What has Happened to Our Society & the Control Over Pain Management with INTERFERENCE FROM CONTROL from Govermental Entities!?

 It's not often that I REALLY GET FROM FRUSTRATED TO PLAIN MAD AS HECK with any of my doctor's! But;. as MANY of us that are "chronic Pain patients" know, there is a "rotten egg" in the basket between pain specialists, the FDA, the CDC... and so forth, also the Senate and House.... This has been going on for years, the old thing about "we are all "addicts", and really don't ned the pain meds... and the old story continues. I have heard so many horribly SAD stories abut how p atients have had their meds suddenly without cause jerked away from them, doctors up and moving, and so forth BUT!!! there is definitely ANOTHER SIDE TO THE STORY! That is the "home made meth, the "so-called "Fentaynal patches" that are NOT real from a Pharma co, people mixing cold meds, or all kinds of concoctions, and selling them to people, AND because MANY IF OUR SPECIALISTS THAT ARE LEGITIMATE (MY DOCTOR HAS BEEN IN THE NAVY AS A DOCTOR FOR MNY YEARS, THEN SPENT ANOTHER 22 PLUS YEARS IN SPECIALIZING IN PAI MANAGEMENT! I've beenseeing him for over 12 years and inf act really the ONLY "pain doctor" I have ever seen. I "trusted" him and He "trusted" me... so we had a great "patient/doctor relationship that I NEVER QUESTIONED... We went througha couple of things when i 1st got my pain pump which the 1st one was over 10 YEARS ago, that one went haywire after about 5 years to the date, so he had to replace it, & that WAS ALMOST 6 YEARS AGO, THIS COMNG OCTOBER OR SO. I als always had a very small amount of "oral meds" I kept from him, so in case the pump went out or something happened that I quickly needed more meds for some reason, I had a few pills to carry me through, like when the 1st pump went out. Itwas on a Friday NIGHT of all times and a "holiday weekend" s the pump was "beeping" every 10 minutes, and I could not turn it off... I could decrease the sound some thank goodness but I could not completely all the way. So, it was like from Friday night till the following Tuesday before I could even speak to his office. What irks me though, is the pump was "gone and I had to have out completely replaced. So, that week i had to have an outpatient surgery to take it out & put a new one in. But it was a day procedure & I went home that afternoon... THEY WERE (THE COMPANY) WAS SUPPOSED TO TELL ME "WHY IT WENT OUT" LIKE IT DID WHICH WAS VERY UNUSUAL, BUT I REALLY NEVER GOT A STRAIGHT ANSWER... THE point is I "caught" something very "odd" about 6 months ago about my doctor, and his office... things were strange, they no longer got the medication filled & sent to me from a pharmacy in Dallas, which they had done for years. So, I had to call them, they had to physically send me a script, I had to take here to my local pharmacy... so it took longer, with al of the cal, the send to me which the mail is so slow now, then the pharamacy may or may NOT have the meds ... and then suddenly my doctor MOVES FROM AN OFFICE HE JUST A COUPLE OF YEARS AGO BOUGHT AND REMODELED! It was like he didn't tell us anything, just moves, sends out a post card with a "strange new address on it"... which was horrible to find! Then suddenly all of the employees almost were different. After years some of them suddenly were gone ... and the ONE HEAD WOMAN I COULD CALL & leave a message and she would call me I ALWAYS LEFT A MESSAGE FOR AND and she always returned my calls, just stopped calling me back. t was just nuts. Then all of a sudden my doctor for no reason, just in a "chicken" move "halved" my medication! BUT rather than explain it, he kind of just mumbled a few words that was not like him and more or less, made the "assistant" take the heat for the sudden change. So, I go in yesterday after driving in pouring rain, water over the road, to get my refill for my pump... and now he is ONLY IN THE OFFICE on Wednesdays! So, if my pump n a fill on a Friday, I either have it refilled days EARLY or I take a chance and wait an extra 5 or 6 days & hope it does not get too low that it beeps again... so I go in make a darned horrible weather trip & find out (due to their own equipment that is flawed and I hłd know it & told them many times) I had enough medication in the pump to last me at least another 7 days. So I go in and he pulls out enough (as always) that I could have waited another 5 to 7 days and not have to come in earlier than necessary. But. he "jumps" me and says "You are not using the meds you have" & I said wait a minute this had been a "flaw" from day one. It happens every time we fill it. It "says to come in on like the 15th of a month" BUT when he pulls i out it is NT my fault. If they had equipment correct it should have told me to wait and use up more of what was in there. I HATED THAT TRIP YESTERDAY!! HAD I KNOWN I could have waited till Next "week" in better weather before making that dreadful trip u there! As He is waking out & that was another thing 'HE ALWAYS CLOSES A DOOR WHEN HE COMES IN TO SEE A PATIENT! YESTERDAY HE WALKED IN LEFT THE DOOR STANDING WIDE OPEN WHERE EVERYONE COULD HEAR & SEE ALL GOING ON IN MY ROOM! The nurse got up and had to come shut to door... he was just going to leave it wide open! Then he said several things that sounded "off".... and when he began to leave the room, I asked him about my refill for my meds and he said "I a

m no longer giving that to you" you don't need them"... AFTER 10 YEARS & NOW SUDDENLY I DON'T NEED THEM???!!! I HAD TO LITERALLY GET UP AND LEAVE THAT OFFICE BEFORE I TOTALLY SOUNDED OFF WITH THE DOOR OPEN!!! THEN I LEAVE, PULL INTO A PARKING LOT DOWN THE ATREET TO DOUBLE CHECK MY PUMP REFILL & HE HAD CHANGED IT WITHOUT EVEN TELLING ME, WITHOUT DISCUSSING Anything..... NEVER, NEVER EVER HAVE I HAD THAT MAN ACT LIKE THAT! Had the weather not been so bad still and I saw there was another wreck , then water over the road... I would have turned around & went back to ask him what his issues are! BUT, when I left the waiting room was FULL, packed!!! Late, weather bad, I-30 had water over it in places, so I just wanted to get SAFELY back HOME. I DID LEAVE A MESSAGE WHILE I WAS STOPPED THAT TOLD HIM I WOULD BE WAAB ANSWER, MY PUMP ADJUSTED TO BE FILLED CORRECTLY & I HAD BETTER HAVE a CALL for an appt NEXT WED! because if they don not call me I AM coming anyway & will just in the waiting room until he fixes his Mistake! NOW I MORE UNDERSTAND WHY CHRONIC PAI PEOPLE, ,EVEN CANCER PATIENTS ARE TERRIFIED THEY WILL NOT GET ANY MEDICATION FOR PAIN RELEF! I am also going to send an email to our HOUSE and SENATE from our state to let them know just how horrified people are that are in chronic pain. They fear having to live a life to This should NOT be a "issue involving political gains etc"... it should be about physicians & their personal patients severe pain while the government tells our DOCTORS HOW TO TREAT PATIENTS!! I want to say "don't get ,e started BUT after what I went through this week already has me way than just started. I am to the boiling point not for just myself but FOR SO MANY severely ill patients that causes intractable & unrelenting pain. Nw they can no longer depend on their own physicians because f "governmental interference".... I've said for years, you give some of these up in the "world of government" a week of severe and intractable pain & they would be rushing to ER screaming in pain, begging for anything to help rid them of the NIGHTMARE THEY WERE IN.

FINALLY!! AFTER GOING THROUGH HECK LAST WEEK AND PART OF THIS ONE - MY 2ND CATARACT SURGERY IS SCHEDULED FOR NEXT WEEK ON THE 10TH!!!! THANK GOODNESS...

 I did not think it was even going to happen!! But FINALLy after  MANY phone calls and griping, fussing (NEVER GOT A HUMAN ONLY MACHINES THE ENTIRE TIME I WAS TRYING TO CALL)!!

The girl I like so well, called me herself. She happened to have been on vacation last week & did not know about the technological issues with the Cataract machine, my surgery getting cancelled & that no one had even trie to call me back to at least update me.. As I told her it was NT her Fault! First f all the machinery failed, and she was on vacation so she didn't know.. and besides things like that are no ones fault other than the people who were IN the OFFICE last week & could have at least "updated" me...

So I am back on tract for Aug 10th, next Tuesday!

 I just pray I stay on tract and so does the cataract Machine!

Right Eye Cataract Surgery this Morning! Ready to have this over with & how great si far the surgery is...

"Our new Vision"

Well tomorrow is the next BIG DAY!! My Right Eye cataract surgery. I have to be there at 1:30pm but at least it's not like 3:30 on the 1st one.... LOL! But I can have water or plain tea to drink till about even 9 AM or so... I just will sip enough so I won't be dehydrated, especially with the HEAT of today supposed to be hitting that 100 DEGREE mark! I will be trying to hydrate more today or as much as I can so i will try and be hydrated enough where the nurse can get the IV started without my veins acting stupid rolling and such. So, wish me luck. My 1st one is still on the mend... mainly for me, just that "feeling" as if something is in it. Since this will be going this week on the 3rd week of eye drops in the 1st one, it should get that inflammation down & that feeling g away. I have to be careful and not rub it or try to "wipe" it out, so I try and not touch that eye at all. Now I will have both of them for another week, then 2 more weeks for the 2nd one (I think) LOL.. I have to keep looking at the calendar to add it up. EVERYONE STAY OUT OF THE HEAT AS MUCH AS POSSIBLE & ALSO HYDRATE!!!! and mist most know "Cola's" or any type of "carbonated drink like a Coke does not hydrate but dehydrate.. so water, I drink green tea with Splenda in it, juice but mainly anything with lots of water in it... LOL Now I sound like some advertisement!!!

How Chronic Pain Can Lead to Autoimmunity Problems — Pain News Network

How Chronic Pain Can Lead to Autoimmunity Problems — Pain News Network: By Forest Tennant, PNN Columnist Every chronic pain patient must know and understand autoimmunity and how to combat it. Research on chronic pain has unequivocally determined that the chronic inflammation and tissue destruction caused by a painful disease or injury will produce autoimmunity. ...

and my notes about this also  ...  Goes to prove just how SERIOUS Chronic Pain that is not treated properly due to those pharmacists or physicians due to nw not wanting t prescribe the right medications and/or in the correct amounts for chronic pain patients. I feel even my own pain physician, a superior specialist in this field that I have been seeing now for well over 13 years, he put in my pain pump & has treated me all these years without any issues. Suddenly, over the past year he began to shy away from one of my meds after he was giving it to me monthly for all that time, I now have to continually "remind" them to get the prescription to me, & this last time, the "woman" who I did not know, (I called the regular lady I've talked to for all these years at her personal ext. and get a phone call back from someone I did not know who talked to me likeI was someone who was trying to "abuse" meds... it is infuriating for her to even know some of my medical issues that were none of her business. She began to speak to me as if she was my doctor! I am still furious. Those are the things more and more chronic pain patients are having to put up with even with a doctor who has treated them for years and/or the same pharmacist! It needs to be put to a halt & the "real" issues of "fake medications" are being made in Mexico and shipped over here under the names of real prescriptions here causing severe issues. there are people that have are in s much pain that suddenly get treated like this, lose their doctors, or the doctors quit treating them as always & they get so depressed they have been known to commit suicide, although that is hard to say it's true. - Here is an article by the "Pain News Network" that tells some of our story. I have lived with "chronic pain" since I was 17 years old when I suddenly even before my 1st child was born in 19799 having severe migraines. I have fought tooth and nail through every type of doctor, through every type of tests some of them multiple times, been treated like I was an "addict" & at now over 55 years old, still continue to have t at time "fight" for my own right to proper treatment.

Left Eye Cataract & Astigmatism done & Right in in Two Weeks! Then onto healing & trying to get my right Shoulder Fixed!

 So far ao good on the Cataract surgery From Tuesday! Gosh what an awesome Doctor and Team! Everyone from check-in, surgical set-up to nurses, Anesthesia, to the Doctor were incredible!

LOL, and the Anesthesia, they did not fool around. they gave me one that really sent m for a "loop" LOL, but although I was out of it, I really never went to "sleep" etc... I used to call it the don't give a damned medication"! It worked, kept me comfortable, not nervous, and even going on the ride home, & into the next morning, I was really where i was "myself" yet I was not nervous, or hurting... they had it down, and I believe they used what they used on me due to my chronic Pain Issues and other Autoimmune illnesses. they knew I had been through lots of other surgeries also ad had a high tolerance for anesthesia, so he really was right on target getting me comfortable.

My son took me, and then the next morning I was still kind of out of it, but really more agitated since he put a patch over it overnight. So, when I woke up i could not take it off, I had to leave it on till I let them take it off at the office. So, my son taking me the next morning to check it out was really a blessing. Plus he and I don't get to spend much time together. So, we did get a bit of time just the 2 of us to kind of catch up on things. 

Lord Willing & Creeks Don't Rise I have my Left Eye Cataract Surgery next Tuesday 7/13/21

 I am praying, along with even my ow PCP praying (he is an awesome physician) that I get through the cataract surgeries, quickly since it is Laser, 2 weeks after the 1st one I should be able to have the 2nd one done. Then if things are as they should be, I may ONLY NEED reading glasses!!! Astigmatism GONE! along with Cataracts!

Then the other issue... that is about to pull me into the nut house is my Right Shoulder. It's been 10 years since it was replaced as a "reverse total shoulder replacement" which at the time I knew the possibility of me having to have another surgery on it. At that time a reverse shoulder surgery was fairly new, and not all Orthopedic Surgeons could do them.

In fact it took me several  months to even find one near me that could do the procedure. So, at the time, I had to take the chance. It was in such bad shape, with already 3 arthroscopic surgeries, & then not a 100% chance of it being somewhat better. Yet, I was fortunate. I had the surgery & for 9 years...  THINGS WERE OKAY... REALLY ABOUT 8 YEARS. THEN I NEEDED A 2ND CERVICAL NECK SURGERY. When I had it done, I know although I probably could not prove it, when they had me asleep and in the operating room putting me in position, somehow they wrenched, twisted, let that shoulder twist or SOMETHING.   When I awoke from the neck surgery my shoulder was killing me!    I even asked my doctor, and he said they had to lay me kind of with my head in a "downward"   position. He said they may have "bruised it" or allowed it to hang a bit down further than they should have and made that muscle pull down. So, I took it as a probably OR something, that it would  get better in a few days. Yet, honestly, that shoulder has never been the same since. I have had major pain issues, weakness, not able to hold much of anything & it is my "dominant" arm. So, I went on with my life, all of the stuff I had done for years, yard work, house work, putting up ceiling fans... and felt I would just go on using it and live my life. Well, a couple of things after, I almost "dropped" a new air conditioner and also putting up a ceiling fan, not having quite tall enough ladder & that really messed me up. After that trying to hold the Weed eater, or get a bowl down with one hand all out of the question. I need to do so much, from bathing my pups, to trimming trees and cutting up the larger pieces into smaller ones. So, I really need to use the chainsaw, which I usually do, but now I fear I can't hold it like I need to. Even ding laundry or getting groceries bought, get them home & putting them up is a nightmare.

It seems to be never ending as to things wrong or need fixing or testing... I am a mess.                      

Have You Been Labeled a 'Difficult' Patient? — Pain News Network

Have You Been Labeled a 'Difficult' Patient? — Pain News Network: By Ann Marie Gaudon, PNN Columnist   We’re all aware of doctors labeling a patient as “difficult” or some other derogatory term. There are even entire categories set up for these “ heartsink ” patients, who behave in ways that doctors consider dependent, entitled, manipulative... 

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 Pat Anson
 Founder and Editor
 Pain News Network

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