"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
Saturday, February 22, 2020
Insanity with Chronic Pain Dr., MORE Crazy w/Rheumy's NP & TRAFFIC Beyond NUTS in Dallas!!!!
NEVER again will I allowANY of the Dr's I see in Dallas, talk me into driving LATE afternoon RUSH HOUR in the POURING "Cats and DOGS"RAIN! Not when just about EVERY DRIVER DOES not CARE if they RUN OVER You OR not!!!!
PLUS I have been going to the couple of"specialists" up there for 10 years & they ALL knowI have to make a 40 plus mile commune one-way and then back!!! Then when they "delay"you because they make a mistake, that you have to go BACK into the office, & "question" the doctor, (by the way good thing I did" I was CORRECT! Had I NOT "checked" I would have been in a world of severe pain till at least this coming Monday, and this way LAST Wednesday! Plus they also knew I was on a Schedule" due to trying to get two doctors visits done on that day. I DID NOT want to have to drive home, then GO BACK again in a few days! The driving on dry pavement is bad enough, but having to be in the car in stop & go rainy, wrecks, & road construction, at 5:00PM in Dallas on I-35 and I-45, just is enough to make you hurt for days....
To top it off, my Rheumy's NP is nuts.. she wanted me to walk over to another building (this is at like almost 5PM) to get my hands X-rayed & Labs done, which I have done here in town usually...plus NO WAY was I saying till Lord knows when in the pitch dark, that I don't drive well in due to the headlights anyway... I tried to TELL her but she is too busy "typing" on her computer to even LISTEN to me, sitting 10 feet away in the room! She will NOT speak up, I cannot understand her & I kept asking her to "speak up" and sh jut "mumbles"....
So, then I finally get out of the "pits of hell in Dallas Traffic" have to stop & get myself & the pups some dinner... & by the way I got home (which I did NOT expect" to be gone over 10 hours or so.. I still had to change clothes, put stuff away & try to settle all 3 of us down, so we could eat...
NOW I still think my doctor (Pain Doctor) is mistaken, but the way I need to explain it will be difficult on the phone, so I HOPE the email address I have for his Business Office & Patient Manager (who is awesome) works... MOST Dr's now days have "portals" & out of all them he does not.
Thens the NP at my Rheumy's Office wanted me to see a "Dermatologist" cause this is probably Psoriatic Arthritis - the BAD thing is when I showed her the places, she asked me "Do you have Psoriatic Arthritis?" I was like WHAT!!!???That is what I am ASKING YOU?!! I wanted to shake her... that chart of mine and ALL of the updates.. by now SHE should have KNOWN I was asking about a NEW SYMPTOM and ILLNESS!? Not having to tell her what I had.... I asked her since it is a form of Arthritis, why do I have to see a Dermatologist? Of courseI have the plaque's & trouble with my scalp, BUT I did not know that the RHEUMY would not handle it all! Which I'll be darned if I find one in Dallas..like she wanted.. We have one right here I found, that I believe tales my insurance, had his "bio" etc... he shows to be extremely good.
So here we go again, with a new doctor, like I did not have enough.. and I am NOT going back to Dallas for Labs & X-rays on my hands when they can do that here!
Friday, February 14, 2020
Happy Valentine's Day! Hope pain stays at bay & illness..so you can all enjoy it!
Happy Valentine's Day to all of my friends!
A Very Happy Valentine Day to each of my Dear Friends! I hope joy, laughter, love & LOTS of Cakes, Chocolates, Covered Strawberries, and a beautiful also fort all with sweethearts, may romance fill your days ahead!
After my Mom making many many "heart shaped red velvet cakes each year for my b'day tomorrow...of course she can't any longer..so yesterday when I went to get groceries, there was these tiny heart shaped cakes for Valentine
day.. When I went to loo at them the did have a"red velvet one" -- so I now after missing a couple of years I have one! LOL!!! not as good as Mom's but is a remembrance of MOM & HER MAKING
IT ESPECIALLY FOR ME.. JUST ONE OF MANY
THIS WEATHER REMINDS ME OF THE DAY I WAS BORN... Dad said he went at lunch time home to check on Mom because I was due at any time.. he said he went in & she was still in bed? He asked her if she isn't feeling well.. and she turned and looked at him, sayingI HURT! Dad was a bit hasty in telling her you have to get up, you are in labor! She said she couldn't& he told her YES YOU CAN, the baby is coming!!! So he got her in the car , they had to stop & pick up my Granny Svehlak ... then Dad saw he needed gas, since he had to go to Corsicana..and back then cars didn't run as fast and the speed limit was MUCH lower... so by the time he finally got to the hospital about 25 miles away, I think I was almost there!...I was born I think around 3 or 4i n the afternoon, and the weather was icy, snowy & very cold! Anyway at the time the waiting room for the Dad's Had a "pink" light on one side & a blue light on the opposite side. Dad did not know, so he was getting nervous & the nurse came out to tell him then"pink" light was on & he had a healthy baby girl!!!! I can recall Dad telling that story so many times and it always was too cute to hear him tell it!
May all of you enjoy a day filled with happiness and joy... and may pain stay at bay.. and illness give you a break!
Thinking of my friends & Wishing everyone Love in your life today and all the days to come!!!!
Saturday, February 1, 2020
To My Beloved Dad.. Happy Birthday on Groundhog Day Dad!
This was the last photo and last time I got to see him in 2004... I came down from Seattle for my daughters wedding to Corpus.... and then drove for a few hours trip all the way to Ennis to see my parents before going back to San Antonio to fly back to Seattle...
I was glad I made that trip. He passed away 2005 on Easter Sunday after a knee replacement got severely infected...
He would be 97 years old tomorrow....
I was glad I made that trip. He passed away 2005 on Easter Sunday after a knee replacement got severely infected...
He would be 97 years old tomorrow....
Sunday, January 26, 2020
Septic Arthritis & Difficulty getting the right diagnosis
Septic Arthritis & Difficulty getting the right diagnosis
POSTED ON (I "redacted" bits of this due to so many issues with doctors, the medical field in general & the many malpractice suits whether true or not, there are many)... so I will just put the link to the page I got this from & the story is also posted in my Today's Newspaper... Link*****Link to my paper : https://www.autoimmunearthriticsystemiclife.com/*****Link to article: & I remain "neutral" due o the nature of the subject and because I had "Septic Arthritis) although after seeing 3 doctors they really never "agreed" as far as the real diagnosis - the symptoms can be signs of several diseases... it took me about 3 months to really get clear of it - and at least 6 rounds of antibiotics to feel "safe" it was gone...)You trust your doctor to either know how to diagnose and treat your medical condition or at the very least, to understand when to refer you to someone with the expertise to handle your case, especially in the case of infections. Septic arthritis is one such serious infectious condition that, if not diagnosed and treated quickly, can lead to permanently damaged joints and other serious complications. When a doctor or another medical provider fails to appropriately diagnose or manage septic arthritis, the consequences for your health can be severe. If this occurs and you are wondering what options you may have to hold them accountable, the next thing to do is seek knowledgeable legal counsel.What is Septic Arthritis?Septic arthritis, or infectious arthritis, is a joint infection, commonly found in the knees but can also occur in the hips, shoulders and other joints. It is characterized by swollen, intensely painful joints with redness, warmth and stiffness, accompanied by chills and fever. The condition can present in a similar manner to other conditions, for example, rheumatoid arthritis or staph infection. If left untreated, the cartilage and bone within the joint degenerates and can be permanently damaged within mere days. In some cases of septic arthritis, the affected limb must be amputated. With the dangerous nature of this condition, prompt treatment is essential.What Causes Septic Arthritis?Septic arthritis is caused by a bacteria, virus or fungus, typically staphylococcus aureus infection, but also a urinary tract or skin infection. 91% of septic arthritis cases stem from staphylococcus or streptococcus bacteria. Among younger sexually active adults, gonorrhea is the most common disease that passes the infection from one person to another. Germs migrate through the bloodstream from one part of the body to another or go directly into the joints through an injury, injection or open wound caused by a penetrating object, such as an animal bite or surgery.Ordinarily, your joints can protect against infection naturally, but the body’s reaction to infection causes inflammation that increases pressure and reduces blood flow in the joint, causing damage. The increased use of prosthetic joints in recent history has increased the rate of infectious arthritis. Approximately 20,000 people suffer from the condition in the U.S. annually. Tragically, 11% of those afflicted with septic arthritis die. Communicable infections, like staph infections, create conditions favorable to septic arthritis and can be contagious if a person is exposed in a non-sterile environment.Septic arthritis largely affects infants and older people aged 65-plus, as well as those with existing joint problems. Some of the primary risk factors for septic arthritis include:
- Osteoarthritis
- Gout
- Lupus
- Rheumatoid arthritis
- Weak immune systems
- Artificial joints
- Previous joint surgery or injury
- Skin conditions such as eczema or psoriasis
- Open wounds
- Chronic immune-suppressing conditions like diabetes, kidney, and liver disease
- Joint trauma
- Septic arthritis Background, Medscape
- Septic Arthritis Overview, MayoClinic
- Management of septic arthritis: a systematic review, Annals of the Rheumatic Diseases
- Evaluation and Management of Septic Arthritis and its Mimics in the Emergency Department, The Western Journal of Emergency Medicine
LINK to this article: https://www.fronzutolaw.com/articles/malpractice-with-septic-arthritis/
Friday, January 17, 2020
Friday's addn of my Daily Newspaper, Health, RA, Lupus, Chronic Pain and more!
Friday's addn of my Daily Newspaper, Health, RA, Lupus, Chronic Pain and more!
http://news.autoimmunearthriticsystemiclife.com/#/signin
Wednesday, January 8, 2020
Tuesday, December 24, 2019
Texas Weather & Talk About Effecting Our Joints and Bodies!!
Friday, December 20, 2019
A Beautiful Christmas Song and Versus
May Your Heart Be Filled with Joy as you see and Hear this....
https://www.123greetings.com/events/christmas/spirit_of_christmas/christmas_prayer_a_christmas.html?fbclid=IwAR1N1YRUwzfZB-avG2_1d7vK_KcQ7NXByGDs62EHNjY9mZU4kAjNelo5kUw
After watching this, is spoke just what my own heart has been wanting to say, we need peace not chaos, joy not sorrow, love not hatred, forgiveness not bitterness, hope in our hearts, the joy of others watching them have joy themselves & try our best to rid our own piece of the nation from the violence we see all around.
If our hearts and minds are in the proper place and we reach with a kind hand, hopefully that gesture is passed to others. We need "healing" at all the corners of the world, learning to be more "tolerant" and patient, rather than be in such a hurry, or have so much going, that e forget all of us are humans. We make mistakes, & allowing pride to not show as much, and letting humility and humanity shine.
Think of Jesus, in a small manger on a bed to hay. He did have the 3 wisemen bring him the special oils, yet there were not "400.00 strollers, or baby food out of a jar, or gifts like cell phone, games on a colored TV, and He was satisfied with the love He could give to others. May we all have a bit of that in our hearts this season, and in the years and seasons to come.
Thursday, December 12, 2019
"Valley Fever" fungal infection often misdiagnosed.. info on Barby
"Valley Fever" fungal infection often misdiagnosed.. info on Barby Ingle
This is an entire website about this & it has been bad in CA & several other places this last several months
This is certainly an infection that can often cause severe problems, especially in those of us with a compromised immune system.
Keep Barby & her family in your thoughts and prayers...
Tuesday, December 10, 2019
I-Pain Send in your submission to possibly get an article in the iPain Living Magazine!
I-Pain Send in your submission
We are accepting submissions for iPain Living Magazine 2020 - Summer & Fall Eds. Submit articles for consideration to media@internationalpain.org 700-1000 words - Magazine Ads contact media@internationalpain.org #iPainLiving
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I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things abo...
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How can our kids feel safe when WE as adults don't???? I fear Wal-Mart or just walking across the parking lot at HEB in my small lo...
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I finally made a trip to Urgent Care with what I feel is a very bad Lupus and RA flare, but there are several "symptoms" strange t...