CONTINUED FROM "Delving Into "hopefully" a New Outlook on Rheumatic Illnesses & finding Ways to get the word out to Others... Possibly a New BOOK, A new "Non-Profit" to be active with, and a "new attitude" for myself "Relationships" Chronic Illnesses, and Life

It's a mixed emotional painful weekend last few days for me... my entire BODY hurts so badly, and I am not sure what the hell is going on. Even MANY of the "joints" that have been completely replaced hurt so badly, I a not sure what to make out of it.


I continue to blame much of the severe pain that sometimes occurs on the humid, wet TX weather. Not the "heat" so much, as it is the basically HIGH HUMIDITY we have most of the time, whether hot or cold here.

You would think I lived much closer to the coast the way the humidity is so high here. Yet, I live at least 6 hours from the coast, if I went directly to Houston from where I am.

So, "the region" is not to blame for sure. We just happen to have a great deal of very "wet, damp" even some mornings the lawn will appear as if it has rained the night before because everything is so "wet and the moisture just "hangs" almost in the air.

Yet, I have to believe that there is more to what I am feeling than humidity. It's gotten me hurting so badly, that it matters not what I do or don't do, the pain is almost unbearable. In fact it can be down right frightening.

When you are already "autoimmune compromised" with RA, Lupus and so forth, you are on medications that are "risky" to say the least for severe infections, and sometimes even cancer that could develop although the risks are very low, I fear "infected" joint replacements, or something that has gone "wrong" with the implants... Yet it's not just those joints, it is all of my other joints, muscles, my lower back, headaches, every inch of my body seems to just ache deeply down almost as if my "bones" were in pain.

I've researched the subject many times, because this has happened to me over the past at least 10 years off and on, with really no way to find a good explanation or a diagnosis to put your finger on and say OKAY, "this is what's wrong"....

As I've told my pain specialist before I could literally...

Alas MONDAY MORNING ARRIVES, AND GUESS WHAT??? HIGH HUMIDITY, STORMY WEATHER, AND A "THICKNESS" IN THE AIR that feels like you could "push it up and sit down on it"....

So, no one can say "weather" does NOT effect many of us very dramatically especially when joints, bones, muscles, and chronic pain and chronic conditions are present....

Still Just PEEVED over this mess about Pain Medications and the CDC! WE are ALL NOT ADDICTS OR ABUSERS!!

I am just so TOTALLY PEEVED at the CDC and ALL that they present when it comes to Pain Medications, especially "opioids" I want to SCREAM! YES, there are those who choose to abuse... but that abuse is FAR NOT what has been in the main stream of the news, and from the CDC! Right now, and I know many that suffer from all types of severe chronic pain daily... if WE including myself, had any OTHER CHOICE, and did NOT have to have these medications in order to have a better quality of life, you can BET WE WOULD CHOOSE SOMETHING ELSE! Many, MANY OF US, have lived through YEARS AND YEARS OF HELL! We have been through the many tests, all of the other medications, we do "exercise", we do try and go on with our lives, we DO ABIDE BY OUR DOCTORS RULES AND REGULATIONS, we DO everything we are supposed to do OR NOT SUPPOSED TO DO, in order to try and not have to take pain medications YET FOR SOME OF US, THEY ARE OUR SAVING GRACE! They are what allows us to get up in the mornings, and go on about our days the best we know how, whether that is work (and even with my medications I had to stop working in 2003, and spent until 2007 getting my disability! Durong that time I SURVIVED barely, with very little medication, BUT I was too ill to work, too ill to really do much of anything, I had lost hope, and was about at the end of my own rope, until I FINALLY FOUND MY pain specialist who tried to put my life back on a tract of being able to "live"... DO THEY TAKE AWAY ALL PAIN? NO! NOTHING, but the day we LEAVE THIS PLACE AND MOVE ONTO WHEREVER WE GO FROM HERE, will ALL OF OUR PAIN BE GONE! BUT, can we "take it", can we "live with it", can we do things with our families, some of us still work, do advocacy work, be useful in our society, in our neighborhoods, churches, with our loved ones, and try to enjoy life as much as possible... 

YES! I realize that without all of the other surgeries, PLUS more ahead, my pain would only get worse... so even though due to my heart problems, and other illnesses, I take a chance, I DO have surgery IF my doctors tell me they have a chance to "lessen" "new pain" that comes when you have degeneration of joints, of your spine, when things happen you have NO control over, that can cause further pain, you DO what you CAN to NOT have to take any more medications... after all any of us can only take so much medication, no matter what type it is... and any medication works only as well as your physical, emotional and mental state allows it to... 

BUT WITHOUT MY pain medications, I would NOT be able to take care of my aging Mom, who is 81 and now suffering from probably Alzheimer's or some type of Dementia. I could not do my laundry, take care of my house as much as I can, try and cook for myself, take care of bills, and do my very best to go on with my life as I do... I just posted that this WEEK HAS BEEN HELL! Pain due to weather change, time change, and just me having to do more that usual this week brought on more pain.... 

BUT, I still try and get up, move forward, some day more slowly than others, but try my best to take ALL OF MY MEDICATIONS AND LIVE LIFE! SO, WHEN I read and hear about the CDC, and all of those WHO HAVE NO CLUE WHAT LIFE IS LIKE... AND WHAT IT WOULD NOT BE LIKE, IF I WERE NOT ABLE TO have my medications, IT REALLY MAKES MY BLOOD BOIL! I can GUARANTEE YOU IF ONE OF THEM, OR ONE OF THEIR LOVED ONES, SUFFERED THE SEVERITY OF PAIN that some of us do, or WOULD WITHOUT OUR MEDICATIONS, they WOULD ALSO BE FIGHTING THE GOOD FIGHT TO TELL THEIR STORIES, AND make sure they OR THEIR LOVED ONES WERE ABLE TO GET THE PROPER TREATMENTS AND MEDICATIONS THAT THEY NEEDED IN ORDER TO NOT SUFFER DAILY! My hopes are that ALL OF US THAT UNDERSTAND THIS PASS THIS AROUND, WE TELL OUR STORIES, WE CONTINUE TO FIGHT AGAINST THIS MESS OF OUR STIGMA WE ARE ALL "ADDICTED"... WHICH IS BULL.. I never feel "high", I feel relief, relief enough that I can go on with my day.... and if you see me WITHOUT MY MEDICATIONS, you would see someone who was in so much pain, that walking across my little home would be horrible, AND WHEN I have my medications, I am able to try and move on with my life.....

http://nationalpainreport.com/cdc-opioid-guidelines-released-8829808.html 


I hope YOU TOO will stand up and tell your story! WE must stand together on this!