"Giving Tuesday November 27th 2018" STOMP OUT BULLYING!!!! The "Global Movement"

Giving Tuesday, the Tuesday after Thanksgiving, is a movement to create an international day of giving at the beginning of the Christmas and holiday season. On this day of GIVING, we ask you to think of the youths who we work to keep safe at school every day .. the youths who we work to keep safe online... the youth whose lives we save every day.

World Kindness Week is November 13 - 20th. The purpose of World Kindness Week is to highlight good deeds in the community, focusing on the positive power and the common thread of kindness that binds us. Today and every day, focus on the good and spread kindness wherever you go. One way you can do this is to stand up for people who don't have a strong voice. You can also use inclusion, unity, respect and acceptance to spread kindess to the people around you. YOU can make a huge difference.

At STOMP Out Bullying™, we LOVE to share messages and stories of kindness, and to hear yours. What are your plans for this World Kindness Week? Share your thoughts with us on social media and let’s keep the global conversation on kindness going.

New Clinical Trial for - Primary Biliary Cholangitis (and my story about a nightmare gallbladder surgery gone very wrong)

Primary Biliary Cholangitis brought to you sponsored by Cure Click

https://curec.lk/2PSFzXI

About 65 out of every 100,000 women have #PBC in the U.S. Researchers are looking for volunteers who experience itchiness as part of PBC. #primarybiliarycholangitis #sponsored #cureclick 


New Clinical Trial! This none is critical to me... due to me having what they thought was gallstones, or my gallbladder inflamed and possibly infected, I had an emergency surgery to remove it. During that, the surgeon "nicked' a bile duct. Which caused poisons to empty out into my body cavity... almost like blood poisoning/.. 

I was rushed to a hospital in Dallas to a specialist or let's just say MORE than one specialist. One of the main surgeons tried at least 4 times to do surgery and repair the duct. They "called in" my family, on the last two not knowing whether I would survive. She finally was able to repair the nick on the 4th time and stop all of that poison to stop pouring into my body... BUT, I did NOT EAT one bite, or even drink anything for over 6 WEEKS!! I was on so many IV's that I had a special IV "holder" to keep them all separated and in order. They "mixed" special bags of nutrition to hang and give me through IV's that entire time. I had 2 drainage tubes in me, and even came home with them still in for several weeks. They never really "knew" exactly what all was "wrong", more things though than the bile duct issue also. 

It was not enough to go through that, then I began to have (sorry I'll try not to be too graphic) to not be able to get up or call quickly enough to get to that bathroom, so for about 4 or 5 days I would wake up literally covered in incontrollable Diarrhea, and the nurses had to force me to get up, completely shower me and change my bed sheets and all, sometimes several times in just one night. It was the most frightening experience I've ever had. I guess after I was finally home, I figured out all of the antibiotics they gave me, and not eating for weeks, and all of the toxins, it "killed off" the good bacteria in my intestines that caused all of that uncontrollable mess. Then they came in, BEFORE I EVEN HAD TUBES OUT AND WAS STILL REALLY NOT EATING, and tried to get me to "come home"... I literally within hours had a 2nd heart attack (10 years almost to the day of my 1st one)... from the cardiologist said the stress on my body, plus the extreme fright I was in, scared I may die if I went home... fortunately I didn't have a blockage, so once again I was able to get over the heart attack with medications. He said that you "hear" of people dying from a "broken heart" from being so upset for reasons, such as losing a loved one, a terrible break up, divorce etc... that was the type of MI I had... he called it a "broken heart "MI") - I had heard the term used about having a broken heart, but I didn't know it was a real medical emergency and a real type of heart attack that can happen. When I got home, again still with two tubes draining, they stayed in another 10 days...

 I went to the "office" to have then out finally, and I nearly passed out when they took them out... LITERALLY SHE PULLED OUT FEET AND FEET OF DRAINAGE TUBES THAT HAD BEEN IN MY BODY CAVITY!!! I could not FATHOM I HAD THAT MUCH "DRAINAGE TUBE" INSIDE ME THAT ENTIRE TIME... SO, WHEN I SAW THIS Clinical Trial, it brought up all of that mess I went through and just how closely I came to dying a couple of times while in the hospital.. the ORIGINAL SURGEON WHO CAUSED THE NICK IN MY BILE DUCT WAS FIRED IMMEDIATELY! It was an experience I NEVER WANT ANYONE TO HAVE TO DEAL WITH AGAIN.... not that it has to do with "this exact clinical trial BUT anything to do with your bile ducts, liver and gallbladder is nothing to "fool around" with... go immediately to a specialist if you have issues with something such as this and get checked out!

From RA, Chronic Pain, Lupus, to "PTH" labs "off" and more new specialists like an Endocrinologist (HAPPY HALLOWEEN)

"Chronic Illness and Pain - NEVER TAKE A HOLIDAY! Yet, I hope your Halloween is filled with "good spooks", wonderful costumes, party with friends, "candy but not too much".... and that your Autoimmune Illnesses will give you a reprieve for an evening...
Alas, then we can say "TRICK OR TREAT"!!!!!

Colonoscopy and Endoscopy - Just another procedure to put us through....n Life with Chronic Pain, RA, Lupus & chronic illness

Going through the Ordeal to get Ready for an Endoscopy and Colonoscopy!

Also Barrett's which I have and my Anemia is getting worse every 3 months, and my Parathyroid Labs are all "off" also....

So, I started to see the surgeon on Thursday afternoon, to see about scheduling that endoscopy and colonoscopy... and about the time I was leaving the house, I "felt" one of those drenching sweats coming on, plus they were supposed to put the holter monitor on me for 24 hours while I was there... I almost called and cancelled, but decided I would "try" to at least get into the surgeon... 

and wait on the monitor... because the leads will not stick on my skin if I am having one of those horrible drenching cold sweats... so the doctor was running over an hour late! I knew I was getting worse, but fortunately it was not a terribly bad one, but I did put off the monitor and told them I would try next week... and I did get in, so I have the endoscopy and colonoscopy on November the 14th!!! And now the way they "clean out" your digestive tract is almost silly.... 

rather than drink that "lime stuff" like you used to, you get 2 32 ounce bottles of Gatorade or Pedialyte... 2 bottles of "Miralax"... and 5 Ducolax pills... and mix the Miralax in the Gatorade and drink it like a glass every 10 minutes until you are finished with it, this is at noon and you are "fasting" anyway, with jello, etc the whole day before", and then at 6PM you drink the other Gatorade and Miralax and I think in between take those Dulolax pills!!!! 

Good Lord I hope that does not make me sick... that is a lot of Gatorade, and I guess it helps to "hydrate" you, rather than used to, you would be almost dehydrated doing it the old way.... anyway, I just hope they can do it early in the morning on the 14th and get it over with... I've got to get hold of my son, and see if he can get off work to take me... of course they put you to sleep so you have to have someone to drive you home after it's done.... I still have not heard from the Endocrinologist... but I guess I will call myself and try to schedule an appt if I don't hear from them by early next week....

My Latest Addition of my Newspaper! For Tuesday!

Tuesdays Addition of my Newspaper containing some great articles and information from the Arthritis Foundation and the College of Rheumatology and the Annual "CARRA" Conference!

http://news.autoimmunearthriticsystemiclife.com/#/

College of Rheumatology

Annual Meeting of "CARRA"

http://blog.arthritis.org/news/american-college-rheumatology-2018/

Another NEW Parkinson's Clinical Trial by Cure Click!

Another New Clinical Trial for Parkinson's sponsored by Cure Click!

A new #Parkinsons disease clinical study is evaluating an investigational drug to see if it may potentially help slow or reduce disease progression. Learn more! #sponsored #cureclick https://curec.lk/2CZN7SF

New Clinical Trial Sponsored by Cure Click For Parkinson's Disease

Many Parkinson’s treatments have challenging side effects. A new study is researching whether an investigational treatment is both as effective and safer than existing options. The study is looking for volunteers who are not currently taking medication for their Parkinson’s symptoms.

You may qualify if you:

• Are between 35 and 80 years of age
• Have been diagnosed with Parkinson’s disease
• Have not been taking Parkinson’s medications for more than 4 weeks

Key benefits to the patients include:

• Investigational medication
• Study-related medical care by Parkinson’s disease experts
• Trial lasts 14-18 weeks and requires 7 site visits

If you’ve been diagnosed with Parkinson’s in the last 3 years and haven’t started medication yet, or started four weeks ago or less, a clinical trial near you may be an option.

https://curec.lk/2wpFzmj

"Chronic Pain Product" Over the counter from Canada and appears will be approved here... "Comfort"

https://www.financialbuzz.com/abattis-unveils-comfort-its-proprietary-new-chronic-pain-and-inflammation-product-to-start-shipping-november-1192849/

https://abattis.com/category/news/

New Chronic Pain Product Over the Counter, "Comfort"  seems to be in Canada and appears to also be coming to the USA also!

See the information at the two links above!

Animal Pain Awareness Month! Our Pets have Pain too!

 Our Animals and their Pain is REAL ALSO!

We even as pet owners, don't "think" that one of our fur-babies" might be in pain. In fact my little terrier Peanut, "suddenly" started holding a back foot up, and he can't stand to put it to the ground. I was in the shower, and before I got in he was fine. But, when I came out int the living room, I noticed he was having a hard time getting up.... 

I went to him and asked him if his foot or leg hurt, but I believe it's a nail he probably hung while I was in the shower, and him and Bella were playing and he probably pulled a nail to the quick... They will NOT behave for me, if I try myself to cut them, and Bella keeps her front ones "groomed herself.. but taking them to the Vet is also a pain, they are just nuts in the car, and they are like two bulls in a china closet to get them out, in the car, out at the Vet, inside, and then to the car again, and home... But. when I saw this article in my newspaper today, it dawned on me, pets show :pain" in different ways"....

 I can tell which one of mine maybe hurting or not feeling well, but the other acts completely different. Anyway, a reminder to keep an eye out for a limp, or licking a paw, or Bells "whines" and mopes .... He is better today... I am glad. I thought I may have to take him to the doctor, and I FINALLY JUST GOT TO GET THE LAB WORK DONE YESTERDAY!!! Just 2 or 3 weeks LATE! I have felt like heck, this weather is really effecting my joints etc badly

https://ivapm.org/animal-pain-awareness-month/

Chronic Eczema New Clinical Trial Sponsored by Cure Click

Chronic Eczema affects millions of Americans. Are you one of them? Research studies now enrolling. Payment varies by study up to $1,750. #eczema #sponsored #cureclick Volunteer today! https://curec.lk/2NeRo9DChronic Eczema affects millions of Americans. Are you one of them? Research studies now enrolling. Payment varies by study up to $1,750. #eczema #sponsored #cureclick Volunteer today! 

       

            https://curec.lk/2NeRo9D