Sunday's A.M Addition to my Newspaper All things Autoimmune, Chronic Pain and Dementia! And Suggestions?????

My Brand News Newspaper for Sunda AM is OUT and Here is the link:


http://news.autoimmunearthriticsystemiclife.com/#!headlines


This is MINE to Add, change, or whatever I feel my audience" wants to read, see, hear more about and so forth (as far as health issues go) PLEASE FEEL FREE TO MAKE SUGGESTIONS...if yu have another health issue, or would like to see more about something in health, let me know and I can go in and get more article and information about those topics as well as the ones I am giving you!

I am DOING THIS FOR YOU!!! "My "Audience) So, post, email ,speak up even post on the paper itself and give me your personal thoughts and issues!

A bit of catching up, been once again "ill" with "something" a Flare possiblly, but fever, severe body hurting all over, severe headache and NO energy!!!!!

Dropping in quickly to say I am still here! Been sick for two and a half days at least with yet again, fever, severe body pain all over, severe headache, and neck hurting, and my lower sides...plus NO energy...it was as if someone took a needle stuck it in e, and drained EVER BIT OF WHAT LITTLE BIT OF STAMINA I HAVE AND TOOK IT ALL AWAY! I could barely go from one room to the other at my house...so needless to say, I am BEHIND on painting, and everything. this house needs to be cleaned, including dogs bathed, and so forth... and I am way behind on getting the painting done... and I had been on a roll... not sure if it is just the heat that ha s zapped me, even though I have tried not to be in it a lot, or possibly just a continuing LUPUS and RA flare...


PLUS my ankles are "better" but that right one continues to swell if I get up and stand, walk on it a great deal, like painting, standing on the short ladder, or cleaning house... and I am sure the heat does not help it either... I felt as if someone had taken a ball bat to me and beat the hell out of me... honestly...So, I am headed to go and paint... and hope I can continue to "feel well enough" to get somewhat caught up o that, then tomorrow spend the day bathing the dogs, cleaning and and showering me! Anyway, keep my in your thoughts, and keep my kids in your thoughts and prayers...I know they have a an awesome trip to the river, for a week, but will be driving home I think tomorrow with their huge travel trailer in tow...so I wish them safety in getting home... 


This damned Lupus, RA, Sjogrnen's and the like all added up can really put a kink in your life, and you never know when it will hit you like a ton of bricks...

FIRST YOU AND DIRECT SUN! My Week has been NUTS!!!! Between bill pay day, the heat, errands, and trying to get the #2 house painted... I thought I would say hello...and tell you a couple of things.

Our "fortunate" temps BELOW that 3 digit mark are about over... the next 15 days or more show 100 plus degrees... so since it is just the 3rd of August, I can say I feel lucky, it could have been a month ago, BUT I HATE this kind of heat! My skin feels like hot burning coals are on it, just having my arm in this type of weather. Between the Lupus, and then the Prednisone, and other meds that effect my skin, I cannot take over a moment or two in direct sunlight.... again though we are fortunate :)




http://www.msn.com/en-us/weather/today/Ennis,TX,United-States/we-city-32.329,-96.624?iso=US

And SPEAKING OF SKIN, AND HOT SUNNY WEATHER - You Guys and gals out there with ANY OF THESE SKIN ISSUES, ILLNESSES, MEDICATIONS (Lots of meds can make you very vunerable to a burn within moments - many of your "tetracycline antibiotics", many of our blood pressure meds, and if you read your labels and look your meds up, they will give you a huge warning about sun!!!!!

So, be safe! I know I "try" to do anything outside, either before the sun arises, or after it is down below my tree lines, BUT today, I went over to house#2 and had to water some of the plants I've put out... and I could not avoid the sun TOTALLY... and it honestly felt as if my skin was on fire, just letting my arms be in and out within seconds!!! So, sunblock!!! and/or all ways you can protect yourself... my years of going out to the lake and tanning when my kids were little, or mowing my lawn in my bathing suit top and shorts, are long gone.....

 

Here is a partial list of the many medications and lots of information about medications, sun, and what you should do and NOT do!

http://www.medicinenet.com/sun-sensitive_drugs_photosensitivity_to_drugs/page3.htm

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National Pain Week in Australia - Seeing that others in other Nations' suffer the same issues as us....

http://www.nationalpainweek.org.au/

We often lose sight of the fact that our Nation is NOT the only Nation who has Chronic Pain Suffers and they often go through the same "hoops" we do when it comes to pain control, doctors, and people that ask "But, YOU "Look" so good?" I thought I would post this article about Aussie and their National Pain Week....




This got me to thinking about just how many people in so many "Third World Countries" must have millions, or perhaps more than that, who suffer from Daily Chronic Pain, and in so many different types of conditions... primitive in nature... where they don't have physicians offices to go to, or even a doctor anywhere near that could comprehend the scope of Chronic Pain, from all types of ailments, injuries, and more.... We are trying to hard to get alliance with our own CDC and Congress to make them "get it" when it comes to our daily chronic pain... and yes we hear it all the time" But, you look good"?"

 I have to say as of late, I don't "hear" that statement as much anymore... I may hear WOW you are so tiny, or any number of things about my "small" I've gotten, but as of late, between all I went through with my own illnesses and stuff, to taking care of Mom and now dealing with all of those things, I "DON'T" always go out "looking so good"....

 I don't have the time to put on makeup, or if I am going to paint or work in the houses, or take care of the yards etc... I maybe in my huge overall shorts with holes in them, no makeup, and my hair just "laying around" with that bedhead look (lucky for me that is still the style) LOL.... but the older I get, and the "slower I am" at everything, often times, I don't have that extra hour to "dress nicely", do my hair and put on makeup... besides that fact that I am just going to sweat it all off, or I certainly don't want my "good clothes" covered in multi-colors of paint - I have to forego that and just go out, and do what I need to.... So, I cannot fathom what those that are not near a "physician" or a local pharmacy to get anything for "pain relief" cope. I am sure, like earlier times here in the 20's, 30's and so forth, long before "doctors" had offices, and staff and hospitals were in every town, people "made their own concoctions" of "pain relievers".... they deal with herbs, plants, and so forth, they have learned in their lives rid them of pain... or doctors still are off in jungles, and in remote places where most may have never really seen a real "medical doctor".... so when I thought about "us" here, and then seeing Pain Week in Aussie, it got me to thinking about how many suffer, and they have no "real place medically" to get help.

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Trying to put words to "feelings" - A New Chapter of my Life, yet like "writer's block" I am having "Life block"

All too often any of us as author's, writer's, bloggers, and so forth can develop usually suddenly, what many refer to as "writer's block"...

I've been through those "challenging" time on several occasions myself... like my "voice, or we sometimes refer to as "Muse" is just not happening...

For days, perhaps weeks now, I've had a challenge even larger than any writer's dilemma. I find myself with I guess you could call "Life Block"... I cannot find where "I should be", "where I belong", what to do with myself, so I spend my days rambling around, painting the house #2, and knowing that house #1 needs lots of work also... Life in itself feels "surreal"... not realistic, like I've missed that last train into my next chapter... now I am lost, in between a "breath's space", and at times I am not sure I even know who I am... or what my next step should be....

I had heard several times about "dementia" and at 1sst they said "brain exercises" were helpful. Then about a year or two ago, they came out and said "exercising the brain" with reading, puzzles, games and so forth, does not "harm not help" Then on the evening news it was brought up after extensive research that exercising the brain, like any muscle does tend to keep you "fit" mentally... that you are less likely somewhat to develop a type of dementia... I always thought that way anyway... I watched my own Mom. do NOTHING, no hobbies, did not like to get out and window shop, never belonged to any of the groups around town, or even helped out as a "Room Mother" when I was young... till the day she passed away, June 9th, 2016, she COULD NOT PUT GAS in her own car!

As many times as I tried to get her interested in one thing or the other, she just was this type of person, that all in life like that was either "frivolous" or a waste of time and money... or she just was not "smart enough", educated enough to "get it"... whether it be a new microwave, or reading a book....

ANOTHER RED WASP STING! Feeling LOUSY, Antibiotics and some of their horrible side effects, "Smart Beat", Life and more

I swear I just walk out my back door, in just around my yard and get freaking STUNG AGAIN BY ONE OF THOSE RED WASPS!!!!! Every time I step out either door, and this morning I walked through my gate and one came from nowhere , in fact I guess flew up from the grass and got me... I never even SEEN IT! This time on my left knee, and of curse it swelled up immediately! It's already the size of a silver dollar almost! This time I can't "see" anything in it, so I am not sure if there is a stinger or not. I've sprayed and knocked down every nest I can find.

 But, I KNOW there has to be one or two HIDDEN from sight, because they are seemingly in just a couple of places in my yard when they tend to be like this. Hell, just before this one stung me, out of the blue, one came directly towards me in the front lawn and I just began to back up slowly... and I don't know where he went but I avoided that one, only to walk around to my back yard and one get me...as I said I never even seen it coming! They are THE MOST AGGRESSIVE IN TX I've ever seen them this year. I mean I've been stung usually by yellow jackets, if you get near a nest, or are around close by, but never have I had this happen. My daughter said they are really bad, especially yellow jackets down around Corpus where they live. He oldest son got stung over the weekend by a yellow jacket... I have still not felt very well, and I am having a very difficult time "getting over" what ever the hell is wrong with me...

 I seem to wake up every morning with a sick feeling stomach, and I am just so weak, it just wears me out to even walk through the market for a few things. I still have a bad headache off and on, and my lower back tends to hurt one side, then the other.... I just generated feel "lousy".... for the lack of a better term... now my knee is killing me, and I have to be very concerned about infection... if I get infection "in that artificial joint" they would have to possibly remove it all, and then put a new one in.... dammit... plus I found out I was wrong, the antibiotic they gave me for the kidney infection is one that gives me a horrible time with antibiotic induced diarrhea, and I sure as HELL don't WANT NOR NEED THAT!!!! Talk about one horrid thing to happen to you... anyone that has had this before knows exactly what I am talking about... it is terrible... worse than many other things you can be ill with....

I did finally get a bit of painting done for a while yesterday and managed to make it through the market for just a few things, but then I was totally wiped out yesterday afternoon/evening. It took every ounce of strength I had left (about 1/2 spoon for your spoonies) to get myself in the shower and take a shower. I am supposed to go out to my PCP's office this morning and do fasting blood work for the "Smart Beat" thing they are doing... where everyone that has had or has close family that has had heart problems, High BP, cholesterol high,diabetes, they do an extensive work up even giving you tests on your lungs, and echocardiogram, and EKG, Doppler on your carotids, and the main one down in you abdomen, and several other tests, if you have not had any of them at all, or have not had them fairly recently with your Cardiologist... then they take that, with fasting blood work, and do an analysis about how "well" you are in the categories of your lungs, heart, arteries, glucose levels, and so forth and it is totally of no cost to the patient. They did not do a couple of the tests on me simply because my Cardiologist had already done them within the last 6 months or so. So, that is my story and drama for this morning and I am sticking to it.... and I am sure some of you think,

 "Here's a Quarter call someone who cares".... LOL!!!! ;) Rhia


Oh yes, and I did finally get my car washed yesterday, plus I finally made it to the cemetery yesterday. This was my 1st time there since Mom's funeral. I just needed to get to the "resolve" that when I did go, it would not just be Dad, I was talking with, but Mom there as well now. I have to say it was a "strange feeling".... but I got silk flowers put in her vase, and it almost appears as if I "matched" them to Dad's but I didn't on purpose... anyway, the monument is just covered in sand.

 I only had my little hand broom, so I have to go back out and take my larger broom so I can sweep off the monument (head stone) and get all of the sand off of it. Due to them putting sand on it once the casket was in, and the wind has been blowing like heck here daily it is just more covered than I've ever seen it. And it is way too pretty to allow it to look like that...

 Last photo of Mom before she got really ill. This was taken last Thanksgiving November 2015

Always Something With ME Now a KIDNEY INFECTION AND PROBABLY STILL A SEVERE LUPUS FLARE!

I am DOG SICK from "something"... I was fine, then last night about 10PM I began to have one of those "cold sweat" spells... and I even had to change my clothes I was so soaking wet... but I laid down, got still and woke up about 4AM, and I knew I had to be fixing to have fever... every joint and muscle in my body was so severely in pain, I was almost screaming it hurt so bad. I checked my temp and that the time it was okay, but withing a half hour, I knew it was going up...so it went to 99.5, then to 100.5 and then 101.5 and I had already had 4 Tylenol, plus my other meds. 

This Pain" usually feels almost as if I am going to stiff so stiff, and almost like a "seizure", but I've never had one... but I know when I have that type of pain, I will have fairly high fever... I had NO CLUE why... I was fine, painted yesterday and was fine until last night...so I am dammit on the sofa, drinking green tea, and covered up with my blanket... it sucks. I have some antibiotics left from the wasp sting, so I decided to take those to see if I may have some type of infection... 

I have a "small bit" of a cough, and had a tiny bit of cough meds in the fridge, so I took that early and I am not coughing anymore.... this just is pissing me off! I have SO MUCH to do.,. and my floor buffer came in yesterday, so I need to learn how to use it, and I don't even feel like reading anything.... anyway, last time this happened I was sick for a day, and then the next day was fine.... go figure... so if I am still not well tomorrow, or my temp won't stay down, I will do over to Urgent Care to make sure I don't have pneumonia, or something going on.... the SEVERE body pain is what is the worst...

Well even though I DID NOT want to! : I went to Urgent Care this morning. It seems I have a bad kidney infection. rather than pneumonia or something upper lung issues etc... which I think I may have a combination of still a really, really, kicking my butt Lupus Flare... so that explains a great deal.... 

SO here we are AGAIN on ANTIBIOTICS! I HATE to take them, BUT I have no choice if I want to get well and get on with my life.... this sucks

Then to make things ever feel worse  :

 
I needed a shower before I went ANYWHERE! BUT, (and it was all I could do to take a shower) YET AM SO OUT OF IT, after I WALKED IN AND BEGAN TO I realized I FORGOT MY DENTURES!!!!! I NEVER walk OUT OF THIS house to GO ANYWHERE WITHOUT THOSE! I WAS SOOOOOOOOOO EMBARRASSED!!!!I've never pulled that kind of stunt before... I am still embarrassed......

YEAH!!! A bit "different type of post" Guess I just "needed this" right now!

I was SO PROUD & I THANK MY DAUGHTER AMANDA FOR THE SUGGESTION! I thought I would NEVER be Able to put on a swim suit, much less a 2 piece again…. not after the pain pump, all the surgeries, scars and so forth… I used to love the 2 or 3 I had and wore the tops all the time with my shorts in the Summer mowing… but alas, due to age, and illnesses, and multiple  surgeries, I had thrown those away finally… but she had mentioned the other day these kind! And sure enough I ordered this one from Beall’s and to just came in… I so NEEDED something to feel “good about” especially myself right now… after all that has happened even from the past couple of years, until these past months and all that went on with my Mom, I needed “something” to give me a smile and restore some kind of faith in “me” again… so as silly as that sounds, here are some pics… LOL… I look like “hell” because my hair and no makeup… I had been painting all morning… etc… so for now just the “bottom” part and when I am “cleaned up” with my hair correct and makeup on, I will make more… So, again I thank my dear daughter for the suggestion… NO it is NOT a bikini… but it is so much more than that for me right now….