I realize I have not updated here in a long while. Between the extreme weather, I bought a RV to move into full time and getting rid of too much to take care of.
From my lawn the 1/2 acre behind my home, my home needs a COMPLETE RENOVATION FROM ROOF TO GROUND, fighting a LUPUS FLARE and Lupus MIGRAINES, MY RA IS MUCH WORSE AND I AM BASICALLY OFF MY RA MEDS due to my long time (15 years) with my Rheumatologist. I believe he went in to full time teaching and/or research.
My Osteoporosis, osteoarthritis is worse. My hands are in terrible shape. I went to a NEW PAIN SPECIALIST! He began to be great at first.Then he "got busy" and went on overload. Last month he really peeved me off. The pain meds he put men on caused me to lose down to 97 POUNDS! I had to find out on my own WHY I WAS LOSING WIEGHT SO QUICKLY AND SO MUCH! I researched it and found out severe and quick weight loss is ONE side effect of this medication. He basically CALL ME A LIAR last month in his office! Even my pharmacist and my PCP was on my side and said it was the medication causing it or much of it.
So, I have had to adjust the way I eat, what I eat, drink 3 or more of the Nutritional drinks (such as "Boost" but I buy the "Equate" brand at Wally World" daily.nIt costs a small fortune but buying it online now at Wally World (free delivery) with the new Wal-Mart + I got 2.00 OFF OF EACH 6 PACK!
This "downsizing" and throwing away, giving away, and selling of so much after 18 years in the house has been and still is a daunting task to say the least. PLUS, I knew very little about RV'S! Inhave had to learn every little thing and plan to move to a nice RV park mid September or so. I am taking my time ckearing out the house, So many have been doing the same as myself; "minimizing" their items. We are either chronically ill, or tired of cleaning around things, having closets full or drawers full of things we do not use do not need or are just plain in the way and no longer necessary.
My PAIN LEVEL IS THROUGH THE ROOF WITH ALL OF THE MOVING THINGS AROUND, PLUS THE WEATHER CHANGING, NOW LOOKING AT THUNDERSTORMS TODAY and TOO MANY "IRONS IN THE FIRE".
I CAN PROUDLY SAY I HAVE DONE ALL OF THIS MYSELF..NO HELP, NO ADVISE... from RESEARCHING RV'S to looking at them, DECIDING TO PURCHASE ONE, CONTRACTS AND SO FORTH, I have done it all ALONE!
PLUS I AM SELLING MY HOME BY OWNER. I have already had 5 or 6 people interested.
I even gave thought tonbuying a truck, getting a smaller RV (mine is 37 foot long)! Then towing it around Texas at times sonI can get out meet new people, go to Winstar, visit my daughter and family down by Corpus etc. I USED TO LOVE ROAD TRIPS! I HAD A GREAT DEAL OF REMINCING OVER MY TRIPS SNOW SKIING IN PAGOSA SPRINGS CO..AT WOLF CREEK SO MANY YEARS FOR MY BIRTHDAY EVERY FEBRUARY!
I no longer could snow ski, but traveling sounds very appealing. Taking my Doxie Bella on a few road trips; enjoying time away from the same old stuff and HOPEFULLY WRITING YET ANOTHER BOOK TO PUBLISH!
Which I already have one "PRACTICALLY FINISHED" AND NEAR READY TO PUBLISH. I now see there is a desperate need for everyday people to know it is okay not to have all of the stuff we tend to have! How to be a "novice", someone with health problems, especially a woman and how to go about getting the house downsized, possibly get a "differejt or alternte type of living space). From Rv's to Tiny Houses, Container houses and more; we HVE MANY OPTIONS AVAILABLE!
Whether remodeling, renovating, moving, getting into a new type of living space, making changes are difficult. When you are akone and chronically ill and in chronic oain it is MORE THAN A JOB FOR SURE!
I HAVE LEARNED A GREAT DEAL FROM WATCHING "STORAGE WARS", RENOVATIONS DONE CHEAPLY, RV'S AND WHAT THEY OFFER, ALTERNATIVE LIVING SPACES, TRAVELING AND SEEING NEW THINGS.. I HAVE LEARED KOADS OF THINGS TO HELP MAKE A MOVE, A CHANGE, DOWNSIZING SOMETHING FUN AND EXCITING!
WHEN YOU GET TO BE 55 PLUS INTO YOUR 60'S YOU LEARN THE MAJORITY of things YOU CAN DO, WANT TO DO, AND DO NOT NEED MUCH HELP ...
SO, KEEP AN EYE OUT ON MY FACEBOOK PAGE AD HERE FOR MORE UPDATES!
I AM BATSHI! CRAZY!! I HAVE JUST ABOUT LOST MY MIND, PHYSICALLY MENTALLY AND EMOTIONALLY!!! BETWEEN ALL THE MESS WITH MY HEALTH, HAVING TO PUT OFF SURGERIES, NOW TRYING TO STAY WELL SO CAN GET THE PAIN PUMP REPLACE (BEEN TRYING SINCE IT WENT OUT ON DEC 20TH, 2022)... BROKEN COLLR BONE NEEDS SURGERY, THART RIGHT SHOULDER IS A FLIPPIN' GRAND HOT MESS!! AND MY LEFT THUMB, THE LUMP ON IT BETWEEN IT AND MY WRIST, BOTH HANDS ARE KILLNG ME! I am probably SURGERY ON IT!!!! PLUS I DID NOT HAVE A UTI THANK GOODNESS BUT I HAVE CRYSTALS SO THE SEVERE PAIN IN MY LOW BACK, FLANK AREA, AND DOWN THROUGH MY HIPS OFF AND ON.... COULD BE KIDNEY STONES OR MY LOWER BACK I MUCH WORSE!! I WAS SUPPOSED TO HAVE LOWER BACK SURGERY AND COVID HIT!!!!! WE WERE GOIN TO DO THAT AND REPLACE MY ALREADY REVERSE REPLACED RIGHT SHOULDER AND COVID HIT AGAIN, THEN LUPUS COLITIS HIT, THEN ALL THE ULCERS THAT WERE INFECTED WTH STAPH, & PNEUMONAS. took 8 weeks or more to get those well, MY HOUSE IS A FLIPPIN' DISASTER. I NEED A ROOF, A WALK IN SHOWER, MY FLOORS REDONE IN MY KITCHEN THE NEW LAUNDRY ROOM NEVER GOT DONE NOW MY CARPORT IS LEAKING AND MY DRIVEWAY DUE TO THE WAY THE CITY HAS THE ROAD IN FRONT OF MY HOUSE DONE, IT RAINS AND WATERS RUNS ALL THE WAY UNDER MY CARPORT!!! FOR THE 1ST TIME IN 4 MONTHS OR MORE I WENTTO THE MARKET MYSELF, OUT IT ALL IN THE BASKET, CHECKED IT OUT WITH SELF CHECK, TOOK T TO THE CAR, PUT IT IN THE CAR ... GOT HOME, UNLOADED IT AND PUT IT UP... THEN SUFFERED WITH MY DAMNED SHOULDERS AND BACK...BUT I CAN'T AFFORD TO CONTINUE TO PAY THE DELIVERY FEES..... NOT WTH THE PRICE OF GROCERIES UP AGAIN, YEAH I AM A FLIPPIN' AZZ3D HOT MESS!!! SORRY I HAVE GOT TO WRITE IT SAY IT OR SOMETHING.... AND A LUPUS FLARE LAST WEEK... I TRY MY BEST TO BE POSITIVE AND NOT BIATCH., BUT AM MORE THEN FED THE HECK UP AND ON MY LAST NERVE!! PLUS YOU NEED A PHD TO WORK A CAR NOW DAYS, DON'T EVEN GET ME STARTED ON THAT!! PLUS MY YARD WAS A MESS...I HAVE LIMBS THAT NEED TO BE PICKED UP AND CLEANED UP FROM THE WINDS IN THE WINTER....JUST EVERY DAY SEEMS LIKE IT NEVER ENDS!!! LIKE THE SONG, I NEED LESS HEARTACHE AND MORE PEACE OF MIND!!!! JUST WANT TO GET THE HELL OUT OF THIS HOUSE AND IT NOT BE FOR A DOCTOR, TEST ETC....
IF I SURVIVE THE 9 PLUS PAIN I AM IN WITHOUT HAVING TO GO TO ER THIS WEEKEND IT WILL BE A MIRACLE... THIS IS GOTTEN TO WHERE I DON'TKNOW WHO TO TRUST, WHO TO GO TO..... & i need to try and hold out till Tuesday at 2pm for the pump surgery.... it is BAD!! and i had to move to move my collarbone surgery to May 30th due to the pump being delayed another 2 weeks!!!π‘π‘π‘π‘π‘π‘π‘π‘π‘π‘π‘π‘
This is how severe the osteoarthritis/RA has developed over the past 6 weeks L. hand and now r. thumb has a lump beginning DUE TO THE PAIN DOCTOR MESSING AROUND AND NOT GETTING THE PAIN PUMP SURGERY DONE AT LEAST 5 TO 6 WEEKS AGO, SO I HAVE NOT BEEN ABLE TO TAKE MY LUPUS/RA MEDS WAITING ON SURGERY. I already had been without my Kevzara (biologic for RA) for months due to the antibiotics and bacterial infection on my L. leg... he could have done that surgery weeks ago I was released and clear of infection on Feb 20th.. now he has waited around and I am having a severe Lupus flare been ill all week, & may not be able to have the surgery next Tuesday...BETWEEN THE GOVERNMENT BULL WITH PAIN MEDS...AND THE GRIEF THE DOCTORS ARE GETTING AND HAVING TO GIVE PATIENTS ABOUT MEDS... MANY OF US ARE SUFFERING NEEDLESSLY...I HAVE HAD ENOUGH...MORE THAN ENOUGH AND I WANT TO GET TOGETHER AND GET SOMETHING DONE ABOUT THE CRAP ON CAPITOL HILL, DEA ETC KEEPING US LEGITIMATE PAIN CHRONIC PATIENTS FROM GETTING OUR PROPER AND NEEDED TREATMENT. SEND ME A MESSAGE IF YOU WANT TO GET A PETITION OR SOMETHING DONE ABOUT THIS HORRIBLE MESS WE ARE HAVING TO GO THROUGH!
BETWEEN MY OWN ILLNESSES AND MY HOUSE DETERIORATING I feel CURSED, HEXED!!!
I am sick and tired of getting "well" only to become ill again within a week! The (C.Diff or whatever) came back after 6 days of going away... I still cannot pinpoint what the hell is causing it. And the one tiny spot (after just about ALL of the weeping Eczema is gone) suddenly the top came off of it and it began slowly seEping AGAIN!!! As I said only son's pot, think honestly I am "cursed", hexed... or something that... I know that sounds almost insane not a usual "human issue" in health.
But, to have SO MANY THINGS HAPPEN within a short time after Jim left in the wind back to Seattle, I have had nothing but grief and heartache... my Mom passed away, i lost my teeth and had to have dentures made, I fell and broke my hip and spent 5 weeks in inpatient rehab...lost both Tazzy and Bub's suddenly, got this C. Diff or WHATEVER THE HORRID STUFF IS, but it goes away and is back within weeks, broke my collarbone and shoulder blade, it seems it just continues on and on... I FEEL HE HAS SOME KIND OF HORRID GRIP ON ME EVEN FROM THE GRAVE! Hard to explain how MANY THING HAVE GONE WRONG WITH ME, AND THEN THE HOUSE... hot water leaks, then ruined laundry room with mold, toilet still need to be reseated, my lawn is horrible, and I can't get out and work on it as usual, too hot,, then all the illnesses etc, .... praying, praying praying yet iI feel hexed, cursed, punished for "something" and I have no clue what or why!π₯²π’ππ₯π☣️❓❓
So Much to Do, to Say, To want to do, NEED to DO!!! Yet, the battle of it All goes on.. from COVID-& Variants to pseudo-gout, to THIS HOUSE falling Apart! Where are the plumbers, electricians, Handy Men & everyone when you REALLY NEED THEM! HELP!!
This is a couple of posts from Facebook I have posted & due to all of my own health issues especially with my Hands, Wrists, fingers - the RA Flares, the Pseudo-Gout and as it goes on.. I wanted to play catch up here a bit..
Oh Yes and INSANITY IN TEXAS WITH OUR WEATHER (and as it seems every place else in the Nation)
thy said on the news that ALL 50 TATES HAVE SOME FORM OF COVID - EXCEPT ANARTICA?? AND WE WONDER WHY...
Back to the house needing to be repaired! In am no good at making dumplings. They tend to be like "rubbery balls of mush" LOL! Honestly, after baking a small hen for Christmas rather than turkey or ham. Then having more chicken left over than I thought, all 3 of us I think are "tired of chicken"... I decided yesterday to go to something completely different. I did some fish portions, which were good, some regular fries, and a couple of onion rings. Then I made "Ranch dip/dressing" of my own, had yogurt, small orange jello with the cool whip inn it & Voila' something different... Even the fur-babies Bella and Peanut were thrilled... LOL!!! Well, the holidays are past, which seems crazy. The temps went from 80 degrees night before last to 25 degrees up in the day yesterday.. of course my poor plants on the front porch are beyond "freezer burned"... & that wind and wind chill plus the temps yesterday kept me from barely walking on the porch, it was SO BONE CHILLING COLD! Typical TX - 80 and shorts and in less than 3 hours 330 and headed down to 25. Thank goodness, I DID get bth the inside and outside of my A/C window unit covered up, got the water loose from the outside spickets, got the hummingbird feeder and my new bird feeder cleaned up, washed & put up for the winter. I am still working on the research for which "Tankless Water Heater to buy for the house QUICKLY!!!" Getting research and which "walk in shower" (WITHOUT DOORS JUST A SHOWER CURTAIN) that has to be done. I have got to get at least 1 set of rails for my front porch up. I just cannot carry things up and down even as "not steep" as those steps are in the front, they are danger to me and everyone. I thought at 1st I would do metal BUT, that would be HOT in the summer and freezing in the winter. Plus between rain and humidity that metal would be useless. SO, I thought I would use treated SMOOTH lumber and just stain it. The steps are concrete so those rails can be anchored into the concrete steps. I really only need ONE set. I use only the right hand side coming up and going down, so for now 1 set would be fine. I had forgotten but those ROTTEN WINDOWS IN MY LAST "BEDROOM" in the back have to go! No repair, they just need to be removed & I am going to put a couple of windows like my neighbors. Theirs are a bit wider, but shorter. Plus they are perfect in that area for where plants sit, and they will get the sun they need. I have a total of SIX big of the old windows that were "weighted" like most of the homes that are especially wooden are around here built in the 50's. But. the people that owned the house I bought it from must have not had good renters, the windows just were not propel managed, ... they have breaks in some of them, they tend to stay wet, where that part of the house is more shady and so forth. Plus, my neighbor and I are talking about letting him do the work (which is most of it) he can do. He has been doing all kinds of hand-man things from showers, to light fixtures, doors, and you name it for people here in town. So, he is good, he is very TALL! LOL! Actually most of the time he can stand on the floor and put a ceiling in without needing a ladder. By the way, I am STILL GOING TO SELL THIS HUGE SAUNA/TUB/JACUZZI/WATERFALL, RAINFALL, & YOU CAN EVEN ADD ANSWERING YOURB PHONE, IT HAS A STERO BUILT IN, TWO SHOWER HEADS AND THE RAINWATER FROM THE TOP.It can be taken apart all glass doors, and then set up again wherever someone may want to set it back up. I supposed you could take it and put it into the wall. I left mine on the legs, put tile under it so I could move it if I ever need needed to. A "walk in shower" will be PERFECT" for the pups and me. They can't climb into and out of the tub either. Not with their hips and legs. I am going to buy one of the already ones with all of the surround walls, get the bottom one, which will fit where my drain is, & will have PLENTY of room left for either adding more shelves in the bathroom, or adding more onto one side that goes into the closet of the bedroom, so I have ore walk in & storage space.
http://www.votervoice.net/Shares/B_sgLAFCBCXxVA2QJDZ7FAA
It's not often that I REALLY GET FROM FRUSTRATED TO PLAIN MAD AS HECK with any of my doctor's! But;. as MANY of us that are "chronic Pain patients" know, there is a "rotten egg" in the basket between pain specialists, the FDA, the CDC... and so forth, also the Senate and House.... This has been going on for years, the old thing about "we are all "addicts", and really don't ned the pain meds... and the old story continues. I have heard so many horribly SAD stories abut how p atients have had their meds suddenly without cause jerked away from them, doctors up and moving, and so forth BUT!!! there is definitely ANOTHER SIDE TO THE STORY! That is the "home made meth, the "so-called "Fentaynal patches" that are NOT real from a Pharma co, people mixing cold meds, or all kinds of concoctions, and selling them to people, AND because MANY IF OUR SPECIALISTS THAT ARE LEGITIMATE (MY DOCTOR HAS BEEN IN THE NAVY AS A DOCTOR FOR MNY YEARS, THEN SPENT ANOTHER 22 PLUS YEARS IN SPECIALIZING IN PAI MANAGEMENT! I've beenseeing him for over 12 years and inf act really the ONLY "pain doctor" I have ever seen. I "trusted" him and He "trusted" me... so we had a great "patient/doctor relationship that I NEVER QUESTIONED... We went througha couple of things when i 1st got my pain pump which the 1st one was over 10 YEARS ago, that one went haywire after about 5 years to the date, so he had to replace it, & that WAS ALMOST 6 YEARS AGO, THIS COMNG OCTOBER OR SO. I als always had a very small amount of "oral meds" I kept from him, so in case the pump went out or something happened that I quickly needed more meds for some reason, I had a few pills to carry me through, like when the 1st pump went out. Itwas on a Friday NIGHT of all times and a "holiday weekend" s the pump was "beeping" every 10 minutes, and I could not turn it off... I could decrease the sound some thank goodness but I could not completely all the way. So, it was like from Friday night till the following Tuesday before I could even speak to his office. What irks me though, is the pump was "gone and I had to have out completely replaced. So, that week i had to have an outpatient surgery to take it out & put a new one in. But it was a day procedure & I went home that afternoon... THEY WERE (THE COMPANY) WAS SUPPOSED TO TELL ME "WHY IT WENT OUT" LIKE IT DID WHICH WAS VERY UNUSUAL, BUT I REALLY NEVER GOT A STRAIGHT ANSWER... THE point is I "caught" something very "odd" about 6 months ago about my doctor, and his office... things were strange, they no longer got the medication filled & sent to me from a pharmacy in Dallas, which they had done for years. So, I had to call them, they had to physically send me a script, I had to take here to my local pharmacy... so it took longer, with al of the cal, the send to me which the mail is so slow now, then the pharamacy may or may NOT have the meds ... and then suddenly my doctor MOVES FROM AN OFFICE HE JUST A COUPLE OF YEARS AGO BOUGHT AND REMODELED! It was like he didn't tell us anything, just moves, sends out a post card with a "strange new address on it"... which was horrible to find! Then suddenly all of the employees almost were different. After years some of them suddenly were gone ... and the ONE HEAD WOMAN I COULD CALL & leave a message and she would call me I ALWAYS LEFT A MESSAGE FOR AND and she always returned my calls, just stopped calling me back. t was just nuts. Then all of a sudden my doctor for no reason, just in a "chicken" move "halved" my medication! BUT rather than explain it, he kind of just mumbled a few words that was not like him and more or less, made the "assistant" take the heat for the sudden change. So, I go in yesterday after driving in pouring rain, water over the road, to get my refill for my pump... and now he is ONLY IN THE OFFICE on Wednesdays! So, if my pump n a fill on a Friday, I either have it refilled days EARLY or I take a chance and wait an extra 5 or 6 days & hope it does not get too low that it beeps again... so I go in make a darned horrible weather trip & find out (due to their own equipment that is flawed and I hΕd know it & told them many times) I had enough medication in the pump to last me at least another 7 days. So I go in and he pulls out enough (as always) that I could have waited another 5 to 7 days and not have to come in earlier than necessary. But. he "jumps" me and says "You are not using the meds you have" & I said wait a minute this had been a "flaw" from day one. It happens every time we fill it. It "says to come in on like the 15th of a month" BUT when he pulls i out it is NT my fault. If they had equipment correct it should have told me to wait and use up more of what was in there. I HATED THAT TRIP YESTERDAY!! HAD I KNOWN I could have waited till Next "week" in better weather before making that dreadful trip u there! As He is waking out & that was another thing 'HE ALWAYS CLOSES A DOOR WHEN HE COMES IN TO SEE A PATIENT! YESTERDAY HE WALKED IN LEFT THE DOOR STANDING WIDE OPEN WHERE EVERYONE COULD HEAR & SEE ALL GOING ON IN MY ROOM! The nurse got up and had to come shut to door... he was just going to leave it wide open! Then he said several things that sounded "off".... and when he began to leave the room, I asked him about my refill for my meds and he said "I a
