"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
Monday, May 15, 2023
Wednesday, May 3, 2023
Please Endorse me on the Social Network Awards! ENDORSEMENTS OPEN!!
Social Media Network Awards 2023!!!!
https://www.wegohealth.com/Rhia/awards
https://www.wegohealth.com/awards
Please nominate/endorse me...Nominated for 3 categories as of now!
https://www.wegohealth.com/Rhia/awards
Please remember to go in and Endorse me. I need those in order to win in 1- 3 categories. I need this in order to UP my Advocacy. I want to take it to a new level.
Tuesday, May 2, 2023
MAY 2023 Social Health Network Awards!! - NOMINATIONS OPEN
Link to Nominate me... https://www.wegohealth.com/Rhia/awards
It's finally that time of year again! The Social Health Awards are kicking off to celebrate Health Leaders across all condition areas and platforms.
Previously known as the WEGO Health Awards, our awards program has proven to be one of the best ways to honor and celebrate the work of Health Leaders for over a decade.
Learn everything you need to know for a successful awards season - including important dates, the nomination process, award category descriptions, and more!
Show your support for your fellow Health Leaders. |
Friday, April 28, 2023
Study Linking Suicides to Rx Opioids Not Supported by Data
Study Linking Suicides to Rx Opioids Not Supported by Data
..."Recently, an article in the American Journal of Psychiatry (AJP) that was widely covered in the lay press, suggested that reductions in the chronic use of prescribed opioids for patients with pain slowed an otherwise discouraging national 20-year rise in suicides. Further, the paper suggests its findings should alleviate concerns about dose reductions in pain patients who have relied on these medicines long term. However, these conclusions were not supported by the data in the study or in any other available data.
Given rising national concern about a burgeoning opioid crisis, many doctors forcibly reduced doses in long-term recipients of prescribed opioids, often under pressure from regulators and boards. Unfortunately, suicides started happening among patients who were taken off their medication. "
https://www.painnewsnetwork.org/stories/category/Pain+Medication
DEA Gaslights Pain Patients Over ‘Unwillingness’ to Find Doctors
DEA Gaslights Pain Patients Over ‘Unwillingness’ to Find Doctors
By Pat Anson, PNN Editor
Faced with record high overdoses, a fentanyl crisis, medication shortages and corruption within its own ranks, you’d think the Drug Enforcement Administration would have better things to do than gaslight chronic pain patients.
You’d be wrong.
In a blatant case of victim-blaming, a Department of Justice attorney claims that patients of a California doctor whose license to prescribe opioids was suspended last year by the DEA were not making any effort to find new physicians.
The DEA’s suspension of Dr. David Bockoff effectively shuttered his practice and left 240 patients – including many who suffer from rare and chronic health conditions – scrambling to find new providers and pain medication. ... continued at above link:
Tuesday, April 25, 2023
WA State, Seattle, Everett WA, CA... friends, good times, so much learning about myself... and life
I lived in Everett WA when I was in Seattle. I moved just North to Everett after I left the Credit Union in West Seattle, where I had an awesome apartment just about 5 minutes from Alki Beach that was across from the Sound and the Entire City of Seattle was just amazing. I LOVED IT THERE!!! Everett still holds a huge place in my heart in WA..I have 2 incredible friends and their family that still live there. They are just wonderful people and Everett holds many great memories for me. Jim and I were living inEverett the night he proposed to me surprisingly at a club we used to go to with our friends. They all knew about it and were there that night. When the Blues singer called me onstage I had no idea why and Jim came up and proposed to me onstage in front of a pretty large crowd that night. My life that entire 5 years plus... changed forever....I grew in my own "self"...I learned how strong I was, How I could do for myself, had my own apartment, a new job (although being an apartment manager in Seattle was the BEST)... I found out so much more about who I was, who I wanted to be, how I thought I would not like living in a huge city and I LOVED IT HUGE HILLS AND ALL.. the ferries, the islands, the sounds, the food, everything I loved everything about being there...Everett was a bit more quiet, out of the middle of the bustle of the city, easier to get around in, and had everything you needed... in fact the night life there and we didn't go out a whole lot, but lots of nice little bars, all usually with live music, lots of Blues... and just up North about maybe 10 miles was a Casino... so we went there a few times... nothing like Winstar in OK, or Vegas, or Bossier City Louisiana but it was nice, and has slots, great food, and we even went up 1 Christmas and spent time with friends there and had dinner there. I loved the apartment in Everett also... it was larger so the 2nd bedroom was our office.... gosh when I think about all the different things I learned... how to "code HTML" and actually design websites for clients.... learned a great deal at that time about search engines, keywords and things at the tie were not as popular to the ordinary internet user. I tried so many new types of food, but of course being right there in the heart of SEAFOOD & FISH I loved it...always been my favorite, but the salmon, was spectacular so much better than Atlantic Salmon, & the Dungeness Crab OMG was awesome..... the seafood was very different from the Gulf down my TX, and seafood & fish, were very inexpensive.... unlike TX unless you are living right on the coast fish and seafood here are expensive ad you just can't get Pacific Salmon..by the way... do you know how "Salmon" is pronounced... it is "Sa-mon" no "L" is pronounced in that word...yet TX they said SALMON, WITH THE L I think it's an accent thing in TX. That was always so funny everywhere I went no matter the market, wherever, EVERYONE ASKED ME WHERE I WAS FROM???!!!! They heard the "heavy accent" & actually most people in Seattle really don't have an accent. So my TX accent really stood out... I tired to "lose" it and some of it kind of faded over the 5 years... but it was always evident I was not a born Seattlite... or WA state resident... and I used to get pissed because everyone would tell me it was "charming" Charming hell, I sounded like a "hick"..LOL... so I tried very hard to NOT have that Southern Texas drawl ... and some did not get TX from it they thought I was from Georgia LOL.... one of my dear friends who lived on one of the islands passed away last year & I didn't know it until a few months later...she was incredible.. and that is how I learned how to drive onto the ferries and ride those to the islands... it was such a different "vibe" up there from anywhere also I've been people accepted you exactly as you were... no matter race, color, creed, straight, gay, whatever..none of that mattered in the heart of Seattle... my 1st new position when I got there was an assistant apartment manger right on Capitol Hill which was the pulse of all things and all people... my 1st driving experience up and down those HUGE HILLS in downtown Seattle scared the heck out of me.... I got used to it but for someone who had never driven there it was very daunting at 1st.... J9m gave me my Pug Tazzy our 3rd Xmas together...she was too little when I 1st picked her out..I had to wait 2 weeks and let her get her shots etc..she was so tiny...but smart and got along with the 2 cats we had D-Link and Lightening... it just brings back so may incredible memories of when my life was very different. I always felt had I not moved back to TX, my health may have been better... even though I already had joint issues, and migraines etc... I felt healthier there, stronger, more self reliant... I really feared nothing... it was just a scene that was meant for me...much like parts of CA... Lancaster CA and San Pedro CA where also such amazing places and had especially Lancaster amazing people... I still have a very dear friend in Lancaster; although she married and I don't talk to her much... she used to tease the hell out of me also about my accent... it was so funny... she worked an as office manager for DOCTOR...had NO CLUE WHAT A ""COUNTY BOY" was then she went to work fr the SHERIFF'S OFFICE IN LANCASTER and then she got it... LOL... didn't get a "county seat"...lots of things again I said that were just a part of being from TX... did not "compute" over to CA lingo... in fact I drove from Seattle to Lancaster CA to see her for a week when I had vacation time... actually when I came back to Seattle, I had emails from Jim... Seattle has their own kind of "dating paper"... it was in print and online, and we actually met through it... before ever meeting in person...so I have ad the typical kind of "meetings of guys"...my 1st husband of ll thing I met on the CB radio...LOL... he lived about 2 blocks away but we 1st met on the CB radio...then I had the typical met a guy in a dance hall/bar right in Ennis... then met and married someone from online... I've experienced it all and found out that whether you meet in person randomly, online, on the CB radio and so forth.. it can be amazing and work no matter how you 1st meet...
Saturday, April 22, 2023
I Have Stage 4 Breast Cancer. My Toughest Race Yet... Lizzy Musi
A few days ago I have been Diagnosed with Triple Negative Stage 4 Breast Cancer that has moved to my lymph nodes to my liver.
I have a rough journey ahead of me. I appreciate everyone’s messages and calls.
MEDTRONIC MAJOR LAY OFFS MEDICAL DEVICES THIS IS A POTENTIAL DISASTER FOR MANY PATIENTS!!!
THIS NATION AND WORLD WIDE MESS IS A FLIPPIN' HAND BASKET OF OF HELL!!!! ESPECIALLY FOR PAIN PATIENTS BUT THER MEDICAL DEVICES...
this could potentially effect these all of these devices....
https://www.medtronic.com/us-en/healthcare-professionals/products.html
Friday, April 21, 2023
MORE BULLSH$%!!! AND DRAMA ON MYSELF AND CHRONIC PAIN ISSUES..ALONG WITH MY HOME ETC..
I AM BATSHI! CRAZY!! I HAVE JUST ABOUT LOST MY MIND, PHYSICALLY MENTALLY AND EMOTIONALLY!!! BETWEEN ALL THE MESS WITH MY HEALTH, HAVING TO PUT OFF SURGERIES, NOW TRYING TO STAY WELL SO CAN GET THE PAIN PUMP REPLACE (BEEN TRYING SINCE IT WENT OUT ON DEC 20TH, 2022)... BROKEN COLLR BONE NEEDS SURGERY, THART RIGHT SHOULDER IS A FLIPPIN' GRAND HOT MESS!! AND MY LEFT THUMB, THE LUMP ON IT BETWEEN IT AND MY WRIST, BOTH HANDS ARE KILLNG ME! I am probably SURGERY ON IT!!!! PLUS I DID NOT HAVE A UTI THANK GOODNESS BUT I HAVE CRYSTALS SO THE SEVERE PAIN IN MY LOW BACK, FLANK AREA, AND DOWN THROUGH MY HIPS OFF AND ON.... COULD BE KIDNEY STONES OR MY LOWER BACK I MUCH WORSE!! I WAS SUPPOSED TO HAVE LOWER BACK SURGERY AND COVID HIT!!!!! WE WERE GOIN TO DO THAT AND REPLACE MY ALREADY REVERSE REPLACED RIGHT SHOULDER AND COVID HIT AGAIN, THEN LUPUS COLITIS HIT, THEN ALL THE ULCERS THAT WERE INFECTED WTH STAPH, & PNEUMONAS. took 8 weeks or more to get those well, MY HOUSE IS A FLIPPIN' DISASTER. I NEED A ROOF, A WALK IN SHOWER, MY FLOORS REDONE IN MY KITCHEN THE NEW LAUNDRY ROOM NEVER GOT DONE NOW MY CARPORT IS LEAKING AND MY DRIVEWAY DUE TO THE WAY THE CITY HAS THE ROAD IN FRONT OF MY HOUSE DONE, IT RAINS AND WATERS RUNS ALL THE WAY UNDER MY CARPORT!!! FOR THE 1ST TIME IN 4 MONTHS OR MORE I WENTTO THE MARKET MYSELF, OUT IT ALL IN THE BASKET, CHECKED IT OUT WITH SELF CHECK, TOOK T TO THE CAR, PUT IT IN THE CAR ... GOT HOME, UNLOADED IT AND PUT IT UP... THEN SUFFERED WITH MY DAMNED SHOULDERS AND BACK...BUT I CAN'T AFFORD TO CONTINUE TO PAY THE DELIVERY FEES..... NOT WTH THE PRICE OF GROCERIES UP AGAIN, YEAH I AM A FLIPPIN' AZZ3D HOT MESS!!! SORRY I HAVE GOT TO WRITE IT SAY IT OR SOMETHING.... AND A LUPUS FLARE LAST WEEK... I TRY MY BEST TO BE POSITIVE AND NOT BIATCH., BUT AM MORE THEN FED THE HECK UP AND ON MY LAST NERVE!! PLUS YOU NEED A PHD TO WORK A CAR NOW DAYS, DON'T EVEN GET ME STARTED ON THAT!! PLUS MY YARD WAS A MESS...I HAVE LIMBS THAT NEED TO BE PICKED UP AND CLEANED UP FROM THE WINDS IN THE WINTER....JUST EVERY DAY SEEMS LIKE IT NEVER ENDS!!! LIKE THE SONG, I NEED LESS HEARTACHE AND MORE PEACE OF MIND!!!! JUST WANT TO GET THE HELL OUT OF THIS HOUSE AND IT NOT BE FOR A DOCTOR, TEST ETC....
IF I SURVIVE THE 9 PLUS PAIN I AM IN WITHOUT HAVING TO GO TO ER THIS WEEKEND IT WILL BE A MIRACLE... THIS IS GOTTEN TO WHERE I DON'TKNOW WHO TO TRUST, WHO TO GO TO..... & i need to try and hold out till Tuesday at 2pm for the pump surgery.... it is BAD!! and i had to move to move my collarbone surgery to May 30th due to the pump being delayed another 2 weeks!!!š”š”š”š”š”š”š”š”š”š”š”š”
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I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things abo...
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How can our kids feel safe when WE as adults don't???? I fear Wal-Mart or just walking across the parking lot at HEB in my small lo...
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I finally made a trip to Urgent Care with what I feel is a very bad Lupus and RA flare, but there are several "symptoms" strange t...