My internet has been down most of last night, then I turned my computer
back on this AM and I sill did not really have but "off and on" internet
until about an hour ago... so I have stuff I have to do for Mom, BUT I
NEED SOME ADVICE or some suggestions etc. Mom is of course STILL not the
best... and even the "Home Health situation" IS NOT really going well,
but because of HER - she does NOT want to cooperate with them, and if
she will not allow them to do their jobs, then she
will not get better, and I told her that yesterday... so she "acts"
like she cannot get up, but I made her walk to the bathroom about 20
steps away from the bedroom yesterday AM...
THEN she really would not
eat much, so I had to go back over the PART TWO EVENINGS, and make sure
she eats something... anyway, as you see below, I have this wonderful
opportunity to get to go to Nashville to this Conference, and I am so
totally elated... I applied for the "Travel award" a couple months ago,
& never gave it a thought until I got a phone call last evening. So,
that is going to be MAY 20-22nd - Friday thru Monday... and I am so
wanting to attend... but I have to figure out a way to get someone to at
least check in on Mom from at least Friday afternoon, thru sometimes
Monday, one time a day will probably be fine... SO does ANYONE KNOW OF
ANY BODY who does this type of thing? If you do I would love to have
someone let me know who does, the expense etc... and I am sure that my
pups will be taken care of by Samantha my dog sitter....
BUT I also have
the neck surgery scheduled on May 4th which is just over 2 WEEKS after
surgery... of course I will still be in a cervical collar for 6 weeks,
BUT the only thing I see is to make sure I get up some, move around, and
even wear compression stockings due to blood clots that soon after
surgery... that sometimes riding a long ways in a car or in an airplane
can bring on... and I apologize for "not talking" much this past over a
week. I had promised to call someone and I have just been in such an
overwhelming, overwrought, and almost "maddening" place emotionally,
that I just cannot make myself talk on the phone at the moment. I really
needed to straighten some things out in my own head, and think things
through... lots of things happening, and needing to be done... so that
is where I stand... any suggestions would be deeply appreciated! Rhia
Wednesday, April 27, 2016
Tuesday, April 26, 2016
"A PAIN, CHRONIC PAIN PATIENTS, Legitimate physicians and patients being treated like common street addicts, and THOSE THE Suddenly cannot "fathom" how we "find a way" to move forward even in the worst of pain....
I am SO SICK AND TIRED of LEGITIMATE PEOPLE in CHRONIC PAIN being treated as if we were some kind of Horrible people living on the streets and buying "illegal drugs"... The "stigma" placed on ALL pain Patients, but ESPECIALLY ON WOMEN CHRONIC PAIN PATIENTS, just makes my blood boil! It took ME YEARS of being in at times very severe pain, of which when I FINALLY GOT the proper doctors and diagnosis and had insurance, the evidence was CLEAR!
I have joints that have been falling apart and degenerating since I was in my 20's! I've had numerous surgeries, by the time I was in my early 20's, I had knee surgeries, elbow surgery, shoulder surgery, and was at every type of doctor possible! I went through the "bio-feedback", and the Chiropractors, who finally one of them told me, he would NEVER touch me again due to HARMING ME MORE THAN HELPING! I SPENT YEARS AND YEARS with HORRID MIGRAINES, that began when I was about 18, and for years, I spent having injections in my neck, going to one specialist after the other, trying every medication, that most of them come to find out I should NEVER have been given, such as any type of "ergot", no types of NSAIDS, and all of the "therapy" in the world was never going to help me with the pain....
I was NOT DEPRESSED and in pain, I WAS IN SEVERE PAIN, and terrified to depression because I feared living like this the rest of my life and how to take care of my family, do my job, go to college, keep a home, and so forth... to have a "quality of life".... it is totally insane what is happening now, and the government needs to keep their noses out of legitimate pain patients lives and legitimate doctors that are doing everything "by the book" to help their patients...
in fact my Mom today said, when I asked her if there was anything else she needed before I left (SHE REFUSED ALL OF HER PT, WOULD NOT LET THE NURSE COME OVER AND WOULD NOT ALLOW THE AID TO COME AND GIVE HER A SHOWER AND CHANGE HER SHEETS... anyway, she said, can't you "get rid" of this pain? She very "recently" within the last 7 months or so began to have lumbar spinal pain which is from arthritis and age, and just what the spine does as you get older, especially since she never took care of herself, never exercised, never tried to do a thing to keep her body limber etc... even after watching what I went through all those years.. And I told her exactly what any DOCTOR WOULD TELL HER... YOU NEVER EVER get RID OF ALL OF THE CHRONIC PAIN... you always learn to LIVE WITH SOME of it... and LAYING IN BED, NOT EATING, NOT TAKING CARE OF YOURSELF, and not allowing the therapist to help her gain some strength back in her legs, and back and body, just makes the pain WORSE! That is SHE WILL NOT HELP HERSELF,
THEN I NOR ANYONE CAN HELP HER... I am to the point THAT I HAVE BUSTED MY BUTT, for 10 years AND THE LAST 7 MONTHS HAS BEEN MORTAL HELL ON ME... and I need my CERVICAL NECK SURGERY, THAT I HAVE PUT OFF 3 TIMES NOW DUE TO HER ISSUES, but I CANNOT ANY LONGER NOT TAKE CARE OF ME... and I AM NOT going to work my fingers to the bone to get her help, to do everything I can, and she lay there and not want any of it... she will NEVER get any better, if she herself does NOT want to..... AND USED TO, SHE WOULD OFTEN SAY TO ME, "HOW DO YOU STAND THE PAIN"? Now she gripes, whines and fusses about how bad her back hurts, BUT never thinks about how much this is effecting me physically, mentally and emotionally... I am getting fed up... and if all she is going to do is lay around, and want someone to do everything for her, then she needs to either hire a FULL TIME MAID or something... because I am getting to the place it is harming my own health....
THIS BELOW JUST BURNS ME UP!!!!
https://www.alec.org/model-policy/prescription-drug-monitoring-act/
I have joints that have been falling apart and degenerating since I was in my 20's! I've had numerous surgeries, by the time I was in my early 20's, I had knee surgeries, elbow surgery, shoulder surgery, and was at every type of doctor possible! I went through the "bio-feedback", and the Chiropractors, who finally one of them told me, he would NEVER touch me again due to HARMING ME MORE THAN HELPING! I SPENT YEARS AND YEARS with HORRID MIGRAINES, that began when I was about 18, and for years, I spent having injections in my neck, going to one specialist after the other, trying every medication, that most of them come to find out I should NEVER have been given, such as any type of "ergot", no types of NSAIDS, and all of the "therapy" in the world was never going to help me with the pain....
I was NOT DEPRESSED and in pain, I WAS IN SEVERE PAIN, and terrified to depression because I feared living like this the rest of my life and how to take care of my family, do my job, go to college, keep a home, and so forth... to have a "quality of life".... it is totally insane what is happening now, and the government needs to keep their noses out of legitimate pain patients lives and legitimate doctors that are doing everything "by the book" to help their patients...
in fact my Mom today said, when I asked her if there was anything else she needed before I left (SHE REFUSED ALL OF HER PT, WOULD NOT LET THE NURSE COME OVER AND WOULD NOT ALLOW THE AID TO COME AND GIVE HER A SHOWER AND CHANGE HER SHEETS... anyway, she said, can't you "get rid" of this pain? She very "recently" within the last 7 months or so began to have lumbar spinal pain which is from arthritis and age, and just what the spine does as you get older, especially since she never took care of herself, never exercised, never tried to do a thing to keep her body limber etc... even after watching what I went through all those years.. And I told her exactly what any DOCTOR WOULD TELL HER... YOU NEVER EVER get RID OF ALL OF THE CHRONIC PAIN... you always learn to LIVE WITH SOME of it... and LAYING IN BED, NOT EATING, NOT TAKING CARE OF YOURSELF, and not allowing the therapist to help her gain some strength back in her legs, and back and body, just makes the pain WORSE! That is SHE WILL NOT HELP HERSELF,
THEN I NOR ANYONE CAN HELP HER... I am to the point THAT I HAVE BUSTED MY BUTT, for 10 years AND THE LAST 7 MONTHS HAS BEEN MORTAL HELL ON ME... and I need my CERVICAL NECK SURGERY, THAT I HAVE PUT OFF 3 TIMES NOW DUE TO HER ISSUES, but I CANNOT ANY LONGER NOT TAKE CARE OF ME... and I AM NOT going to work my fingers to the bone to get her help, to do everything I can, and she lay there and not want any of it... she will NEVER get any better, if she herself does NOT want to..... AND USED TO, SHE WOULD OFTEN SAY TO ME, "HOW DO YOU STAND THE PAIN"? Now she gripes, whines and fusses about how bad her back hurts, BUT never thinks about how much this is effecting me physically, mentally and emotionally... I am getting fed up... and if all she is going to do is lay around, and want someone to do everything for her, then she needs to either hire a FULL TIME MAID or something... because I am getting to the place it is harming my own health....
THIS BELOW JUST BURNS ME UP!!!!
https://www.alec.org/model-policy/prescription-drug-monitoring-act/
A Question We Often Avoid - Why do "Chronic Pain Patients Commit Suicide?
This is a subject we often do NOT want to speak about. But, it happens daily in our lives, for all kinds of reasons... this U-Tube Video is a gentleman speaking about a questions asked to him in a group setting about "Why Chronic Pain Patients Kill Themselves?"
I watched the video and what he says is true... there can be all kinds of reasons, but for anyone who had been "healthy and stable", and suddenly something comes into play that takes away all "hope" then those are people that can suddenly decide they no longer can take another day, due to the pain, there is no "hope" for something better in the future and so forth... so I wanted to share this with all of you today...
Sunday, April 24, 2016
The #MIT 2016 Medical Grand "Hack-A-Thon & a One Minute Video of What YOU FEEL May Help to Change The World of Health from Today - April 29th thru May 1st 2016!
Here is the initial page that tells you what type of "video" they are looking for. It needs to be of course about something in the medical world, that you feel would be of a HUGE Benefit to "change some course of action in our realms of the medical issues today". Only a minute long, and it could be exactly what may bring great results and help to move forward a positive force in the Medical World!
http://www.2016grandhack.com/
https://www.youtube.com/channel/UCrzUtRGswcsYvjvYn-hxSYw
Here are the links:
http://www.2016grandhack.com/
Here is the U-Tube Page:
https://www.youtube.com/channel/UCrzUtRGswcsYvjvYn-hxSYw
Here is a snippet of information from the main page to help you understand what they are looking for! This could be FUN! I just have to make sure I have my "face-on" LOL... in other words look "okay for in front of my camera" before recording it!
Let's see how many can put "their face on in the realms of Medicine" and make some incredible changes. After all PATIENTS MORE THAN ANYONE UNDERSTAND WHAT CAN CHANGE TO MAKE THINGS BETTER!
"New Way" of Asking about a Patient's "Pain Level"!
I have often wondered why with all of the medical knowledge and technology we have, why someone has not invented a "new type" of pain scale.
This "1" to "10" is so totally "not really" giving anyone a true look at what a patient's pain truly is... I mean what is a "3" to someone, versus another it maybe an "8"?
If there were another way to "give someone an example of what those numbers actually meant" then I feel our medical professionals would also have a much better understanding of what that individuals pain level is. In fact just this week, Home Health Care's Nurse that came over to see my Mom for the 1st time asked her "pain level". Well, 1st of all, my Mom just over the past 6 months really began to have "serious daily chronic pain". Up until that time, she was not even sure what that "1 to 10" was. Sure, it is on the walls at the doctor's offices, hospitals and you are always asked, BUT still for someone especially in chronic pain, it can be baffling to describe what that means to that person,
So, I read an article just this week and it had a posting of a brand new way, of taking that 1 to 10 and putting "real life" examples to it, that most can relate to. Here is the chart below:
This was put out by the American Chronic Pain Association and is definitely a much better way of people stating what their pain level is, and what pain level "they" can "live with"....
Plus those with chronic pain, really do go through most of these examples throughout any one day, week, month, and year. In one day, there are times that I may feel like a "6".... but within hours, that may change for a number of reasons, and go to a "2".... and I am willing to bet MOST of us with all these different reasons and types of Chronic Pain will feel the same. I am actually going to print this, and from now on, take it to any office visit etc.... when pain needs to be described. I feel by showing this to my health care workers, nurses, doctors and such, this will make much more sense than me saying I have a "9" but I can live with a "3"... well a "3" under most circumstances is TOO MUCH PAIN to have to bear, especially by the older way of thinking... and an 8 things such as childbirth, kidney stones, severe days of RA/Lupus flares and Arthritis, and depending on what I have done or not done can make that happen, yet within a day or two, I can be at a 4.... again thougH that id NOT AN ACCEPTABLE AMOUNT OF PAIN TO LIVE WITH DAILY! IF CHRONIC DAILY PAIN, PUTS YOU IN YOUR HOME, UNABLE TO DO MOST OF YOUR ACTIVITIES, THAT IS TOO MUCH PAIN TO HAVE TO LIVE WITH!
I Hope that this "New Chart" will give you a better example as how to describe "your own pain" to your doctors. I know for me, it is definitely a better system than the old way!
This "1" to "10" is so totally "not really" giving anyone a true look at what a patient's pain truly is... I mean what is a "3" to someone, versus another it maybe an "8"?
If there were another way to "give someone an example of what those numbers actually meant" then I feel our medical professionals would also have a much better understanding of what that individuals pain level is. In fact just this week, Home Health Care's Nurse that came over to see my Mom for the 1st time asked her "pain level". Well, 1st of all, my Mom just over the past 6 months really began to have "serious daily chronic pain". Up until that time, she was not even sure what that "1 to 10" was. Sure, it is on the walls at the doctor's offices, hospitals and you are always asked, BUT still for someone especially in chronic pain, it can be baffling to describe what that means to that person,
So, I read an article just this week and it had a posting of a brand new way, of taking that 1 to 10 and putting "real life" examples to it, that most can relate to. Here is the chart below:
Plus those with chronic pain, really do go through most of these examples throughout any one day, week, month, and year. In one day, there are times that I may feel like a "6".... but within hours, that may change for a number of reasons, and go to a "2".... and I am willing to bet MOST of us with all these different reasons and types of Chronic Pain will feel the same. I am actually going to print this, and from now on, take it to any office visit etc.... when pain needs to be described. I feel by showing this to my health care workers, nurses, doctors and such, this will make much more sense than me saying I have a "9" but I can live with a "3"... well a "3" under most circumstances is TOO MUCH PAIN to have to bear, especially by the older way of thinking... and an 8 things such as childbirth, kidney stones, severe days of RA/Lupus flares and Arthritis, and depending on what I have done or not done can make that happen, yet within a day or two, I can be at a 4.... again thougH that id NOT AN ACCEPTABLE AMOUNT OF PAIN TO LIVE WITH DAILY! IF CHRONIC DAILY PAIN, PUTS YOU IN YOUR HOME, UNABLE TO DO MOST OF YOUR ACTIVITIES, THAT IS TOO MUCH PAIN TO HAVE TO LIVE WITH!
I Hope that this "New Chart" will give you a better example as how to describe "your own pain" to your doctors. I know for me, it is definitely a better system than the old way!
Saturday, April 23, 2016
The Latest Addition of my Saturday Newspaper All Things from Chronic Pain to AAI illnesses, Lupus, and so much more.... great stories today!
Latest Saturday Addition of My Newspaper "Life with Chronic Pain and AAASD's"'' LOTS of great articles from Arthritis, to AI illnesses, including Lupus Awareness Month coming up, Chronic Pain Patients speaking out about the medications they need for a quality of life and even so much more! Check it out, please forward it, and sign up to get the updates daily! Thanks to all of you, Rhia Steele "All things Autoimmune"
http://paper.li/ravishingrhia/1438808814?edition_id=1522ce40-0766-11e6-8e8c-0cc47a0d15fd
http://paper.li/ravishingrhia/1438808814?edition_id=1522ce40-0766-11e6-8e8c-0cc47a0d15fd
Thursday, April 21, 2016
Update of My Daily Newspaper - and also an "Update" on just how Insane" a disease like Dementia /Alzheimer's Truly is.....
It really DOES for the most part have many articles and information relating to our AI, RA,FM,Chronic Pain, Lupus and so forth, because am able to "pick and choose" what types of information is printed in it daily. So, I have chosen the specifics of what I know many here are dealing with.
Now I have added "Dementia/Alzheimer's" to the "pot" of things that bring in articles. Never would I have ever in my life thought that about 9 months ago, my own Mom would go from doing her own grocery shopping, driving to church, doing her own house work, cooking, and I just helped with other things... to NOW... she at times does NOT even know WHO I AM, nor that she is in "our home". She cannot go and fix much to eat, I have to make sure she eats, drinks and takes her medications properly. She cannot shower or bathe herself, she cannot clean her house... and she has not driven her car in over 2 months maybe longer, nor been to church... she cannot "operate" her oven, stove, washer or dryer, and honestly the phone (regular home phone) she at times does not know how to use it... she stays in bed more than not, and the list just goes on and on and on... of what in such a short amount of time, not just "mentally" but physically incapacitated these illnesses can be...
I am of the belief she has a "certain" type that unlike many, starts gradually... and for a couple of years there were "signs" but to go down hill so quickly. It is a "fast type" of dementia called Creutzfeldt-Jakob Disease .... honestly I hope and PRAY I AM WRONG, because usually it comes quickly, and they pass away pretty soon for the most part, and I am wanting my Mom to go with me like we did just about 4 MONTHS ago to the Casino overnight!!!! She "cut up" her players cards and said she would never be able to again... plus she went from no cane and no walker, to a cane, and within weeks to a walker... and we have to watch her, she now has problems with balance and is a huge fall risk... she has not clue how to pay a bill, she does not even go outside, check the mail, or anything, but due to her falling right now it is best she does not go out... she has several steps down in the front to go down...
I am totally exhausted, worn out, drained, and in almost a "state of shock"r" for the lack of a better term right now, mentally, physically and emotionally now... I have to go over every day and really should be there more, but I have of course my own home, my pups, and me to take care of also.... WE NEVER KNOW!
Wednesday, April 20, 2016
Brand New Clinical Trials Sponored by Cure Click One New for Rheumatoid Arthritis and Osteoarthritis, Cushings, CLL,COPD, Pediatric Asthma, Diabetes Trial Search, Alzheimer's & More coming soon!
I want to give out the great news to all of you who suffer from RA and Osteoarthritis! There are two new Clinical trial Studies, for each of these horrid illnesses.
The Information is below, and will also be on my pages of my blog around where all of the other great clinical trials are. Actually several new ones have been added just in the past week or so, including Chronic Lymphocytic Leukemia (CLL) including a new video link below, Pediatric Asthma, Diabetes Universal Clinical Trial Search, and still there are ones for COPD, Cushings Syndrome, and Alzheimer's Mild to Moderate.
There are also upcoming new Clinical Trials very soon on other very important illnesses that plague our nation, and the world..
So, below are some links that you can go to, and find out more about whether the clinical trial is in your area, if you qualify, and also spread the word to others who maybe interested in some of these. Many people find they are better, some even "cured" by certain clinical trials, and most cost the patient nothing, and in fact many also compensate the patient for their time, their gas money and so forth. So, please take a look or pass these onto others you may be thinking would benefit!
The Information is below, and will also be on my pages of my blog around where all of the other great clinical trials are. Actually several new ones have been added just in the past week or so, including Chronic Lymphocytic Leukemia (CLL) including a new video link below, Pediatric Asthma, Diabetes Universal Clinical Trial Search, and still there are ones for COPD, Cushings Syndrome, and Alzheimer's Mild to Moderate.
There are also upcoming new Clinical Trials very soon on other very important illnesses that plague our nation, and the world..
So, below are some links that you can go to, and find out more about whether the clinical trial is in your area, if you qualify, and also spread the word to others who maybe interested in some of these. Many people find they are better, some even "cured" by certain clinical trials, and most cost the patient nothing, and in fact many also compensate the patient for their time, their gas money and so forth. So, please take a look or pass these onto others you may be thinking would benefit!
 |
| http://curec.lk/1hKk5XN |
 | |||
| http://curec.lk/1YGQWfK |
 |
| http://curec.lk/1rfgZAJ |
 | |||||
| http://curec.lk/1QkoLgA |
 | ||
| http://curec.lk/1VK9axV |
 | ||
| http://curec.lk/23JLHmp |
 | |||||||||||
| http://curec.lk/1SfAHn2 | #cushingsdisease #cushingssyndrome #patientpower, #arthritis, #RheumatoidArthritis, #arthritis365, #Rheum, #osteoarthritis, #asthma,#CLL |
Sunday, April 17, 2016
World Hemophilia Day 2016
World Hemophilia Day 2016
On behalf of the World Federation of Hemophilia, please join us on April 17 to raise awareness about hemophilia and other inherited bleeding disorders. Globally 1 in 1,000 people has a bleeding disorder. Most are not diagnosed and do not receive treatment. Together we can change that. World Hemophilia Day provides an opportunity to talk to your family and friends, colleagues, and caregivers to raise awareness and increase support for those living with an inherited bleeding disorder.
http://www.worldhemophiliaday.com/?dLvEwg
Another Week of an Elderly Mom, some type of "Dementia", me trying to cope and deal with her, and all of my severe pain, and missing surgeries, and doctors appts because she is ill....
I am MOSTLY on the sofa today I HOPE! This has been another week of hell... to say the least... Mom "seems" to do better on the days I go over there... but yesterday I was trying to get my yard down enough so with this rain it would not get any taller than it already was.... so between my cordless weedeater and my cordless lawn mower it was even hell with all of the weeks and it still being so wet from the humidity... I cleaned out from under my mower at least 4 times trying to clear that mess out from under it... but I got "most" of the tall stuff back and front down for now... I am paying for it today... and have been paying for it all week... I NEED THIS NECK SURGERY and now I KNOW I HAVE TO HAVE THE LUMBAR/SACRAL surgery also... I keep "putting them off" because of Mom mainly... until I know that the Nurse, and the Home Health is going to go over, and she is getting one meal brought to her daily... I feel I cannot go through with the surgeries... I feel she does NOT even grasp that I will be "down" for at least 2 weeks, I should not drive, even though I will probably have to around town... after a week, but that means I can "barely" take care of me and the pups, and I will NOT be able to lift anything heavy, or be taking lots of stuff over to her, or be able to go over there every day, for at least a week or so... after that, then I still will be in a neck brace at the very least 6 weeks maybe longer because this surgery calls for taking OUT all of the "hardware" he put in , in 2012 and redoing it plus the new issues with discs compressed... so then he also is calling for some type of "bone growth stimulation" which I gather he means on the outside, I will have to wear because due to my osteoporosis, the RA and Lupus, he fears I may have further issues with my vertebra and getting all of that to fill in and heal... which takes 6 months or longer for "my own bone fragments" to heal in the "cage" they put in and if they have to use "other types" it may take longer.... I rescheduled the cervical neck surgery for May 4th and unless something horrid happens I HAVE TO HAVE THIS SURGERY NO MATTER WHAT! I will be "well enough" to go down to Corpus Christi to what my Granddaughter graduate, and hopefully stay a day or so, then come through and stay in San Antonio for a night, and see the Riverwalk before heading home... I will have to see how well I am feeling.. with the 1st neck surgery I felt GREAT even before I left the hospital, all of the pain in my shoulder blades and down my arms was "gone" almost right after the surgery, I can only hope I do that well this time... that has been 4 years ago, and lots can change with a body in 4 years.... anyway,
Mom is NOT EATING! In fact, I got PISSED at HER yesterday! I told her if she continues to LAY IN BED, NOT EAT, NOT DRINK (AN NO CARBONATED ANYTHING), and NOT think she can live off of Ensure, and get back to eating some, supplementing it with the Ensure, and begin to move around some, that her "bowels" (which is what she keeps griping about) were NOT GOING TO DO RIGHT! Plus if she continues to NOT TAKE HER MEDICATIONS, she will NOT be well, or feel well. So, I MADE HER TELL ME SOMETHING SHE WOULD EAT... and I went and got the chicken strips (although fried anything she would put in her system), mashed potatoes, and a roll... plus I brought her LARGE GLASS OF UNSWEETENED TEA, and told her she needed to drink ALL of IT! She is also "dry and dehydrated which does NOT help either... she cannot expect her stomach NOT to hurt, if she puts NOTHING in it, and for her intestines to "work" without getting up moving around some and taking her proper medications... when I ask her if she too her meds...
I get this answer "Well, I took something"... NO she took NOTHING of her regular daily medications, they were in the pill box on the table! Plus she is drinking milk, which Mom NEVER drank milk or ate much of anything with "milk" in it.. SO I TOLD HER SHE COULD BE LACTOSE INTOLERANT" and may not even know it... because up until the past month or so, she never ate much cheese, never drank milk, never ate much of anything other than breads, bisquits, etc... other than that not much dairy stuff... and if I take her to a doctor he will basically TELL HER THE SAME THING I AM SAYING... she has to EAT some, TAKE HER MEDS AS SHE IS SUPPOSED TO, get UP and MOVE, and quit laying in that bed 24 hours a day... and LAY OFF THE COLA'S AND THE MILK...
I told her to drink water, drink "green tea" some, but nothing dairy, and nothing carbonated at all, no coffee, nothing with caffeine in it, and continue to drink the ensures but EAT WITH IT! Anyway, when I left yesterday afternoon, she had taken all of her medications, she DID EAT SOME, and of course she can't hold a lot at a time, because she is NOT eating.... and she was drinking the tea, I left a pitcher of water and a glass there, and gave her one pain pill.
Then I told her after that pain pill begins to kick in to get up and quit laying down all the time... to at least move around to the kitchen, get up and sit in her chair in the living room, but MOVE AROUND SOME... and today through the next several days our weather is supposed to be HORRIBLE, THUNDERSTORMS, FLASH FLOODS, HAIL... no telling what from today through at least TUESDAY.. so I told her I was NOT well either, I've been in pain, unable to sleep, my stomach is not the best either, but mine is nerves and stress more than anything, and the nurse and the aid are supposed to start next week, but I prefer they not come until our weather is a bit more stable after Tuesday or so... I will NOT get my car out in possible hail if I can avoid it.... anyway, I had to get all of that off my chest., it hurts so bad to sit here and write dammit, and I need to write and do some things online, but it is hell for me to sit here very long... keep us in your thoughts and prayers... it is going to honestly take a "miracle" I think for her to get "better".... Hugs, Rhia
Mom is NOT EATING! In fact, I got PISSED at HER yesterday! I told her if she continues to LAY IN BED, NOT EAT, NOT DRINK (AN NO CARBONATED ANYTHING), and NOT think she can live off of Ensure, and get back to eating some, supplementing it with the Ensure, and begin to move around some, that her "bowels" (which is what she keeps griping about) were NOT GOING TO DO RIGHT! Plus if she continues to NOT TAKE HER MEDICATIONS, she will NOT be well, or feel well. So, I MADE HER TELL ME SOMETHING SHE WOULD EAT... and I went and got the chicken strips (although fried anything she would put in her system), mashed potatoes, and a roll... plus I brought her LARGE GLASS OF UNSWEETENED TEA, and told her she needed to drink ALL of IT! She is also "dry and dehydrated which does NOT help either... she cannot expect her stomach NOT to hurt, if she puts NOTHING in it, and for her intestines to "work" without getting up moving around some and taking her proper medications... when I ask her if she too her meds...
I get this answer "Well, I took something"... NO she took NOTHING of her regular daily medications, they were in the pill box on the table! Plus she is drinking milk, which Mom NEVER drank milk or ate much of anything with "milk" in it.. SO I TOLD HER SHE COULD BE LACTOSE INTOLERANT" and may not even know it... because up until the past month or so, she never ate much cheese, never drank milk, never ate much of anything other than breads, bisquits, etc... other than that not much dairy stuff... and if I take her to a doctor he will basically TELL HER THE SAME THING I AM SAYING... she has to EAT some, TAKE HER MEDS AS SHE IS SUPPOSED TO, get UP and MOVE, and quit laying in that bed 24 hours a day... and LAY OFF THE COLA'S AND THE MILK...
I told her to drink water, drink "green tea" some, but nothing dairy, and nothing carbonated at all, no coffee, nothing with caffeine in it, and continue to drink the ensures but EAT WITH IT! Anyway, when I left yesterday afternoon, she had taken all of her medications, she DID EAT SOME, and of course she can't hold a lot at a time, because she is NOT eating.... and she was drinking the tea, I left a pitcher of water and a glass there, and gave her one pain pill.
Then I told her after that pain pill begins to kick in to get up and quit laying down all the time... to at least move around to the kitchen, get up and sit in her chair in the living room, but MOVE AROUND SOME... and today through the next several days our weather is supposed to be HORRIBLE, THUNDERSTORMS, FLASH FLOODS, HAIL... no telling what from today through at least TUESDAY.. so I told her I was NOT well either, I've been in pain, unable to sleep, my stomach is not the best either, but mine is nerves and stress more than anything, and the nurse and the aid are supposed to start next week, but I prefer they not come until our weather is a bit more stable after Tuesday or so... I will NOT get my car out in possible hail if I can avoid it.... anyway, I had to get all of that off my chest., it hurts so bad to sit here and write dammit, and I need to write and do some things online, but it is hell for me to sit here very long... keep us in your thoughts and prayers... it is going to honestly take a "miracle" I think for her to get "better".... Hugs, Rhia
Subscribe to:
Posts (Atom)
-
I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things abo...
-
How can our kids feel safe when WE as adults don't???? I fear Wal-Mart or just walking across the parking lot at HEB in my small lo... -
I finally made a trip to Urgent Care with what I feel is a very bad Lupus and RA flare, but there are several "symptoms" strange t...