"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
Tuesday, December 24, 2019
Friday, December 20, 2019
A Beautiful Christmas Song and Versus
May Your Heart Be Filled with Joy as you see and Hear this....
https://www.123greetings.com/events/christmas/spirit_of_christmas/christmas_prayer_a_christmas.html?fbclid=IwAR1N1YRUwzfZB-avG2_1d7vK_KcQ7NXByGDs62EHNjY9mZU4kAjNelo5kUw
After watching this, is spoke just what my own heart has been wanting to say, we need peace not chaos, joy not sorrow, love not hatred, forgiveness not bitterness, hope in our hearts, the joy of others watching them have joy themselves & try our best to rid our own piece of the nation from the violence we see all around.
If our hearts and minds are in the proper place and we reach with a kind hand, hopefully that gesture is passed to others. We need "healing" at all the corners of the world, learning to be more "tolerant" and patient, rather than be in such a hurry, or have so much going, that e forget all of us are humans. We make mistakes, & allowing pride to not show as much, and letting humility and humanity shine.
Think of Jesus, in a small manger on a bed to hay. He did have the 3 wisemen bring him the special oils, yet there were not "400.00 strollers, or baby food out of a jar, or gifts like cell phone, games on a colored TV, and He was satisfied with the love He could give to others. May we all have a bit of that in our hearts this season, and in the years and seasons to come.
Thursday, December 12, 2019
"Valley Fever" fungal infection often misdiagnosed.. info on Barby
"Valley Fever" fungal infection often misdiagnosed.. info on Barby Ingle
This is an entire website about this & it has been bad in CA & several other places this last several months
This is certainly an infection that can often cause severe problems, especially in those of us with a compromised immune system.
Keep Barby & her family in your thoughts and prayers...
Tuesday, December 10, 2019
I-Pain Send in your submission to possibly get an article in the iPain Living Magazine!
I-Pain Send in your submission
We are accepting submissions for iPain Living Magazine 2020 - Summer & Fall Eds. Submit articles for consideration to media@internationalpain.org 700-1000 words - Magazine Ads contact media@internationalpain.org #iPainLiving
Sunday, December 8, 2019
New Flu Treatment Approved, RA Doctors how many have you seen?
FDA approves new drug to treat influenza
https://www.fda.gov/news-events/press-announcements/fda-approves-new-drug-treat-influenza
On the "average" how many Rheumatologists have you seen before you found one that was "okay" as far as treatment, diagnosis and so forth?
I FINALLY did get to the RA's Office on Friday. Of course I rarely see him & have to see his NP or PA (actually I am not sure which one she is). I believe she is in school to finish up the PA License. Anyway, I had to go over the entire story starting from about the end of May or so, till the pacemaker finally. Actually I had filled all of that out & more earlier that week before going to the office SOnI would NOT have to spend 45 minutes telling it again. Alas, if it had been my DOCTOR, he would have read it all, and knew exactly what had been happening with me. He always is on top of everything when I can see him. I told herI already had labs done (including everything there is I think) about 8 weeks ago for the pacemaker. I also told her from now on send my "lab request with me, I will have them done here at my PCP Office. At SW in Dallas, they CHARGE separately for labs & last time they did not tell me they changed that so it cost me the co-pay and then another 70.00 for "my part of the labs).. when I asked why it changed the lady on the phone said the doctors "lease" the offices, so that is separate now from the clinic! BULL! My RA Physician TEACHES, DOES CLINICAL ROTATION, DOES RESEARCH, & SEES VERY FEW PATIENTS..So, I have to believe whomever doing the billing for the labs is not billing correctly.. She put me back on the exact same meds I had been on that honestly I don't think work. She was shocked how much worse the RA was, especially when my left hand, wrists ,fingers, thumb was so bad. I am not sure if they are right on their diagnosis. Those fingers on the left hand are continuing to "turn"n& the middle finger is laying on top of my ring finger. Frankly after the last time I took 8 or 9 weeks of antibiotics, & they never did know if I had "reactive infectious arthritis" or the RA was getting worse or what. I came home Friday in rush hour traffic from Dallas & was just disgusted with it all. I FEAR the Enbrel now since it's an injection weekly & I seem to not stay free from infections then add the Enbrel & that can cause them to be worse. Plus here is the flu season. Sounds like we are in for a huge problem with people being extremely ill even in the hospital with the flu this season. So, be sure to GET YOUR FLU SHOT, get the kids to understand to wash hands, not drink or eat from others & if anyone has the slightest sign of flu, go immediately & get the new shot. It won't _cure_ it but it will keep you far less ill, & get you well within a few days rather than like some and take a month or get pneumonia. (Xofluza, which can be taken via a single oral dose to help patients recover more quickly from the flu.)Thursday, December 5, 2019
New Charity founded by Lady Gaga & her Mom called "Born This Way" Foundation
New Foundation by Lady Gaga & her Mom the
"The Born this Way" Foundation
She also has Lupus. I believe she found out fairly recently. After seeing how much kindness she shows to especially youth, the younger kids, teens, and early 20's.... she touched my heart.
Monday, December 2, 2019
#GIVINGTUESDAY Crucial things that need our assistance in giving in some way...
As we celebrated Thanksgiving and now rush around for items under the tree remember there are extremely crucial people, non-profits and more to give your help to...If all you can do is "Spread the Word" about your favorite Charity - That is also Giving of Yourself...
#GIVINGTUESDAY HERE IS JUST 1 EXAMPLE OF MANY!
https://www.givingtuesday.org
Sunday, November 10, 2019
When a Doctor Dismisses My & Others Symptoms
https://themighty.com/2019/10/doctor-dismissed-symptoms/?utm_source=newsletter_rare_disease&utm_medium=email&utm_campaign=newsletter_rare_disease_2019-11-07&$deep_link=true
"The Mighty"
Thursday, October 31, 2019
I am totally Hooked on these!!!! "Pan-De-Muerto"
I found these last week in my local market! And now I can't get enough of these awesome "Bread of the Dead" Celebration treats
Have a Wicked, SAFE, and Spooky Candy filled Halloween (tomorrow it's back to the Splenda)!!!
Have A Safe and Fun Filled Halloween! Be Kind, No Bullying, there is plenty of sugar to go around!!!
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I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things abo...
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How can our kids feel safe when WE as adults don't???? I fear Wal-Mart or just walking across the parking lot at HEB in my small lo...
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I finally made a trip to Urgent Care with what I feel is a very bad Lupus and RA flare, but there are several "symptoms" strange t...