May The Easter Blessings, Fill your heart with joy, and give you the strength and courage to face tomorrow and the next.... Happy Easter

Because He Lives, We can hold on and face all that this Old World throws in front of us. As we walk through illness, stress, jobs, and all of the "bad" things here on Earth, we CELEBRATE THE GOOD ONES, AND KNOW THAT HE LIVES FOR US!
May you know in your heart on the 3rd Day the stone was rolled away, and Jesus Lives for Us....

New Flu Vaccines in Clinical Trial by the NIH!

Thursday, March 15, 2018

H7N9 influenza vaccine clinical trials begin

NIH HAS NEW CLINICAL TRIALS UNDER WAY FOR NEW FLU VACCINES!!!

https://www.nih.gov/news-events/news-releases/h7n9-influenza-vaccine-clinical-trials-begin

AUTOIMMUNE ILLNESSES, & CAN YOU have "Botox", "Restalyne" Or some of the other injections for lines around the "Mouth and Lips?"

QUESTION? ANY OF YOU WITH AUTOIMMUNE ILLNESSES, HAVE YOU EVER WENT AND HAD ANY TYPE OF FACE/LINE PROBLEMS DONE? LIKE GETTING A BOTOX INJECTION, OR SOME OF THE NEWER ITEMS THAT ARE DONE BY INJECTIONS? I KNEW ONCE I GOT MY DENTURES (DAMNED SJOGREN'S TAKING ALL OF MY TEETH) THAT I WOULD HAVE MORE OF A LINE ON EACH SIDE OF MY FACE AND ON THE TOP OF MY LIP... 

BUT OF COURSE WITH AGE THEY ARE GOING TO BE THERE AND GET WORSE. SO, I HAVE READ BOTH "OKAY" AND "NOT OKAY" TO HAVE THESE TYPES OF PROCEDURES DONE IF YOU HAVE LUPUS ETC??? ANYONE HAD ANY EXPERIENCE, AND IF YOU DON'T WANT TO SAY ON MY MAIN PAGE JUST SEND ME A MESSAGE ON THE MESSENGER. I AM REALLY, REALLY BUMMED ABOUT HOW THEY ARE WITH THE DENTURE SITUATION, WHICH I HATE THEM ANYWAY, THAT IS ANOTHER ENTIRE STORY! BUT, I WOULD LOVE TO KNOW MORE FROM SOMEONE WHO HAS EITHER TRIED TO HAVE IT DONE, OR HAD IT DONE ETC!!!!! THANKS! RHIA

ONE ARTICLE:   https://www.skintour.com/q-and-a/autoimmune-diseases-and-fillers-are-they-safe-can-food-help/

Young Women from 24 to 32 or so that really NEED HELP TO GET THEIR LIVES ON TRACT... AND wanting a 2nd chance & the difficult time they have. Me, lupus, RA, Sinus infections infections and Life!

Lupus Flares, Pain Pump refill, Young Women & getting another chance to change their lives, LIFE, and Chronic Illnesses with PAIN!

Everyone, it has been MORE THAN AN INSANE WEEK OR MORE FOR ME! Between my own doctors visits, and a friend had a new baby and there were issues, but all is well now, I had to go over to the next town in our county to renew my driver's license, since it's been 12 YEARS LOL since I had gone in and took a new photo etc, I had to physically go in this time to renew it. That took forever; although I must say the system now is better than it used to be. Then I had another friend with problems, and was trying to find some help for her, along with my own other stuff, cutting tree limbs, and I've got to get to the market today, but I have not had time to clean my house like it needs, and then I have to take a shower, and it's so pretty outside, I need about "5 of me cloned" so I can do 20 things at once!!!! I have not felt that great yet either. In fact, I have not started my RA meds yet, since being ill with the sinus infection. For some reason, I was running a fever, low grade, but still a fever Monday. 

I went in for my pain pump to be refilled, and when they checked it, sure enough I had a low grade temp. I came home and checked it myself, and I was still running a bit of one. I didn't run any fever at all with the sinus infection. Plus, I have kind of "stopped" running a low grade temp with the Lupus. Used to I seemed to almost have a low grade one daily with the Lupus. It went back down and as far as I know has been back to normal the past couple of days. But, I was concerned so I still kept off the Actemra and the new Xeljanz, until I could see what the temp was all about. But, I've had a damned headache, and a bad one at times, for the entire week! IT could be "stress" or maybe I have a Lupus flare, that will give me a Lupus Migraine from hell at times. 

So, yesterday I "almost" went BACK for a 4th time since the 1st part of January and had them give me a prednisone injection for the headache. But, I toughed it out yesterday, and it is not so bad so far this morning. So, it could be anything causing it. With everything going on, as I said I could be more "stressed" out than I think and it's causing the headache. Usually I don't have one that bad. 

When they are bad enough I want to scream and cry, usually it's due to a Lupus flare, or I am sick with something. So, I am going to take the Actemra later this evening and then take my 1st Xeljanz tomorrow and see how things go. Please keep me and those couple of people in your prayers, with problems and the young woman with a new little baby girl. She needs lots of prayers, so she can get her life together, and get back on her feet. The very "odd" thing is, lately, I know of about 4 people, that have someone in their lives in the same situation. The nurse that comes to see me weekly from my insurance, is helping a young woman with kids, and her trying to get her "stuff" together, and the young woman I know. Then my daughter also knows a young woman going through about the same situation, and I have another friend that has a daughter who is really trying to get her life on tract, get a job, her own place to live, and put herself back on the right roads.0 

These young women ALL need our prayers. It seems that many of them at about 25 years old, either get involved with the "wrong crowd", have a child or children, either the Dad is not there or does not help out, and they are desperately trying to dig their way into a 2nd chance. But, that is hard to do... it's hard to get any assistance these days, it takes so much time, paperwork, and red tape. Then of course we have some that have "abused" it, so that makes the ones that really WOULD benefit and try to do right unable to get the help they need. So, something about that age group, some between about 24 to even 32 or so, really lots of young women out there with the same problems... and NO PARENTS, that either will help, or are even around to help.... it sucks, and i AM SO PROUD THAT BOTH OF MY ADULT KIDS ARE IN A PRETTY GOOD SPOT, AND HAVE THEIR HEAD ON THEIR SHOULDERS RIGHT! :) For that I am BLESSED AND GRATEFUL FOR SURE!!!! Have a good weekend everyone!

RARE DISEASE DAY 2018- - Raise Your Hand and Post this to help raise awareness and make a donation for a $1.00 for each click on this

Raise awareness for #RareDiseaseDay! 1 in 10 Americans have a #raredisease. Clicks on this link will support research for rare diseases. #NORD #CureClick. Every click counts: http://curec.lk/2Fd2yaV

The "News" and how they TWIST INFORMATION THAT HARMS PAIN PATIENTS AND OTHERS!!!!!

I got SO PISSED AT THE NEWS LAST NIGHT, I COULD HAVE SPIT!!!

They started NOW on the "Non-Profit" Pain Organizations taking "kickbacks" as "donations" from some of the big "Pharma" companies that make the heavy narcotic pain meds... BUT RATHER THAN TELL IT LIKE IT IS, THEY "PIECED" TOGETHER what "they" wanted to make it mean, I was so mad I wanted to jerk Lester Holt through the TV and slap him LOL....

it is stupid, it would be NO different than a Pharmaceutical company that makes "cancer" meds, or "diabetes" meds giving money to non-profits... to help "educate" patients, to give information out to assist patients about medications etc that DOES NOT MEAN A NON-PROFIT IS "GIVING PRAISE" ETC to "any one" drug company, it means that they could be "working" together for a common goal, to help legitimate patients get the treatment they need, and keep it out of the hands of those who use it illegally, sell it and so forth...

then to top it off, they said there is "one doctor" who gave out "1,000" pain pills in a day!!! WELL, THINK ABOUT IT, IF A PAIN SPECIALIST SEES 25 PATIENTS A DAY OR WHATEVER, some having procedures, some having surgeries, many on different meds, and they see 10 PATIENTS IN A DAY, THAT NEED REFILLS FOR 30 DAYS OF MEDICATION... if a patient take 1 PILL every 6 HOURS a day, that is 4 pills a day times 30 DAYS IN A MONTH, THAT IS 120 PILLS ... WELL IF 10 PATIENTS NEED REFILLS THAT IS 1200 PILLS BUT IT IS FOR 10 PATIENTS FOR 30 DAY SUPPLIES!!!!!! NOT 1200 PILLS ALL AT ONCE FOR ONE PATIENT!!!! OMG! I was SO PISSED, IT IS RIDICULOUS THAT THE NEWS PIECES TOGETHER WHAT GIVES THEM RATINGS! and harms others!!!!!

No matter what the subject is now days, the news takes it tosses it like a salad and then comes up with how they want it to sound for their own gain!!!! THAT IS why I don't believe much of anything they say now days, and in fact rarely really "listen" or watch the news channels!!! They are the ones that bring forth some of the issues in society we have today. Their very "way" of twisting "their truths" to suit their own status and ratings.... People should be standing up and hey we will not put up with, listen to, nor watch the garbage you guys spew out anymore!!!!

HAPPY VALENTINE'S DAY TO ALL MY DEAR FRIENDS NEAR AND FAR!!!!

May Each of You Find and Share the Love of your Lifetime with Your Soulmate... the one person who keeps you close to their heart no matter what, who loves unconditionally, who respects you, who shows you how proud they are of you.... that honors the "bonds" you have made with one another, and when you look into their eyes, you KNOW you are truly and forever loved beyond all words....
Happy Valentine's Day!!!!

SEVERAL NEW Clinical Trials sponsored by Cure Click, Radiation Therapy Cancers, Asthma, High Blood Pressure, Depression, Heart Disease and High Cholesterol and more!

Heart Disease and High Cholesterol

Struggling to control your #HighCholesterol? Consider joining research studies! Payment varies by study up to $500. #HeartDisease #sponsored Learn more! http://curec.lk/2DMCHG4

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Asthma

Using a rescue inhaler for your Asthma? Research for #Asthma. Local research studies enrolling now. Payment varies by study up to $900. No insurance or referral needed. Enroll today! #sponsored Learn more. http://curec.lk/2E9vtto

Non-Hodgkin Lymphoma

Diagnosed with NHL? Enroll in a clinical research study for an investigational medication. You may be eligible. See if you qualify. http://curec.lk/2C0r6i4

Depression

No relief from current #antidepressants? Join local research studies and get access to different options. Payment up $500. Varies by study. Get Started Now. http://curec.lk/2mJNnvj

Radiation Therapy Cancer

Contribute to #Cancer Research from home! National Cancer Institute supports this study for #testicular, #ovarian, and #cervical cancer #ad. See if you qualify. http://curec.lk/2vCjOxQ

	Research to Better Understand the Impact of Radiation Therapy			ACTIVE
	The researchers behind the RADIANT study would like to make radiotherapy safer and more effective by developing a blood test that helps doctors predict a patient’s response to radiation treatment based on a patient’s genetics. By identifying patients ahead of time who will or will not benefit from radiotherapy, doctors can use the best treatment possible in fighting the cancer. The National Cancer Institute awarded DxTerity, the study sponsor, a grant to validate this blood test in a larger population of cancer patients. Learn more about this trial on the sponsor website. HOW IT WORKS Share this clinical trial with your community using the sharing tools provided below. Be sure to include your unique link each time you share so that we can track your progress and reward you for your efforts.

Your Sharing Link copy and share this unique link

http://curec.lk/2vCjOxQ

Conditions

anal cancer, bladder cancer, cervical cancer, colorectal cancer, esophageal cancer, gallbladder cancer, kidney cancer, liver cancer, ovarian cancer, pancreatic cancer, prostate cancer, rectal cancer, renal cancer, stomach cancer, testicular cancer, uterine cancer

Enrollment

500

Sponsor

DxTerity

Drug

radiation therapy

Age Range

18 and over

Sharing Tools

Check out these tips for best practices for social sharing

#prostate, #prostatecancer, #pcsm, #cervical, #cervicalcancer, #gyncsm, #pancreatic, #pancreaticcancer, #pancan, #ovarian, #ovariancancer, #stomach, #stomachcancer, #stcsm, #testicular, #testicularcancer, #tscsm, #bladder, 

An Article in "Mad in America" Stopping the WAR on Chronic Pain Patients

Stop The War On Chronic Pain Patients

Here is the 1st paragraph of the article....  "

Readers of Mad in America are deeply familiar with the tangles of public policy which surround voluntary or compelled interventions with psycho-active drugs in people who are experiencing life crisis. Some readers will also be familiar with a different kind of crisis and its policy tangles, in the difficulty which many people encounter getting medical assistance for chronic intractable pain."

https://www.madinamerica.com/2016/05/stop-the-war-on-chronic-pain-patients/

Xeljanz Rheumatoid Arthritis, Lupus & the "latest in treatments and medications"... The Horrid Flu Season, & A New Year

I want to wish everyone once again a Happy Beginning to 2018! I cannot fathom that we are already moving into February! It was like yesterday, the holidays were here.

Now, we move on to the "flu season" which has been a nightmare to say the least!

I've spent well over 6 weeks "sick" but not really with the flu. Mine I feel had began as both an RA and a Lupus flare, both severe. I had not been feeling well since before Christmas, but I put off going to my doctor's or to Urgent Care. It was the holidays, it was everyone beginning to be ill with the flu (viruses)... and at that time they were just beginning to see that the "flu" strains which are several, were not all covered by our vaccine.

I had gotten my fly vaccine back in September. I happened to be in my PCP's office for a follow up and they had gotten theirs in, so I went ahead and got mine. Being one of the hundred's of thousands with the screwed up immune system, between the autoimmune illnesses, and the medications that also contribute to our systems being weakened, I've been taking the flu and pneumonia vaccines, when I need them. I had the flu about 10 years ago and was ill for a month. In fact it was just after the Christmas Holiday, at the time I was a manager for a retail women's clothing store. I passed out almost while at work, and my daughter had to drive me to the ER across town. And I had the flu. Of course that was the worst time for me to be ill, due to that job. With all of the after holiday sales, and inventory time, I was sick for a month, and lost the job. Other things beyond my control also did not help, but it really hit me hard.

Then while in Seattle, I had gotten not only double pneumonia, but also the whooping cough at the same time. Again, in fact, it was the 1st day of a brand new job I was headed to, I got so ill in the car, I had to turn around and go back to my apartment. I called in and told them I was so ill, and went to an Urgent Care down the road. They wanted me to be admitted to the hospital. but, at the time, I was supposed to start a new job, was in the process of moving, and going into a whole new "life and career" at the time. The irony to the entire thing is when I had interviewed for the job, both "bosses" were SICK! They had been coughing, sounded terrible, and although I sat WAY on the other side of the table, I honestly think I got sick during the interview, or was exposed.

After 10 days and two trips for shots, cough meds, and antibiotics, and then a lingering cough for a month, I got "better", went to work, moved into my new apartment, and was settling in to the new life style.

So, the "flu" and "pneumonia" are two things I prefer to stay away from if at all possible. Yet, I've had pneumonia a couple of times since, even with the vaccines. So, it can happen.

My RA has been really worse over the past 8 to 10 months. We changed me over to Actemra, from Enbrel. But, after 6 months I am still showing signs of active RA especially in my fingers, wrists, and ankles, and some in my hips.

I felt when they took me off of the Methotrexate, due to infections, that is when I began to have a more severe action of the RA. I had asked if we could try the MTX again, but they just didn't want to chance it. I had mentioned "Xeljanz" before, but at the time we were just beginning the Actemra, so the wanted to wait.

I shall continue this either later today or tomorrow....