National Pain Report Offers New News - an Online Support Group

I have been following many of their articles over about the past 9 months and LIKE many of the articles, and things they share about pain, chronic pain, and all of the causes of severe never ending pain...

Since I am a pain patient, and also know what it is like to even not have a "great doctor" who listens and helps, and family that seem to not understand, the loss of relationships, friendships and the loneliness that all too often comes with these "silent and often invisible" illnesses...

So, I share with you they are opening up their own Online Support Group!


http://nationalpainreport.com/online-support-group-for-chronic-pain-launched-8829695.html

Still Just PEEVED over this mess about Pain Medications and the CDC! WE are ALL NOT ADDICTS OR ABUSERS!!

I am just so TOTALLY PEEVED at the CDC and ALL that they present when it comes to Pain Medications, especially "opioids" I want to SCREAM! YES, there are those who choose to abuse... but that abuse is FAR NOT what has been in the main stream of the news, and from the CDC! Right now, and I know many that suffer from all types of severe chronic pain daily... if WE including myself, had any OTHER CHOICE, and did NOT have to have these medications in order to have a better quality of life, you can BET WE WOULD CHOOSE SOMETHING ELSE! Many, MANY OF US, have lived through YEARS AND YEARS OF HELL! We have been through the many tests, all of the other medications, we do "exercise", we do try and go on with our lives, we DO ABIDE BY OUR DOCTORS RULES AND REGULATIONS, we DO everything we are supposed to do OR NOT SUPPOSED TO DO, in order to try and not have to take pain medications YET FOR SOME OF US, THEY ARE OUR SAVING GRACE! They are what allows us to get up in the mornings, and go on about our days the best we know how, whether that is work (and even with my medications I had to stop working in 2003, and spent until 2007 getting my disability! Durong that time I SURVIVED barely, with very little medication, BUT I was too ill to work, too ill to really do much of anything, I had lost hope, and was about at the end of my own rope, until I FINALLY FOUND MY pain specialist who tried to put my life back on a tract of being able to "live"... DO THEY TAKE AWAY ALL PAIN? NO! NOTHING, but the day we LEAVE THIS PLACE AND MOVE ONTO WHEREVER WE GO FROM HERE, will ALL OF OUR PAIN BE GONE! BUT, can we "take it", can we "live with it", can we do things with our families, some of us still work, do advocacy work, be useful in our society, in our neighborhoods, churches, with our loved ones, and try to enjoy life as much as possible... 

YES! I realize that without all of the other surgeries, PLUS more ahead, my pain would only get worse... so even though due to my heart problems, and other illnesses, I take a chance, I DO have surgery IF my doctors tell me they have a chance to "lessen" "new pain" that comes when you have degeneration of joints, of your spine, when things happen you have NO control over, that can cause further pain, you DO what you CAN to NOT have to take any more medications... after all any of us can only take so much medication, no matter what type it is... and any medication works only as well as your physical, emotional and mental state allows it to... 

BUT WITHOUT MY pain medications, I would NOT be able to take care of my aging Mom, who is 81 and now suffering from probably Alzheimer's or some type of Dementia. I could not do my laundry, take care of my house as much as I can, try and cook for myself, take care of bills, and do my very best to go on with my life as I do... I just posted that this WEEK HAS BEEN HELL! Pain due to weather change, time change, and just me having to do more that usual this week brought on more pain.... 

BUT, I still try and get up, move forward, some day more slowly than others, but try my best to take ALL OF MY MEDICATIONS AND LIVE LIFE! SO, WHEN I read and hear about the CDC, and all of those WHO HAVE NO CLUE WHAT LIFE IS LIKE... AND WHAT IT WOULD NOT BE LIKE, IF I WERE NOT ABLE TO have my medications, IT REALLY MAKES MY BLOOD BOIL! I can GUARANTEE YOU IF ONE OF THEM, OR ONE OF THEIR LOVED ONES, SUFFERED THE SEVERITY OF PAIN that some of us do, or WOULD WITHOUT OUR MEDICATIONS, they WOULD ALSO BE FIGHTING THE GOOD FIGHT TO TELL THEIR STORIES, AND make sure they OR THEIR LOVED ONES WERE ABLE TO GET THE PROPER TREATMENTS AND MEDICATIONS THAT THEY NEEDED IN ORDER TO NOT SUFFER DAILY! My hopes are that ALL OF US THAT UNDERSTAND THIS PASS THIS AROUND, WE TELL OUR STORIES, WE CONTINUE TO FIGHT AGAINST THIS MESS OF OUR STIGMA WE ARE ALL "ADDICTED"... WHICH IS BULL.. I never feel "high", I feel relief, relief enough that I can go on with my day.... and if you see me WITHOUT MY MEDICATIONS, you would see someone who was in so much pain, that walking across my little home would be horrible, AND WHEN I have my medications, I am able to try and move on with my life.....

http://nationalpainreport.com/cdc-opioid-guidelines-released-8829808.html 


I hope YOU TOO will stand up and tell your story! WE must stand together on this!

Wishing You The Luck of the Irish and Happy St. Patrick's Day!

Wishing You the Luck of the Irish! May you have a wonderful St. Patrick's Day, and don't drink to much of the "Green Beer"! 

Nightly News, the CDC and Those that have NO CLUE what "Chronic Pain" and trying to Live is all about!

As I said on my other post, I was so mad at the Nightly News with Lester Holt last night I could have screamed! They only tell a "piece" of the story, NOT the stories of us who would not be able to have a "life" or any quality of life if we were not able to have physicians help us take our pain down to where we can "stand it"... For ONE NO medication "takes all of the pain away".... but it does give us a place where we can "live" with it. It makes it bearable, most days. And for them to sit there and speak like this is something that is just a "surgery" issue etc...without even mentioning how many of us would not be able to take care of our families, work, do anything at our homes, nothing... we would only be able to sit, lay, or try and "live" with severe pain, that is what I call intractable and unbearable! without my great physicians and my medications, and that is not just pain medications, but my RA meds, my heart medications, Lupus medications, and so forth, I would have no life, I would never be able to take care of me, and certainly not be able to somewhat help my Mom... and try and do advocacy work, and write... my life would NOT be life but living hell! I am seriously thinking about writing the Nightly News and telling them how I felt about their "one sided" view of this situation.... and I have to wonder "whom is lining" whose pockets, when it comes to the CDC, Congress and all of these people that have NO CLUE what it is like to have a disease that brings on such an amount of horrid pain daily... they would think differently if it were them or one of their loved ones...

http://www.usnews.com/news/business/articles/2016-03-15/cdc-guidelines-aim-to-curb-painkiller-prescribing

This is what I am speaking of on the Nightly News from Last night March 15th

http://www.nbcnews.com/nightly-news-netcast/video/nightly-news-full-broadcast-march-15th-645344323672

I sent my email to the Nightly News about this story last night. I hope you also take a moment to respond!

ARTHRITIS FOUNDATION SUMMIT ON THE HILL BEGINS TODAY! BE SURE TO DO YOUR VIRTUAL ADVOCACY PART!

Arthritis Summit begins today!!!!

 SHARE Stories, share #hashtags, photo's, your own personal journey!!!!

https://twitter.com/hashtag/AdvocateforArthritis?src=hash

 YOU TOO CAN BE A CHAMPION OF YES!

I remember how thrilled I was in 2014 to be honored to be there! I hope some day to attend again!!! Until then my support is through telling my story, helping others, posting posters in my car, blogging, writing, Facebook twitter, and you name it, I put it there!

#advocateforarthritis

YOU TOO Can be a Virtual Advocate during the AF Summit on the Hill 2016!!!! YOU ARE IMPORTANT!!!!!

Arthritis Foundation Summit Begins Monday in DC! YOU TOO can be a "Virtual Advocate"!!!!

http://www.arthritis.org/about-us/news-and-updates/arthritis-foundations-advocacy-summit-fights-for-awareness-and-cure.php

Advocate 101: Join the Movement

What is an Advocate?

Advocates help improve the lives of people living with arthritis. The key to success in changing government policies and funding is through grassroots advocacy and our advocates are the Arthritis Foundation's chief resource for making positive changes in Washington. Click here to join the movement!

What does an Advocate do?

Advocates make their opinions and personal stories known. By signing up, you'll receive Action Alerts in your inbox when important arthritis-related issues are debated on Capitol Hill.   In 5 minutes or less, you'll be able to write your elected officials and tell them their constituents care about arthritis and how it impacts our communities....(see the URL for more information...   

http://www.arthritis.org/advocate/advocate-101/

Sponors for the 2016 AF Summit!

HELPING A DEAR FRIEND TO FIND A PAIN DOCTOR IN THE SEATTLE, WA - AREA... PLEASE LET US KNOW...

Jim in Washington State is having a very, very DIFFICULT TIME finding a "good and non-quack Pain Specialist.... He is at his wits end, and just cannot find one who will even prescribe his Baclofen, and meds such as that!...much less any of the narcotic meds he needs now after the accident!!!! 

IF ANYONE has ANY IDEAS, suggestions, doctors, someone they may know in the Seattle Area, PLEASE SEND HIM A MESSAGE AND LET HIM KNOW !!!!!! I Know he is about at the end of his rope like many of us, and Seattle USED to be the "better" place for this type of thing not worse... maybe even across the pass over in the towns across and to the East, or down towards Portland... 

he is living in a very small country town out kind of South East a ways from Seattle... so even if it were out in that direction it would be okay, and in fact better!!!!! I told him I would try and think of something myself, or someone else he could see etc... but things are nuts in the realms of pain doctors, as so many of us know!!!! But, please send him a message if you do know of any type of information that may help him....

hugs, Rhia his FB page is James Sheffer so just send him a private message and let him know if you can think of anything....

Dealing with Eldery Parents who have Alzheimer's or Dementia, when you, yourself are dealing with Chronic Pain and Illness...

 posted this on my FB page, and I will put it here also... I will be doing some work on my blog, my book, my new newspaper I have began, as well as some other things around my home, and some thinking about life... and how to deal with some really tough issues.... I maybe "away" from FB for a couple of days. 


There are some things I really need to get to working on as far as this new newspaper I am staring. I can customize is a great deal and it could really help me with my blog, as well as with my books , and my next book...plus lots of my advocacy work...getting information out there that would really benefit many people and help make what I want to happen possible ( I Hope)...I have also had some new ideas for my 3rd book unfold in my mind over this past couple of weeks, and although I jotted some of it down, I would like to start writing on it, in the beginnings of the book itself.... There are also some "personal matters" that honestly came up this morning, mainly to do with all of this mess with my Mother, and at this moment I am totally at my wits end, I have no clue where to go or what to do, other than leave her alone, and allow her to figure out "all is NOT RIGHT in her world".... she really hurt me earlier... calls me well before she is usually even out of bed, wanting to know "why I had not called or been by"...

well for one I was there two days in a row, just yesterday for one, and besides she is usually never even out of bed until after noon time... anyway, she asked me what I was doing, and then she told me I was a "blabber mouth", and I should NOT be telling my own kids what is going on... well I tried to tell her the kids are NOT stupid, and they "hear and see" and then she says they are never here nor never call so how do they know anything? So, I hung up... well I called back about 30 minutes later, and began to tell her to NEVER call me a "blabber mouth" again... that it for one hurt my feelings, and for two was NOT the truth, so then she began to tell me that losing her credit cards, not being able to work her stove, put her car in gear, not pay a bill correctly, not take her meds correctly, not know why the alarm clock blinked etc "meant nothing" and why do I even "care"... it is in the past... 

and when I said MOM jut yesterday I WENT TO GET YOUR MEDS AND GO TO THE STORE BECAUSE YOU DID NOT FEEL LIKE IT... so it not in the PAST it is right now... and she made some snide remark oh well, when we get there or if we do, we will handle it then... well WE ARE THERE! And she cannot continue to live alone, and if I tell the doctors about the car incident and and a couple of other things, they will tell her she cannot drive NOT live alone! As I told her and "building you a room" takes more than a few days.... she began to tell me I was full of crap, and nothing was wrong with her.... so I hung up with Okay, I will not "bother" you again, I am NOT calling, I will NOT come over there, and "if" you need me, then call, otherwise, I refuse to be hurt and used like a doormat and then laughed at when I told her that her calling me a "blabber mouth" hurt my feelings... and she said "she never even called me this morning"..... 

so, I have LOTS of things I want to do and get done, and I honestly right now am so totally sick and tired of this crap.... that she may wind up in a nursing home, if she does not want to listen to me.... I don't know what else to do.... but I need to get some rest myself, and do some thinking about several things... so if you do not see me here much, I am okay, just "out of touch" for a few days....

I NEED HELP as Soon As Possible - I need an additional room built onto the back of my home for my Mom

ANYONE KNOW A BUILDER/CONTRACTOR IN THE ELLIS COUNTY AREA OF TEXAS WHO IS REPUTABLE AND CAN GET THE JOB DONE IN A TIMELY MANNER AND GIVE ME A FREE ESTIMATE????

Many of you may have already read my posts about Mom and how rapidly she is regressing into what I feel is dementia or Alzheimer's. Over the past couple of weeks the situation has turned grave and dangerous... too dangerous for her to stay alone much longer... so I need to build a room for her on the back of my house... see my post below...


Anyone that maybe close to my area in the Ellis County area, or near, that may know of someone that can "build on" a room for my Mom onto my home, along with doing some finishing work on my own home, as soon as possible, please contact me by private message. If you have an idea of someone that can do a great job, at a decent price, give me a free estimate, and will get it done as soon as possible would be so appreciated. My Mom cannot stay in her home much longer alone. Even though I am there everyday, or call if I cannot go over and she is only blocks away, things are rapidly getting too bad for her to stay alone... after all I saw and went through yesterday, something has to go be done and done quickly, Rhia

The Latest Addition of my New Newspaper that goes out Daily "All Things Autoimmune"

Here is the link:

http://paper.li/ravishingrhia/1438808814

 

Above is the LINK to the Latest Addition of my New Newspaper! This Will be Daily, and I update it sometimes twice in a day or so. It has a GREAT DEAL of the latest information about Lupus, RA, Sjogren's, Chronic Pain, Lumbar, Cervical Spine issues, along with other health information for you to read and use. I had began this kind of as an "experiment" and decided I liked it so well, that I would make this a daily, permanent addition to my blog, and my Facebook, Pinterest, Twitter and other social media informational places. It will have things about new Technology, mostly health but other forms also. I am able to choose what it has in it and "tweak" it for my readers. So, PLEASE use this link where you can put in your email address and "subscribe" to the daily addition. It will send you an update if I do an update, so you can have the latest information.

Bear with me, I am doing a "revised
" look and feel. I've upgraded so I am in a learning curve as to how to do some of the new things I want to do. But, until then I post the link daily in FB, Twitter, IN, and so forth so everyone can find the new paper for the day!

 Here is a "thumbnail" of the top portion of today's paper. This way you have an idea of what it looks like right now...

Honestly, I have been quite pleased with the articles and information it provides. It has made a world of difference on researching the subjects that are important for health issues, technology and how it all effects us....