Have You Been Labeled a 'Difficult' Patient? — Pain News Network

Have You Been Labeled a 'Difficult' Patient? — Pain News Network: By Ann Marie Gaudon, PNN Columnist   We’re all aware of doctors labeling a patient as “difficult” or some other derogatory term. There are even entire categories set up for these “ heartsink ” patients, who behave in ways that doctors consider dependent, entitled, manipulative... 

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 Pat Anson
 Founder and Editor
 Pain News Network

Please Endorse Me on WEGO Fealth Awards!

I have been nominated for Facebook this year!

https://www.wegohealth.com/Rhia/awards

 

Time to Celebrate and look forward to WEGO Health 10th Annual Awards Campaign!

 WOW! Ten years! seems like just yesterday to many I am sure.

Nominations are open for the#WEGOHealthAwards! Nominate the patient & caregivers who are change-makers, artists, and advocates in your communities.

Winner's will be honored on healthcare's biggest stage.

Incredible News On The Lupus Home Front - 2 NEW Medications FDA Approved

 

TWO NEW DRUGS RECEIVE FDA APPROVAL

May 1, 2021

“This is a historic moment in lupus with two new drug approvals for lupus nephritis in just over a month,” enthused Kenneth M. Farber, LRA President and CEO.  ... please continue to read this incredible news from the Lupus Research Alliance at the URL....

https://www.lupusresearch.org/two-new-drugs-receive-fda-approval/?fbclid=IwAR26FxWrGAltOeo3hZ7uv8Agwl2psGDZOX4jDpPXysvX33eZzlWKXop54LI

I was so elated to see this and be able to share it! It has been a very long time coming for a new Lupus medication(s) to arrive & be approved by the FDA.

Renewal Ways to Celebrate Our Day to Remember those who Protect and did Protect Our Nation!

 As we begin a very different kind of celebration. One that we had to "hope" & pray would happen: I am sure many are still very nervous about not wearing a mask or being out in a larger public place, or all of the other events and things we will do that we have not gotten to do in well over a year.

Like myself, I am sure even just going to a store, if they are leaving the masks "up to the shoppers" I feel you will still see many wearing them. Even those like myself, I have gotten both vaccines so I am good till this "booster" one comes along. 

Which I hav felt all along a BOOSTER would come even quicker than the flu vaccine. We are still NOT WELL by a long shot. Not everyone has full protection if they have not had a vaccine or vaccines if you need 2, and could still either spread it to get it from someone else who maybe ll and not know it. 

Also, our researchers are are a long way from "knowing" for SURE the science behind this vaccine will work, and will will work over and over again. It may only last 3 months, or you need a booster once a month.. or whose to say that whoever "attacked us" I feel someone got it here on purpose won'r turn around & knowingly send something more destructive. So yes we cannot live like the "Bubble Boy" that has NO IMMUNITY and would die within months if he was expose to all of the deadly viruses that are out there. So, we must be smart as to what feel we is best. And we can't trust everything, but "gut-Instinct" to me seems to work fro meA my own health, as to whether to ha a Lumbar surgery or not...some things "like COVID" delayed it but other we me "not being sure, feeling eery" & still waiting before I go allowing even the of best doctors go cutting into my lower back.  Sure enough my decisions to check on something else may be best for now & put off the Lumbar Lower Fusion till a bit later". ONCE HE does that 1ST INCISION THERE IS NO TURNING BACK FROM THERE. If I have further test to see what is really gong on if possible about my bones, the osteoporosis, my right shoulder that I did read they  ted to "wear out" at about 10 YEARS! Which it has been a bit over 10 years... So this is NOT just nervous" HOLDING ME BACK, IT IS some thing telling me to waiting just a bit then have it done. By the way   , THE ORTH DOCTOR TOLD HIS NURSE TO IVE ME THE BACK BRACE TOAKE TAKE HOME FOR THAT LOWER LUMBER SURGERY EVEN THOUGH I WAS STILL A BIT OFF ABOUT IT ALL, SHE GAVE IT TO ME, AND YESTERDAY I GET A BILL FROM 256$ FOR MY CO-INSURANCE  they knew if the hospital did it thy would just have it in their total co-insurance of which mine whole thing is about 352.00 and he knew if he did tit hid way they would collet that high -co-pay which is insane anyway!!~  ROGHT NOW IAM NOT PAYING  DIME ON IT UNTU WE SEE WHAT HAPPENS THE THEY CAN HAVE IT BACK!!A

What Happened to "Do No Harm"? Yet with the Crisis that Chronically Ill Pain Patients are in that is just what is happening

The Crisis Causing Many Chronically Ili Patients Pain much Harm! 

After a visit to my Pain Specialist last week, who has been taking care of me for over 10 years, I GOT an overwhelming feeling things are getting much much worse very quickly. He has always been very honest about ho issues are when it comes to the CDC, etc & Pain meds for Chronic Pa Patients.He was "tight lipped" which was extremely odd, he had suddenly changed the name of his office & the location. He took the word "pain" out of the name of his business & I could tell he was not willing to handle my own chronic pain issues as he has all the years I've been seeing him...WE NEED to GET SERIOUS ON CONGRESS, THE CDC, & ALL ON THIS PEOPLE! I AM READY TAKE A TRIP TO DC & GET THE MESSAGE ACROSS, SIGN PETITIONS, SEND PERSONAL LETTERS, GET HOLD OF OUR LOCAL NEWS CHANNELS! We are in BAD SHAPE if we don't really get on the ball on this issue.

https://www.painnewsnetwork.org/stories/2021/4/21/pain-patients-say-cdc-opioid-guideline-cruel-and-abusive?fbclid=IwAR3ZaQFZzLAcNAeIdE-2NUEd4WJJLjqMjNENigEkk3XQdvGPXcqgY1ALhhs#.YJaQFKF10V8.facebook

A/C Tear, Possible replacement of reverse shoulder replacement from 10 years ago, more & better information on Lumbar/Sacral Surgery. Osteoporotic wonders and more

 Several things I am touching on, since things have been upside down and inside out with me, my Lumbar/Sacral spine needing surgery, 10 years later after my 1st "total Right reverse shoulder replacement and it goes on and on...

I know it has been awhile since I've been able to post here, I plan to begin getting more done especially after the shoulder and hopefully Lumbar/Sacral Spine is fixed... I need to continue on my book. I do have well over 600 PAGES "want written" out since COVID-19 began so those I do not have on the computer yet. But, will be a portion of the "book or books" I shall continue to write...

http://revistadeosteoporosisymetabolismomineral.com/2018/04/12/osteoporosis-and-spinal-surgery-strategies-for-medical-and-surgical-treatment/

Great Article for osteoporotic women and men that must have spinal surgery especially Lumbar and Sacral. It really helped to understand how much they have hanged in 10 years! I could no believe it had been 10 YEARS since I had the "reverse shoulder replacement surgery"! So, "if" the "Bone scan"" (done with the special dye) shows a greater thinning of bone, then I "may" have to have e new replacement put in that is totally different than the one 10 years ago. Much improved for those with "osteoporotic" bones issues. This one talks about the spine, and he told me this information last Friday when I went in to discuss both the shudder and the Lumbar/Sacral spine surgeries. I was told 10 years ago, with the shoulder replacement it would probably "wear out" in about ten years or so... with new types o screws, equipment, and placement they last a great deal longer. Also, it may be that with the new ways they would do my Lumbar surgery, with smaller screws, and cemented hardware, and other new parts, my chances are much better for them to hod up without me having problems with the L-4,3,2,1 etc above the L-5/S1... I am still very nervous about the  Lumbar spine BUT  did finally get more information from my specialist on the surgery and how they have made dramatic changes. As far as the shoulder, I DO NOT really want a "2nd replacement: and hope t s more about the A/C being torn in several placements...those could be fixed without replacing the entire shoulder. I HAVE to get this shoulder fixed either way. It gets worse every day it feels like and I get to where I can do less and less with the arm...plus with the RA effecting m knuckles, fingers, thumbs so badly now, that makes it ever worse.

Thursday's Addition of my Newspaper Chronic Pain, Autoimmune Illnesses and Dementia

Thursday's Addition of my Daily Newspaper

             http://news.autoimmunearthriticsystemiclife.com/#/

From Dementia, to COVID and Chronic pain, Autoimmune Diseases and more... visit Daily!

SORRY for the LACK OF POSTS FOR MY BLOG & FOR MY DAILY NEWSPAPER!! BACK UP AND GOING NOW!

 

Blizzard of all blizzards in my town - never before!!

    HOPE TO BE UP AND RUNNING AGAIN AFTER THE HORRID blizzard!!! I HAD SEVERE INTERNET ISSUES FOR ABOUT 10 DAYS OFF AND ON SO I COULD NOT GET THINGS POSTED!! THEN MY DAILY NEWSPAPER... THER ENTIRE SYSTEM CRASHED AND THEY WERE ALSO DOWN ABOUT 10 DAYS!!! 

HOPEFULLY THINGS ARE UP AND many many OF OUR TOWN PEOPLE AND BUSINESSES HAD water lines breaks that plumbers were so swamped it was a nightmare - they are still trying to get back to somewhat normal!!!RUNNING AGING!!!

Today's Autoimmune etc newspaper... I SO APOLOGIZE FOR NOT having one out the past 10 days or so!!! The paper itself crashed and had massive problems due to weather... so hopefully they will be up and going daily once again... down due to the weather the has massive problems...up and going now for GOOD I Hope!!!

Shower/jacuzzi,rainfall,waterfall,sauna tub... trading for needing a walk in one seat shower, new wood under my toilet & it seated plus a few other things...

 Here is the tub/jacuzzi/steam/radio/phone/two shower heads, rainfall /waterfall, foot massager that I have now. It is in perfect shape other than a couple of pieces that are more for "looks" and nothing to do with how it works. It works perfectly... a couple of the hand holders need changing out, just because they are looking dingy... and the little rails that are where the shampoo etc hold, also need to be replaced, they also look kind of dingy and the waterfall, has some peeling on it.. but really none of those are expensive...and you can order them online... this tub now goes for almost 4,000.00 but they have it on sale in some places for about 2,800.00. I bought mine and it was shipped from overseas crated up and it was in perfect shape, beautiful glass doors and all. That was about 2007 I believe when I ordered it and took 6 weeks or so for it to arrive.We put it together ourselves - they are relatively easy to put together. We had a separate electric connection for it, and it has it's own electric box and it's a 120 just wanted it to be separate from our other breakers. I think I paid about 2,000.00 for it or so back then. Here is a URL and a photo of it... and the ONLY reason I am going to have to get rid of it is that for 1 - now with me being alone, having both knees replaced, and that hip fracture repaired, i can't really climb over to get into it. It is not hard and it has a step up into it, but with my other chronic health issues, even the pacemaker, I can't use the sauna or the jacuzzi due to the heat and even on my pain pump, I am not supposed to sit in a whirlpool, jacuzzi bath etc. - Now that I have had the cervical neck surgeries (2 of them a couple of years ago) and now I face a Posterior Lumbar Fusion in April at L-5/S-1, that fusion is really going to make it almost impossible for me to be alone climbing into that tub... so I just need a walk in shower, with one set, and a nook for shampoo, shower gel etc... It would also give me a great deal more space in my bathroom, since we enlarged it when we added that tub... if I have just a smaller, walk in shower, be easier to keep clean and clean...& I won't have to worry so much about falling, trying to get over into a tub. If anyone knows about anyone that maybe interested in buying it from me, or maybe even doing some trading... I need my toilet with new lumber and it reseated, plus I need flooring in my bathroom, and my lights and fan are up but they are not hooked up in the electrical box in my attic... I also need a new light fixture (I already bought it) hung at my back steps, and really could use some kind o a rail on one side of my back step to hold onto , and even on the front step, it's only 2 steps but a rail on one side would be great. Plus I had replaced a ceiling fan (did it myself) but something happened to it about a year later. So, I have a brand new one sitting here in a box, to be hung, which I could do "maybe" if I had an 8 foot ladder. Mine is 6 foot and it's not tall enough, plus I really don't need to be putting my arms over my head anymore... or I would have had it and those light up in the back by the back steps... If anyone knows of someone like I said that may want to do some trading along with cash, and since I have most of the parts, mainly is labor... I've got some tree limbs that I began cutting down myself, but I can tell I really don't need to be doing that myself... it's putting a strain on my neck and shoulders arms... It irks me, I have all the tools, and the "knowledge" to do most of it and used to do most would do it myself, until my body decided to "fall apart"... anyone with questions etc jus message me and I will answer...

https://www.ambienthomeus.com/products/mesa-ws-608a-walk-in-steam-shower-with-jacuzzi?currency=USD&utm_medium=cpc&utm_source=google&utm_campaign=Google%20Shopping