Showing posts with label Lupus flare. Show all posts
Showing posts with label Lupus flare. Show all posts

Sunday, July 9, 2023

Dawning of A New Day..


Dawning of a New Day…


I’ve been swept away within a breaths’ space how fast life can change..

Just as a heart beat… or the rhythm of the perfect song..for I found my place.


I’m blown away and incredibly ready to spread my wings and fly…

The tears I’ve spilled…now I have my reasons to have hope …not cry.


Sometimes we walk away from something we should cling to…

Other times we wonder… as humans …why love and life tends to be askew.


“Tis never as I think it should be…

I’m learning to accept that I am excellent…just being me.


The stars may align in the heavens & planets are just in the correct space..

With my eyes wide open…and my heart always on my sleeve… I’m winning the race.


It’s a dawning of a new horizon; a new reason and the perfection of the soul…

That brings me to my knees… for now I can “”feel” that nothing has to take its toll.


I fear not how I deemed my life would be right at this moment…. I’m never alone.

Oddly I have had an awakening … what I need to make me see myself as whole.


I’m unique in many ways…. I dance to a different song… I accept that for it’s how I roll.

I’ve never been one to require material things…. now scars cover up my hearts’ hole.


Some may wonder if I’m a handful and may not be able to accept how I think…

I’ll not be someone who plays games;  I accept the changes… around the truth i won’t skate.


My head may be within the edge of where I stand on the edge… where I am totally free.

Toes over that ledge, arms open wide… willing to take a chance again…“Tis where I should be.


Thunder may roll, the skies turn cloudy.. and I watch how it tends to wash away all fears.

It’s only spaces between … shades of grey… suddenly I realize some listen & they hear.


What comes from the moments of each time my heart sings…

At that second my soul also …as a bell..rings.


Love is always ready to take you into the heavens..floating all around within the clear blue skies

Life moves, flows, ebbs, trying to bring me down; with time I shall stand on mountain top.. I shall arise


Never can I turn my heart out into this world broken nor  shall it be cold …

My guess is that I’m a fool & ready to try again… for love  am still sold..


Rhiannon Steele 6/18/2023

Sunday, January 28, 2018

Diatomaceous Earth, "Alkaline Water" "Life Water" and the body, houseplants, our "Fur babies" and more...

Since the subject of "Life Water" or I think it is an "Alkaline Water" if I am correct, I wanted to raise the issue over" how long does a complete detox take with diatomaceous earth?" YOU MUST use "Food Grade" or I would for sure, if you are going to take this for a supplement, or if you are using it in your home on pets for flea control and so forth.

I know I had it out around the house before winter, and up until now our weather is beginning to show some "signs" of spring, like I saw a HUGE HAWK, right here in almost downtown Ennis on Friday afternoon. It flew down into my trees in the front, and I sat and watched it with a "wandering mind" as to "why" I believe after looking it up, it was a "female" she was doing "here" almost in the middle of town. We have LOTS of trees in our neighborhoods and the birds are just like a jungle all through early spring through summer and late fall... I've even already seen a red headed woodpecker in my front tree also, plus I've heard the wrens out some, so when I begin to hear birds again, I know "hopefully" our main very bitter cold weather is coming to a close, or I PRAY it is... don't get me wrong WE NEEDED A BITTER BELOW FREEZING COLD, THIS YEAR! We have basically NOT HAD a "winter" type weather here now for at least 3 years maybe more... of course it's been cold, but not where it was way below freezing, and lasted for a week or more, several times in the winter months. And believe me you can always tell, before spring even gets here every kind of a "bug" comes out, if we have no really COLD winter...

so I PRAY we have had enough at least to kill off some of the damned bugs that are driving me nuts, fire ants have been horrible, fleas I pretty well had hold of, but I was very, very well prepared, and even then sometimes they are bad, but other ants, every kind of a "kissing bug" or what I call a "stink bug" and they were horrible just before it got cold this year... they were everywhere, and they can be very bad if some of the ones that "sting" bite you... it can make a human or a dog or cat sick... they are nothing to be messed with from what I've read, but the gnats, the ants, the spiders, you name it, I actually put out the stuff I use on my lawn very early the past 2 or 3 springs, and usually I "may" have to do it one more time mid-summer, but this past year, I put it out at least 3 times, and actually before it finally got cold, I put it out again... and that usually never happens... anyway, so hopefully we had "enough" to kill out the bad bugs and critters, but we are now hopefully going to "get out of that bitter cold" that has just about put me under with the severity of pain, and how badly it's effected my Lupus, RA, and autoimmune illnesses and chronic pain.. I went well over a month and usually I have a "Lupus flare" but the RA is mainly the "same" all the time, not this past few months, the RA has been totally out of control, and even the huge prednisone doses and the huge injection of corticosteroids really did not rid me of either flare...

I got somewhat "better" but unlike most of the time, I never really got over either one... so that is why I am going on "Zeljanx" that is AFTER WE GET THE INSURANCE TO PAY HOPEFULLY OR I MAY HAVE TO HAVE THEM PAY AND IF MY CO PAY IS TOO HIGH THEN THEIR PHARMA COMPANY WILL HELP ME WITH THE BALANCE... I've already "applied" for their patient program, so I will have that much done, just in case the insurance company decides to give me hell about it.... I really should have gone to Urgent Care this weekend, or yesterday, they are not open here on Sundays right now... I "think" I am dealing with a sinus infection, that is what is causing my nasal passages to be bleeding, and they continue to be almost scabbed over and hurt like hell... I try to leave it alone, but it hurts so much I have to put lotion or cream, or vaseline on a cotton swab. and rub both of them down. They are so "tight" from being dried out also... but I've been messing with it now again for weeks, and keep putting it off... as I said on Friday, I "feel too bad" to even take myself to Urgent Care...

Anyway, now I am suddenly fighting gnats! They have not been in my houseplants all winter, and this past couple of days ago, when I watered, now I am dealing with those again, which means my fresh garlic is "fizzled out" and I think as usual no matter how much I clean my kitchen drain or with what they like to "hatch" down deep in the drains then fly out and get in everything... I've been seeing them even in one of my closets... so I put out some of the "diatomaceous earth" and that will also help to rid my plants of them, and put out some "lemongrass oil" around the tops of the planters, a mixture of that with Tea Tree Oil usually will get rid of them also.... so the one thing I don't "cherish" about spring coming is the damned critters flying around...

diatomaceous earth, alkaline water, "Life Water".... supplements, Lupus flare, RA Flare, spring, summer, critters, ants, gnats, TX and living with Autoimmune Illnesses....

Wednesday, December 7, 2016

When Lupus, RA, & Osteoporosis is taking over Trying to Feel Like Catching Up on my Own Health Issues, Surgery Upcoming on my Cervical Spine and Lumbar spine soon, and everything else that "can happen, will happen" to me

I have been gone for the most part off and on, and also doing a great deal of stuff around the house the past several weeks. 
I have also been battling being ill myself, not knowing whether it's been another flare with the Lupus and RA, or everything else, from a stomach bug, to allergies, and this ever changing weather is NOT helping us either. So, rather than go through the entire ordeal, yes, I've been under the weather since before Thanksgiving, off and on, with a probable Lupus flare, but my cervical spine issues, and my lumbar/sacral spine problems have came to the place I can no longer put off surgery. 
SO, FINALLY YESTERDAY, I did go to Dallas, to my Orthopedic Specialist, to tell him what has been going on, and that I've developed "more symptoms and problems, especially when I was having to take care of Mom, I had done something back then, and also outside trimming trees etc, that BOTH my neck and my lower back need HELP! "HOPEFULLY" HE WILL be able to get me in there, scheduled and get one of the surgeries done before the end of the the year. 
Not that I am looking forward to holidays and surgery, but before all of the new year deductibles and so on roll over for insurance, I feel now is the time to get at least ONE done, and then face the other early next year. I know he thinks we need another CT Scan and I wanted to tell him NO, because I've have way too many, they are expensive, he SAW my NECK DAMAGE ON A REGULAR X-RAY last time I was in there, but I also know due to insurance and their bull, plus he can see if here is NEW damage and be prepared with the right things he needs in surgery to "repair" whatever all is there, so wish me luck. 
I do not like the WEATHER BUT we have been fortunate up until now NOT to have horrible weather as far as cold, dreary mess, and that makes it harder to have to go to Dallas for surgery, and then get home. I am hoping my son will be able to take me, and he said that he is now where he can take me, so if not I maybe calling on one of my close friends to take me up and get the surgery done. It will be one that I should go home that same day, IF it goes as planned and he does not run into further complications once he is in there and can tell what all is happening. I will keep you posted as I can and let you all know what is happening.... Rhia

Thursday, July 14, 2016

Always Something With ME Now a KIDNEY INFECTION AND PROBABLY STILL A SEVERE LUPUS FLARE!

I am DOG SICK from "something"... I was fine, then last night about 10PM I began to have one of those "cold sweat" spells... and I even had to change my clothes I was so soaking wet... but I laid down, got still and woke up about 4AM, and I knew I had to be fixing to have fever... every joint and muscle in my body was so severely in pain, I was almost screaming it hurt so bad. I checked my temp and that the time it was okay, but withing a half hour, I knew it was going up...so it went to 99.5, then to 100.5 and then 101.5 and I had already had 4 Tylenol, plus my other meds. 

This Pain" usually feels almost as if I am going to stiff so stiff, and almost like a "seizure", but I've never had one... but I know when I have that type of pain, I will have fairly high fever... I had NO CLUE why... I was fine, painted yesterday and was fine until last night...so I am dammit on the sofa, drinking green tea, and covered up with my blanket... it sucks. I have some antibiotics left from the wasp sting, so I decided to take those to see if I may have some type of infection... 

I have a "small bit" of a cough, and had a tiny bit of cough meds in the fridge, so I took that early and I am not coughing anymore.... this just is pissing me off! I have SO MUCH to do.,. and my floor buffer came in yesterday, so I need to learn how to use it, and I don't even feel like reading anything.... anyway, last time this happened I was sick for a day, and then the next day was fine.... go figure... so if I am still not well tomorrow, or my temp won't stay down, I will do over to Urgent Care to make sure I don't have pneumonia, or something going on.... the SEVERE body pain is what is the worst...

Well even though I DID NOT want to! : I went to Urgent Care this morning. It seems I have a bad kidney infection. rather than pneumonia or something upper lung issues etc... which I think I may have a combination of still a really, really, kicking my butt Lupus Flare... so that explains a great deal.... 

SO here we are AGAIN on ANTIBIOTICS! I HATE to take them, BUT I have no choice if I want to get well and get on with my life.... this sucks

Then to make things ever feel worse  :

 
I needed a shower before I went ANYWHERE! BUT, (and it was all I could do to take a shower) YET AM SO OUT OF IT, after I WALKED IN AND BEGAN TO I realized I FORGOT MY DENTURES!!!!! I NEVER walk OUT OF THIS house to GO ANYWHERE WITHOUT THOSE! I WAS SOOOOOOOOOO EMBARRASSED!!!!I've never pulled that kind of stunt before... I am still embarrassed......

Sunday, April 19, 2015

Stress Awareness Month - WEGO Health #HAWMC Writer's Challenge April 19th 2015

Definitely a great question for ALL of us that have to contend with a stressed filled, everywhere you look and feel world! Daily stress producing items are all around us. Whether you are "chronically ill or in chronic pain" or not, the news and medical world tells us that our daily stress levels are off the charts. This also means that stress effects us in so many different ways, especially when it comes to your physical and mental health.

Then you take all of that into consideration, jobs, families, travel, homes, cars, kids, and just what we see in the news daily, is enough to cause us an insurmountable bunch of stress. We have known for years that stress contributes to heart problems, it definitely effects our immune systems, allowing things that normally not make us ill, to sometimes makes us more ill than we think.

Now let's add in doctors visits, 15 or more medications a day, feeling overwhelmed already, yet due to chronic illness and the pain that comes along with it, the stress levels can be way over the top of the glass, and pouring down all around us in a puddle. Just having to deal with a drive to a doctor in Dallas, maybe two in a weeks time. Making sure all of my medications are filled properly, and with me so I don't miss any. Not feeling well some days, either with some type of "flare"; whether Rheumatoid Arthritis, Lupus, Sjogren's, and the list continues. Add those onto trying to keep a job, do errands, take care of a home, a yard, a car, buy groceries and prepare meals, do laundry, and all of the 1001 things that can pop up at any moment, to distract us from what else we are doing. Then our bodies all too often "revolt". So, now I am dealing with a huge amount of fatigue, severe headaches, my hips and lower back hurting, perhaps like last week for me, having the procedure done on Thursday - even though a "good procedure" to hopefully help reduce the horrid pain in my lower back, hips and legs, was still "stress". So I get up on Friday, with bright pink cheeks, feeling like a train had run over me, seeing everything piling up I need to do, and guess what, here is a flare. I would "assume" a Lupus flare, due to the pink hot cheeks and nose. That all too familiar "Lupus "The Wolf" Mask" we get when one of those comes on

So, I've spent over a week at doctors offices, having that procedure done, then coming home to know I am behind on everything. Now I feel lousy, the weather brings on a new set of stress on it own, and I now have a very low potassium situation they discovered last week when I had the Transforminal Epidural Steroid Injection done in my lumbar spine. My potassium was at an "dangerous" low. Most of the time at what mine was, and they even checked it twice, I probably should be getting IV Potassium to try and get it back up a bit, then follow up with pills. But, I didn't hear from my PCP even after calling at 9:00 A< Friday. So, I followed up with my Cardiologist, who immediately called in a script, told me to take two of them for two days, then one a day, and come in on next Friday so they can check the levels again.

Now, after all that being said, "How do I, did I, deal with all of the stress"? My first way to "deal" with stress is "listing" and writing down, what is "MOST" important to get done quickly, and what may be able to wait a day or two? That helps me a great deal, to literally "write down" a list, and prioritize things. Then I take stock in how I feel mentally and physically. If I am feeling very lousy, then I know I need to do absolutely what has to be done, and save others for later, when I feel better.

From there, I allow "time for me". Even though my to do list might be long, I still need to be able to either go outside, and do my walking. I enjoy baking. So, for me going into the kitchen and making a pie, cake, cookies, or whatever I feel like I might enjoy baking, I do that. There are days, that I may have to do one or two things, then sit down at the computer and write, or take an hour to watch a movie with my two pups. I also very often find if I go over to my Mom's, and just spend some times away, where I can talk, and "gripe" if I want to, Being able to express my stress is critical. If I can't write it down, or say it, or find some type of avenue to be able to "purge" some of the bad stress, then I really find myself unable to get much of anything done. I am too wrapped up in what I CAN'T, thus what I can does not come to me, when I don't just take that walk, talk to my Mom, write on my book, or post on my blog. Summer as I had mentioned in another blog post earlier in the week, tends to help. I can open up my home, and let the fresh air in, get some light streaming in, and I have a "renewed" feeling, that tends to be a great deal stress free.

Being ill with so many of these diseases, syndromes, and such do add a HUGE amount of stress in my life, but my husband, Mom, and others can "feel" that tension in the air. So, between all of us we try to keep me in check with stress. It may mean a day trip to Oklahoma and the Casino. Which in saying that, we are LONG overdue to go. It has been several months, possibly about 4 or more months since Mom and I made that 2 hour journey into "freedom" for a few hours at least.

Just a day trip away from it all, is an incredible way for me to get back to the matters at hand daily, and lead my body and brain into a new perspective.

Writing has always, and will always be one of my biggest ways, that I can "purge" out the stress, remain half sane hopefully, and try to carry on up that "mountain" always reaching out to attain a goal.