"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
Tuesday, January 19, 2010
Incredibly Good News About my Grandson!
Sunday, January 17, 2010
His name is Danny. He is about 42. He is a member of a nurses union in California. The head of the union approached Danny, as well as a couple of others from their hospital about joining the volunteer efforts for Haiti by being on the USS Comfort, which is one of the floating military hospitals, something like it holds 900 beds... and it completely self contained.
So Danny said yes!! He leaves this coming Wednesday to fly to Jacksonville FL where he will board the ship. He will be gone at least two weeks. :) I commend him and all of the civilian people who are donating their time they could be pulling shifts and earning their wages, to make such an amazing difference and with any Have to think about it, he said YES! immediately! We are so incredibly proud and envious a little of him. For I have said it 50 times, if my health was not an issue and they needed me for something I could help with, I would be on the first ship or place, headed that way.
So through Danny's unselfish act, we are living the situation through his eyes.It is truly incredible that he, as well as the other thousands of volunteers go to provide rellef to those who otherwise might perish with the thousands that already have.
Friday, January 15, 2010
Mother Natures Wrath- Greatly Shadows our own pain
There are visions of children injured wandering around as they pass those not so fortunate laying covered up around their feet. The injured sitting in the street, some not able to walk, no one to help them, for those that walk by, cannot even help themselves. I cannot begin to explain in the depths of my heart, just how fortunate I feel. Even though we suffer from Chronic Illnesses, Pain, and so many hardships, nothing compares to what those Haitian survivors are dealing with. Homes and all wiped away. Many of their loved ones dead, or buried beneath the massive piles of rubble. No shelter from aftershocks that range sometimes over 5 on the Richter Scale. No clean water, no food and n0 fuel to go and be able to get supplies. As many countries including our own US go hurriedly to help, it will be lifetimes for some of those before they will ever see what seems like home. It is a day of sorrow, it is a day of bravery, it is a day of sacrifice, of humbleness, of mourning for those that lost their lives, and even more grief for those surviving knowing all too well without medical assistance, water and food, they may die also.
Thursday, January 14, 2010
10 Awesome Exciting Achievements in Lupus Research For Medications and More
I am so thrilled and cannot wait until I can possibly try one of these medications.
I hope all of you who are Lupus patients, family, friends and caretakers are as excited as I am...
Rhia
Monday, January 11, 2010
My Grandson, Logan is hospitalized
My Grandson is ill with the RVS Virus. He had to be hospitalized today, due to complications with his asthma. He is only 7 months old. Please keep him, and my daughter, son-in law and her two other kid in your thoughts and prayers please.
I appreciate your thoughts and prayers so much. It is difficult for me to be this far away. They live about 30 out of Corpus, so they are ove 6 hours away from me. When I find out more, I will post and let you know...
Hugs to All, Rhia
Friday, January 1, 2010
Limbaugh ill - Palin makes me Ill
OMG! LOL! I guess I am not the only one in the boat! The first thing out of my mouth when I heard this on the news yesterday was "IS He dead?"!!!!I I know that is not the Christian thing to say, but it appears if we are going to hell wishing that upon this scum bag, bigot, hate mongering, soul sucking, demon possessed lying bag of monkey crap, that has spewed his vile, hatred around our country and the world, then I shall be in good company! I will not apologize for how I feel about his gruesome, cold hearted, yelling, ill willed, hateful, and full of bigotry statements he makes about our country, our President, and everyone that we should respect. I will not apologize for hating what he stands for... which is what most of us loath. I will also say it will be a cold day in hell before I ever listened to one of his radio shows. And of all people, if Rush decided to kick the freaking bucket, NOT PALIN!!! That would be the sin of all sins. That colored dyed red headed witch can keep her frozen broom stick up there in her igloo & remain there for eternity as far as I am concerned! She does not know how to speak proper English, so how the heck would anyone think she could do a radio show? I would rather hear an intelligent monkey, or even far better than that, my "talking" Chi-weenie, Bubs, can speak better than that old wind bag of what some call a hockey Mom. I would love to tell her where she could put that hockey puck and stick! I say we ship both of them to the South Pole in a rubber raft, with NO RADIO, no phone, and only enough food and water for a week! They can share an igloo down there with the penguins.
Wednesday, December 30, 2009
Wednesday, November 18, 2009
Holidays and more....
Wednesday, November 11, 2009
Webinar/Teleconference for the New Lupus Medication Benlysta on November 30th!
This is exciting news about the first ever of its kind medication for Lupus!
I am thrilled and anticipating the day it is FDA approved so I can try it.
Rhia
Participate in the BENLYSTA Research Update Call on Monday, November 30, 2009 The Lupus Foundation of America (LFA) invites those living with lupus and interested in learning more about the results of the BENLYSTA studies to join us for a special Webinar on Monday, November 30, 2009 at 7 p.m. EST.
LFA’s Medical Director, Dr. Joan Merrill, will review the results of the BENLYSTA studies and answer questions. Questions can be submitted in advance by clicking this link.
http://donate.lupus.org/site/Survey?ACTION_REQUIRED=URI_ACTION_USER_REQUESTS&SURVEY_ID=1260
Please note that space at the event is limited. The LFA will provide a summary of the discussion following the event for those who are unable to attend.
Call In Details
1. Dial the Conference Access Number: 212-401-6760 or 866-551-3680
2. Enter your Participant PIN Code followed by the # key: 7292757#
3. You will be placed on musical hold until the Event begins
4. To join the Web Conference click this link: https://www.anywhereconference.com/?Conference=130257715&PIN=7292757
5. Enter your Name
6. Click Go
Or Join the Web Conference Manually
1. To join the Web Conference log into: https://www.anywhereconference.com/
2. Enter the Web Login Reference: 130257715
3. Enter the PIN Code: 7292757
4. Enter your Name
5. Click Go
IF you need further informaton you can view the post about this on my Facebook page at:
http://www.facebook.com/home.php?ref=home#/ravishingrhia?ref=profile
Sunday, November 8, 2009
Ft. Hood, Tragedies in TX, Lupus good news and more
Hello to everyone! By now, me mentioning that we have wrangled our first "stump" and jumped over it on the health care reform bill, is probably "old news". :)
But, I still want to express my feelings, emotions, faith in us as a nation, and try and look at the positive side of this history making bill, since this past week has been such a tragic one.
I have written in my blog a bit about the events of this past week. Ft. Hood TX is only about 50 miles from me. Most people in this nation are familiar with Waco Texas, due to the fact about the "Branch Davidians" and David Karesh. The horrific events that took place in February 2003. Just in case you don't remember the nightmare that took place there here is a link that gives details of him, as well as the events that unfolded on the "Davidian Ranch" in 1993.
http://en.wikipedia.org/wiki/David_Koresh
Like many other states, Texas has had their share of horrific events, man caused and nature caused. We can look at Galveston Tx, that has now suffered two massive hurricanes that totally destroyed the city. One in 1900 and again in 1915, plus the most recent one "Ike" in 2008, that once again obliterated the entire community.
We have also had several "man made" issues, from the woman in Houston that drowned her 5 children due to post pardum severe depression/psychosis, Andrea Yates. That story rocked not only Texas, but our entire nation, leaving us totally shocked and confused.
Then their was the "Texas Cadet" murder by Diane Zamora and her boyfriend David Graham. Both of the in the Texas Cadet program, yet due to whom Diane considered a "rival" to her relationship, they both killed Andrea Jones in December 1995. This act of jealousy and violence took place again not far from where I live, in the Mansfield Tx area.
Here is a link to more information on this:
http://en.wikipedia.org/wiki/Diane_Zamora
OF course in 1966, there was the young man who climbed atop the University of Texas' Bell Tower. Charles Whitman then opened fire and mass murdered a number of people, along with wounding many more.
Here is a link to that story:
http://en.wikipedia.org/wiki/Charles_Whitman
Now we add to that "limited list" of outrageous and shocking horrors, what went on at Ft. Hood TX. Our state and our nation, plus around the world are still in shock and disbelief this one man, who has not only been in the Army serving for many years, but also a psychiatrist, could do something as evil as murder in cold blood his peers right their on the largest Army Base in the World.
Of course, now we have the monumental House vote that approved the first step of health care reform for our nation. Now it moves onto the Senate to pass their view of the bill, then comes to combining both, to go back to the House and Senate for final approval, and onto President Obama, for him to sign and make it officially law! Lots of steps to go, but this first one was extremely important.
Other good news this week, includes the breakthrough in the first ever of it's kind Lupus medication. After succesfully passing through all of it's clinical trials and being very positive on all counts, it is almost ready to go in front of the FDA for final approval, and then THANK GOODNESS ONTO US WITH LUPUS AS PATIENTS!
There are also a couple of other Lupus drug trials going on, some in Great Britan, along with a few more from what I have read here in the United States. I am so thrilled about these one of a kind, breakthrough medications, for it has been over 5 decades since any kind of clinical trial, medication, or much research has been done for SLE-Lupus patients.
There have also been many articles about more research and positive outcomes in the fight against Fibromylagia and Chronic Fatigue Syndrome! Our nation, along with others are really moving ahead on these syndromes, and since I am also a sufferer of FM and CFS, along with Lupus, Sjogren's, and Raynauds, it is music to my ears to hear this incredible news.
Other than that, we have had almost near perfect weather this past week. It has been sunny, with highs in the upper 70's, and the lows at night in the mid to upper 50's, which makes for pleasant conditions as far as sleeping.
Not too hot during the day, and not too cold either... today we do have another cool front moving in and it is cloudy, as we expect some rain with this one.
As far as my health and ongoing medical issues, I have been fighting another Lupus flare, off and on now for weeks. This one seems to be milder, but it just seems it is lingering longer. I do feel either a combination of meds are working, or the Methotrexate is working. I have an appt. with my PCP on the 30th. I want a consultation as to a game plan for my conditions. Keep me in mind over the next weeks, as I gather concerns, questions, & hope for my PCP to support a plan for me to get better.
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I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things abo...
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I finally made a trip to Urgent Care with what I feel is a very bad Lupus and RA flare, but there are several "symptoms" strange t...
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How can our kids feel safe when WE as adults don't???? I fear Wal-Mart or just walking across the parking lot at HEB in my small lo...