Showing posts with label Newest Version All Things Autoimmune Newspaper. Show all posts
Showing posts with label Newest Version All Things Autoimmune Newspaper. Show all posts

Tuesday, January 31, 2017

More Post-Op Hip Pinning results, seeing a Foot & Ankle Specialist today & TELLING YOU, MY READER ABOUT MY BLOG!! By the way talk about one expensive accident!

If you have followed my blog, Facebook pages, or my Newspaper, you are probably aware of my fall on December 13th, that led to a fractured hip in two places, and the surgery, then PT Rehab that followed.

It seems it is never ending, and I had severely sprained that right ankle in June, in fact the weekend of my Mom's funeral. I accidentally slipped off the porch on wet grass, and sprained both, but the right one was very bad. It was black, blue, and extremely swollen for weeks and weeks. And still, if I am up on it for a long period of time, it tends to swell again.

But, after the fall and it being on that right side, I think it was my foot that actually got caught in what little device I had across the doorway to keep my pups out of the bedroom. So, I was in so much pain with my hip, it was not until after the hip was pinned and a couple of days after I noticed my foot hurt worse than my hip, and I could barely stand to touch it to the floor. They X-Rayed it twice, and there seemed to be nothing broken, but more probably torn tendons or ligaments, that the X-ray would not show. It got a bit better, but even after 8 weeks or so post-hip surgery, the foot swells and turns purple if I walk or stand on it for any period of time.

SO, I go to a foot and ankle specialist today, who is located in the same place my orthopedic surgeon that did my hip surgery is in. Which makes things easier, since they already have all of my information.

I have no clue what he will find, or not find. I just know I would like to have it looked at, so I will know whether it is going to just take time to heal itself, or what. It sometimes hurts so it causes me to want to limp on that side, which is not good for my pinned hip. I don't want to start limping, and make it a permanent thing. Also, last night for the 1st time, I had pain in my calves during the night. It woke me up in fact, and I thought it odd that the back of my calves were aching, so I got up took some medication, but I have not been sleeping very well anyway, thus I did not get much sleep last night, nor several nights before.

I tend to be "full of energy" one moment, and the next, just feel drained, and really just want to prop up my foot, and sit to watch a movie. Of course, I still face surgery, on my neck, which is giving me mortal hell, and the Rheumatoid Arthritis is bothering my thumbs and hands so much, but I need to get well enough to go to my Rheumatologist to get on some new medication.

The pain from both thumbs, and wrists now run up my arms, to my elbows, especially when typing or doing something tedious with my hands and fingers. So, it makes it difficult to sit here and type, when both arms hurt from the RA in my thumbs and fingers.

I know we have had this conversation now on several occasions, about life and how some of us wind up with all types of suffering, medical, financial, emotional, and it every realm, it seems to never end. I certainly feel that way, and I am so frustrated with it all. I have many mornings that I wake up with my stomach upset and nauseated so badly I have to take medication for it. I know I have GERD, and take meds for that, but this does not act like GERD. I am just plain nauseated, and not sure why. I have a great deal of head and neck aches, probably from where I need neck surgery, so that in itself will make me feel sick to my stomach. I also am trying to do the same eating routine that I did at the hospital, rather than eating breakfast late morning, I now try to eat around 8 to 8:30AM, then have some of that "muscle milk" or protein drink in between during the day. Maybe snack on a few crackers, or something in between, then eat dinner as usual about 5 to 5:30PM. I thought that may help.

Also, FOR THOSE OF YOU WHO DO NOT KNOW ABOUT MY BLOG, WELL HERE IS THE URL TO IT: 

http://www.autoimmunearthriticsystemiclife.com/


I feel that I may have many out there who don't know about my blog, so they never see it.. So, for awhile, I am going to try and get the information out there about my blog, because it has lots of information, not just on myself, but RA, Lupus, Clinical Trials, different Organizations, such as the Arthritis Foundation, WEGO Health, the Lupus Foundation, the Alzheimer's Foundation, The Foundation for Autoimmune Arthritis, and much more.. medications, my experiences, events happening and my newspaper also keeps up with the latest stories and so forth at:

http://news.autoimmunearthriticsystemiclife.com/#

Life Chronic Pain, Autoimmune Illnesses, Arthritis and Dementia

PLEASE read when you can and I would love to hear from you!n IF there is a subject I should do more on, or something you may want to contribute, then please let me know and I will put more up, or consider some of your thoughts and your life stories....

and to top it all off, the EXPENSE OF WHAT THIS ACCIDENT IS COSTING ME, WILL HAVE ME PAYING FOR YEARS! It is totally ridiculous the COST of that surgery, stay for 5 days in the hospital and another 28 days in the REHAB!














Thursday, April 21, 2016

Update of My Daily Newspaper - and also an "Update" on just how Insane" a disease like Dementia /Alzheimer's Truly is.....






It really DOES for the most part have many articles and information relating to our AI, RA,FM,Chronic Pain, Lupus and so forth, because am able to "pick and choose" what types of information is printed in it daily. So, I have chosen the specifics of what I know many here are dealing with. 


Now I have added "Dementia/Alzheimer's" to the "pot" of things that bring in articles. Never would I have ever in my life thought that about 9 months ago, my own Mom would go from doing her own grocery shopping, driving to church, doing her own house work, cooking, and I just helped with other things... to NOW... she at times does NOT even know WHO I AM, nor that she is in "our home". She cannot go and fix much to eat, I have to make sure she eats, drinks and takes her medications properly. She cannot shower or bathe herself, she cannot clean her house... and she has not driven her car in over 2 months maybe longer, nor been to church... she cannot "operate" her oven, stove, washer or dryer, and honestly the phone (regular home phone) she at times does not know how to use it... she stays in bed more than not, and the list just goes on and on and on... of what in such a short amount of time, not just "mentally" but physically incapacitated these illnesses can be... 

I am of the belief she has a "certain" type that unlike many, starts gradually... and for a couple of years there were "signs" but to go down hill so quickly. It is a "fast type" of dementia called Creutzfeldt-Jakob Disease .... honestly I hope and PRAY I AM WRONG, because usually it comes quickly, and they pass away pretty soon for the most part, and I am wanting my Mom to go with me like we did just about 4 MONTHS ago to the Casino overnight!!!! She "cut up" her players cards and said she would never be able to again... plus she went from no cane and no walker, to a cane, and within weeks to a walker... and we have to watch her, she now has problems with balance and is a huge fall risk... she has not clue how to pay a bill, she does not even go outside, check the mail, or anything, but due to her falling right now it is best she does not go out... she has several steps down in the front to go down... 

I am totally exhausted, worn out, drained, and in almost a "state of shock"r" for the lack of a better term right now, mentally, physically and emotionally now... I have to go over every day and really should be there more, but I have of course my own home, my pups, and me to take care of also.... WE NEVER KNOW!

Tuesday, April 12, 2016

Updated Information on My Daily Newspaper, adding a new title and more information including chronic pain, and other diseases...

Notice I have change my Daily Newspaper to include in the title Chronic Pain. I feel I need to make sure everyone does know this paper published and updated at least twice daily includes not just AI illnesses, but much information about all aspects of Chronic Pain, of Alzheimer's, of Dementia(s), and how each and every one of these can totally destroy a "normal" life... and it can happen within a "breath's space"... as I always say...

My last months now for at least 6 or more honestly, have been more than a terror daily... my "mountain top" has not been stood upon in a long while, and between my own chronic severe pain issues, my Mom's almost "overnight" development of some type of very severe "Dementia", where she is basically unable to take care of herself at all... and even yesterday was more or less bedridden, and also complaining of severe pain that began about 4 months ago and is progressing... my life has been turned upside down, and inside out even more than before all of that began.


I desperately need two spinal surgeries, my neck, which I have again had to "reschedule". It should have been done on April 4th, but due to Mom, and not having things in place for her, since I will basically be unable to do much of anything for several weeks, now I have it scheduled for May 4th... and my lower lumbar spine is progressing to get worse... these past several nights and mornings have almost taken me to the sofa due to the severity of pain once again, the weather, humidity, and things I have had to do, causing me all types of issues.... so I want all of you to know this just not just "AI" illnesses but so much more....