Nightmare At Pain Doctor's Office!

 For those who go to "Pain" Clinics" or Pain Doctors, the government REALLY SCREWED "real chronic pain patients". I went into Wednesday a week ago, so I could get more oral meds tillI a well enough from the infections to have the pain pump surgery to replace it. Well, my doctor was NOT there. He was out of the office for 2 WEEKS is what the nurse told me. So, this "woman" who I did not know; I had never seen in the office at all (and this is after the nurse even acted strange). She quickly said her name which I didn't even get and never told me exactly "what she was". Now this woman i holding my file, with all the info. plus what update I had just told the nurse.She would not allow me to speak, she spoke "over me", and asked why I needed the oral pain meds. I explained Dr. C. knows all about & she said well, yeah I see here som situation going on and I want to now why you take "diazepam"? I looked at hr & said I've been on it for at least 25 years due to trauma in my life, more recent trauma, a husband who left me & then killed himself FEW MONTHS LATER BUT it has always been to also help with the severity of my chronicI said I was l told to come into the office to get my new script for pain meds, for a quick update. Not to be interrogated about meds the doctor already knows I take. pain. Then she asks if I had ever had a "sleep study"???? So, she walked out for a moment came in, mumbled FEW WORDS, AND told ME THE SCRIPT HAD BEEN SENT THROUGH FOR 1 MONTHS WORTH. So I l was by this woman who barely told me who she wast teated me like some street drug addict, SO I WAS PEEVED FOR SURE! I went by my pharmacy about an hour later THEY HD NO SCRIPT, so they said sometimes it takes a few hour (BULL MY DR HERE CAN SEND ONE OVER , I CAN WALK OUT OF THE OFFICE GO TO THE PHARMACY AND THEY HAVE IT & SOMETIMES ALREADY FILLED! So I call & get some idiot who could barely English & he calls some where over to the nurse clinic & the give him som bull that DR..C. has t okay it which he already had it was in the womans' hand when I was there! So, I hung up and called about noon the next day (I went n Wednesday) & I get told the doctor has to send it himself & he will from "wherever he is at".??? NO script, same thing Friday, Monday the same, then TUESDAY AFTER BEING OUT OF MEDS INCE THE THURSDAY BEFORE..I get a call from the nurse at the clinic my med were sent in. I figured it out that ignorant(found out later she was an NP, she called this "Lucid Lane" Place & they called m e to set up an appt over the internet to go over my meds so nothing is wrong!!!!????? Then when the witch (NP) found out I made an appt she had the medication sent in by another doctor the helps mine when he is gone !!! This was none of her business, BUT I KNOW WY THE GOVERNMENT JUST PUT NEW LWS OUT AND MADE IT EVEN WORSE THAN IT WAS ON REAL PAIN PATIENTS AND REA; GOOD PAIN DOCTORS, SO THEY HAVE TO JUMP THROUGH HOOPS TO EVEN GET THEIR MEDS!!! So I went ahead with this "interview assessment to shit her up. The woman that did this was awesome. About 5 minutes after talking with me she said you really i not need to be put through this BUT due to "new" rules & I said let me guess the government mess that just happened the 1st of January! Her name is Michelle & she could not "say" it n those words BUT she basically said what I did Doctors who help give chronic pain meds are COVERING THIER "BUTTS" Due to government crap. She said just in case the "authorities" probably DEA comes in & checks files that info is in yours is all is well. RIGHT Now IF I WERE WELL, I WOULD BUY A TICKET TO D.C. & GO TO CONGRESS & GIVE EVERYONE I COULD FIND A PIECE OF MY MIND!!! WE HAVE GOT TO GET TOGETHER & FIGHT THIS!!! IF WE DON'T DO SOMETHING, WE ARE GOING TO SEE IT GET WORSE, THEN WHAT???

A New Writer That has Truly Spoken almost as if they were speaking about my life, heart and soul...Ravenwolf

 I recently found a few partial writing from a writer called "Ravenwolf" (not to be confused with "Silver Ravenwolf")...

Truly from the 1st few sentences in the very 1st one I read I was in the realms of my own feelings, like my own poetry & prose... as if they knew my life's story.... Speaking to me like the Full Moon, the Oceans ebb & flow, the highest mountain and silver waterfalls from them... 

Not only did it give me so many inner feelings, from the depths of my soul, but gave me a voice again, giving me my own words that I had wrote for so many years...

I will Share this link.. and I am NOT selling this... I just felt I wanted to share what has touched my soul so much...

Hi, I know you think you know me, but the truth is, you know the old version of me.

The broken, sad and weaker me is the person you you’re familiar with..

But that’s not who I am anymore.

I couldn’t stay in that place and ever be happy, so I made a choice.

I chose to pick up my broken pieces, figure out who I was and slowly put back together a better, wiser and stronger me.

So, yes, I’m a vastly changed person.

Where I was and who I used to be doesn’t define who I’ve become nor where I am going.

Sure, there are little cracks where the jagged pieces of my soul fit together, but that’s how the light gets in.

The person you thought you knew isn’t me anymore.

In the place of a weaker, hurting person stands a stronger and bolder me.

I won’t let people treat me poorly any longer and I will never settle for anything less than the best again.

This is my life and I’m standing up and taking back my pride, dignity and self respect.

And for those who can’t accept the new and improved me?

Well, let’s shake hands and part as friends, because the people I want in my life are the ones who will be supportive and in my corner, no matter what goes down.

I’m headed in a new direction and I’m learning how to finally fly.

It’s taken me a long time to get here and there’s been a lot of failure, disappointment and struggle along the way.

But I’m still standing and now, I’m growing.

No matter what life throws at me, I refuse to give up, stand aside or be disregarded.

I did that for too long and let myself be taken advantage of by too many people.

That ends here.

Because I learned something as I climbed out of rock bottom:

I’m worthy of love, I’m always going to be good enough and I’ll never have to remind the right people of that.

So, as I stretch out my arms and welcome a new day,

I can feel the sun shining on my face and the light in my heart glowing.

It’s a new chapter, a new me and there’s nothing I can’t do.

For all those that doubt me, I’ll only say one thing:

Just watch me.

Life is about to get really, really good.

And I can’t wait.

I’ve waited all my life for these days, and I know that I deserve every bit of this happiness.

|ravenwolf

For exclusive content, follow me on TikTok @theravenwolf

https://houseofravenwolf.com/.../copy-of-ravenwolfs...

All rea

SO totally thrilled with my Oldest Grandson & his Amazing job he did on his FFA Project!

 I have to post this! I was so totally amazed at my Grandson who is 17 & is just an awesome young man in every way!This was his FFA Project they will be showing for "auction" which he already has a couple of buyers before he has even shown it for the upcoming auction!! He placed 3rd BUT even his Leader over the FFA said he was really he that should have placed higher! Here are some pics of the deer blind he made...

He had some help from his Dad which was allowed but James did most of the work.... James is also parliamentarian of is FFA group.

Fleetwood Mac - Silver Springs (Official Live Video) [HD]

DEA Suspends Doctors License & Double Suicide by Pain Patient and Wife due to lack of finding the Patients Medications

 https://www.painnewsnetwork.org/stories/2022/11/9/dea-suspension-of-doctors-license-leads-to-suicides

A chronic pain patient and his wife died by suicide after their doctor's license to prescribe opioids was suspended by the DEA. Many other patients are scrambling to find new doctors before their pain medication runs out.

Keith Urban Tribute to Christine McVie - Gold Coast Convention Centre Qu...

NPSB (National Patient Safety Board) Bill for Pain Patients & Safety

Please take time to write your Representatives it only takes a couple of minutes from the link!

 https://npsb.org/housebill/

https://www.congress.gov/bill/117th-congress/house-bill/9377/all-actions?r=1&overview=closed&s=1#tabs

I'll Be Your Santa Tonight Keith Urban New Xmas song!!!!!

How do you Hide the Scars, External and Internal, fight the fears of Showing What Life, Love & Illness has done to you

 It's been a while since I've been able to think about what I needed to say here. After my last what I thought was the Love of my life, walked out and the "checked out" leaving me here to wonder why; to pick up the pieces of my own broken heart, soul, and try to face the fear of even leaving my house to allow anyone to see "me" like this.

I've been "broken" before.... by illness, by others walking out without reason, for trying to survive. So many call me "brave", a survivor. Yet, they don't see the scars, on my body, but worse those on my heart, soul and mind. These days the fear fueled by not only my own illnesses that more than once damned near killed me, but then COVID-19 ONLY FUELED that reasoning for hiding, for staying at home, for hiding behind the mask literally. I am much to scared and scarred to allow anyone in again.

 I am too frightened of what someone may do if they see what the heck I truly look like now. So many surgeries, scars from the past and now even present.  But, moreover the internal pain, fear, and scars that are deep seeded in my mind. What I SEE when I gaze into the mirror, what shadow of a slight person looks back at me. Just when one thing seems to get better, suddenly something else appears. All too often doctors can't explain what I have. They can't give me a reason or rhyme for what suddenly appears out of the black ink darkness of chronic illnesses. They don't know, often WE as patients know more about why, what, and how we find ourselves ill with something else 

So much of me can be explained by music, by lyrics, my about the only thing that motivates me anymore.  I know I am NOT alone. So MANY of us from all over the USA and the world suffer, are driven to so many doctors, medications and yet we find no answers. Only more questions. 

As Keith Urban's Lyrics, "What if I Fall, What if I Cry, And if I get scared, and WHO is my "Fighter"... nowadays my only "Fighter" is myself. 

Updates of posts, and so forth on Lupus Colitis & now chronic fractured collarbone and shoulder blade and more...

I'll post more, I have to get the other off my laptop also ;)

NOT good news, collarbone and shoulder blade still broken and have a huge gap in the breaks plus bone fragments.. I had 2 FRACTURED RIBS AND DID NOT KNOW IT!! My "rotator cuff" is so torn it will NOT hold another shoulder replacement. The replacement is okay that is there but just holding on by a thread. Plus it appears I "may" have a particular illness that Lupus or RA can cause effecting at least my right lung.. The didn't do the CT scans bt on the fractures so the CT Scan was large enough to find the ribs and the lung issue... and i know I don't know what to say either other than I will live with it I guess... I don't think it is fixable... and if it is that bad as I said just the messed up rotator cuff leaves out a new replacement... I am more than FED UP!

I KNEW from the age of about 35 I HAD "lupus" "Ra" or some other autoimmune disease. I had already began with multiple joint pain/surgeries,, I could not be in the sun light long, I never could get my body temp to be stable (I was either hot or cold), I ran a low grade fever for several years, I had HORRIBLE MIGRAINES but they seemed to be "different" than a regular Migraine (Lupus Migraines. I went to my PCP, I went to my PCP while in Seattle WA, I asked and was X-rayed, had CT scans, MRI's, I was tired a great deal. RA RUNS in my family. I had knee surgeries, elbow surgery, shoulder surgery before 40, had a heart attack at 40. It TOOK me at least 15 years to find the RIGHT doctor to help diagnose me. In 2007 , after BOTH KNEES BEING REPLACED. My then Orthopedic doctor told me he felt I hd RA or some type of chronic illness attacking my joints. By then the pain was horrible, changed with the weather etc. Our town got a new PCP in thank goodness! HE is a GENIUS! He gets to know the patient in all manners, not just a body that needs help, he works with mind soul, what is happening in your life, tells things in plain English. Is THERE anytime you need him. I began seeing him about 2 months after he opened his practice. After 2 years or so, he began asking me about "autoimmune" issues, had anyone did labs, did I have "arthritis" run in my family? He DID ALL THE LABS HE COULD FOR AUTOIMMUNE ILLNESSES. Immediately, he said I feel you have Lupus, and maybe another autoimmune problem. So, I FINALLY SAW MY 1ST RHEUMATOLOGIST, in 2009 or so. He ran his own Labs and di a very thorough exam, questions, and within a week, he told me, he felt I had, Lupus, Sjogrens, Raynauds, "hypermobility syndrome of the joints" & that although the Lab for "RA" was negative I may have "seronegative RA". I went through 5 Rheumy's before I finally found 1 who knew my issues, was patient, kind, took his time really LISTEN still is very much active with all of it and he works with the Lupus, My Rheumy is more a "RA" specialist, so he sees me more for that. 

so there is just a piece of y "journey" that is still ongoing.

I have 1st a "laundry room" that as built onto the house after it was built in 1950. In fact they just left the "outside wall" of the house for the wall itself in the room. It's about 6' x 9' at the most. I had a HOT WATER PIPE BURST underneath that area, & the way my house and land slant, I didn't find it till I went into the laundry room and MOLD was growing everywhere and my backyard looked like a "heated"Olympic swimming pool! The laundry room was already in horrible shape & I intended on having it removed & built BUT COVID came in, then I've been ill & also have had and still do a fractured collarbone & should blade that after 15 WEEKS never healed. I want that laundry room torn off & the door that is metal put on where the door is into the laundry room to the kitchen now. I need a new storm door but the metal door is good. I also have my toilet that I think ahs rotted "laag bolts". A plumber seemed to think it's the wood BUT I think the wood maybe fine, it just needs to be reseated with a new wax ring, & new lag bolts. And I have the new insides for the tank already just did not put them in yet. The hot water pipe leaked mostly down fro the laundry room BUT hat heat and steam "lifte" and cracked some of the "Hardie board" in my kitchen by that door that goes into it.  need some floor work there. My "intention" is to tear down that horrid laundry room, then I already have a "wooden storage shed" picked out at Lowe's to put almost up agains the house, with a small breezeway so I can come up and down to the house and to the laundry room. It already has windows, the floor but I will have them put the treated floor in, plenty of room, a shingled roof, and when my water heater that is BEHIND my fridge in a closet in y kitchen goes out, it can go in that "new laundry room/shed" I am going to put lights in ther, my plumbing and electrical are already out there, just probably extend it 5 to 7 feet to the new one. I also have a HUGE tub/sauna/jacuzzi/awaterfall,rainfall, foot massage SHOWER, that is in very good shape. I want to ge it out of my batroom, and just put a simple walk in shower in. The TUB now stand on legs and come apart, and I would sell it, or whatever. I paid 2,500.00 about  15 years ago, & I even along with a friend put it together. It needs to have the caulking all cleaned etc and reset the glass windows in it, but it is still in very good shape. With the issues with my joints, etc. I don't need to be stepping into it.. I have already fractured  what I said above, plus a hip about 5 years ago. IF I can't sell it, then I just want it gone and the walk in shower put in. Simple, like one from Lowe's etc... and I want to put my own seat in it. So, something simple is all I need.  Also, about 4 weeks ago, my naighbor was helping now my lawn and a piece of METAL IRON HOOK, camae FLYING though the bedroom STORM WINDOW, OLD WOODEN WINDOW, BROKE MY MINI BLIND AND LANDED. Had the mini blind not stopped it, I was walking into the bedroom when it came in. I think during all the ectreme heat, it shrank the ground back so far, and then it rained and this lot I find all kind of glass, metal, even old medicine bottles, pieces of china etc.. I have TWO windows on that North side. I want to take both the storm windows and the ol wooden windows out and just put ONE GLASS window there. Does not have to open etc, jus t filter out some of the morning sunlight. My neighbor did theirs that way on a couple of them I I love it. The old windows in the house are also rotten, well some of them. Ao, those 2 could go, and that one window take the place. I have some minor, a ceiling fan nees to be hung, I used to do them myself but can't get my right arm over my head any more. I have a new set of outside lights for the back that need to be installed. My barhoom already ahs the lgihts and bathfan ran and in the ceiling BUT they enver got hooked into the main wiring, so that is another small thing, a mirror for the bathroom, a light fixture for over the sink... I NEED A ROOF! But, the laundry room and shower, and reseating the toilet are my main issues right now. Between COVID messing everything up for so long and my own illnesses etc it seems every week something new happens. So, that is most of it! I haave a huge back lot, (that needs to be mowe) but that is not in the mix really, but all that old lumber, and some trimming of trees for the new laundry room COULD go back there. I have a huge gate in the back & as rotten as that stuff is, it will  be saw dust soon. So, let me know "what" parts you may be able to do something about, or if not I understand. 

Had CT scans done this morning of my clavicle and shoulder blade... so we shall see just how much worse it is than the X-rays which were horrible.. they did not get a good X-ray of the shoulder blade but I think it's also still fractured... or healed wrong.. NOW, I can't tell f my hips are hurting, or my lower back, or if I have KIDNEY STONES DAMMIT! I have kind of flank pan, BUT the weather is fixing to change Even Bella, my Doxie, could NOT hardly walk yesterday on her back legs! She may ahve to go see "Dr. Venetia".. BUT with this still fractured mess of a collarbone etc. and she weighs a ton, and I know where it hurts, I can touch her in a certain spot on her lower back end on kind of a hi side and she will growl a bit to et me know YES!! THAT HURTS!!! But, I don't want her NOT to be able to walk... I MAKE her get up off the sofa and walk a bit, and make her SIT up to eat etc... she wants to lay a certain way when it hurts her , so I have to coax her into sitting up...I am a flippin' mess FRIGGIN BODY AND HOUSE!!!!