Sponsored by Cure click
"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
Saturday, April 21, 2018
Diabetic Nerve Pain and New Clinical Trial by Cure Click
85% of people with DPN say #diabeticnervepain affects them daily. Research studies enrolling now. Payment varies by study up to $300. #sponsored #cureclick pic.twitter.com/HKjwOJpDw6 See if you qualify!
Crohn's Disease New Clnical Trial by Cure Click
Housebound with #Crohns flares? Local studies are enrolling now. Payment varies by study up to $750. Learn more! #IBD #colitis #sponsored #cureclick http://curec.lk/2j2LqIY
#AnkylosingSpondylitis - Clinical Trials by Cure Click
#AnkylosingSpondylitis? Research studies enrolling. Earn up to $500, varies by study. #AxialSpondyloarthritis #axSpA #AS #sponsored #cureclick Learn more! https://curec.lk/2Eu7ZxF
#Parkinsons patients, and Clinical Trials
For #Parkinsons patients, in addition to the more well known motor symptoms, up to 50% of patients also suffer from excessive daytime sleepiness. This can have a significant effect on the quality of life of both the patient and their caregiver, and in some cases be even more profound than the motor symptoms.
A new clinical research study is looking at the safety and efficacy of an investigational medication for excessive daytime sleepiness in patients with Parkinson’s disease (PD). For patients who meet the study criteria, the trial will last about 9 weeks and involve 7 visits to the study center. Qualified participants will be provided compensation for time and travel.
Please consider helping medical research in this important area by participating in this trial. You can learn more and begin the qualification process at https://curec.lk/pdblogger.
Friday, April 20, 2018
NEW RA Medication "JAK and JAK-1 Inhibitor for "Oral Use" in Rheumatoid Arthritis
New Clinical Trials and Information from the FDA in regard to a brand new Oral Medication, first of it's kind for RA... on the horizon possibly...
There is a "supposed" New Rheumatoid Arthritis Drug, (Oral) another JAK and JAK-1 Inhibitor on the horizon BUT there seems to be questions in regard to causing "blood clots" and it is in Clinical Trials at the time. This would be the "1st) of a kind RA medication that would be a ONCE daily oral med. We NOW have another JAK Inhibitor, Xeljanz on the market. You take it twice daily and it is an oral medication. What my Rheumatologist told me it is usually good for those with >mild> RA as a "stand alone" medication BUT for those like myself with "severe" RA,other medications such as my Actemra that I take by injection which is a biologic, along with other medications are needed when the RA is in severe form. I've really been through the mill on these two. I've been on Actemra now for about 9 months or so. But, my hand joints,wrists, fingers and especially my thumbs are really bad! So, he put me on the Xeljanz orally I take twice daily. Well at first I was thrilled then I got to reading and worried about the biologic and the JAK inhibitor together. I spoke with my PCP and see my Rheumatologist next week. What my PCP told me, is that "each person" is individual, and they have to put out the information for "overall" folks, BUT that my Rheumatologist has done is own "testing" as far as how his patients and those in the clinic do overall with the medications. So, he decided for me it was a "good fit"... which of course we all know that because you "read" something online does NOT mean it is so for you also... but this is exciting news for another alternative, or addition to our other RA medications. As well as many possible other autoimmune illnesses.
Here is more information and this is by Lilly....
"The Texas Blues" written and sung by me
I don't have the guitar or me playing the song but he is one I wrote back a while ago, and added to it lately... I am a bit off key LOL... plus I've had such a sore throat lately, I have a difficult time trying to sing.. after the last neck surgery, he really did a number on my vocal chords going in through the front of my neck, so I've not yet gotten my voice back as it was and may never get it back all the way....
"The Texas Blues"copyright 2010 Rhia Steele
Tuesday, April 3, 2018
APRIL is National Sjogren's Awareness MONTH!!!!
http://info.sjogrens.org/conquering-sjogrens/topic/april-awareness-month This was a "strange term" the 1st time my Rheumatologist said it to me. I had heard of it a couple of times from women I knew that had it, but I had no clue just how "damaging" this illness (autoimmune at that) can be. Did it ever takes its toll on me, when within 2 weeks I had 3 TEETH BREAK OFF AT THE GUM LINE! From that point, ONE OF THE MOST HORRIBLE THINGS I EVER DREADED HAPPENED TO ME... I HAD TO LOSE ALL OF MY TEETH AND HAVE DENTURES! I always "feared" losing my teeth, or losing my hair! One of those came true.... and to this day, (this was in 2014 that it began) I STILL FEEL SELF CONSCIOUS, AND IT HAS HINDERED ME IN MORE WAYS THAT YOU CAN IMAGINE, EATING, SLEEPING, BEING IN FRONT OF PEOPLE, TALKING, SINGING, YOU NAME IT, IT IS HORRID! I spent well over 6 MONTHS, having the REST OF MY TEETH THAT WERE ROTTEN AT THE GUM BEING EXTRACTED, then at the last he pulled ELEVEN more and put the dentures in... and again I will never be the same.... so SJOGREN'S is nothing to TAKE LIGHTLY! It effects ALL MUCUS MEMBRANES OF THE BODY, FROM THE MOUTH, NOSE, EARS, SKIN, YOUR INTESTINES, YOUR HEART, EYES, ANYTHING THAT HAS A MUCUS MEMBRANE CAN BE DAMAGED OR SEVERELY RUINED JUST OVER NIGHT... AND RIGHT NOW HONESTLY THERE IS NO CURE, AND EVEN THE TWO MEDICATIONS AND I'VE TRIED BOTH.. DO NOT REALLY WORK ALL THAT WELL.... |
Saturday, March 31, 2018
May The Easter Blessings, Fill your heart with joy, and give you the strength and courage to face tomorrow and the next.... Happy Easter
Because He Lives, We can hold on and face all that this Old World throws in front of us. As we walk through illness, stress, jobs, and all of the "bad" things here on Earth, we CELEBRATE THE GOOD ONES, AND KNOW THAT HE LIVES FOR US!
May you know in your heart on the 3rd Day the stone was rolled away, and Jesus Lives for Us....
Friday, March 16, 2018
New Flu Vaccines in Clinical Trial by the NIH!
Thursday, March 15, 2018
H7N9 influenza vaccine clinical trials begin
NIH HAS NEW CLINICAL TRIALS UNDER WAY FOR NEW FLU VACCINES!!!
https://www.nih.gov/news-events/news-releases/h7n9-influenza-vaccine-clinical-trials-begin
AUTOIMMUNE ILLNESSES, & CAN YOU have "Botox", "Restalyne" Or some of the other injections for lines around the "Mouth and Lips?"
QUESTION? ANY OF YOU WITH AUTOIMMUNE ILLNESSES, HAVE YOU EVER WENT AND HAD ANY TYPE OF FACE/LINE PROBLEMS DONE? LIKE GETTING A BOTOX INJECTION, OR SOME OF THE NEWER ITEMS THAT ARE DONE BY INJECTIONS? I KNEW ONCE I GOT MY DENTURES (DAMNED SJOGREN'S TAKING ALL OF MY TEETH) THAT I WOULD HAVE MORE OF A LINE ON EACH SIDE OF MY FACE AND ON THE TOP OF MY LIP...
BUT OF COURSE WITH AGE THEY ARE GOING TO BE THERE AND GET WORSE. SO, I HAVE READ BOTH "OKAY" AND "NOT OKAY" TO HAVE THESE TYPES OF PROCEDURES DONE IF YOU HAVE LUPUS ETC??? ANYONE HAD ANY EXPERIENCE, AND IF YOU DON'T WANT TO SAY ON MY MAIN PAGE JUST SEND ME A MESSAGE ON THE MESSENGER. I AM REALLY, REALLY BUMMED ABOUT HOW THEY ARE WITH THE DENTURE SITUATION, WHICH I HATE THEM ANYWAY, THAT IS ANOTHER ENTIRE STORY! BUT, I WOULD LOVE TO KNOW MORE FROM SOMEONE WHO HAS EITHER TRIED TO HAVE IT DONE, OR HAD IT DONE ETC!!!!! THANKS! RHIA
ONE ARTICLE: https://www.skintour.com/q-and-a/autoimmune-diseases-and-fillers-are-they-safe-can-food-help/
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I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things abo...
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How can our kids feel safe when WE as adults don't???? I fear Wal-Mart or just walking across the parking lot at HEB in my small lo...
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I finally made a trip to Urgent Care with what I feel is a very bad Lupus and RA flare, but there are several "symptoms" strange t...