World Lupus Day/Month May 2017!

 

Lupus Awareness Month 2017

Lupus is more pervasive and severe than people think, and has a devastating impact that the public doesn't realize. In fact, research shows that a staggering two-thirds of the public knows little or nothing about lupus. You can help change that.
Join the nationwide effort to pump up the purple this May to raise awareness and funds for lupus research and education programs. Rally support from your
friends and family and get started today!

http://www.lupusawarenessmonth.org/index.html

Not my "usual" type of Post but I feel I it's a very important one... When Government, Big Pharma,Medications for "Chronic" Illness/Pain play a hand in your treatments

As I've said in Facebook about this post I am putting up now, I almost NEVER talk about anything "political" or "religious" on FB nor here on my blog.

Not that both subjects are a very important portion in my life, but it is more about how "personal" and private those subjects are to many of us. Not that I don't share some things "religious"... in fact I just posted over the last two weeks, that I have decided I needed to step back into fellowship on Sundays with one of our local churches.

I had talked about being raised kind of "Catholic" and "Baptist". My Mom was Catholic and came from a Czech background. So, when I would visit my Grandparents or go stay over the weekend with some cousins, I usually went on Sunday's to church with them.

My Dad was Baptist. He in fact was one of the "founding" members of the church that is way less than a block from my parents home, and through the years, for the most part that was where he was on Sunday mornings. I went with him many Sundays, in fact probably any time I was at home on Sunday morning, I went with Dad to that church. So, I had "leaned" towards being "Baptist" most of my Adult life, although I don't like to judge anyone else's faith. Faith, Hope, Praise, Glory... all words we so need in the days we face ahead, as a country, as a nation, and as a World.

Anyway, to finish that piece, I went this past two Sundays to one of our Methodist Churches and really enjoyed it. I feel I maybe going back and am even thinking about getting involved in own of the Sunday School classes where I would "belong"....

And as far as "government" actually I speak OUT a GREAT DEAL about our Governmental bodies, both House and Senate. When it comes to anything to do with chronic illnesses, arthritis, RA, Sjogren's,

https://www.youtube.com/watch?v=xLx8bLeDdJs&feature=youtu.be

Since any of these chronic illnesses lead to disability, to losing relationships. to causing severe pain, from physical, mental and emotional... we do not have near enough "research", medications, treatments, and the list of the needs when it comes to these most complex and complicated often almost "invisible" diseases, it MUST be that our government helps to play a role in getting many more specialists, more INSURANCE that COVERS treatments, rather than "denies" every claim. It is NOT the patients fault we are ill. It is also NOT our fault that the medications for some of these are astronomical. We are not the ones who "dictate" these costs. Yet, every day you see yet another new "medication" on the market for Lupus, RA, Diabetes, and so on and so forth... with the costs so expensive there is no way a patient can afford to pay for some medication that is 2,000.00 and MUCH MORE for a MONTH"S worth. I was looking at my medications (that happen to be MANY) due to Lupus, RA, Sjogren's, chronic pain, heart problems, and so forth. If I had to PAY out of my pocket for any of them... I surely would NOT be able to do that at all. So, where do you turn? You need these medications to "give you your quality of Life"... yet there is no quality of life if YOU ARE GOING BROKE to pay for your treatments.


I plan on adding more to this, but for now I want to get it posted.... so more to come on this subject...

Let The Water Come and Carry You Away....

I had posted a long post last night, and for some reason FB lost it! I know better, usually I make sure I copy them before I hit the "send" button.... but the jest of it was my thoughts yesterday about our lives, especially mine at this time, being like a "river".... we go through so many different aspects, changes, sometimes we feel they are not so great, and often we don't really grasp the "why's", when, how of life. I had really found comfort last night, in thinking about my life, and once again it evolving, revolving, and "flowing" forward... most rivers never flow backwards... thus once the water has flown under that bridge, it will never go back... such as life... once this moment is over, it is done... finished... just as by our "Higherpower" said about the "7th" day of Earth... "'tis finished"... and was also know ass when all happened as it did on the "Mountain" once his Son has passed away, again, Tis Finished.... I am not trying to "make" this about "religion" at all, but those events for my own personal self remind me, that I am in this place, at this time, for a specific purpose... why things have happened as they have I don't truly know... some I've had an "open heart to" and it seems I've found a "new vision"... I am seeing my own world, and all the world with new eyes, along with a new mind set.... no longer shall I "blame" myself for what I have no control over... we cannot control actions that we can't control.... we can't "make" or not make someone else do something, we cannot change the weather, or stop the rain from falling. We cannot stop Mother Nature" and even though we can gripe and moan about it, it is just as it is... and as is supposed to be...I really wished I had not "lost" my post from last night.... it was a "Revelation" for me... and the way I worded it was what came through my heart and mind so clearly... but again I also "can't" control Facebook either.... SO, what I will finish this with, as I go and get ready to attend church again this morning is - one of my very favorite songs.... the lyrics "fit" so well, and it was THE SONG I heard back when I was 21 years old... that on a fateful night CHANGED the direction of my "flow of life" forever. Had the events that happened that night, happened any differently, I may not even be here, or I could be "lost" in a sea of horrible demise... so the song.... the lyrics... - "so much time to make up everywhere you turn, time we have wasted on the way... so much water moving underneath the bridge... let eh water come and carry us away...."   We often "lose" so much of life, time, thought... by "wasting" it on the things we cannot control.... yet if you allow those waters to flow... underneath that bridge... it will certainly carry you exactly where you need to be... love you guys and gals that support me so much... Rhia


Wasted On The Way Lyrics

from Greatest Hits [ORIGINAL RECORDING REMASTERED]
"Wasted On The Way" is track #14 on the album Greatest Hits [

"Wasted On The Way"

[Intro. (Acoustic Guitar and Electric Piano)]

Look around me
I can see my life before me
Running rings around the way it used to be

I am older now
I have more than what I wanted
But I wish that I had started long before I did

And there's so much time to make up everywhere you turn
Time we have wasted on the way
So much water moving underneath the bridge
Let the water come and carry us away

[Instrumental (Fiddle)]

Oh, when you were young
Did you question all the answers
Did you envy all the dancers who had all the nerve

Look around you know
You must go for what you wanted
Look at all my friends who did and got what they deserved

So much time to make up everywhere you turn
Time we have wasted on the way
So much water moving underneath the bridge
Let the water come and carry us away

So much love to make up everywhere you turn
Love we have wasted on the way
So much water moving underneath the bridge
Let the water come and carry us away
Let the water come and carry us away



Read more: Crosby Stills Nash - Wasted On The Way Lyrics |

"RA" is not a "serious" of a medical issue as before? Really!?

https://creakyjoints.org[mycred_affiliate_link]

The REALLY sad truth from this story, and from others, is that "some" people actually believe this. If we are not limping and carrying a cane, or in a wheelchair, have a walker or even go out in the public looking "half decent" with makeup on and your hair not a mess. The very first thing I hear is WOW, you must be better!" Better from When? Really? Better from when I was almost screaming in pain earlier today with my back and hips? From 2 weeks ago, when I just didn't feel well enough to "dress up with my makeup"? The other sad fact, and I know it to be true... if you are ill, in pain, especially chronic pain, and you are seeing your doctor, at times I have went in, maybe deciding not to look so horrible... so I do put a bit of color on my cheeks and a swipe or two of mascara... you can almost bet the doctor does NOT take you as seriously as they do when you walk, crawl, or come in looking like the "death has been warmed over".... not all of them, but I have seen it more times than not... so, especially if I am going in for something like chronic or new pain, bad enough I am willing to do just about anything to get rid of it.... I sure as heck don't go "looking" okay. I don't put makeup on (I don't usually feel like it anyway)... but I realized years ago, you as a whole may not be taken as being in that much pain, if you are not wincing and in tears.... also MEN are taken much more seriously, as a whole when they go into the doctors office, especially with pain, than women. We, as women have seen it, been there, done it, bought the shirt, jacket and book... Men have it much simpler. As a whole, they go in and tell their physician the issues at hand, and usually they will get the treatment they need. At times women must jump over hoops, and hope for the best. It is better than it used to be, but how many of us have been told... you are too emotional, you think about it too much, maybe it is hormones, are you stressed, maybe you just overdid lawn work, or have you been out and about shopping to much?? Those are just a few.... So, when this story came to me via email, I knew I needed to share it. I will also put this up on my blog..