Alzheimer's, Dementia, Quilt to Remember,Mom, my Grandparents, and for our generations to follow
YES! IT is 4:30AM and I am UP!
I have not been able to sleep again in a couple of days. I am not sure if it is just being "down" during the day with my ankle, or feeling a bit "edgy" that I am NOT up and doing some of the things I need to be doing. Both pups have also been restless, especially tonight. In fact the little one my Peanut Holy Terrier, :) was a bit sick to his tummy. But, that pup will EAT ANYTHING! I have to constantly keep a watch on him...because if he can get his paws on it, it's going in his mouth, and more than likely he will eat it. I hope it is a "puppy thing" for I know my Tazzy did that when she was little. But after she turned about a year old, she got out of that picking it any and everything in her mouth. Plus he CHEWS on everything! My other two did, some, also when they were in their first 6 to 9 months, but after that, they began to ONLY CHEW on what they were supposed to. I hope Peanut does the same. But he is definitely, "a pup of a different color" for sure...LOL! Stubborn as a Mule, yet he is coming out of that a little now. He also thinks my hands are "chew toys"...so we have really been working on NOT "chewing, nipping" at Mom's hands and on Bub's ears... They seem to get along good, but there are times since Bub's is older, he gets enough, so he puts Peanut "in his place"... he never hurts him, he just gives him this "look", and Peanut KNOWS to BACK OFF playing for now... :)
They both like me to sign to them, and I did finally get Peanut a "song" I made up, plus he already is getting a couple of nicknames, I catch myself calling him "Pea-knuckle" (spelling like the game Pinochle" - or LOL something I bit "off" color, since he was neutered, I call him "Peanut-less" at times.... LMAO! Well, believe me ALL of them have had several names and always learned that by either that name, OR my TONE or BOTH, either things were good, or they had done something "not so good".... just like kids, these fur-babies, seem although at times to continue to be fur-toddler's most of their lives... They have really been "trooper" though.
Through all of this with my Mom, I had to be in and out so much here at the house with them, and that was something they have not been used to, I know there were days they both could not wait for me to "cling" the keys and open the doors and both standing, jumping, barking, and crying for joy that "Mom is finally HOME"! So, it has been a difficult time for them, a totally weird schedule, and not our "normal routine", although I tried to give us "our time" each evening together... and then I know they have sensed me being upset, in a turmoil, and also both of them especially Bub's knows when I am not well myself, and it is almost like he "watches" over me, sitting beside me, and even at times he will be there, and he will just let out this kind of almost a "cry" wanting me to "sit down" with them, and be still for a little while. So, having me "home" the last couple of days to themselves more or less, and spending time down with my ankles, they have been in heaven right beside me.
Okay... now to another reason for this POST, I want to do a "quilt piece" for the "Quilt to Remember" tour that is going around the nation in honor of those who have had these horrid diseases of Dementia, and have taken away their minds, in so many different ways, time frames, and so forth. I had been an advocate already in many ways for the Alzheimer's Association but I had forgotten about the quilt. So, when I wan in getting information on where to donate in honor of a loved one etc, or in memory of someone, I saw that website about the quilt.
Since both of my maternal Grandparents had some form of Alzheimer's and Dementia, and now my Mom, I want to do a quilt piece to go with this quilt around the country. I've submitted my "story" and asked for instructions about the quilt block, which for an individual is 4 feet by 4 feet.
Since my Grandmother made MANY quilts completely BY HAND, not one machine stitch in them, and I have also been able to do a quilt, and have actually a oversized, probably King sized almost top finished for a quilt, I decided what better way to "give back" and also hope to help to find the reasons for these horrid, mind taking diseases, and give hope that we find reasons, find more help, have more research, find a cure, or find out what we can do to completely STOP some of these types of dementia's. I am enclosing the "link" here for this project. I have several ideas already and really already have materials etc, (some I found over at Mom's, and I think it is still good enough to use in the quilt) and am waiting to hear back on details about the quilt block and getting it to them -
Here are a few example of blocks made by people for the "Quilt to Remember"
Created by
Colleen Anderson,
Fargo, ND,
in
honor of
her mother, Patricia Kelso
Created by
Phyllis Bednarek,
Woodridge, IL,
in
memory of
her mother, Mary Estelle Ruppert
Created by
Bernadette Discon,
Jackson, NJ,
in
memory of
her husband, James Russell Discon
Created by
Kimberly Fondaw,
Grand Rivers, KY,
in
memory of
her mother, Geraldine M. Brown
ALL of these are from the website about the quilt! Plus there are many, many more that give me some wonderful ideas for doing one in memory of my Mom.
I have had now this is the 3rd time, a rash that appears almost like shingles. The others were not as bad, but they also burned and itched like crazy. So, between that, and my ankles are still not the best. My right one swells up still a great deal, if I am up and on the move... but right now I don't have time again to stay off my feet and get back on the sofa, then I feel like I really am falling behind. There is something else that I wanted to share, and I hope it does not "weird" anyone out. It could be this happens, for we are definitely "creatures of habit"... but about a week ago, I began to have these s"instant" thoughts, Gosh, I need to "call Mom", or I need to go over and check on her... it has happened now several times, sometimes more than once, if I think of something that she may have wanted to know etc... so I know it kind of hit me as "strange"... yet like anything we repeat in our daily lives, it tends to become "automatic" in life. If we get the mail everyday at 4PM, then even on a holiday, many of us probably go and look for our mail... and then find it comical that it is a "holiday" dummy.... I can say, although as "strange" as it feels, it's not a "bad" kind of strange, it is just something that I've never experienced before... 
That house is beginning to look much better inside. Gosh, talk about a "pack rat"... now I know where ALL OF THOSE PRESENTS FOR BIRTHDAY'S, MOTHER'S DAY, XMAS etc went! She has packed, packed and repacked stuff over and over again... so there were several things over there that belonged to my Granny Svehlak, and much of that is crystal bowls and so forth. So, I know there will be some things that will remain, to be passed down, etc... to my son and daughter, and my Grandkids... many "keepsakes" so just like myself, Granny always made Homemade Cookies, and she had a special jar that I loved all my life, and when she passed away, I asked if I could have it, and I have it sitting in my stands that have glass doors on them, with some other things from the family etc... Then, I am still having heck with being nauseated and not feeling "great"... I am sure the heat, plus the Lupus Flare, plus the antibiotics, and all of the stress from the past several weeks, really months, is catching up to me. My neighbor did say that there is a "stomach virus" going around here in town, and hell that is the last thing I need! As I continue this "journey" through paperwork, redoing floors, painting, and making decisions on many things, your thoughts, well wishes and prayers are definitely still needed... 
