IFAA, Tiffany and the Entire Dedicated Group with the International Autoimmune Arthritis Foundation - Thank you!

I had a very pleasant surprise at my door step Tuesday after the holiday weekend! My “regular” mail had already came. But, later in the afternoon, I stepped out on my front porch to see a large package with my name on it!! At first, I thought it was the “blue ribbons” that I am waiting on for pain awareness month. They have not sent them yet… BUT, IT was ALL KINDS OF AWESOME STUFF FROM THE IFAA AND TIFFANY! I was so thrilled when I opened it… an awesome very sturdy reusable bag, along with others that are also perfect to take to the market from the WAAD 14! I also had a nice pen with the IFFF Logo on it, and a huge book that came from the Autoimmune Summit 2015 - with all of the data from research and so forth they discussed at the Summit in New York! smile emoticon I am really enjoying lots of the data in there… extremely interesting to me… anyway, I will get a better photo up later. I had to take this one with my “web cam”. I am charging the battery on my good digital camera. So, I will make more when it is charged. Again, Thanks to IFAA, Tiffany and the entire gang… what an awesome job all of you do…. I hope to soon participate more. Due to all of the “circumstances” between my own health, My Mom’s health, then all of the other personal “agenda” that I HOPE to have basically over with in October… my hope is to get back on tract with my activism, advocacy, my own research, and doing more writing on my book, as well as working even more on my blog… by the way my blog seems to be “getting more attention”… and I am thrilled about that…

 To Learn more about IFAA, want to join in their Advocacy team and more  the URL IS:

http://www.ifautoimmunearthritis.org/

Early Symptoms of Autoimmune Arthritis Investigation - brought to you by the International Autoimmune Arthritis Foundation!

International Foundation for Autoimmune Arthritis

It took 18 months and over 3500 hours. It required online educational courses in research methods and data analysis in addition to private mentoring from a lead research consultant. It needed cooperation from our friends at the Spondylitis Association of America, Lupus UK, Sjögren's Syndrome Foundation, and International Still's Disease Foundation to serve as Nonprofit Organizational Experts on symptom reporting. It required patients with RA, PsA, SLE, Sjogren's, Ankylosing Spondylitis, and Adult Onset Still's Disease to see if they qualified to participate and, if so, donate 60 minutes of their time to report their disease progression from onset through 24 months.
It required patience, willingness to learn and grow, and the passion to make change in the delays in detection, referrals, diagnosis, and treatment. But we did it.


The 150 page Early Symptoms of Autoimmune Arthritis investigation into the true early symptoms of 6 diseases*, as reported by the patient and compared to current symptom lists published by the ACR, NIH, National Library of Medicine, and Mayo Clinic, will be available for you to download on July 1st from the IFAA website. The results from this investigation will be used to create new, updated Early Symptom Patient Models per disease and by group.


A special thank you to Janssen for making this possible.
*AOSD FULL analysis will not be included in this publication (although much of it will) as the original recruitment was too low for 95% scientific accuracy. The number has now been reached and AOSD will be added to the analysis by the end of 2015.

 Early Symptoms of Autoimmune Arthritis Investigation

Below is my post to the IFAA!

I know that this took an astronomical amount of work from the IFAA and all, plus many more including Janssen that helped to make this all possible. In the hopes that this will be quite an eye-opener for everyone that is involved with Autoimmune Arthritic Illnesses, along with all of the other AAI's that can go along with the "Arthritic" ones. I am proud to say that I've been a part of this incredible bunch of ladies and men. It took many, many long days and nights, to get all of this in order and put into the publication that it is coming in. My hopes are that this will bring even more awareness, more education, more "early diagnosis", more Advanced and Early, plus "aggressive" medications, and treatments; because up until now, the many, many of us that have been through the "fires" of one doctor after the other, one diagnosis after the other, one medication after the other... which may go on FOR YEARS... only to find out something else is causing the problems, or you may have NOT been as "ill" had you gotten proper care from the beginning... as a woman, I know the spill, about, oh, it is your hormones, or you are too "young" to have joint problems, or you are just stressed out... and this from Physicians.... that are supposed to be "specialists"... THEY need EDUCATION also in many ways... so I say again CONGRATULATIONS IFAA!!!! What an incredible feat you pulled off

Rhia Steele

One of Our Own Tiffany Westrich on this mornings session of "The Doctors"!!!!

An International Autoimmune Arthritis Movement of awareness is launching THIS FRIDAY, December 19th, the date the International Foundation for Autoimmune Arthritis's short segment on Rheumatoid Arthritis airs on national television.

Use this link to get to the page on "The Doctors Site"IFAA/IAAM" Tiffany Westrich Robertson TODAY on "The Doctors"

Will YOU join the Movement? Here's how:

1. Be willing to share your story on Social Media starting on December 19th, 2014. This is the date the Doctors' will air a short segment on Rheumatoid Arthritis, featuring IFAA's CEO and this is when YOU should start sharing YOUR story about your journey with Autoimmune Arthritis!

2. Decide what you want to say. In just a couple of paragraphs, tell the world what makes your disease different than other arthritis and autoimmune diseases.

3. Share via Social Media. Tag IFAA's Facebook and/or Twitter. Please also use hashtags #AutoimmuneArthritisAwareness and #IAAM.

Why should the world just view ONE story on the 19th when they can see 100's???? If you are posting, we'll be sharing!

Note: This Movement will begin on Friday, but we'll keep it going as long as YOU keep it going. Want awareness for a day, submit for a day. Want it for a week? Keep submitting for a week. Want it for a YEAR? Keep 'em coming, we'll keep on raising awareness together!

International Foundation for Autoimmune Arthritis 

  you can share by posting on this page (you can start your own post) and we will start sharing stories on Friday! You can post after Friday as well, we will keep sharing stories as long as they keep coming in!

An International Autoimmune Arthritis Movement of awareness is launching THIS FRIDAY, December 19th, the date the International Foundation for Autoimmune Arthritis's short segment on Rheumatoid Arthritis airs on national television.

Will YOU join the Movement? Here's how:

1. Be willing to share your story on Social Media starting on December 19th, 2014. This is the date the Doctors' will air a short segment on Rheumatoid Arthritis, featuring IFAA's CEO and this is when YOU should start sharing YOUR story about your journey with Autoimmune Arthritis!

2. Decide what you want to say. In just a couple of paragraphs, tell the world what makes your disease different than other arthritis and autoimmune diseases.

3. Share via Social Media. Tag IFAA's Facebook and/or Twitter. Please also use hashtags #AutoimmuneArthritisAwareness and #IAAM.

Why should the world just view ONE story on the 19th when they can see 100's???? If you are posting, we'll be sharing!

Note: This Movement will begin on Friday, but we'll keep it going as long as YOU keep it going. Want awareness for a day, submit for a day. Want it for a week? Keep submitting for a week. Want it for a YEAR? Keep 'em coming, we'll keep on raising awareness together!

(Photo: Left and Right- Doctors from the episode, Center Left- CEO of IFAA, Center Right- Pfizer Representative/Segment Sponsor)


http://www.thedoctorstv.com/articles/2865-managing-rheumatoid-arthritis

And above is the link to see Tiffany and the important information she shared!!!!
 

‪#‎GivingDecember2nd2014Tuesday‬

‪

https://www.facebook.com/GivingTuesday?pnref=story

#‎GivingDecember2nd2014Tuesday‬

My "giving" today will be "giving everyone" an idea of how to give on this "Giving Tuesday!" Whether you are giving a "tip" to your guy that takes the groceries to your car, your beautician a larger tip, giving to one or more of your favorite charities, giving a lift up to an elderly person out of a chair, giving a hand putting a neighbors trash out at the curb.... maybe giving a hug to everyone you see today, and a handshake and tell them you appreciate their "service"... at the pharmacy, the bank, the doctors office... whether you give a lunch today through a local food bank, or donate blood to the blood bank.... it is not how LARGE OR SMALL the gift is... it is the "giving" that counts. Give a compliment, give your heart, give unselfishly, give information, directions, information, there are SO MANY ways, you can give of you, your time, yourself... just give... 

I have posted some places on my Facebook page that are non-profits and so forth that you can give to...whether it be the Arthritis Foundation, The Diabetes Foundation, to AIDS, to the homeless, to the people who need, and to those who just need a smile... give hope... for giving of oneself, is the gift of hope!!!

This NATION and this WORLD above ALL NEEDS HOPE!!!! It can start with "you" and "giving Tuesday!!!!" 

And it would be so incredible if giving Tuesday, turned into giving Wednesday, Thursday, Friday, the holiday, the month, the season, the year.... just one "good deed" can bring millions... so please take a moment, and give... a prayer, a "thumbs up"... Hope... 

With my gift to you today... Rhia... 

Rheumatoid Arthritis Study - Volunteers Needed - See if you Qualify from this post and the IFAA will get the donation!

Do YOU qualify for this study? If you do, and are willing to give a little time for a phone interview, you can raise $100 for IFAA!

All money raised from this study will be used towards wellness education and patient-centered/patient-led research in 2015.

Do you qualify? Will you help? PLEASE SHARE via social media to find qualified participants.

Additional qualifying criteria is:

You must have been on the Cimzia, Humira or Remicade for less than one year before discontinuing.

You must have moderate or severe RA (as opposed to mild)

You cannot be a nurse, doctor, or research professional.

This will be one confidential and anonymous phone call with one moderator that will be scheduled at your convenience.

Is this you? If so, PLEASE EMAIL DOUG ASAP at dlowell@sampleczar.com!