My Book was actually published this morning! I am thrilled!!! This has been a labor of love, full of illnesses, surgeries, and things no one should HAVE TO DEAL WITH!
"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
Wednesday, August 16, 2023
Sunday, August 13, 2023
Wednesday, August 9, 2023
Friday, August 4, 2023
I Have MY OFFICIAL CERTIFICATION from "Health Union" for Patient Leader Certification!!! (Social Health Media/WEGO Health
Wednesday, August 2, 2023
Monday, July 31, 2023
MY NEW BOOK JUST WENT TO BE PUBLISHED!!!
This is not the cover...I changed it!
I'M SO THRILLED MY FIRST EDITION OF MY BOOK...MY OWN JOURNEY THROUGH LUPUS, RA, SJOGREN'S AND SO MUCH MORE!!!
I'LL POST WHEN IT IS READY!!!
Sunday, July 30, 2023
Lupus and Heart Complications....
https://lupus.net/living/heart-complication?utm_confid=2ace9515f1b02bee3772369cdfad53445b38225ccdee5abb2e0c734920995634&utm_term=Article_2_Button&utm_source=Newsletter&utm_medium=email&utm_content=5%20Great%20Date%20Night%20Ideas%20For%20Lupus%20Warriors%20%F0%9F%92%98&utm_campaign=Lupus%20net-newsletter-7%2F26%2F2023
Friday, July 28, 2023
New Book coming out soon! My Journey with Autoimmune Diseases ..Lupus , RA and other issues with these conditions
I've been working of this for a while. The 1st edition has been ready, but I made some changes.
I decided this needed to be a least 2 volumes..
The "Title" stands as it was..
"It's Not me! It's the Disease!...Stupid!
Wednesday, July 26, 2023
World Sjogren's ...July ...and July 23rd was the main day!
This is a horrid disease (AI)! Sjogrens is not just dry eyes or dry mouth. It's much more complex than that. I had my teeth begin breaking off at the gum line. Sjogrens had destroyed my teeth. I had to have the rest extracted and have Dentures.
A few days late but we wanted to acknowledge World Sjogren's that was celebrated on July 23. To learn more about Sjogren's disease go to: https://www.aiarthritis.org/sjogrens #sjogrenssyndrome #sjogrensdisease #aiarthritis
Tuesday, July 25, 2023
Our Medical Spaces are "Diseased" by many Doctors, ""Big Pharma", the Government... & so much more
******I have not posted this yet...but it seems appropriate now.... THIS IS EXACTLY WHAT I NEEDED TO SAY!!!
AND IT IS NOT A POEM IT IS THE FLIPPIN' TRUTH!!!!********
Diseased… this entire damned mess...IS Diseased!!!
All too often these days…I see more “ill” people than healthy.
It’s not due to status, married young, old, divorced or wealthy.
It baffles me more each time my heart beats; those whom should take care of us…
They’ve turned their backs on thousands.. & how some act is a total disgust.
We are quickly becoming a “society” that has a great deal of distain on how this nation is ran.
Many of us are so through with the mess with doctor’s, medications, tests…we have as patients & caretakers we've taken care into our hands.
My thoughts are that we are being given so many different things from “Big Pharma”; that we know is definitely tied into our federal government "IF" I can say “our government” with a straight face.
The FDA and DEA are right there to make sure who lines their pockets and tries to win this race.
Our insurance, groceries, gas, and EVERYTHING is so expensive…and we continue to inundate our lands, waters, air with a “fiery end”…
We see it, hear it each & every day…weather patterns are insane. Viruses, more and more illnesses the OFTEN can’t be properly diagnosed…we are overwhelmed to the brim.
A great example is this “bone growth stimulator I’m wearing due to a collarbone fracture (also a shoulder blade and 2 ribs) a YEAR ago July 4th 2023. I noticed it is a “wave length” the same as my mic.
I can’t get my microphone near it when I’m having to wear it right.
If it’s causing that, what is it really doing to my bones and my body? Then when you include a cost of $5,000.00 plus. It was insane. My insurance pays 80%. Which left me at $800.00 out of pocket. When you are “through” with it; it can’t be used again. SO if you have another break, surgery and so forth..this thing is USELESS! Oddly enough, I found out the company online. I called customer service, explained my situation, they waved my portion.
What irked me that that the REP that brought it out here knew that. I told him and he said did you find out? I told flat old him I used “Google” and the company’s website.
He was shocked & after a moment, he said well I was going to mention that to you.. totally smelling like B/S …right???!!š š”š
Why would he be upset over whether I have to pay the co-pay or not? Ten to one HE gets a commission from that money he thought I would pay in.
Why else when he saw my situation NOT offer to see if I qualify for assistance? This is the TYPE OF SITUATION... That I feel is "medical gaslighting". Believe me MANY of us are being used by "gaslighting" and we are not even aware of just HOW WRONG it is!
It's happened to me at least a handful of times; without me truly understanding what the term "gaslighting" even meant. I had actually seen it used in a "good manner".
Once I went through the last time I was medically gaslighted, I knew what was happening with my doctors office was absolutely against the OATH and regulations doctors have to do or not do for patients.
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I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things abo...
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How can our kids feel safe when WE as adults don't???? I fear Wal-Mart or just walking across the parking lot at HEB in my small lo...
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I finally made a trip to Urgent Care with what I feel is a very bad Lupus and RA flare, but there are several "symptoms" strange t...