND NOT BIATCH., BUT AM MORE THEN FED THE HECK UP AND ON MY LAST NERVE!! PLUS YOU NEED A PHD TO WORK A CAR NOW DAYS, DON'T EVEN GET ME STARTED ON THAT!! PLUS MY YARD WAS A MESS...I HAVE LIMBS THAT NEED TO BE PICKED UP AND CLEANED UP FROM THE WINDS IN THE WINTER....JUST EVERY DAY SEEMS LIKE IT NEVER ENDS!!! LIKE THE SONG, I NEED LESS HEARTACHE AND MORE PEACE OF MIND!!!! JUST WANT TO GET THE HELL OUT OF THIS HOUSE AND IT NOT BE FOR A DOCTOR, TEST ETC....

IF I SURVIVE THE 9 PLUS PAIN I AM IN WITHOUT HAVING TO GO TO ER THIS WEEKEND IT WILL BE A MIRACLE... THIS IS GOTTEN TO WHERE I DON'TKNOW WHO TO TRUST, WHO TO GO TO..... & i need to try and hold out till Tuesday at 2pm for the pump surgery.... it is BAD!! and i had to move to move my collarbone surgery to May 30th due to the pump being delayed another 2 weeks!!!😡😡😡😡😡😡😡😡😡😡😡😡

DEA Suspends Doctors License & Double Suicide by Pain Patient and Wife due to lack of finding the Patients Medications

 https://www.painnewsnetwork.org/stories/2022/11/9/dea-suspension-of-doctors-license-leads-to-suicides

A chronic pain patient and his wife died by suicide after their doctor's license to prescribe opioids was suspended by the DEA. Many other patients are scrambling to find new doctors before their pain medication runs out.

Supreme Court Rules in Favor of Doctors Appealing Opioid Convictions — Pain News Network

Supreme Court Rules in Favor of Doctors Appealing Opioid Convictions — 

Pain News Network: By Pat Anson, PNN Editor 

In a precedent setting case, the U.S. Supreme Court has ruled in favor of two doctors who were convicted of prescribing high doses of opioid pain medication outside the usual standard of medical care. The ruling could potentially impact dozens of past and future cases in...  

 https://www.painnewsnetwork.org/stories/2022/6/27/supreme-court-rules-in-favor-of-doctors-appealing-convictions-for-prescribing-opioids

PAIN NEWS NETWORK - DEA Planning More Cuts in Supply of Rx Opioids

 

Pain news network article on tea proposals to cut back again on opioid pain medications! It’s a nightmare!

WE have got to stand up against this! I already am "suffering" at the hands of this terrible proposal, along with even some cancer patients, any chronically ill patients with chronic pain to boot. Even my own pain specialist who has been a medical doctor for most of his life. He was in the Navy & went on to "retire" and goo into pain management. I have myself been seeing him for over 12 years. He has always been straight forward. He "sees" through to real "severe ad chronically ill pain patients". I never had an issue, we communicated very well. He is extremely intelligent, and keeps up with how the government effects "negatively and sometimes positively" on pain patients. Especially those who are on Medicare, on Disability, and tried to make sure patients were treated with the correct meds, doses, and NOT given "over" or "under" the amounts of medication they need. He also does "internal pain pumps" which he did mine. He does the spinal injections, and if you need a neurologist, orthopedic specialist. he referred me to the Orthopedic surgeon" who has done my reverse total replacement on my r. shoulder (now I face having it redone due to it "wearing out" Which I knew there was a chance now it has been about 11 years  since the shoulder was replaced, that I would need a "new one". Fortunately, the ones now are much lighter in weight, last a great deal longer (I probably will not have to have another new one put in now after the new one is in). Had it not been for m pain doctor knowing whom to send me to, I would have had a very difficult time finding a surgeon to do that surgery back then. Even in the greater Dallas/Ft. Worth area had MANY Orthopedic Surgeons BUT NONE trained to do a "Reverse complete Shoulder Replacement". I searched, called my insurance, did everything and one day I was telling my pain doctor I needed a very specialized type of Orthopedic surgeon who KNOWS and has been not only trained but already done surgeries of this type. He suggested mine I have now, and not only can he do just about ANY type of joint, muscle and so forth treatment and/or surgery, he is superior on "spinal surgeries" I would NEVER ALLOW ANY OTHER PHYSICIAN TO DO SURGERY ON MY BACK, NECK SPINE ETC. He is a genius although HE HAS NO BEDSIDE MANNER! LOL!!! But when a surgeon is going to operate on any part of you... especially your spine, bedside manner although very important that surgeon knowing exactly how to fix the problem(s). Yet, over the past 2 years I have witnessed my pain doctor, being almost "fearful". He is extremely concerned. In fact, (and he is quite a bit older than he looks for sure)... he has cut back his days to only a couple in the office.. as if he is partially retired, which sucks! Yet, all of this mess with "illegally gotten opioid medications" (either gained by people who deal them, they steal them, they order them from some fake pharmacy, they go to the few "bad eggs for pain doctors", when you really listen, read and see HOW these meds get into the hands of the wrong people fr the most part it is NOT OUR PAIN SPECIALISTS WHO TRULY "DO NO HARM" & THEY ARE NOT PILL FACTORIES" but are REAL physicians with no record of being in the eye of doing something wrong. So, although yes, this is a HUGE, ISSUE, MANY YOUNGER KIDS GET HLD OF THIS ILLEGAL STUFF Or they get them from parents whom may have some left over after a surgery etc. (I KEEP MINE LOCKED UP) although I am the ONLY person in this hose, I have NO people but me here I have always locked up most of my meds. There are those pushers that prey on the kids, and it is not just prescription meds, but cocaine, heroin, and the illegal items as well. SO WE NEED TO STAND UP FOR OUR RIGHTS AS CHRONIC PAIN PATIENTS IN ORDER TO KEEP FROM HAVING ALL OF OUR MEDS AND/OR DOCTORS SUDDENLY TAKEN AWAY WITHOUT WARNING!!!!

https://www.painnewsnetwork.org/stories/2021/10/18/dea-proposes-cuts-in-opioid-supply-for-sixth-straight-year

How Chronic Pain Can Lead to Autoimmunity Problems — Pain News Network

How Chronic Pain Can Lead to Autoimmunity Problems — Pain News Network: By Forest Tennant, PNN Columnist Every chronic pain patient must know and understand autoimmunity and how to combat it. Research on chronic pain has unequivocally determined that the chronic inflammation and tissue destruction caused by a painful disease or injury will produce autoimmunity. ...

and my notes about this also  ...  Goes to prove just how SERIOUS Chronic Pain that is not treated properly due to those pharmacists or physicians due to nw not wanting t prescribe the right medications and/or in the correct amounts for chronic pain patients. I feel even my own pain physician, a superior specialist in this field that I have been seeing now for well over 13 years, he put in my pain pump & has treated me all these years without any issues. Suddenly, over the past year he began to shy away from one of my meds after he was giving it to me monthly for all that time, I now have to continually "remind" them to get the prescription to me, & this last time, the "woman" who I did not know, (I called the regular lady I've talked to for all these years at her personal ext. and get a phone call back from someone I did not know who talked to me likeI was someone who was trying to "abuse" meds... it is infuriating for her to even know some of my medical issues that were none of her business. She began to speak to me as if she was my doctor! I am still furious. Those are the things more and more chronic pain patients are having to put up with even with a doctor who has treated them for years and/or the same pharmacist! It needs to be put to a halt & the "real" issues of "fake medications" are being made in Mexico and shipped over here under the names of real prescriptions here causing severe issues. there are people that have are in s much pain that suddenly get treated like this, lose their doctors, or the doctors quit treating them as always & they get so depressed they have been known to commit suicide, although that is hard to say it's true. - Here is an article by the "Pain News Network" that tells some of our story. I have lived with "chronic pain" since I was 17 years old when I suddenly even before my 1st child was born in 19799 having severe migraines. I have fought tooth and nail through every type of doctor, through every type of tests some of them multiple times, been treated like I was an "addict" & at now over 55 years old, still continue to have t at time "fight" for my own right to proper treatment.

"Pain News Network" - Articles "CDC gone WAY TOO far with quick changes of Opioid Changes",

"The American Medical Association has passed resolutions urging insurers, pharmacists, federal regulators and states to stop the "inappropriate use" of the CDC opioid guideline. Although the guideline is voluntary, many of its recommendations are being regarded as mandatory."

"The head of the AMA says the crackdown on prescription opioids has gone too far and is harming pain patients. Dr. Barbara McAneny says one of her own cancer patients tried to commit suicide after a pharmacist refused to fill his prescription for pain medication."

What about no Mention of "Kratom" n the DEA's Annual Assessment to Drug Risks?

"The FDA and DEA have warned for years that the herbal supplement kratom is risky and could lead to addiction or even death. But why is there no mention of kratom in the DEA's annual assessment of drug risks? "

And HERE is some PROMISING NEWS - You Must Read This Article!

"Experimental Gene Therapy made drastic reduction in a Dog's Chronic Pain After Being Hit by a Car" And this is a Pup That was Assisting His Human Companion Who has Seizures..."

Researchers at the University of Colorado say an experimental gene therapy significantly reduced chronic pain in dogs after one injection. Human trials on the promising treatment are now underway.

Article from Texas Man and his story about Chronic Pain

https://www.painnewsnetwork.org/stories/2018/5/9/our-government-is-murdering-its-own-citizens

I am about to start raising holy hell because I now have nothing to lose. The doctor that has been taking care of me the last 5 years is suddenly scared to death and cutting my pain meds, while my insurance is cutting my benefits and raising my deductible and co-pays.... see the rest of the story at the Pain News Network at the link above:...

Terrible and Frightening News from the Pain News Network for Chronic Pain Patients and those following Major Surgeries and More!

Pain sufferers and patient advocates are overwhelming opposed to plans by the U.S. Drug Enforcement Administration to further restrict the supply of opioid medication to punish drug makers that allow too many of their painkillers to be diverted and abused. ... news story follows down at link:...






https://www.painnewsnetwork.org/stories/2018/5/9/critics-say-dea-plan-could-worsen-opioid-shortages

(From the Pain News Network) Recent Death of a "Chronic Pain Patient" partially blamed on the DEA and their horrible outlook as far as pain patients....

This story is both sad and sickening. I've had this very conversation many times with my Mom, before she passed away.
She told me often she didn't see how I could withstand the amount of pain I put up with almost daily at times... And as I told her, it is NOT easy! You try in every way to "put it out of your mind" but there are days it can be overwhelming and here it one example of how a 41 year old Mom and beautiful young woman could no longer deal with the scope of possibly not being able to curb the severity of pain she was going through...

https://www.painnewsnetwork.org/stories/2018/4/30/death-of-pain-patient-blamed-on-dea

Pain News Netowrk and & CONGRESS, DEA and governement STILL CAUSING GRIEF TO CHRONIC PAIN PATIENTS!

ALL OF THE STORIES BELOW THROUGH THE PAIN NEWS NETWORK! BARBY INGLE ONE OF OUR HUGE VOICES FOR CHRONIC PAIN HAS PENNED ONE OF THESE ARTICLES ALONG WITH SEVERAL VERY GOOD COLUMNISTS.... STAND UP AND NOT ALLOW THIS TO HAPPEN - THIS IS INSANITY!!! THE MAJORITY OF TRUE CHRONIC PAIN PATIENTS ARE NOT "ADDICTS" AND DO NOT GET THEIR MEDICATIONS ILLEGALLY OR USE ILLEGAL DRUGS SUCH AS HEROIN!!!

 

 

 

 

 

https://www.painnewsnetwork.org/stories/2017/11/12/managing-your-emotions-while-living-with-chronic-pain

DEA Cutting Rx Opioid Supply in 2018

https://www.painnewsnetwork.org/stories/2017/11/10/dea-cutting-rx-opioid-supply-in-2018

https://www.painnewsnetwork.org/stories/2017/11/3/fda-may-require-opioids-be-packaged-in-blister-packs

https://www.painnewsnetwork.org/stories/2017/11/6/3-reasons-the-opioid-crisis-is-getting-worse

Pain News Network Articles and Information

NO "Epidemic" of Overdoses.... see the article below... great example and reasoning...


http://www.painnewsnetwork.org/stories/2015/6/12/there-is-no-epidemic-of-painkiller-overdoses#.Vp5PM_Y_Lh8.facebook=

here is another article from The Pain News Network talking about "urine tests"... and I agree they add 100's of dollars to a patients bill, and many of the times patients take them, due to metabolism, or NOT DOING the correct TEST (which I know for a fact had happened to a friend of mine) those "pee" tests can be NOT right! I usually wonder why the hell they bother giving me one... my pain pump gives me medications all the time, I take pain pills along with the medication in the pump, plus muscle relaxers, diazepam.... and so forth. I certainly do not NEED anything else, and would not dare even drink since now the pump is in (new new one and running) and I am almost back up to my dose before it had a motor stall. So, I know they check to make sure you are "taking" the medications... and of course if you have other substances that should NOT be in your system... the "reasons" somewhat make sense... BUT as I said, there are some of these medications that WILL NOT SHOW properly if they don't do a "special" test at the lab they are sent to. I can relate to the story in another article about the young woman who "fears" her appts at her pain doctor's. It used to be that way for me... and still is at times... we have such a horrible time getting the medication that goes into my pump.. and it is NOT expensive... that is the weird thing... it is actually much less expensive that most oral medications. But, you always go in with the fear that you won't get your medications, or something has changed (like now my pain doctor has a new rule you must have your medications in a "lock box" or safe" ) Which is a very good idea, if you have anyone else in your home... or have company over etc. But, I am not sure where a man standing in the waiting room got this idea, but he was asking about the lock box, and he was under the impression he needed to have his wife take a photo of her and the lock box and bring to the doctors office for her chart... I did NOT read it like that... but did understand the doctors are trying to get the CDC off their backs, so they TELL patients that, so patients are more aware of "protecting" their medications. NOT leaving them out for anyone else to get hold of... and keeping them in a safe place, especially as I said, if you have others in your home or people that visit, it is a good idea to lock your meds up. One time years back, I had a medication that was a nasal spray for migraines. I had picked up a brand new bottle from the pharmacy, but it was one of those HOT TX SUMMER days... and I guess I did it at lunch time and left it in my car by accident when I went back to work... Well the entire bottle, "siphoned" it's way out of the container, and into the other bottle it was in... plus it was such a tiny amount of liquid it has almost already vaporized by that evening when I got home... I had mortal HELL getting a replacement. I mean it was evident, when I took the bottle in and showed my doctor, then the pharmacist what had happened... but believe me, after that, I was much more careful about where I left my medications. I am so diligent about where my scripts go, that I take them to the pharmacy immediately, and if I don't need them that day, have them on hold for when I do... that way, I don't misplace it and have hell... no matter whether a pain medication or whatever type of medication it is... I try to turn those scripts in immediately. Plus my pain medications are from a specialty pharmacy... so I don't do anything but request my meds when they are due from my doctor, and they take care of the rest. There are times though that they "delay" getting the script to the pharmacy, and I am on pins and needles, if I happen to be running low of meds... so I totally relate to sometimes being "fearful" of seeing your pain specialist...


http://www.painnewsnetwork.org/stories?category=Opinion

Above is a link to another article "Why I am Afraid of going to my Pain Doctor Appts"


http://www.painnewsnetwork.org/stories/2015/9/20/cdc-opioid-guidelines-would-institutionalize-malpractice#at_pco=smlrebh-1.0&at_si=569e5754f5ee1daa&at_ab=per-2&at_pos=0&at_tot=5