Lupus Month!

I believe when we FINALLY have done the research, have a "cure or something to lessen the illness when you contract it... that there is a possibility, we will also have Other vaccines and/or quick "healing" medications to get rid them quickly... I believe if there is ANYTHING "GOOD" that comes from this are LESSONS to be more prepared ^ have a few items "extra" stored away in a plastic tight lid container, safe room, to shelter or where ever you can get ti them easily... NOW not to mean to go out and BUY an entire STOCKPILE of items. But, things like alcohol, peroxide, bandages (just in case some were to cause sores or wounds). along with sanitizing.. enough for 8 to 10 weeks depending on your family size. wipes, spray, hand wipes antibacterial, hand soap etc. plus don't put
TRUST everything you hear or see, but more on what the experts like the the CDC, & your huge research hospitals/facilities that KNOW about the "makings" of something such as this. FROM this I truly believe we will see the true vaccines for Lupus & MANY other autoimmune grow by leaps & bounds.. so although we have so many horrid things come and that have came from pandemics before.. WE AS A NATION shall be well prepared to STOP things in their tracks before they take hold. I ALOS THINK OUR GOVERNMENT from "local" to state, national & possibly global is we have trusted allies. Just my thought with "Lupus Awareness month" after this pandemic hit us like a ton of bricks... May you find healing from ALL of the horrible Lupus Flares and all the disease this illness causes...

Lupus Flare, RA Flares, UTI's, Kidney Infection Severe Pain Stiffness, Swelling and the list goes on...

Lupus Flare, RA Flare, UTI's, Kidney Infections... All of the Severe Pain, Tiredness, Fatigue, Joint stiffness, Swelling and WHY Can't they stuff fIND SOMEWAY TO RID US OF THESE HORRIBLE CHRONIC AUTOIMMUNE ILLNESSES????

Of course I get "good news" over the whole endoscopy/Colo-Guard thing... THEN after suffering for WEEKS HONESTLY with what I knew was a Severe Lupus and RA flare(s).... The pain was so horrible I honestly thought my meds were "placebo's".... 

of course I knew better, but the stiffness, pain, in my hips, lower back, ankles, thumbs, wrists, shoulder, all were just about to drive me nuts. I had appts. already with my PCPC, last week, then I see my Pain Doctor this coming Monday and was supposed to also see my rheumatologist Monday so I only had to make ONE TRIP to Dallas, - 

My Heart Doctor and I have an appt at the end of April to discuss the possibility of the pacemaker, which I had been outside during the past couple of weeks, when we had "half decent" weather trying to catch up on killing a back yard FULL OF KNEE TALL WEEDS, from so MUCH rain and more still to come, and trying to do all of the "spring stuff"... but I was in so much pain, so tired, weak, dizzy at times... I just felt it was the Lupus and tried to move through it, until the flares were better. By now, usually I would have went to Urgent Care, got a shot of corticosteroids, the huge 14 dose of prednisone, to get over the flares, but as I said I already felt so lousy, wanted to get stuff done in between the sofa, TV and trying to stand the pain... and get groceries,
etc... 

so when I noticed about 10 days ago or more now, I was having to pee so much, which hot weather, drinking lots of green tea and water, and the Lasix, does that to me... but I noticed it was "way worse" than the usual.. then I noticed I was burning, and the pain began to feel more like "kidney stones" as I had before, but it had been years ago from the last time.

I had just moved back here, and this was before I had my Medicare, but I spent 4 times in one month, at the ER in a neighboring town, with 4 kidney stones,.. trying to get them to pass with lots of IV fluids, pain meds there, then they would sent me home with a few, and within about 5 or 6 days, the pain was back and I was back at the ER... repeating... finally I passed all of them, but it was a nightmare... after that, I have probably had a couple of small ones I passed... but I don't usually get UTI's and if I do - most of the time,

I really don't have "symptoms"... or thought I didn't, but this time I KNEW this was more than Lupus and RA Flares... sure enough, a severe UTI, so shot of corticosteroids and a huge 14 day round of Prednisone, and Levaquin for the kidney infection... I got the meds on Wednesday last week, and even yesterday, I am still not getting over any of it as fast as I felt I would. SO yesterday, my Rheumy's office called late to tell me they are NOT in the OFFICE MONDAY! So that means TWO trips anyway to Dallas, because I have to see the Pain Doctor Monday, my pump has to be filled....

I have SO MUCH I "want" to get done and some I NEED to get done, but I also know I HAVE to get WELL!!!! I am thankful for the good news on all of the colon and endoscopy stuff... really, but I just wished these stupid other CHRONIC ILLNESSES and PAIN would just give me a few months break, I HATE to ask to "go up" on my daily Prednisone which now is 5 mg daily... BUT it looks like if all of the other meds, Plaquenil, MTX, Enbrel, Prednisone small dose, etc d not start working better after these flares I may face a higher dose of Prednisone for a at least while, then taper back down again,... I still have the appt also with the Endocrinologist at the end of the month ... to see if the Thyroid and/or Parathyroid is still too HIGH and what we do about that. From what I've read and researched, the Parathyroid often is cause from a small tumor (usually benign) and may take a small surgery to get rid of... and of course "thyroid: issues run in my family, and medication often fixes that, unless again you have a "goiter" that has to be removed.... so again lots of "stuff" (when it rains does it ever pour)!

More Information Below on the Parathyroid gland and the Thyroid Glands, What they Do in the body, and all of the issues that can happen due to any diseases of these glands....


http://endocrinediseases.org/parathyroid/parathyroid_background.shtml


http://endocrinediseases.org/thyroid/thyroid_background.shtml

Young Women from 24 to 32 or so that really NEED HELP TO GET THEIR LIVES ON TRACT... AND wanting a 2nd chance & the difficult time they have. Me, lupus, RA, Sinus infections infections and Life!

Lupus Flares, Pain Pump refill, Young Women & getting another chance to change their lives, LIFE, and Chronic Illnesses with PAIN!

Everyone, it has been MORE THAN AN INSANE WEEK OR MORE FOR ME! Between my own doctors visits, and a friend had a new baby and there were issues, but all is well now, I had to go over to the next town in our county to renew my driver's license, since it's been 12 YEARS LOL since I had gone in and took a new photo etc, I had to physically go in this time to renew it. That took forever; although I must say the system now is better than it used to be. Then I had another friend with problems, and was trying to find some help for her, along with my own other stuff, cutting tree limbs, and I've got to get to the market today, but I have not had time to clean my house like it needs, and then I have to take a shower, and it's so pretty outside, I need about "5 of me cloned" so I can do 20 things at once!!!! I have not felt that great yet either. In fact, I have not started my RA meds yet, since being ill with the sinus infection. For some reason, I was running a fever, low grade, but still a fever Monday. 

I went in for my pain pump to be refilled, and when they checked it, sure enough I had a low grade temp. I came home and checked it myself, and I was still running a bit of one. I didn't run any fever at all with the sinus infection. Plus, I have kind of "stopped" running a low grade temp with the Lupus. Used to I seemed to almost have a low grade one daily with the Lupus. It went back down and as far as I know has been back to normal the past couple of days. But, I was concerned so I still kept off the Actemra and the new Xeljanz, until I could see what the temp was all about. But, I've had a damned headache, and a bad one at times, for the entire week! IT could be "stress" or maybe I have a Lupus flare, that will give me a Lupus Migraine from hell at times. 

So, yesterday I "almost" went BACK for a 4th time since the 1st part of January and had them give me a prednisone injection for the headache. But, I toughed it out yesterday, and it is not so bad so far this morning. So, it could be anything causing it. With everything going on, as I said I could be more "stressed" out than I think and it's causing the headache. Usually I don't have one that bad. 

When they are bad enough I want to scream and cry, usually it's due to a Lupus flare, or I am sick with something. So, I am going to take the Actemra later this evening and then take my 1st Xeljanz tomorrow and see how things go. Please keep me and those couple of people in your prayers, with problems and the young woman with a new little baby girl. She needs lots of prayers, so she can get her life together, and get back on her feet. The very "odd" thing is, lately, I know of about 4 people, that have someone in their lives in the same situation. The nurse that comes to see me weekly from my insurance, is helping a young woman with kids, and her trying to get her "stuff" together, and the young woman I know. Then my daughter also knows a young woman going through about the same situation, and I have another friend that has a daughter who is really trying to get her life on tract, get a job, her own place to live, and put herself back on the right roads.0 

These young women ALL need our prayers. It seems that many of them at about 25 years old, either get involved with the "wrong crowd", have a child or children, either the Dad is not there or does not help out, and they are desperately trying to dig their way into a 2nd chance. But, that is hard to do... it's hard to get any assistance these days, it takes so much time, paperwork, and red tape. Then of course we have some that have "abused" it, so that makes the ones that really WOULD benefit and try to do right unable to get the help they need. So, something about that age group, some between about 24 to even 32 or so, really lots of young women out there with the same problems... and NO PARENTS, that either will help, or are even around to help.... it sucks, and i AM SO PROUD THAT BOTH OF MY ADULT KIDS ARE IN A PRETTY GOOD SPOT, AND HAVE THEIR HEAD ON THEIR SHOULDERS RIGHT! :) For that I am BLESSED AND GRATEFUL FOR SURE!!!! Have a good weekend everyone!