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Did you know that those of us with some of these autoimmune Illnesses have Higher Chances when you have Lupus, RA, and/or take certain types of medications such as any type of corticosteroids...

 

 

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WEGO National Annual Awards - Nominate NOW for the different Awards those you feel deserve them!

https://awards.wegohealth.com/nominees/1998

I am nominated for "Best in Show Blog" for now! Be sure to stop by, and nominate or take a look at all that you can nominate people for!

As My World churns and turns, is it the Lupus causing my headaches and nausea, is it nerves, stress, and still having too much on my plate... or just how it's meant to be.....

I know this probably does not look all that “great” right now! BUT, when I finish and put the “chair railing” up between the white and the colors on top, I can already tell they are going to turn out awesome… the plants are some I have taken over there and planted.. Mom was never a big “garden” person, not even house plants… But, DAD LOVED the garden, from rose bushes, to a full garden when I was small, he raised onions, potatoes, fresh green beans, and all kinds of veggies, plus had peach and plum trees, and made the BEST PLUM jelly around… 

 This is the kitchen and it was ALL GREEN! So, it now will be a darker blue, light blue and white. The living room is going to be tangerine, with white at the bottom.....




I have red and "gold" picked out for the bedroom because it will go perfectly with my brand new curtains, comforter set etc that is on my bed. But, I am going to "try" to do what we did before... and that is paint the upper wall the red, then take a newspaper, or sponge (the newspaper actually works better) put a bit of "paint glitter" in that gold, and then sponge it over the red... the hallway we did that way is my faorivte room in the house!!!! I had "seen it" in my head before we ever did it, and it turned out even better than I ever expected!


OH and by the way, thee are my 1st photo's with my "I-Phone".....

Plants some from Mom's funeral I re-potted, and then I bought these two mini rose bushes (that I am not happy with...got them "on sale" at HEB - AN one of them, the lilac one, all of a sudden a couple of days ago, just looked like it was going to keep over... I re-potted both of them yesterday, so we shall see... but I am guessing that could be why they were so inexpensive...have to wonder what is really wrong with them????

LOL, we got so spoiled that none of us would eat “store bought” jelly for years…. and he also raised quail back then… he would keep a couple of chickens (hens) and take the eggs out of the quail nests and let the hens sit on them… the quail sometimes would injure their own young ones, thus letting the hens sit on them kept that from happening… so there are MANY MANY great memories, inside this house and outside in the yard for sure… Dad loved everything outdoors, and I took after him in that realm in many ways… I LOVE doing my own lawn work, when my body and the weather allows me to…. I am finding out more and more each day, just how badly the sun effects me, especially physically… and the strange thing is I have the BEST TAN in places, my arms, my legs, and some on my face from just driving my car… I never had the windows tinted in my Prius since I leased it, and believe me I WILL HAVE THEM TINTED IN WHATEVER I DRIVE NEXT!!! It really does almost feel like someone is burning me, just the sun coming through the windows and windshield… anyway, I am kind of “blah” today. I have a damned headache from hell, and my stomach is upset again… which seems to be an ongoing pattern with me lately… about the last year really, I am constantly having to take prescription nausea medication and then try to calm my head down… it is insane and I know the high heat, humidity, and then me painting with that brush is not helping. It puts such a strain on my neck and shoulders… LOL, one arm gets too “weak” so I have to change the brush over to the other arm, good thing the ONE thing I can do is paint with either hand… LOL…. 


anyway, I hope all is well in your world… I am still battling with paperwork, and need to find (I may go to Office Depot) and see about shredding services… between my own, and ALL I did not know Mom had saved… I will NEVER finish shredding ALL OF these pieces that must be shredded. So, I need to do that plus I need to make sure the funeral home let the monument place know about engraving Mom’s date of passing away on the monument. I found out that the “special granite” almost a pinkish color came from I believe Australia or somewhere overseas, and it cost a small fortune. It took them over 6 weeks just to get that piece of granite here to be engraved when Dad passed away… in fact I was going through some papers and found the original receipt from when my Mom purchased it…. Anyway, I am not feeling any better, so I think I will sit on the sofa for a bit, and see if in an hour or so, my stomach and head will calm down so I can go over and paint… and Sherwin Williams starts their new sale tomorrow with 35% OFF!!! PLUS I have the “discount perks” so I get another 10% oFF!!!!! That adds up to a lot of savings as high as the paint is now… MG unbelieveable!!!! A gallon of any type of semi gloss is regularly at least 65.00$$$$$ I almost fainted when he told me the regular prices… but it is that way everywhere, whether it be Lowe’s etc… plus I can get the proper paint, right here in town, know it’s great quality, and don’t have to run back and forth to Waxahachie for paint… I AM going over there tomorrow for an eye doctors appt, so I am going to try and go early, and to Lowe’s to price fencing, and cedar to redo the railings on the front porch, and then put one in the back….. on that porch… so I hope to have some prices down etc… I NEED to call my hair dresser, my hair is a shaggy mess LOL, in the front, it has gotten so long, I can’t do a thing with it, so between trying to keep my glasses on (they are worn out) and my hair out of my eyes, I just about go nuts…. I made a crock pot (slow cooker) of “Mexican style pulled pork” last night, and it turned out awesome! I had already made pulled chicken with Mexican spices, then I also made some with Asian spices and am freezing them after a meal or two… that way I can “restock” some of my easy meals to heat and eat… I NEED to make my famous chili, I am I think down to one small freezer bag full…. so it’s time to do that also…I had done some pulled chicken several weeks back but barbecued and it also is awesome… gotta say I LOVE MY SLOW COOKER!!! My only wish is that damned thing was NOT so HEAVY! By the time I get everything in it to cook, I almost can’t lift it up and it is already heavy enough…..

Great Article's in Tuesday's Addition of My Newspaper All Things Autoimmune Chronic Pain Dementia and more!

http://news.autoimmunearthriticsystemiclife.com/#!headlines

SEE THE ARTICLES THAT CAN BRING OUT SOME GREAT NEW INFORMATION IN THE REALMS OF AUTOIMMUNE ILLNESSES, CHRONIC PAIN, DEMENTIA, AND SO MUCH MORE!

 

 

 

A Petition to sign for Chronic Pain and such, along with information on Your Congressional Members and Town Hall Meetings!

https://petitions.whitehouse.gov/petition/direct-dhhs-fund-and-implement-national-pain-strategy-reduce-public-health-burden-chronic-pain-0


Above is a link to Congress a Petition to sign about Chronic Pain and its effects on our soldiers and Armed Force and everyone else....

Also anyone who attends town Hall Meetings in your area, congress is out for the next month and most are doing them. So, be sure to find your s and see the schedule. Here where I am mine is Joe Barton, so here is his schedule for those around in the counties he serves.... 6th District in TX.....


https://joebarton.house.gov/press-releasescolumns/rep-barton-releases-town-hall-schedule/

Town Hall Meetings with Representative Joe Barton, while Congress is out for this month... be sure to check on yours if you want to go and give your reasons for anything... from chronic pain and such, to the focus on how horrid our governmental situation is now...

I KNOW SPEAKING UP WORKS!!! It has helped myself as well as many others, so SPEAKING OUT TO YOUR ELECTED OFFICIALS IS IMPORTANT!!!

Sunday's A.M Addition to my Newspaper All things Autoimmune, Chronic Pain and Dementia! And Suggestions?????

My Brand News Newspaper for Sunda AM is OUT and Here is the link:


http://news.autoimmunearthriticsystemiclife.com/#!headlines


This is MINE to Add, change, or whatever I feel my audience" wants to read, see, hear more about and so forth (as far as health issues go) PLEASE FEEL FREE TO MAKE SUGGESTIONS...if yu have another health issue, or would like to see more about something in health, let me know and I can go in and get more article and information about those topics as well as the ones I am giving you!

I am DOING THIS FOR YOU!!! "My "Audience) So, post, email ,speak up even post on the paper itself and give me your personal thoughts and issues!

A bit of catching up, been once again "ill" with "something" a Flare possiblly, but fever, severe body hurting all over, severe headache and NO energy!!!!!

Dropping in quickly to say I am still here! Been sick for two and a half days at least with yet again, fever, severe body pain all over, severe headache, and neck hurting, and my lower sides...plus NO energy...it was as if someone took a needle stuck it in e, and drained EVER BIT OF WHAT LITTLE BIT OF STAMINA I HAVE AND TOOK IT ALL AWAY! I could barely go from one room to the other at my house...so needless to say, I am BEHIND on painting, and everything. this house needs to be cleaned, including dogs bathed, and so forth... and I am way behind on getting the painting done... and I had been on a roll... not sure if it is just the heat that ha s zapped me, even though I have tried not to be in it a lot, or possibly just a continuing LUPUS and RA flare...


PLUS my ankles are "better" but that right one continues to swell if I get up and stand, walk on it a great deal, like painting, standing on the short ladder, or cleaning house... and I am sure the heat does not help it either... I felt as if someone had taken a ball bat to me and beat the hell out of me... honestly...So, I am headed to go and paint... and hope I can continue to "feel well enough" to get somewhat caught up o that, then tomorrow spend the day bathing the dogs, cleaning and and showering me! Anyway, keep my in your thoughts, and keep my kids in your thoughts and prayers...I know they have a an awesome trip to the river, for a week, but will be driving home I think tomorrow with their huge travel trailer in tow...so I wish them safety in getting home... 


This damned Lupus, RA, Sjogrnen's and the like all added up can really put a kink in your life, and you never know when it will hit you like a ton of bricks...

FIRST YOU AND DIRECT SUN! My Week has been NUTS!!!! Between bill pay day, the heat, errands, and trying to get the #2 house painted... I thought I would say hello...and tell you a couple of things.

Our "fortunate" temps BELOW that 3 digit mark are about over... the next 15 days or more show 100 plus degrees... so since it is just the 3rd of August, I can say I feel lucky, it could have been a month ago, BUT I HATE this kind of heat! My skin feels like hot burning coals are on it, just having my arm in this type of weather. Between the Lupus, and then the Prednisone, and other meds that effect my skin, I cannot take over a moment or two in direct sunlight.... again though we are fortunate :)




http://www.msn.com/en-us/weather/today/Ennis,TX,United-States/we-city-32.329,-96.624?iso=US

And SPEAKING OF SKIN, AND HOT SUNNY WEATHER - You Guys and gals out there with ANY OF THESE SKIN ISSUES, ILLNESSES, MEDICATIONS (Lots of meds can make you very vunerable to a burn within moments - many of your "tetracycline antibiotics", many of our blood pressure meds, and if you read your labels and look your meds up, they will give you a huge warning about sun!!!!!

So, be safe! I know I "try" to do anything outside, either before the sun arises, or after it is down below my tree lines, BUT today, I went over to house#2 and had to water some of the plants I've put out... and I could not avoid the sun TOTALLY... and it honestly felt as if my skin was on fire, just letting my arms be in and out within seconds!!! So, sunblock!!! and/or all ways you can protect yourself... my years of going out to the lake and tanning when my kids were little, or mowing my lawn in my bathing suit top and shorts, are long gone.....

 

Here is a partial list of the many medications and lots of information about medications, sun, and what you should do and NOT do!

http://www.medicinenet.com/sun-sensitive_drugs_photosensitivity_to_drugs/page3.htm

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National Pain Week in Australia - Seeing that others in other Nations' suffer the same issues as us....

http://www.nationalpainweek.org.au/

We often lose sight of the fact that our Nation is NOT the only Nation who has Chronic Pain Suffers and they often go through the same "hoops" we do when it comes to pain control, doctors, and people that ask "But, YOU "Look" so good?" I thought I would post this article about Aussie and their National Pain Week....




This got me to thinking about just how many people in so many "Third World Countries" must have millions, or perhaps more than that, who suffer from Daily Chronic Pain, and in so many different types of conditions... primitive in nature... where they don't have physicians offices to go to, or even a doctor anywhere near that could comprehend the scope of Chronic Pain, from all types of ailments, injuries, and more.... We are trying to hard to get alliance with our own CDC and Congress to make them "get it" when it comes to our daily chronic pain... and yes we hear it all the time" But, you look good"?"

 I have to say as of late, I don't "hear" that statement as much anymore... I may hear WOW you are so tiny, or any number of things about my "small" I've gotten, but as of late, between all I went through with my own illnesses and stuff, to taking care of Mom and now dealing with all of those things, I "DON'T" always go out "looking so good"....

 I don't have the time to put on makeup, or if I am going to paint or work in the houses, or take care of the yards etc... I maybe in my huge overall shorts with holes in them, no makeup, and my hair just "laying around" with that bedhead look (lucky for me that is still the style) LOL.... but the older I get, and the "slower I am" at everything, often times, I don't have that extra hour to "dress nicely", do my hair and put on makeup... besides that fact that I am just going to sweat it all off, or I certainly don't want my "good clothes" covered in multi-colors of paint - I have to forego that and just go out, and do what I need to.... So, I cannot fathom what those that are not near a "physician" or a local pharmacy to get anything for "pain relief" cope. I am sure, like earlier times here in the 20's, 30's and so forth, long before "doctors" had offices, and staff and hospitals were in every town, people "made their own concoctions" of "pain relievers".... they deal with herbs, plants, and so forth, they have learned in their lives rid them of pain... or doctors still are off in jungles, and in remote places where most may have never really seen a real "medical doctor".... so when I thought about "us" here, and then seeing Pain Week in Aussie, it got me to thinking about how many suffer, and they have no "real place medically" to get help.