Saturday, February 2, 2013

To Dad on what would be His 90th Birthday today!

For my Dad, He would have been 90 years old tomorrow, on Groundhog Day! We lost him in 2005, and I miss him everyday. Dad, I hope you are fishing, drinking coffee with the other guys up there with you that are your dear friends also, including Uncle Joe who is with you also now. I bet you are telling deer hunting stories and talking about those huge rack of horns on some of them! :) I know that you know how much we all love and miss you... Happy #90, where age is not a thing but possibly just a number...


He was a good man, and an awesome Dad! I was always proud (even though he was extremely strict at times) to be his daughter. I realize there are some things that happened later in life, that he may have been disappointed in me. But, there were things he went to his grave not knowing that happened at that time in my life, that I never told him. He was already not that well, and I just felt it was better for him not to deal with some of what was happening in my life at the time. But, I do know now, he does know it all, and I am positive he is glad that I did the things I did then. I love you, Dad Happy Birthday!

Battling and Trying to "Slay the Dragon" - Lupus and its complications.... Life, Super Bowl Etc...

Well, of course things for me are always complicated. I have already posted about the flu bug, and then I have a Lupus flare with it. I guess since I had both, they really took me down. I have been fighting now for weeks with one or both at a time. I know that I have been over the flu now for at least two weeks, yet I am still in severe aching pain, especially my lower back, and down my legs, plus a severe Lupus headache that decided not to go away, chills, and just the entire gamut of crappy symptoms with a flare. I was trying to hold off going to the doctor thinking I would get it fought off myself, BUT I had to go in yesterday. I was just feeling worse instead of any better, so I went in to see one of the PA's. Dammit I actually have an appt with my doctor next week, but they moved it from Monday to Wednesday and with it a weekend, I did not want to take a chance of being worse. Well, as I kind of suspected, I do have a kidney infection, which explains the severe side, flank, and lower back pain being so bad even with all of my pain meds. Plus the chills, fatigue etc... all go along with that on top of the flare. I kind of thought I may have a kidney stone or stones, and I am still thinking that could be the case, which would cause the more severe pain plus the infection. So, now I am praying that if so, I can pour enough fluids down myself and take the antibiotics and get it flushed out myself. Going to the ER, having to be put on a rapid running IV and them trying to flush it is just a pain in the butt in all ways. Plus they will do a CT to find it or them, and etc and so forth, so I DO NOT want to go there at all. And of course the flare meant a huge shot of Solu-Medrol, plus a course of 14 days of the high powered doses of Prednisone, which suck. I am already having one hell of a time for some reason fighting to keep weight off. I have not had problems since I was about 21, but for some reason, even though I exercise DAILY, plus watch every calorie, and so forth, it seems I am inching up a pound every so often, which sucks, because rather than them coming off, they seem to be sticking to my butt!! I am so depressed about it, and am even going to try the NO Wheat, get rid of the gluten diet thing, or try it for the most part to see if that will help. We are trying to eat earlier in the evening, and also breakfast earlier, stay up a little later, and I am even doing some of my exercising (extra for my regular ones) at night. I am going to talk to my doctor next week, because I know of course the illnesses, and the medications, especially Prednisone are notorious for this issue. But, then yesterday and this morning, I have had the worse case of feeling really shaking, and Jim even could "see" it in me, and feeling a different type of weakness, and with all of the other issues, I am a prime candidate for Diabetes 2. I became "pre-diabetic" several years back, but with all of my watching what I eat and exercise that has never been an issue since then. NOW I fear with the long term prednisone, plus the Lupus, and so forth, that may explain many of my symptoms including the weight issue. So, I faced that this morning and took my blood sugar, and it was well over "normal". NOT serious, but way over normal enough to be considered diabetes if it continued that way. Anyway, please keep me in your thoughts and prayers. Of all things I DO NOT need anything else to deal with as far as a chronic illness. But, I know me, and I am COMPLICATED as all of my doctors put it.
P.S. a story of mine... included about one of my serious mistakes at 21, that taught me a huge lesson... I hope it helps someone else to try and not make a terrible mistake...


Hope all of you enjoy your weekend, and hope if you are having a Super Bowl party you have a great time.. be careful and please don't drive if you drink... let someone who is not drinking take you where you need to go or stay where you are till the next morning. It is just not worth what could happen.... I know we think we are invincible, especially when we are younger, but hey at 21, I stupidly drove after a couple of drinks, got stopped for a tail light issue, my very first every stop, and they arrested me for "drunk Driving"... I spent 2 YEARS, YES 2 on PROBATION and I had never even has a ticket or been stopped in my life!!! So, it can happen, and now things are much worse, plus I also could have hurt myself or someone doing that, and it taught me a huge lesson!!! I NEVER AGAIN drank and drove!! It only took ONE TIME for me to learn that one... I was scared, humiliated, had to call my ex father in law to bail me out, because I was too upset and embarrassed to call my Dad, then I had to go tell them the next morning... Honestly, Dad was awesome, he did not gripe at me and in fact he went with me to the court in front of the judge, and helped me pay my fine... but he admitted it could have been him in his younger days many times... and as I said, between the scared, the embarrassment, the humiliation, etc... it only took once... so there is my story, the truth, and I am sticking to it.. Happy Weekend to All, Rhia

Sunday, January 27, 2013

Pieces of Me

As I wrote this, and it is really for my upcoming 2nd Poetry and Prose book, I had promised myself not to start "sharing" my work here or on FB, that I am going to put into the book. I don't want to get started doing that, then everyone will know well before the book, what is inside of it. LOL, stupid thing for a writer to do, especially if I want to sell even ONE book! Of course it is NOT about the sales, but being able to "touch" my readers and bring them to a place they can feel.... it all! So, here it is,



Pieces of Me

Pieces of me linger today, in the basking essence of the beauty of rays of sunlight upon my skin. There is a glow surrounding me today, I observe the pieces of my heart, pulling together, and becoming whole...I have kept pieces of me hidden away, locked behind a closed door, for fear of being exposed again, raw and naked to love's call. Yet, I often "hear" it and try not to "fear" it, for I know the passions that lie within and without. I seem to be in another realm, spaces in between, life and love...the shades of grey, that only lover's know...fill and outpour over me. I find myself, longing just once more to give of my heart, and wonder where the path shall lead? Do I dare explain my soul, do I dare expose the unbridled passions, and take the plunge as before? ‘Tis always been my nature, to dive into the rushing rapture; falling head first off the cliff, to allow my love to be in full view. Yet I held those pieces back...this time, trying to find a new way, trying to be more cautious, trying to allow it all to just happen; yet I throw caution to the wind. I have jumped off a final time, to take the chance...of life's dance.
Passion, and pain, eroticism, and ecstasy, glory, and honor! All surrounding me, and I linger today. I feel the pieces of me come together, where heart's bind, bodies intertwine. I know that fall far too well!

I feel it rush through my veins!
Plunge into the passionate realms....
Allow your spirit to be set free,
No chains, yet velveteen binds....
Experience a heart as no other,
Sustained by the glow....
To know of the heart, is to know wisdom and grace.
I find that you are a sweet addiction,
One quick shot throughout my veins!
This is where your will shall reign,
In the deepest pit within my heart.
I stand "fearless" in this fall,
I succumb to where we "mesh;
heart, mind, body and spirit.
A temptation too great,
I could not withstand the heeds of warning from my heart,
So I just allow it all to unfold.
Unveil itself in front of my eyes, and then there I will embrace the passion!
I have given over to holding back; to resound, to resonate. In all of your stupendous charms, my heart is of yours for the taking....
Carry it gently.                            

Rhia Steele  copyright 1/2013

Saturday, January 26, 2013

Battling The "Wolf" - Slaying the Symptoms & Fighting the Good Fight of Life

This morning, as many, I am torn. Torn between this... and that. Torn between working on my poetry book (Tattered Musings) The 2nd one I want to have ready to publish in a couple of months, and my book "Reaching Beyond". I am torn between being here to write, and make sure I keep in touch with my fans, which of course I am not sure even how many read my blog. I donn't have many that post, thus I really can't guess at the amount of those that actually follow along. I have quite a few followers on Facebook, and they certainly know about my blog, but whether they take time to come here to read what I have written is not something I usually think about.
I don't get all wrapped up in numbers, and I am certainly not standing in the vanity of worry that I need more people here to read, or I am not famous, or I am not reaching out to enough of an audience. As one of the partial old sayings go, "Write, and They Shall Come".
As one of my own sayings goes, "Do NOTHING, and NOTHING gets done". So, rather than sit around worrying, because sitting around worrying, also GETS nothing done! If I have learned anything from life in my 5 decades plus a couple of years here, worry gets you no where. I told my Mom just this week that I could help her figure out if all that she worries about is worth it or not.
I said "Mom, if you pick something you are concerned about or really sitting around worrying about, say to yourself, Is there anything I can do, to "fix" the issue? If you can't do one thing to fix what you are so worried about, then it is absolutely futile to make yourself ill over being so overly concerned. As I told her for example, I could sit around and "worry" as often she does about my "illness". I could make myself even more ill by constantly stressing over it. Where would that get me? I cannot "fix" what is wrong with me. I can "do" the things I am supposed to, like take my medications, watch my diet, exercise, take care of myself, etc. BUT me being so concerned that I literally am that frightened about it, does nothing. I cannot make Lupus or RA go away. I cannot do anymore than what I am doing for now. Thus to worry does nothing, but waste time. energy, and puts undue stress on me that could make me more ill. I could worry about whether a car will run over me tomorrow, or that Jupiter will fall out of the sky, or that the stock market will crash next month, and the what ifs' can build on forever into an eternity.
Maybe life comes full circle with "worry" like other things do. We come full circle from being a child, to a young adult, to an adult, to elderly, and then many of us come back to almost a "child-like" stage as we get to be very elderly. We get stubborn and bull headed, we become at a stage that we decide not to eat certain things, or throw "temper tantrums", or just turn back to the things we did as children. So, life as that goes comes so often full circle. So, it seems worry and concern does also. When we are children and young, we have no worries. We are not concerned about anything. We live in this absolute faith that life is life, it is beautiful, nothing goes wrong, and it will be fixed by Mom and Dad if it does. Then we become teenagers, and worry kind of sets in. Worry about prom-dresses, and the cheerleader squad. Worry about dating, and whether a certain person would like to go out with us. Worry about getting our driver's license or our first car. Then onto worry about larger things such as finishing our education, what we want to do with our lives, and higher education, such as what college we want to go to. Then we get into college, and all too often, rather than get more "concerned", we tend to go into this place of "party". We are out of Mom's and Dad's sight. We are "on our own" and "grown" (or so we think). We tend to let our guards down on the worrying part of life, and just enjoy our "youth" again. We wax and wane throughout our lives in the realms of being overly concerned, down right worried, and almost out of control with the insanity of "fixing" everything. So, as time comes to graduate, and get a job, here comes the worry train again. All too often we climb on board it, and here we go. We are worried about the biggest home we can get to impress everyone, whether we have the latest car, the best design in furniture, clothing, shoes, and the best manicured finger nails, toe nails and lawn! Then comes a few years of dating, and we may again let our guard down, enjoy that last few years of "freedom", date as we want, spend too much money, and then that "right" person appears out of the blue, clear sky, and Voila', we are worrying about the PERFECT WEDDING, the perfect Honeymoon, and a better job, a larger home, because kids shall be on their way soon. Some of us I have noticed have chosen to wait longer with marriage and kids. For many of us we do establish a job, get a home, have our "dream" car, etc. and wait until even our 30's before we "settle in and settle down" with a partner for life. We have kids later now, rather than in our early twenties. Which depending on your personal preference and situation can work out either way. Personally, I am happy I chose to have my kids earlier in life. It seems I can relate to them better now that they are young adults. We seem to be closer in many ways, since the "age" gap is not so far away. Since this world changes so quickly now, the longer you wait the more it has changed, and it seems the further that generation gap gets between your kids and you. I saw that with my on Dad, who was in his mid-thirties when I was born. Things in life has changed so much, from him seeing a portion o the depression, and women never working, to when I was a young adult women go to college, work, and juggle family, a marriage and a household all at the same time. He never understood that. He never "got" why I wanted to go to college. He never understood many of the things I wanted to do or did in my adult life. But, we were from almost two different planets because his life was so totally different than the time that I was born and growing up.
So, then we worry through our middle aged years about jobs, finances, homes, cars, bills, feeding kids, putting them through college, retirement funds, income taxes, and you name it. We concern ourselves with all kinds of things we "can" d something about, and then there are all the others that we still worry about, and honestly there is not one thing we can do about it. We cannot stop the sun from falling out of the sky. We cannot overly concern ourselves about our grown children. That is a huge one for me. Once my kids we "adults", and chose to live not with me, and they were of age, then even though I do of course want them to be happy and safe, and well etc., I am NOT going to worry every day whether they are going to drink a beer, or get a tattoo, or fall in the yard, or raise their own kids right! I can give them advice, if they want it. I can pray that they have the guidance they need from the Lord above, but me worrying a bout foolish things like whether they need that new car, or need to go on a 2 week vacation, or whether they change jobs, and so forth, there are a million things that I just cannot do one thing about, so why worry?
Then we begin to get to that "half-century" mark. Either we are married or alone, widowed or divorced, or happily still married to the love of our life. Which ever it is, we begin to have "concerns". We are concerned about bills, retirement , money, and health. We start to have new aches and pains, our bones creak, we may have some minor health issues like high blood pressure pop up, so then we begin to be overly worried about health matters. Believe me, if you watch day time television like my Mom does, hell they will have you in the grave by the time you are 55 with all they can find to say is wrong. Or they say they can "cure" you from every thing that is wrong with you, by a few drops of some "liquid" miracle medication.The ones that really drive me nuts are all of these "1 minute miracle" cures, that can take an "80 year old elderly lady" and make here look 40 years old in a minute. Wow, reckon how many women and men have jumped on that bandwagon and spent a small fortune on the stuff? You can bet one in about 4 that see the ads, will pay those 4 payments of only $24.95 to find out that is absolutely see that there is NO WAY, no how. Don't get me wrong, I do believe if you begin at an early age, taking good care of your skin, keeping it up through the years, then yes I think you certainly can have a much younger looking, more youthful appearance as far as skin goes. Eating right, hydrating right, staying out of the sun without protection, all of those things add up to usually a more youthful appearance. BUT thinking some miracle ointment you buy and use after using it once or twice, yet not taking care of your self the entire time of your earlier life, you are nuts if you feel any of those treatments really work.
We are thrown into all of these things from news, to magazines, to TV "tele-mericals, or "info-mericials", whatever you may want to call them, on everything from "soup to nuts" as the old saying goes. So, once again, somewhere, somehow, some stranger, gets into our "door" and into our "heads" making us even more stressed out about appearance, about health, and about all of the health and body issues each and every person on this Earth knows that someday, we are going to age, we are going to wear out some of our parts, and either have them replaced, put up with them aching and hurting, or pray something new and less invasive comes along the lines of being better, quicker and easier for us to be less pain free, have less aches, or worn out joints, and find a way to make our older lives more comfortable to live with.
So, is the "journey" from birth, to toddler, to young child, to preteen and teen. Then comes young adult, adult, middle age, older age, elderly, and to me, now even more than "elderly", that age that is beyond those elderly years more often now, when other things such as Alzheimer's, dementia, or a combination of those hit us, and we maybe in many ways still productive, but we go past that to almost as I said in the beginning of this "child like".... coming full circle. from the first moment we take a breath... until that very last moment, we take that very final breath...As I look back at my younger years, and great memories, I also have fond memories of my current life, and I am so glad that even though I suffer much chronic illness and pain, I have and am blessed with many fond happenings, people and memories throughout my life times.
I look forward to the years ahead and pray the "foggy" portions of the Lupus hold off so I can continue to write, which is the number 1 thing I love to do.

So, as you contemplate over your life, memories, and times to make new ones as they come,  I pray you also find many realms of happiness, strength, joy, and the omnipresence of what true life, without real fear is all about.

Friday, January 18, 2013

LIFE- "Flu" Interrupted!

Can you ever say that one again! LIFE! Surely comes to a complete and quick halt if you become emerged in this latest "flu bug". I cannot remember in the past decade of my life, other than having double pneumonia when something like an illness knocked me on my butt for 10 days or more, but this one certainly has. I am still reeling from the damned thing, honestly NOT feeling normal" at all even yet. Today, after fighting with extreme fatigue, total lethargy, no appetite (well more like everything tastes like cardboard), and the worst aches and pains other than my RA, and chronic pains than I have dealt with in my life. I vaguely remember having a bad case of the flu about 15 or so years ago that sent me to the ER directly from my job, of which I was ill for 3 weeks. I actually lost that job because of it being a "retail women's clothing store", it was right after Christmas when the Huge New Years Sale was going on and I, the manager was out almost all of the big sale sick as a dog.
I believe this one may have topped it. I had some nausea, and I really never ran much of a fever, but I did for a couple of days have chills, where I just could not get warm. But, it is (and I am yes still is) the severely painful almost like leg cramps, lower back pains that I thought maybe kidney stones they have hurt so badly, and my neck, shoulders, back, even the bottoms of my feet hurt, much like when you have a flare with Lupus or RA.
Of course it could be that I do have a mixed situation here, and do have a flare of Lupus to top it off. That might explain the lingering severe bone aches, and the type of tiredness that will not even allow you to drag yourself to the shower, bathroom, or kitchen for a drink, barely. I am NOT one to ask for help, unless I have had a surgery that incapacitates me, but this certainly did that. It is crazy.

My daughter called and her two youngest have had it, but they ran fever, and hardly had no other symptoms but it was the flu. Her husband who is NEVER ill, it put him to bed, like me, for 7 or more days, and he was still not at his best even after that. I really never had any "cold like" symptoms, no cough, no other signs or symptoms, mainly pain and fatigue. I did have severe headaches several times, but I had so much aspirin flowing through me for the body aches that the headaches never lasted very long. I am most sure that I picked up the "bug" from my Uncle Joe's funeral. Of course here it is the middle of flu season, and you are hugging on people you have not seen in a while, and most assuredly being a funeral people do come sick or not at times. So, even if they have no symptoms, they could still be carrying the germs around, and passing them on to you. I was also shocked to find out that some of the flu virus can stay alive something lie 8 HOURS after leaving the body! That means if a phone, a desk, a cabinet, a sink, a doorknob, just about any and everything we touch inside or outside of our homes, can be a potential "carrier" if someone ill has touched it! Also, and I have witnessed this, when someone's sneezes, it goes it looks like for yards and yards! I watched as my dog sneezed in the sunlight one day, and it spread for what looked like the size of a sofa or larger right away. So, if someone fairly close either coughs or sneezes droplets are in the air for a long way from you. W do not realize things like that, yet then when we get ill, and really do not think we were around anyone that was ill, how we got the germs. Well, even if it takes a few days to show symptoms, yet you are already contagious, think about people you see rarely in the store, shake their hands and not see them again for months. They could be ill, or possibly you are carrying it, and one of you does not know that in a few days one or both of you may be ill. So, that explains why thing spread so quickly. Especially an illness that can spread like this so easily just by being in the air, or on things you use daily. OF course getting immunized annually, getting immunized every 5 years for pneumonia, and taking any other immunizations that your health provider may suggest if your best protection from either getting ill, or having it as badly as you could have. A very mild two or three day "version" is much better than a version that puts your butt on the sofa and in the bed for 2 weeks or more. As I said, I still honestly do not even feel like sitting here for very long at a time. The aches and pains are still coming and going some, although not nearly as intense as 10 days ago, and the fatigue is also still with me, and it is not quite as earth shatteringly tiring as at first. That is another thing and maybe it is just me. When I get this type of fatigue, I am not necessarily "sleepy", when I say fatigued or tired. I am severely bodily fatigued, like I feel as if my legs weigh a ton, but generally I am NOT really sleepy! So, then you get even for me sick of watching movies that you have seen, and to hell with regular daytime television, IT all sucks! So, I shall close for now, with a couple of things. First of all, try to STAY AWAY from this FLU mess!!!! it is one heck of a not nice illness! Secondly, if you or someone you love does get this crap, be PATIENT with them! IF they are still sick in 4 or 5 days, believe me, they are probably still feeling like hell. And even after they are up and about after 10 days, they still feel like warmed over crap. So, give yourself, or those close to you a break. Go get the flu shots!!! It is NOT too Late!!!!!