Our Nation Out of Control, So much for a Hope filled and Happy 2021! It's almost a night terror

 It is to the point of being unbearable, and just not even fathomable to believe what is happening in this nation....

Thoughts....

As I Said below "SO MUCH FOR A HAPPY, HOPEFUL & BRIGHT 2021! and if I said what I "think" I would probably have my home burned & be shot! Sorry folks I cannot fathom some of the things I've seen posted in places.... insanity, and now again rather than the focus on "COVUD-19" and the new strain that is already in TX, and all of those who have lost their lives or loved ones & now after that many people so elbow to elbow fighting, bleeding, breathing on one another... what about even worse than the pandemic than we already have! We don't have enough hospitals, beds, nurses, doctors, medications already and it just grows worse by the moment. What about all of us who are trying to "fight to keep well"? We are doing everything we can to avoid getting sick ourselves or making others sick??? We masks use curbside maintain distances, try and stay home, order online, sanitize, & I don't know about others but although I need a couple of things from the market today before the bad weather hits tomorrow, I FEAR going into any store..I am sure many will be in the stores not following guidelines and I am someone who really "should" have a vaccine... due to Lupus, RA. Heart conditions after 2 heart attacks, pseudo-gout plus the medications that cause me to be prone to getting sick & facing possible back surgery, but I have to wait, although even at a surgery center I still fear the virus, I have not started my new RA medication yet and should have 2 months ago, but feared changing it in the midst of all of this might cause me issues.. even my Rheumatologist does not know I have not changed. I am supposed to go to see him next Friday, but under what has happened I am going to ask for another virtual visit. even though he is in one of the doctor's buildings, they still are probably the largest medical facility with many hospitals... then I have to go to Dallas to have my pain pump refilled by the 18th. that one I can't miss, it has to be filled and the doctor has to do it. Then I was already hurting badly enough, and i guess due to this weather change coming, I could barely walk when I got up... I probably am in a Lupus/RA flare... BUT so many do not consider their consequinces of actions to what they can do to others, their families, friends & those out trying to help us daily. It is just almost unbearable and like some night terror in this country.

I am just completely frustrated with LIFE! People (it seems MANY have gone NUTS) I could not believe my eyes last night on the television! I completely turned off the news and watched other things... most channels were showing that horrid, terrible, insane scene in D.C.! To think I WALKED THRU THOSE VERY HALLWAYS in 2014!!!! When I went as an Ambassador with the Arthritis Foundation... and knowing how HUGE ND HOW DIFFICULT IT IS TO GET AROUND IN THERE - HOW THE HECK THAT MANY PEOPLE COULD BREAK INTO CONGRESS IS BEYOND ME!!!! I HAVE ONE QUESTION??? IF "HOMELAND SECURITY" COULD NOT "NOW THIS AHEAD OF TIME" AND KEEP IT ROM HAPPENING HOW CAN WE FEEL SAFE FROM "OTHER TERRORISTS?" WE surely have ENOUGH "home grown ones right here!"

YOU CAN Make a DIFFERENCE WTH THE ARTHRITIS FOUNDATION ON CAPITOL HILL FROM YOUR HOME!

I share this with you! Since I will not be able to attend the AF Summit on Capitol Hill due to having cervical neck surgery, I am definitely going to be an "advocate" online! This link takes YOU to a letter, that you can personalize So, even if you can't make it to the Summit, you can and tell your own story about how AF is effecting you, your family and so forth. I sent mine in yesterday! ALL of these will be taken to Capitol Hill and given to Congress at the Summit! YOUR can MAKE a DIFFERENCE even from your home for the AF Summit on Capitol Hill!

https://www.surveymonkey.com/r/GVQHGDV

HONESTLY, I FEEL BADLY THAT I AM NOT ABLE TO BE THERE THIS YEAR AND REALLY WANTED TO ATTEND! I LOVED IT IN 2014, AND HAD HOPED THIS YEAR THINGS WOULD ALLOW ME TO GO. MY NECK SURGERY IS ONLY A PORTION AND COULD HAVE WAITED, BUT I ALSO HAVE A MOM, WHOM I FEAR COULD BE SUFFERING FROM SOME TYPE OF DEMENTIA, OR WORSE ALZHEIMER'S. THINGS ARE NOT GOOD AT THIS POINT, AND I FELT SINCE I AM HER "ONLY CARETAKER", I COULD NOT LEAVE HER THIS TIME. SO, I MADE THE CHOICE TO TRY AND DO EVERYTHING I CAN TO "MAKE A DIFFERENCE" ONLINE, THROUGH SOCIAL MEDIA, TO SENDING LETTERS TO MY REPRESENTATIVE BARTON AND TO CONGRESS, AND LETTING THEM KNOW MY STORY! 

YOU TOO, WILL MAKE THAT DIFFERENCE. YOUR LETTERS ARE ALMOST AS GOOD AS BEING THERE ON CAPITOL HILL!!!! 

 

Arthritis Foundation Annual Summit on the Hill in DC Happening NOW!

Get your fingers in gear and get ready to do some "E-Summit Advocacy" things, if you were not able to attend the Summit. I feel this will be an incredible couple of days that will certainly help to enhance the future treatments, research, physicians, tests and reasons to why these illnesses attack so many of us!

http://www.arthritis.org/advocate/advocacy-summit/virtual-summit/


LOTS of things going on today on Capitol Hill - Check your FB and Tweets!!!!

Excited, Thrilled, Disappointed, Upset, Mad At Autoimmune Illnesses, and sometimes just upset with life in general - Not able To go to The Arthritis Summit next week!

I've not said much to anyone about my current situation with the autoimmune illnesses, pain, the severity of pain, a headache now that just won't go away, and all of the stress these autoimmune illnesses have caused me over the past month.

I always know, for ANY of us, plans sometimes change within a day! When you have a chronic illness and/or chronic pain, every day can be a challenge! WE can have our "great days", our "good" days, our "okay" days... and honestly it seems more days that it is SUCKS! These illnesses completely destroy our lives as far as whatever normal is.

They take us by the hand, heart, body and soul, and sling us around to the 4 corners of the Earth. We never know if we will land standing up, or sliding down that damned steep hill, with the rocks, twigs, gravel, and all scarring if not our "bodies".... our minds for sure.

I realize that "autoimmune illnesses" are NOT the ONLY diseases that are chronic and hit us in a haphazard way of life. But, they tend to be really good about waiting until we have some awesome plans scheduled, then totally ripping them to shreds within a breath's space.

I've been fighting with what I have felt was a Lupus flare now for weeks. I've also come to the place I MUST get these bottom teeth, "implanted" and anchored down. It is way overdue, and it is causing me to have all kinds of stomach issues, since there is so much either I can't eat, or I can't chew properly, thus I either avoid those things, or try to eat them, and almost choke, or they go down half chewed which is horrid for my stomach.

So, I knew I was facing a possibility  of not being able to go to the Summit with AF next week, which SUCKS big time, since I am one that made a "Platinum Ambassador" and should be there to represent all of us that had that honor, and be there to do what I am supposed to and that is to get those in Congress, "educated", "on-board" "possibly involved in the Arthritis Caucus" and backing the Congress people that are in the Caucus.

Plus I feel it is also my duty to lay out the "agenda" for AF 2015, and the things we need and hope to accomplish, from the issues involving now our "state" representatives, more on the realms of the DOD and the role in arthritis for our men and women that come home and develop these illnesses, to getting research out there in a more advanced way, and to "teach" ALL, public, government, professionals, the medical world, caretakers, patients, ALL about how "arthritis is NOT ACCEPTABLE" for anyone to have to live with.

So, to NOT be able to carry out what I feel is my duty to do, has really put me in a tailspin of hurt, worry, and let down. I feel I've let down the AF, the Ambassadors, and let down everyone who has stood beside me all last year no matter what helping me to see, even though I felt I was not doing enough, I was doing plenty, even when I felt like I wasn't.

Now I have developed something as of day before yesterday, that came on very sudden and hit me like a brick wall. I am not sure if it is a bad flare, or what. But, between a headache that is the WORST HEADACHE I have ever had in my life, that will NOT GO AWAY...my strength is none, I do well to walk across the house, I am freezing one moment, burning up the next, and I am in extreme pain from my head to my toes.... I feel as if someone has beat the literal hell out of me with a baseball bat, then ran over me with a car a couple of times. From my thumbs, all the way to my head, and all the way to down my toes, I HURT! A very DEEP BONE ACHE, that is relentless! Plus I ran low grade fever all day yesterday, and this morning, I can tell my body is fighting the fever, because I feel so damned lousy... I am hot one moment, chilled the next, cold the next, sweating the next... and our very HIGH Humidity is NOT helping it at all.

Anyway, I honestly am not up to sitting here, so I will close this for now, and explain more over the next couple of days.

But, I DO INTEND on doing EVERYTHING I CAN FOR THE E-SUMMIT!, and posting to social media and so forth as the AF storms Capitol Hill on Monday and Tuesday! I wish all of them luck, and hope it turns out to be an incredibly awesome Summit!!! Go Get Um!!!! I will be there in spirit....

Advocacy Summit: Virtual Summit | Arthritis Foundation

Advocacy Summit: Virtual Summit | Arthritis Foundation

Advocacy Summit | Arthritis Foundation

I have already put this in my blog! But wanted to post again... This is such a huge honor and privilege and I am so psyched!!!!

Advocacy Summit | Arthritis Foundation

And then "the Juvenile Arthritis Camp" for 2015 -

http://www.kidsgetarthritistoo.org/meet-other-families/2015-juvenile-arthritis-conference/2015-ja-conference.php