"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
After an IPF diagnosis, it can be difficult to find options. Clinical trials research potential new treatments, and need volunteers to take part. A new IPF clinical trial is now looking for volunteers in your area.
The trial is researching a potential new treatment for IPF that is being studied to see if it may prevent or reduce disease progression. You may qualify to take part if you:
Are at least 40 years of age
Have had a diagnosis of IPF within the last 3 years
If you or a loved one suffer from IPF, click to learn more about the trial.
MMMMM... Well at least I know I am NOT INSANE! (or anymore than I've always been) :)... My tests from the 24 hour Holter monitor on my heart rate DOES SHOW THAT 17 HOURS OUT OF 24... my heart rate runs ABNORMALLY LOW.... as low as 42 BPM 7 hours out of that time and then in between that and 55 ..so it never really got to "normal" even when I was out and about doing things during that time... so now I can decide "if" I want to do something, like have the pacemaker put in... or wait.... my issue is that I noticed the past 6 months, I tire so easily.... by the time I get up and do a few things either around the inside or outside of the house, or make a trip to the market, get the groceries in the car, home out of the car, and put up.... and get changed.. I feel exhausted... today I did some weed eating in the back yard, and within 30 minutes I could barely lift my feet to get in the house, change, and if I ever sit down, it's like I am just too exhausted to do anything else fr the day.... plus I am not sleeping, and I found out that could be why my ankles are swelling so badly again... and having a slow rate also can cause nausea, which I am seemingly nauseated every day darned near it. But, of course once a pacemaker goes in just like the pain pump, it is there "for life"... you can't decide in a year or so that you 'don't want it any longer" ... and of course I know every about 8 years or more, the battery has to be replaced...good thing that is NOT so invasive like my pain pump... when it "goes out" I have to undergo major surgery to completely replace it...not just put a new battery in....so, I decided to do some research more and give it some thought over the weekend... and then see if I want to go in and discuss it more with my cardiologist.... https://www.nhlbi.nih.gov/health-topics/pacemakers
WISHING YOU AN AWESOME 1ST DAY OF SPRING! MAY WE HAVE WARMER WEATHER, LESS FLARES, MORE ENERGY, AND MAY WE FIND "SPRING" IN OUR STEP AND A SONG IN OUR HEARTS!
Wishing us all better days ahead. I .along with many of us have had a rough time this past winter from all of the rains, snow, ice, cold, bitter cold, and then from "warmer" to "cooler" over a day's time. I found it interesting that this winter I spoke with many people who had never had a "joint" problem, or pain, stiffness and bad issues with joints. Yet, everywhere I went there seemed to be those that never experienced symptoms of arthritis, & other joint issues that have really suffered over the past several months... It seems more people are beginning to suffer than ever before. I know I've pondered the reasons why may, that never had problems are now limping, stiff, in pain, and having major joint problems... weather? age? temperature? our polluted air water and land?, all of the "preservatives" in our food??? Makes you wonder for sure...
Talk about a crock! They will do anything to try and take away our benefits many of us worked for years and earned SS and Medicare, when after 25 years or more we become too ill to work and need our disability!
This is just absolutely ridiculous! I feel like they prefer we pass on, rather than try and live what life we have with our family, friends, spouses, and enjoy the days that are often few that are good.
Be sure to stop by DAILY and check out my Daily NewspaperLife Chronic Pain & Autoimmune Systemic Diseases & Dementia®
http://news.autoimmunearthriticsystemiclife.com/#/ It comes out new each day with all kinds of articles, news, blogs, information on the latest medications from Dementia Chronic Pain... Autoimmune Illnesses and more... You Can sign up to receive a copy daily right to your email on the front page of the paper!
Stelara® and Olumiant® Considered Promising by Lupus Experthttps://www.lupusresearch.org/stelara-olumiant-considered-promising-lupusexpert/?utm_source=feedburner&utm_medium=email&utm_campaign=Feed%3A+lrinews+%28Latest+News+from+the+Lupus+Research+Institute%29
"In Healio Rheumatology, Dr. Gregg Silverman, professor of medicine and pathology at NYU School of Medicine, provided an overview of potential lupus therapies in development. He highlighted ustekinumab (brand name Stelara®) and baricitinib (brand name Olumiant®) as two drugs that look particularly promising.".....
Patients with lupus produce immune system proteins known as antibodies that attack their own DNA. Dr. Silverman and his team found that these antibodies also target Ruminococcus gnavus.
I was almost a "Valentine Baby" LOL!!! But, actually it's cool. My family used to wait and when I was married my husband would, and on the 15th get the flowers, candy and so forth... everything would be half price so I always got more than if it had been just Valentine Day!
My Oldest Grandson, who turned I believe turned 15 last year. It's so hard to believe he looks so "grown up"... It was just yesterday it seems that they had brought him up to see me when he was about 6 weeks old... and to think it's been that many years, well it does seem time goes by all too quickly....
Another one of those touching songs that can bring back so many memories, feelings, emotions, and wondering where either things were so "right" or where they went SO WRONG! Since I met my now "ex" in Seattle WA, this song really hits me about the beach... I lived right at the "Sound" the inlet that you could see from just about anywhere in Seattle if you were high enough, and it was always beautiful. We met there after first meeting online, talking on the phone, and then Memorial Day 2003 we met there on Alki Beach. At first honestly, I thought "he" was not "right" for me... and within a few dates over a couple of weeks, it hit me just how "right" it did feel being with him. I couldn't imagine him "not" in my life... thus our journey began...romance, dating, and doing so many awesome things in and near Seattle. When my lease was up on my apartment that September, I decided to "move in" with him and his friend, and they lived right over the water down in South Seattle... in Renton... 4th of July had been a blast at their house, and the holidays were wonderful... he loved to cook, and I course love to bake, so we had an incredible time cooking during the holidays... after his company closed the doors where he had been working, and we thought they would "move him" with the rest of the company to Florida. We got to go for a week, and I fell in love with Hollywood FL! I never wanted to leave...
Later due to jobs, my Dad passing away... we moved to San Pedro CA, again with the best weather, wearing shorts in October, and right at the ocean front not even 8 blocks away.... So, you see why "beaches, sand, and oceans" all have a place in my heart....
This song just stirs up all of the feelings that I "thought" I had gotten over, I had healed, since to this day, I have no real clue why he left... lots of things in between those 10 years... but nothing I thought would ever break up apart... we were "sewn together" at the hip....
Alas things changed, and I have too. I lost my Mom now, and most of the family are gone, other than cousins... and my two grown kids...
Love has made me soar, and it's shattered me to pieces, like shards of crystal from a wine glass ... and I keep wondering.. my thoughts are that I have "had my chance(s) at true love" and for some reason I just can't get it right... So as my heart bleeds, and my body aches... my mind is reckless, and tossed around.. each day I try and "find a reason" to pick myself up and find something to do....
