"National Pain Report" Part 1 and 2 of "State Of Pain" and how our Governmental Bodies Can have a "negative effect" if we don't stand viligant!

http://nationalpainreport.com/the-states-of-pain-regulation-8834288.html

Part 1 Above

http://nationalpainreport.com/states-of-pain-part-ii-the-influence-of-regulations-8834347.html#comment-210816

Part 2 Above

 

Although MOST of us are very aware of our Federal Government and the Issues over Chronic Pain Patients, and their "messing around" with our very medications that keep us "with some type of quality of life" we also lest not forget, that our STATES also have a dramatic effect also. 

Letter from the Arthritis Foundation to Paul Ryan Speaker of the House and Congress!

 

 We all need to be TELLING OUR STORIES TO CONGRESS, THE PRESIDENT, SPEAKER OF THE HOUSE, AND OUR STATE GOVERNMENTAL BODIES ALSO!!!

FROM FUNDS FOR ARTHRITIC ILLNESSES, AUTOIMMUNE ILLNESSES, AND CHRONIC PAIN, THAT OFTEN FOLLOWS THESE ILLNESSES AND MANY MORE... WE MUST STAND UP AND TELL IT LIKE IT IS... NO LONGER CAN WE SIT ON THE BACK BURNER AND ALLOW THE GOVERNMENT TO NOT DO THEIR JOBS IN HELPING US, AMERICANS. WE ARE THE NATION, AND IT'S TIME THAT THIS GOVERNMENT PUT THE PEOPLE FIRST!!!!

 

http://www.arthritis.org/Documents/Sections/Advocate/Regulatory-Letters/AF-Letter-to-Congress-Leadership-on-Health-Reform-Fixes.pdf

The CDC, and others in GOVERNMENT do not KNOW WHAT TRUE SEVERE DAILY CHRONIC PAIN IS LIKE FOR MANY OF US WHO ARE TRUE PATIENTS!!!!!

I am so INFURIATED at the NEWS as well as the CDC, government, and THOSE WHO SO STRONGLY OPPOSE ANYONE NEEDING PRESCRIPTION PAIN MEDICATIONS, that I HAD to get up and turn the channel a bit ago!!! I had turned my computer off earlier in the day due to severe "dry lightening and thunderstorms" BUT AFTER DINNER, I came to turn it back on and state my MIND ABOUT THIS BULL!!! I would LOVE to take ANY ONE of the people from the CDC, from the GOVERNMENT, FROM JUST PLAIN OLD OFF THE STREET folks, AND ALLOW THEM TO HAVE ALL OF MY OWN PAIN, PLUS MANY others PAIN for just ONE WEEK, WITHOUT MEDICATIONS!!!! I don't care how much you "punish" those who need the meds, and there is NOTHING ELSE that helps, THEY WILL FIND SOME WAY, SOME HOW TO GET "HIGH"... whether it is ALCOHOL, OFF THE STREET DRUGS, THAT LORD KNOWS WHAT IS IN THEM, INCLUDING HEROIN, Or anything else they can "use" to get what "WE" the NEED THE MEDS DO NOT GET AND THAT IS SOME KIND OF "HIGH" from them! Other than when I was in my teens and early 20's for sure, AND I COULD NOT GET RELIEF FROM ALMOST 2 OR 3 TIMES A WEEK SEVERE MIGRAINES, that SENT ME TO THE ER MORE TIMES THAN I CARE TO COUNT, and AT THAT TIME, for a while, I felt "something" that was kind of like giving someone an "I don't give a damned" drink, or medication that they may not take very often then YES, you may feel that "high" for a few moments, BUT those LIKE MYSELF, WHO HAVE MULTIPLE ILLNESSES, THAT CAUSE DAILY SOMETIMES SO SEVERE PAIN, THAT MEDICATIONS EVEN DO NOT GET RID OF IT ALL, WE DON'T OR I SHALL SAY I DON'T HAVE A "HIGH" FROM IT! I would GLADLY throw away ALL OF MY MEDS, If somewhere there was a "MIRACULOUS" CURE FOR lupus, RA, DDD, DJD, OSTEOPOROSIS CAUSED BY PREDNISONE, WHICH IS A NECESSARY EVIL, NOT AN OPIOIDS, BUT CAUSES MORE DAMAGE WHICH LED TO MY HIP FRACTURE.... If I could take NSAIDS, or anything else to relieve my pain, I would do it in a "New York minute"... BUT you TAKE AWAY PAIN MEDICATIONS FROM LEGITIMATE PATIENTS, and you will see MORE ALCOHOLISM, THOSE THAT CANNOT WORK, CANNOT TAKE CARE OF THEIR FAMILIES, ARE IN THE ER, HOSPITAL, AND TAKING ILLICIT MEDS THAT LORD KNOWS WHAT THEY CONTAIN... You will see a DRAMATIC RISE IN SUICIDES,, those that LIKE MYSELF, WITH A HEART PROBLEM, IF I WAS IN SO MUCH PAIN, WITHOUT MY MEDS, I WOULD PROBABLY NOT LIVE 6 MONTHS, THE REST OF MY BODY, INCLUDING MY HEART, would NOT be able to take the pain!!! It is a strain not just "where it hurts" but all over, and it effects you mind, the rest of your body and your soul, spirit and takes away all quality of life! One cannot raise their kids, work, or even there would be DAYS, WEEKS, MONTHS SOME WOULD BE COMPLETELY BEDRIDDEN, without RELIEF!!!!! I am SO SICK of BEING PUT IN A STEW POT, AND MIXED IN WITH THOSE WHO "CHOOSE TO ABUSE".... NOT ALL OF US ARE "ADDICTS... I don't take ANY of my medications, NONE FOR SOME KIND OF "ESCAPE OR HIGH" OR WHATEVER those that abuse get... IN FACT, I've NEVER HAD ILLICIT MEDICATIONS, other than at about the age of 23, I smoked a "bit of weed" and I HATED THE FEELING IT GAVE ME, same way with DRINKING ALCOHOL, I don't like the way I feel or that "loss of control" it causes... of course many of us as younger crowds years ago, may have drank too much, or experimented with "not legal things" yet most of my generation did not even know about "illegal drugs" in high school. It was not something MANY OF US HEARD ABOUT OR ESPECIALLY HAD ANYWAY WE WERE AROUND THAT TYPE OF THING".... I fully intend, on when I "SETTLE DOWN" TO GIVE THE CDC, THE GOVERNMENT, BOTH STATE AND FEDERAL, and ANYONE ELSE, a "PIECE OF MY MIND" ABOUT this bull.... you take a couple of states, with doctors who are NOT real doctors, or have "backwards" folks that use everything else also WITH prescriptions, and they with or without those meds would either wind up in the ER overdosed, or would find a way to get what they want, off the internet. or cross borders, IF THEY CHOOSE THAT LIFE, THEN NOTHING ANY ONE ELSE DOES WILL STOP THEM! I AGREE with 'regulation" somewhat, but most CREDIBLE DOCTORS, will NOT cause "harm" to their patients! By any type of medication, etc.... so yes kick out the "bad seeds" but leave those who truly are chronically in daily pain (HELL they were even stating some "SEVERE CANCER PATIENTS" MAY NOT NEED PAIN MEDICATIONS! ... WELL, some may NOT, but I would 'ASSUME" many would never go through chemo, radiation, and continue to want to live if their disease brought them intense, severe, and daily pain!!!!! I am sorry if I OFFEND ANYONE" But I am really perturbed on this subject!

TODAY IS THE FINAL DAY FOR COMMENTS ON CDC GUIDELINES FOR PAIN MEDICATIONS! PLEASE GET YOUR COMMENTS IN!!!!!

http://www.regulations.gov/#!docketBrowser;rpp=25;po=0;dct=PS;D=CDC-2015-0112

ABOVE IS THE LINK TO GO AND COMMENT ON THE CDC GUIDELINES THAT CAN EFFECT THOUSANDS OF PEOPLE, POSSIBLY MILLIONS OF CHRONIC PAIN PATIENTS AROUND THIS NATION! 

TODAY IS THE LAST DAY TO VOICE YOUR CONCERNS, COMMENTS AND SO FORTH! PLEASE TAKE A FEW MOMENTS AND DO THAT. YOU CAN REMAIN ANONYMOUS, AND DO NOT HAVE TO PUT YOUR NAME IN... 

THIS IS OUR TIME TO TRULY SPEAK UP FOR ALL OF US WITH HORRID PAIN ISSUES, AND KEEP THE GOVERNMENT FROM TELLING GOOD PHYSICIANS HOW AND HOW THEY CANNOT TREAT THEIR PATIENTS!

I GOT A NEW "PATIENT" INFORMATION PAGE LAST WEEK AT MY PAIN SPECIALIST! IT WAS A NEW WAY THAT I KNOW THE "GOVERNMENT" MADE THEM WORD, THAT YOU MUST KEEP YOUR MEDICATIONS IN A LOCK BOX, BUT YOU SHOULD TAKE A PHOTO OF YOU AND YOUR LOCK BOX TOGETHER AND TAKE IT INTO YOUR PHYSICIAN!!!

NOW I TOTALLY AGREE WITH LOCKING UP MEDICATIONS.... THAT IS AWESOME, AND I FEEL EVERYONE SHOULD, BUT FOR THE GOVERNMENT TO MAKE PATIENTS BUY A SAFE, AND THEN TO HAVE TAKE A PHOTO IN FRONT OF IT, AND GET IT TO YOUR PAIN DOCTORS, IS JUST GOING A BIT FAR. I HAVE NO PROBLEM AS FAR AS ME WITH IT, BUT I KNOW MANY OUT THERE, THAT CANNOT AFFORD A LOCK BOX OR SAFE....

SO PLEASE PUT IN YOUR THOUGHTS......

AS OF NOW THERE ARE 3,825 OR SO COMMENTS, WE REALLY NEEDED 3 OR 4 TIMES THAT MANY AT LEAST!!!!

Not my "usual" type of Post but I feel I it's a very important one... When Government, Big Pharma,Medications for "Chronic" Illness/Pain play a hand in your treatments

As I've said in Facebook about this post I am putting up now, I almost NEVER talk about anything "political" or "religious" on FB nor here on my blog.

Not that both subjects are a very important portion in my life, but it is more about how "personal" and private those subjects are to many of us. Not that I don't share some things "religious"... in fact I just posted over the last two weeks, that I have decided I needed to step back into fellowship on Sundays with one of our local churches.

I had talked about being raised kind of "Catholic" and "Baptist". My Mom was Catholic and came from a Czech background. So, when I would visit my Grandparents or go stay over the weekend with some cousins, I usually went on Sunday's to church with them.

My Dad was Baptist. He in fact was one of the "founding" members of the church that is way less than a block from my parents home, and through the years, for the most part that was where he was on Sunday mornings. I went with him many Sundays, in fact probably any time I was at home on Sunday morning, I went with Dad to that church. So, I had "leaned" towards being "Baptist" most of my Adult life, although I don't like to judge anyone else's faith. Faith, Hope, Praise, Glory... all words we so need in the days we face ahead, as a country, as a nation, and as a World.

Anyway, to finish that piece, I went this past two Sundays to one of our Methodist Churches and really enjoyed it. I feel I maybe going back and am even thinking about getting involved in own of the Sunday School classes where I would "belong"....

And as far as "government" actually I speak OUT a GREAT DEAL about our Governmental bodies, both House and Senate. When it comes to anything to do with chronic illnesses, arthritis, RA, Sjogren's,

https://www.youtube.com/watch?v=xLx8bLeDdJs&feature=youtu.be

Since any of these chronic illnesses lead to disability, to losing relationships. to causing severe pain, from physical, mental and emotional... we do not have near enough "research", medications, treatments, and the list of the needs when it comes to these most complex and complicated often almost "invisible" diseases, it MUST be that our government helps to play a role in getting many more specialists, more INSURANCE that COVERS treatments, rather than "denies" every claim. It is NOT the patients fault we are ill. It is also NOT our fault that the medications for some of these are astronomical. We are not the ones who "dictate" these costs. Yet, every day you see yet another new "medication" on the market for Lupus, RA, Diabetes, and so on and so forth... with the costs so expensive there is no way a patient can afford to pay for some medication that is 2,000.00 and MUCH MORE for a MONTH"S worth. I was looking at my medications (that happen to be MANY) due to Lupus, RA, Sjogren's, chronic pain, heart problems, and so forth. If I had to PAY out of my pocket for any of them... I surely would NOT be able to do that at all. So, where do you turn? You need these medications to "give you your quality of Life"... yet there is no quality of life if YOU ARE GOING BROKE to pay for your treatments.


I plan on adding more to this, but for now I want to get it posted.... so more to come on this subject...

Incredible and AWESOME News for Patients with Lupus, RA, FM,Sjogren's, Heart disease, Cancer & so much more...

21st Century Cures, has stepped out to amaze and delight so many health activists, advocates and truly help to get our Federal Legislature involved in getting ALL of the research we need in order for so many of us to become "healthier" and hopefully gain some quality of life back.

Here is some information from the Arthritis Foundation about 21st Century Cures...

EnergyCommerceCures ‏@ECcures Jul 10

BREAKING: The House has approved the 21st Century Cures Act by a vote of 344-77 #Cures2015