Fearful that something is very WRONG & not sure what I want t do honestly....

First of all, I want to see who reads this. Some of those if they do, should "respond" to me quickly.

IF they DO NOT, then I know they lie to me about "reading" my blog posts and FB posts etc.


I've lost something like 24 POUNDS for no "real reason" over the past about 8 months. I "chalked" it up to stress of all I went through with my Mom, the Dementia, then the grief and everything that is STILL going on even after her passing away.

Funny how even "family" can be so damned "selfish" once they "think" they are getting a little bit of the "green stuff"... or if they are NOT, and so forth.

Anyway, I've been having severe "night sweats", I mean COLD, shivering, soaking wet to the bone, and all onto my sheets, my blanket and so forth. Those have been going on now for about 2 years off and on... but lately they are much worse.

Then I KNOW I am anemic, and have been, I take B-12 injections monthly BUT my RBC IS not BETTER but WORSE, anytime I have labs drawn.

Then there is the bone weary fatigue. I struggle with severe fatigue, and have always felt it was the Lupus, RA and so forth....

I cannot sleep, the lymph nodes in my neck stay swollen and the Left one under my ear is like a rock, and sore all the time.

THEN, I developed this one "lump" about the size of a LARGE marble on my L. Butt cheek about 6 months ago... rather than go away, now it appears like it is "sunken in" around it, with a bluish tint, almost looking bruised YET it is NOT bruising... I've had NO trauma there and now this past week up and down my outside right thigh, I began to "feel" the little lumps, about 4 or 5 of them...

I've looked and researched, and although we know often these things may mean nothing, YET I fear I may have "Non-Hodgkins" Lymphoma.

The "symptoms fit"... and with my other issues like Lupus, RA, Sjogren's, Raynaud's and so forth, my chances are much greater of having something such as this... I shall say no more for now... and see if anyone reads this....

#RABLOG WEGO's Week long RA Blog - Day 2 - How to "fight" RA Fatigue

This is one tough "cookie" so to speak. Some of us battle more often than others I am sure.

Those days when I get up and feel like an "18 wheel tractor trailer" ran over me and then backed up and did it again. There are times, that I try to just push through the temptation to get back on the sofa, and watch movies all day long.

Yet, life some days, even with chronic pain and chronic illness may not allow a day to "hide out". So, those times that I KNOW I am going to have to be up and about, I try to "plan" for it ahead of time. You can't "plan" the fatigue, but you can plan a time before you may suspect a very busy day, and that fatigue can come with those days. So, I tend to try and get to bed or at least relax a bit earlier that afternoon and evening before.

I try my best to find ways to doing some things either  during the time of day that I feel "less fatigued". O if I know that I have something that will take more energy than "usual" I try to rest the day before, or sleep by going to bed a bit earlier.

I also have found to make doctor appointments, or anything type of appointment where I need to go here or especially in Dallas, to make them between about 11:00AM and 3:30 PM. That way I can avoid that "fatigue" in the morning, and yet not have to deal with the more fatigue that comes on after a busy day... around 4:00PM.

I also try my best to "combine" things. If I need to stop at several places running errands, I plan my route where I can do the one that is further away, then work my way in to the closer things, so I am close to home as possible after I finish. I also at times have to do part of errands, shopping, house work and so forth and then finish it up the next day. If I have a large amount of groceries to buy, then I do that one day, and save the other errands till the next day. Plus if I can possibly get medications by "driving" through a drive through window, or even at the bank, I try to use the drive thru anytime I can where it is possible.

When the days are very hot, or I am just not feeling well, or fatigue has got me badly, then I use my Handicapped parking sign. That is a huge help especially at a very large store, and especially if I am having to buy things that are heavy.

I find also, if I stay "moving" once I am up and around, I am better off "finishing" up all I can before i sit down. If I sit down before some things that need to be done and rest, then it seems I am more tired and fatigued than I would be had I just finished everything up and then sat down to rest.

I keep myself on a set schedule as much as possible, as far as eating, sleeping, getting up and all. If I stay on a schedule, then it seems that also helps to fight the fatigue...

Of course there are times when it is just TOO much, and the fatigue just puts me down for the day... and if that happens, then I listen to my body, and I "take that day" or a portion of that day to give myself the "relaxation" it needs....


I can say also, that "mental and emotional" stress brings the fatigue on worse than ever for the most part... so trying to keep an even keel emotionally helps, but of course we are humans, and we have stresses to deal with... 



#RA BLOG

A VERY "BLAH" Monday!

Well for many of us we got to celebrate a wonderful Mother's Day!!! Then for all of us, like myself, that got tremendously hindered by severe weather, we shall have to have a later celebration.

Well, I hope to be able to. I changed my reservations AGAIN for the 4th time for Winstar in OK. Yet, even this next weekend shows that we could be right in the same shape again, bad, bad and more bad weather. So, we shall see how the week goes.

Plus I am not feeling well at all today. I really felt lousy all weekend. Between allergy mess, my hips and legs, my right shoulder blade for some reason, and just a general upset stomach, and feeling like the fatigue has kidnapped my body and take it over, I just feel like HELL honestly!

Of course for now the "severe weather" has moved on, but I am sure it will come again soon, from what my joints say, and my body, plus of course the "forecast".

So, I am not going to be online much today. I got involved in baking, and all of that yesterday, so I really didn't spend much "down time" for Mother's Day. So, today I am headed for the sofa with my pups to hopefully get some relaxation, rest, and get this awful fatigue under control once again.


I am never "far away" so send me a message, email etc... I will be checking my computer off and on during the day....


By the way, our friend and client, did go through about 4 hours of surgery on his brain last night due to the hemorrhage. The removed a piece of his skull in order to create room for the swelling and to relieve the pressure from his brain. It seems he is "stable", but they are still not quite sure what caused the brain hemorage yet. He is somewhat alert, and responding. Plus they said his "breathing" is over and beyond the ventilator, so that is a very good thing. But, he has NO movement at all right now on the left side of his body. The bleed seemed to be on the right, so that would make sense.... I shall post more later when I get updated! Thanks for all of the thoughts and prayers.