Showing posts with label pernicious anemia. Show all posts
Showing posts with label pernicious anemia. Show all posts

Saturday, October 27, 2018

Colonoscopy and Endoscopy - Just another procedure to put us through....n Life with Chronic Pain, RA, Lupus & chronic illness

Going through the Ordeal to get Ready for an Endoscopy and Colonoscopy!


Also Barrett's which I have and my Anemia is getting worse every 3 months, and my Parathyroid Labs are all "off" also....


So, I started to see the surgeon on Thursday afternoon, to see about scheduling that endoscopy and colonoscopy... and about the time I was leaving the house, I "felt" one of those drenching sweats coming on, plus they were supposed to put the holter monitor on me for 24 hours while I was there... I almost called and cancelled, but decided I would "try" to at least get into the surgeon... 

and wait on the monitor... because the leads will not stick on my skin if I am having one of those horrible drenching cold sweats... so the doctor was running over an hour late! I knew I was getting worse, but fortunately it was not a terribly bad one, but I did put off the monitor and told them I would try next week... and I did get in, so I have the endoscopy and colonoscopy on November the 14th!!! And now the way they "clean out" your digestive tract is almost silly.... 

rather than drink that "lime stuff" like you used to, you get 2 32 ounce bottles of Gatorade or Pedialyte... 2 bottles of "Miralax"... and 5 Ducolax pills... and mix the Miralax in the Gatorade and drink it like a glass every 10 minutes until you are finished with it, this is at noon and you are "fasting" anyway, with jello, etc the whole day before", and then at 6PM you drink the other Gatorade and Miralax and I think in between take those Dulolax pills!!!! 

Good Lord I hope that does not make me sick... that is a lot of Gatorade, and I guess it helps to "hydrate" you, rather than used to, you would be almost dehydrated doing it the old way.... anyway, I just hope they can do it early in the morning on the 14th and get it over with... I've got to get hold of my son, and see if he can get off work to take me... of course they put you to sleep so you have to have someone to drive you home after it's done.... I still have not heard from the Endocrinologist... but I guess I will call myself and try to schedule an appt if I don't hear from them by early next week....


Saturday, January 7, 2017

As Usual NOTHING is simple when it comes to MYSELF and MANY others with COMPLICATED AUTOIMMUNE ILLNESSES!


                            DO COMPLICATIONS EVER END????

Once again, my autoimmune illnesses play a difficult part when it comes to my health, my life, and after something like a major surgery.

Many of you know I had taken a hard fall on my hardwood floor on December 13th - which led to 2 fractures n my right hip. I had staples in it, due to two incisions, but I had a rod and screws put in and did not have a complete hip replacement, which we hoped meant I would be home sooner. SO MUCH for that thought! I should know better by now to :"assume" anything I have done will be "simple".

The surgery, the rod and screws, which I got to see on an X-ray yesterday January 6th, are healing well. I had a complication with my foot, thinking it was fractured, but I found out I have a torn ligament, which probably began when I twisted my ankle back in June so severely, then the fall, in which also involved my foot being "hung up" and caused the fall, then probably tore that ligament the rest of the way, thus now my right foot is in terrible pain, when I am standing or trying to rehab the hip. I've had to learn to work past the pain in my foot, thus the rehab portion on my hip is going very well.

Even my orthopedic surgeon said yesterday, that in spite of my complicated health problems, I am doing extremely well, and past schedule in a good way, compared to what he thought I might be. He was telling his nurse, that due to my attitude and willingness to work with therapy, I am doing very well. Yet, between the anemia, the liver enzymes being high, and now this "hematoma" that developed on top of the main incision after the hip was repaired, I face another surgery this coming Tuesday.

He has to go in and drain the "grape jelly" as he called it, the blood that has accumulated like a huge blood blister under the skin, and put a drain in it, so we can get rid of the huge "mass" right on my thigh, that makes me look "deformed". He said in his report, it is big as a softball. WOW! I knew it was large but "softball size"? So, rather than GOING HOME EARLY NEXT WEEK, I face yet another SURGERY! So, that delays me getting on home and back to my life, as I wanted to.

It certainly takes the idea of my neck surgery that I need so badly, completely out of the picture, and makes me want to "run" if I could somewhere that not a soul could touch me, and just be totally alone, perhaps with my puppy, Peanut, and the new puppy that awaits me once I get home.

Here are a couple of pics of my new little boy


who awaits me: He is apart of what keeps me on focus to hurry up get well and GO HOME!!!! along of course with Peanut also a Fox terrier....

Wednesday, January 4, 2017

Talking about "enduring" ALL of the "complications" & Nightmares of being in the hospital after breaking my hip, surgery, Rehab and "conflicts" of other illnesses #WhatTheHealthcare


 #WhatTheHealthcare

To understand this, I fell and broke my right hip n 2 place the Tuesday before Christmas. I am STILL in the Rehab Hospital and everyday there is some kind of "kink" or some complication, and guess who suffers for it???? ME, the PATIENT!!! Here is the latest example.... besides being Anemic and having 3 UNITS of blood before, during and after surgery.... I've had a ROUGH 24 HOURS AGAIN!

They decided to do that liver sonogram and I didn't know I could not eat, drink or even have meds (which I was told they would come somewhere around 3AM or so do to the scan. Well, 3 passed by, then 5AM passed by, then 6AM and nothing to eat, drink, no medications, and by 6:30AM I was about a basket case... well over time for pain meds, my Valium, my muscle relaxers and so on. So, everyone was checking to find out why the scan was not done sometimes in the early morning.

He FINALLY SHOWS UP about 11:00AM.... now this is like 20 HOURS SINCE I've had anything.... the sonogram did not take long, and I was "buzzing" for ALL OF MY MEDS, and some orange juice as soon as he got through. So, thank goodness I got lunch, and of course my stomach is so "small" that I can't hold a great deal of food or drink at a time.

But, I got my meds, and drank the juice, then ate some of my lunch, and now I am just worn out from lack of sleep, and lack of meds on time.... so it's been a heck of a day and night before.... I gather he did the sonogram of my spleen, liver, kidney's etc...so if anything is causing the blood work to be "off" hopefully they will find out.