Has anyone heard of "PPMS"? (Primary Progressive Multiple Sclerosis)... I was looking into some issues about a right foot, that tends to "hang" at times walking, no matter what shoes or where I am walking, and it's not like "foot drop"... plus I've noticed I "feel" more "clumsy... which I've always been a bit "off" but I am over the past month or so, feeling like I have this "very slight stagger" not like a "drunk can't walk" thing, but just like I will be walking jut fine and suddenly find myself off balance, or like I am stumbling, but not like someone else may notice it... it has not gotten to the point I would assume, anyone else would see it, but I know it's there... I've always kidded myself about "walk much"?
LOL, because I sometimes feel as if I walk off step to one side for a step or two... but this is more of that, and it's different from anything else I've experienced. I thought at first "it's all in my head" or I've just been so stressed between doctor's the danged shower drain mess, the cold weather tends to make me "stiff" which causes you to kind of feel off balance at times, and that I just have too many "irons in the fire"... and I really wanted to get back to oil painting (I found out that the guy Bob Ross that taught a couple of decades ago on television, all of his series and episodes are on U-Tube, from the very first one.. and I recall Dad used to watch him... he was fascinated how anyone could do that, yet I found out I was quite good at oil painting and want now with these online video's I could do them right here at home... but I also know I need to be working on getting that back room worked on and other things around here, so between putting myself in a place of "what I "NEED" to do versus what I would LIKE TO DO... I just felt I've been in too big of a hurry lately, causing me to be a bit clumsy at times... Anyway, I found several UR's and information on PPMS but I had not heard of it until I found it today... so I thought I would ask any of you if you knew about it....
https://www.verywellhealth.com/symptoms-of-primary-progressive-multiple-sclerosis-ppms-2440696
"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
Showing posts with label MS. Show all posts
Showing posts with label MS. Show all posts
Monday, January 28, 2019
Thursday, March 9, 2017
Dementia linked to Autoimmune Illnesses? This is both interesting and frightening....
Dementia Risk Up with Autoimmunity
http://www.medpagetoday.com/rheumatology/generalrheumatology/63498?xid=nl_mpt_special_reports_2017-03-09%20&uun=g773630d0r5952786u
Here are a few excerpts from the article on Medpage Today...
Among the 25 autoimmune diseases, 18 had significant positive associations for dementia (P for all <0 .001="" p="">0>
- Addison's disease, RR 1.48 (95% CI 1.34-1.64)
- Multiple sclerosis, RR 1.97 (95% CI 1.88-2.07)
- Psoriasis, RR 1.29 (95% CI 1.25-1.34)
- Systemic lupus erythematosus, RR 1.46 (95% CI 1.32-1.61)
- Thyrotoxicosis, RR 1.31 (95% CI 1.27-1.34)
Of the 81,502 patients with autoimmune disease who also developed dementia, the subtype of dementia was identified in 42,568 -- 20,032 with Alzheimer's and 22,536 with vascular dementia.
Risks for vascular dementia but not Alzheimer's disease were increased for idiopathic thrombocytopenia purpura, pemphigus, scleroderma, Sjogren's syndrome, systemic lupus erythematosus, and most notably, for polyarteritis nodosa, with a rate ratio of 2.12 (95% CI 1.42-3.05, P<0 .001="" p="">
I have a "genetic" factor for autoimmune illnesses on my Mom's side... and also Dementia and Alzheimer's on my maternal side... Cause to really be upsetting and hope they do much more research into this....
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Tuesday, November 1, 2016
Cure Click - More Clinical Trials!
Urinary Incontinence from Multiple Sclerosis or Spinal Cord Injury
Do you or a loved one have urinary #incontinence due to #MS or #SpinalCordInjury? A new research study is testing a potential treatment for those who have failed oral medications. Learn more. http://curec.lk/2eJlaCs
Pediatric ADHD
Child with #ADHD acting out? Local studies enrolling now. Payment up to $700. Act now! http://curec.lk/2f2lBIYTrial for Dementia with Lewy Bodies
Do you have #LewyBodyDementia? A New investigational drug trial is enrolling now. Take the pre-screener now. #Dementia http://curec.lk/2e1mP5tGastroesophageal Reflux Disease (GERD)
Can't find #reflux relief? #GERD studies enrolling now. No-cost study meds or placebo. Payment varies by study up to $850 if you qualify. Learn more. http://curec.lk/2dw9oHn
Recruitment for Post-Shingles Pain Study
Nerve pain after #shingles? No-cost study medication for post-shingles pain. Enroll today. http://curec.lk/2cmiXxc
Chronic Lymphocytic Leukemia (CLL)
If you or your loved one has #CLL, consider joining a clinical trial. A new #ClinicalTrial is enrolling now. There is no placebo. Click to learn more and see if you qualify. http://curec.lk/2bF6WTi
Tuesday, November 24, 2015
"Thankfulness" during a World in Chaos, those who do not Value Human Life, and things Life throws our way, chornic illness/pain, yet finding what truly matters most....
As the holiday to be "thankful" grows near, may you find many reasons to be thankful for, from family, friends, to all the beauty life bestows upon us. I realize for many of us, this holiday comes with a very mixed time of emotions. When our world around is so full of hate, terror, harsh, and those that will harm innocent people, trying to look past those actions are very difficult. With the events so fresh in our hearts and minds of those who want to take our freedom away, to scare us so badly, we fear going out and enjoying life... May all of us find that special place within the depths of our souls, to "go forward" and be in reverence of what we do have....
As the miles physically are far between us, within our hearts the warmth and joy of family and friends keep us close to one another. As I said on my other page, this is a holiday of thankfulness although with the events that have taken place lately, along with those out there who would rather do us harm than even live themselves, it is difficult to find those reasons why we are truly thankful. I also know that myself and my family included, have experienced some life changing events for 2015. Many of which, we not only unexpected, but turned our lives somewhat into chaos. I certainly know it has for myself and my own family. Thus with those things again, trying to truly find things we are grateful for, can be difficult. We are human, and we at times reach a crossroads that is not what we planned. So, as we come together, whether physically, or mentally and emotionally, may we find those things that bless us, give us reasons to be so thankful for today, tomorrow, and the future ahead of us. May you and your find the peace, love, hope, and faith that shall sustain us... May you be safe, and healthy, and enjoy your family and friends... With Love, and Happy Thanksgiving, Rhia
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