"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
Thursday, June 1, 2023
Tuesday, November 2, 2021
PAIN NEWS NETWORK - DEA Planning More Cuts in Supply of Rx Opioids
Pain news network article on tea proposals to cut back again on opioid pain medications! It’s a nightmare!
WE have got to stand up against this! I already am "suffering" at the hands of this terrible proposal, along with even some cancer patients, any chronically ill patients with chronic pain to boot. Even my own pain specialist who has been a medical doctor for most of his life. He was in the Navy & went on to "retire" and goo into pain management. I have myself been seeing him for over 12 years. He has always been straight forward. He "sees" through to real "severe ad chronically ill pain patients". I never had an issue, we communicated very well. He is extremely intelligent, and keeps up with how the government effects "negatively and sometimes positively" on pain patients. Especially those who are on Medicare, on Disability, and tried to make sure patients were treated with the correct meds, doses, and NOT given "over" or "under" the amounts of medication they need. He also does "internal pain pumps" which he did mine. He does the spinal injections, and if you need a neurologist, orthopedic specialist. he referred me to the Orthopedic surgeon" who has done my reverse total replacement on my r. shoulder (now I face having it redone due to it "wearing out" Which I knew there was a chance now it has been about 11 years since the shoulder was replaced, that I would need a "new one". Fortunately, the ones now are much lighter in weight, last a great deal longer (I probably will not have to have another new one put in now after the new one is in). Had it not been for m pain doctor knowing whom to send me to, I would have had a very difficult time finding a surgeon to do that surgery back then. Even in the greater Dallas/Ft. Worth area had MANY Orthopedic Surgeons BUT NONE trained to do a "Reverse complete Shoulder Replacement". I searched, called my insurance, did everything and one day I was telling my pain doctor I needed a very specialized type of Orthopedic surgeon who KNOWS and has been not only trained but already done surgeries of this type. He suggested mine I have now, and not only can he do just about ANY type of joint, muscle and so forth treatment and/or surgery, he is superior on "spinal surgeries" I would NEVER ALLOW ANY OTHER PHYSICIAN TO DO SURGERY ON MY BACK, NECK SPINE ETC. He is a genius although HE HAS NO BEDSIDE MANNER! LOL!!! But when a surgeon is going to operate on any part of you... especially your spine, bedside manner although very important that surgeon knowing exactly how to fix the problem(s). Yet, over the past 2 years I have witnessed my pain doctor, being almost "fearful". He is extremely concerned. In fact, (and he is quite a bit older than he looks for sure)... he has cut back his days to only a couple in the office.. as if he is partially retired, which sucks! Yet, all of this mess with "illegally gotten opioid medications" (either gained by people who deal them, they steal them, they order them from some fake pharmacy, they go to the few "bad eggs for pain doctors", when you really listen, read and see HOW these meds get into the hands of the wrong people fr the most part it is NOT OUR PAIN SPECIALISTS WHO TRULY "DO NO HARM" & THEY ARE NOT PILL FACTORIES" but are REAL physicians with no record of being in the eye of doing something wrong. So, although yes, this is a HUGE, ISSUE, MANY YOUNGER KIDS GET HLD OF THIS ILLEGAL STUFF Or they get them from parents whom may have some left over after a surgery etc. (I KEEP MINE LOCKED UP) although I am the ONLY person in this hose, I have NO people but me here I have always locked up most of my meds. There are those pushers that prey on the kids, and it is not just prescription meds, but cocaine, heroin, and the illegal items as well. SO WE NEED TO STAND UP FOR OUR RIGHTS AS CHRONIC PAIN PATIENTS IN ORDER TO KEEP FROM HAVING ALL OF OUR MEDS AND/OR DOCTORS SUDDENLY TAKEN AWAY WITHOUT WARNING!!!!
Friday, November 16, 2018
"Pain News Network" - Articles "CDC gone WAY TOO far with quick changes of Opioid Changes",
"The American Medical Association has passed resolutions urging insurers, pharmacists, federal regulators and states to stop the "inappropriate use" of the CDC opioid guideline. Although the guideline is voluntary, many of its recommendations are being regarded as mandatory."
Researchers at the University of Colorado say an experimental gene therapy significantly reduced chronic pain in dogs after one injection. Human trials on the promising treatment are now underway.
Friday, May 18, 2018
Terrible and Frightening News from the Pain News Network for Chronic Pain Patients and those following Major Surgeries and More!
Pain sufferers and patient advocates are overwhelming opposed to plans by the U.S. Drug Enforcement Administration to further restrict the supply of opioid medication to punish drug makers that allow too many of their painkillers to be diverted and abused. ... news story follows down at link:...
https://www.painnewsnetwork.org/stories/2018/5/9/critics-say-dea-plan-could-worsen-opioid-shortages
Wednesday, May 2, 2018
(From the Pain News Network) Recent Death of a "Chronic Pain Patient" partially blamed on the DEA and their horrible outlook as far as pain patients....
This story is both sad and sickening. I've had this very conversation many times with my Mom, before she passed away.
She told me often she didn't see how I could withstand the amount of pain I put up with almost daily at times... And as I told her, it is NOT easy! You try in every way to "put it out of your mind" but there are days it can be overwhelming and here it one example of how a 41 year old Mom and beautiful young woman could no longer deal with the scope of possibly not being able to curb the severity of pain she was going through...
https://www.painnewsnetwork.org/stories/2018/4/30/death-of-pain-patient-blamed-on-dea
Thursday, November 16, 2017
Pain News Netowrk and & CONGRESS, DEA and governement STILL CAUSING GRIEF TO CHRONIC PAIN PATIENTS!
ALL OF THE STORIES BELOW THROUGH THE PAIN NEWS NETWORK! BARBY INGLE ONE OF OUR HUGE VOICES FOR CHRONIC PAIN HAS PENNED ONE OF THESE ARTICLES ALONG WITH SEVERAL VERY GOOD COLUMNISTS.... STAND UP AND NOT ALLOW THIS TO HAPPEN - THIS IS INSANITY!!! THE MAJORITY OF TRUE CHRONIC PAIN PATIENTS ARE NOT "ADDICTS" AND DO NOT GET THEIR MEDICATIONS ILLEGALLY OR USE ILLEGAL DRUGS SUCH AS HEROIN!!!
https://www.painnewsnetwork.org/stories/2017/11/12/managing-your-emotions-while-living-with-chronic-pain
DEA Cutting Rx Opioid Supply in 2018
https://www.painnewsnetwork.org/stories/2017/11/10/dea-cutting-rx-opioid-supply-in-2018
https://www.painnewsnetwork.org/stories/2017/11/3/fda-may-require-opioids-be-packaged-in-blister-packs
https://www.painnewsnetwork.org/stories/2017/11/6/3-reasons-the-opioid-crisis-is-getting-worse
Thursday, August 17, 2017
FINALLY WHAT IV'E BEEN SAYING FROM THE NATIONAL PAIN REPORT - "UNTREATED' CHRONIC DAILY PAIN, CAN LEAD TO DEATH"
Here is the article and PLEASE PASS THIS ALONG!
http://nationalpainreport.com/untreated-chronic-pain-can-kill-8833859.html#comment-208843
Wednesday, August 9, 2017
SICK and TIRED of the "stigma" placed on so many of us with Chronic Pain and just how horribly it effects our lives, I feel it's time for me to step up and also state my feelings on the subject!
As I use the example of someone with Diabetes, would you take away their insulin? A person with high blood pressure would you deny them medications to lower their blood pressure? I've been thru just about every type of other "pain reliever" you can imagine. chiropractors, injections into my spine and occipital nerves in my neck, injections into just about every joint on my body, I am on several medications for the Lupus and RA, yet some other medications that I had MANY SIDE EFFECTS FROM, that were supposed to help with chronic pain, I have every surgery that is a promise to help my pain, I walk daily, I don't stay sedentary, I try and do all I can to ease my pain. I've gone through NSAIDS that can cause me to have another heart attack.
My 2nd MI partially was caused from chronic pain, and after the fractures to my hip, my pain level increased, due to many things such as the change of my gait, my neck in such bad shape, that he has to "stretch" it 2 INCHES, because I lost that much disc space... So, I KNOW ABOUT ALL F THE alternatives. Some of which work wonderfully for some people. I am thrilled that some find relief from things such as Gabapentin, which caused me to "hallucinate" even on a small dose. So, after going through SO MANY YEARS, of every type of other treatment available, what "works" for me, may not be what works for someone else. "Chronic Pain" in itself is extremely complicated. Due to having SO MANY CONDITIONS, that can cause this type of pain, it's taken an "army of physicians", medications, treatments, surgeries, injections, therapy, you name it, I've done it to find "what works" for me, with the least amount of side effects possible.
So it just "burns my butt" to hear the crude and down right stupid remarks some say about us patients, that live with pain daily. I give a good example. I had NO CLUE, HOW PAINFUL, a fractured hip was, UNTIL IT HAPPENED TO ME! That was one of the most excruciating times in my life, as far as pain goes. OMG, kidney stones are horrible and unrelenting at times. But those two fractures of my right hip.... were almost unbearable. Every tiny movement caused me so much pain, I thought I would go into convulsions. Even being put on the stretcher and taken over my lawn to the ambulance, I was literally screaming, crying and probably cursing so badly and loudly, all of my neighbors heard me! I even waited over 2 HOURS, before calling the ambulance.
I wanted to "make sure" I had a fracture, and not just a "bruised hip" before calling the ambulance. Then them trying to do an X-ray or moving me in any way, I shook and screamed in so much pain. And those things are "acute pain" issues. So, you take some of those and put them with someone often daily or many times in a month's time, and see how well they would function in life for very long. I tend to be one of those people who try and not "show my pain" or illnesses in public. But, believe me just because I am not limping or using a cane, or whining and moaning in pain, does NOT mean that it's not there. So, some of you may get sick and tired of seeing me post about all of this ridiculous uproar over this so called "crisis", but I intend to keep on getting the word out as much as I can, and supporting EACH OF US, who would be "lifeless" if we had to withstand chronic pain and illnesses without any type of relief.
The LONG LIST of illnesses that can cause relentless pain are endless. You can have "diabetic neuropathy", many different types of arthritic illnesses, autoimmune illnesses and syndromes, nerve pain from degeneration of the joints, of bones, of the spine, migraines of many types now, TMJ, FM, torn muscles and ligaments, surgeries sometimes can cause pain, "neuralgia" comes from so many types of illnesses, whether sciatic nerve pain, from a lower back issue, or pain in the arms, wrists, fingers, from a cervical neck problem, or from problems with diseases causing bone pain, cancers of many types, all types of "myalgia's", torn muscles, chronic sprains, cartilage gone in joints, certain types of chronic bladder problems, certain intestinal chronic health problems, and the list goes on and on about health conditions that can cause or contribute to chronic pain and chronic illnesses.
I've decided that I am going to "fight" as much as I can online, with petitions, letters and such the ridiculous claims that "everyone" who takes a pain medication is "addicted" or an abuser. Whether it be governmental bodies, the DEA, the FDA, or the President, (HOW CAN any of those people who have NEVER HAD A SEVERE AND CHRONIC PAIN DISEASE POSSIBLY UNDERSTAND OR KNOW ALL OF WHAT WE GO THROUGH IN A SINGLE WEEK?" ALSO, I am SICK OF the health insurance companies "calling" constantly, wanting to "go over" your medications "over the phone" when NOW THEY DON'T EVEN SAY WHO THEY ARE ON CALLER ID! Now rather than saying the name of the company, Caller ID usually say "1-800" number calling... how do I KNOW THEY ARE WHOM THEY SAY THEY ARE? Why do I want to "discuss" something that honestly, is NONE OF THEIR BUSINESS! That is between MYSELF, MY PHYSICIANS, and if I NEED HELP, MY OWN PHARMACISTS? It is insane how many calls I get from so called health insurance, wanting to discuss, "this, that or the other" about my "health".... I HAVE A LIFE TOO, and I don't care to sit on the phone for an hour telling a person I don't know and have no earthly idea who they are about my medications or anything else for that matter!!!!!
We are WARNED AND WARNED ABOUT NOT GIVING OUT PRIVATE information over the phone to those we don't know.... so this is a prime example of what irritates the hell out of me!
I got a call earlier in the week, from a "guy" who I didn't even "understand" asking for me? He never said where he was from, or whom he worked for, and then when he mentions my medications, I got irritated and told him I was NOT at that time discussing it with him. In the first place, THE MAJORITY OF THE TIME, THOSE PEOPLE EITHER CANNOT SPELL
MY MEDICATIONS, OR THEY HAVE NO CLUE WHAT THEY ARE FOR! Why should I have to "explain" those things over the phone to anyone????
So, some of you may get sick and tired of my ranting on the subject, but enough is enough!
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I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things abo...
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I finally made a trip to Urgent Care with what I feel is a very bad Lupus and RA flare, but there are several "symptoms" strange t...
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How can our kids feel safe when WE as adults don't???? I fear Wal-Mart or just walking across the parking lot at HEB in my small lo...