UPDATE... Could be I have developed "Lupus Colitis" since C. Diff ,Parasites, other Bacteria all negative...

 Had a visit with my PCP on Friday. I have developed probable "High "TSH" thus I may be having to add yet another medication for High Thyroid issues. My "Parathyroid" is still getting higher, which I am concerned about a possible "tumor" on the pituitary gland. He and I have not mentioned that, and he tends to think it is due to my Vitamin D  and Calcium being "off" now. they both had been normal for a long while, but after all of the colon issues, such weight loss, etc.. my body has really been through hell especially with minerals, vitamins and such loss through the severity of the probable Lupus Colitis. 

It comes and goes... and I have been having to keep a carful eye out for my diet, what I eat, what is in it, when I eat it etc. I have always been a sweet lover, but have used either Splenda or Stevia ever since they came out.. and quit any "man made sugar substitutes." 

But, I love cookies.. and MANY of the bought ones have "high fructose corn syrup, which is 1 thing that I to keep away from. I was not a big chocolate eater, but a couple of years ago, I began eating a bit of dark chocolate.. but I notice that tends to bring on the colitis symptoms, and as much as I used to LOVE peanut butter, now I think anything type of "nuts" even in peanut butter may also bring on the symptoms, even all natural with NO sugar etc. So, I have to really watch what type of "sweets" I either make or buy. Of course I had quit making homemade especially after the horrid HEAT we had this summer..plus it is hard to buy what I need and make something sweet for just ME... so I had been buying especially cookies... but many of them do contain high fructose corn syrup!!! or NUTS, or chocolate & chocolate chips. 

I wanted to post this much and will post more tomorrow. Had a really rough week, lots of errands, doctor appt, lab work, got my 2nd Shingrix vaccine, so I am exhausted, and ate something that really hit me hard with the darned Colitis again. In fact my Daughter came up unexpectedly last night.. but I had such bad symptoms with my colon I was not even able to see her & my son in law & grandsons... they leave in the morning so I felt badly missing to see them.  But, I could not even walk this morning or step out on my porch.. the colitis had me bound to the house since last night late...    

Glenn Frey of the Eagles & His Suffering from RA & The Medications and Treatments that can be almost as bad as the diseases....

Gosh How many of us discuss this daily! With RA, Lupus, and any type of autoimmune diseases, the medications themselves can cause as much havoc with our bodies as the diseases themselves. Do I ever know this one, after the double set of cellulitis on each thigh, that then turned into abscesses, that took over 7 MONTHS to finally get to the place that I am not on antibiotics, they are not debriding them weekly, and then I have had double pneumonia at least twice... I know for a fact that one of my RA biologic medications caused the cellulitis that turned into the nightmare of abscesses. After having those incised, and for weeks they were still not healing, finally I was sent to a wound care specialist at Charleton Methodist in Dallas. I have no doubt had I not went to them, I would have been in the hospital with IV antibiotics and no telling how bad of shape I could have been in... I was so terrified of the MERSA virus being a part of it, I kept seeing that those two huge holes in my thighs were turning almost a dark brown/blue in color and I feared the worst each day...although the left one finally sealed over, the abscessed again, had to be incised again, it healed just before I went to the Wound Care Place... but the right one was 7 trips for 7 weeks and it just finally sealed over about 2 weeks ago... yet the doctor released me, and said it is still healing some on the inside... each day I have to check it though to make sure it is not abscessing again. SO FAR I have been fortunate... even with the double pneumonia, Ive had it at least 3 times, once before being diagnosed with the autoimmune illnesses... and even though I probably should have went to the hospital, I stayed at home, done everything the doctors told me to do, and made it without having a hospital visit... BUT, that does not mean that it will not happen... I know now what to watch for... I had no signs of having pneumonia the last two times other than a severe headache, then I began to hallucinate, and finally figured out I was running a high fever... over 103 degrees... which sent me to Urgent Care immediately! Again, I was one of the lucky ones... but it meant no more biologics for now, they took me off the MTX, which I had been on for 5 or more years... and FINALLY after having my stalled pain pump replaced, my Rheumatologist started me on Minocyline... an antibiotic they use for RA.. BUT, I figure I will be going on Xeljanz, within 3 months... yet, the RA and Lupus are continuing to take their toll on my joints... I have an 80% compressed disc in my neck, and need surgery very soon....and I still need the lower lumbar/sacral surgery... both I know are getting worse because of the Lupus and RA... so are my hands, fingers, thumbs and wrists, that are showing signs of looking crooked...especially my thumbs which hurt so badly.... I have lost a great deal of strength and grip in my right hand, and I am right handed.... I just yesterday threw out 3 MONTHS worth of that one biologic... and it almost made me sick to pitch out medication, that probably cost thousands of dollars... but I cannot return it, I cannot do anything with it, and I do not wish to ever try that one again... not after what I have suffered through... so to see others, and then see that these diseases do not show any mercy... they effect the famous, the folks like myself, the young, the middle aged, the elderly... and can take a life so much, much earlier than should be taken... it is a crime, that until research finds a cure, a reason, a way to stop these hideous illnesses in their tracks... none of us are immune for sure... 

http://www.thewrap.com/glenn-freys-death-rheumatoid-arthritis-medication-can-lead-to-disaster-doctor-says/