The weather turned really terrible here last night. Bad enough I turned off my computer until now. We had an electrical storm worse than I've seen in a long time for right here. The thunder and lightening was bad all night long and even until about an hour ago, we had constant thunder and lightening, as well as rain. Thank goodness nothing else, but the wind was bad before the other hit. I noticed there are several smaller limbs down in my driveway today. So, the wind was pretty strong when the storm brought its leading edge in. I had one of the HORRIBLE BAD I HATE COLD SWEATS ALL NIGHT LONG! It was one of the worst I've had in a long while. My hair was totally dripping wet, and my clothes, my pillow, even the cover I have on the sofa was all wet where I had laid, but it was one of those that I was cold, shivering and had the blankets pulled up over me... even the dogs thought I was nuts I think....LOL... I did not feel all that great yesterday. I went over and was doing some painting on the kitchen cabinets at the other house, and I really like this blue color I picked out for them. And I think I've found the "white" I want to use to make the bottom half of the paneling look like "wainscott" and then I already know which board (decorative) I am using to be the "chair railing" between that and then the color up at the top. I am going to use a lighter blue on the walls, and then the same color in the dining room. So, it is slow and tedious. I've never been great at painting anyway, and these are lots of cabinets that have to be painted in the inside of them also, so that will take even more time, especially the ones on the bottom, because they are so "deep" as in far back to the back walls. Then I've got to get something to cut the "yuck" off of the venta-hood, and over the stove. Those cabinets are so "sticky" from Mom NOT using the venta-hood I think, that before I can paint those, they will have to be "degreased" for sure. Anyway, the floors I think will be okay. I've been doing some cleaning on them, and put down some wax in a few spots, but I know Dad used to have a "buffer" that he used on them. It is long gone by now, but I imagine I should be able to rent one I imagine. I found my paint at Sherwin Williams, so I am going to ask them if they may either rent those buffers for wood floors, and if not, they should know who does. By the way anyone around here, don't waste your time going into "Dirt Cheap".... I was disgusted with it and walked around about all of 4 minutes and left. They have "stuff" and clothes etc, but honestly, all of it appeared to be definitely either something wrong with it, or things that some appeared to be just not even "new", or were damaged... They had people in there buying but I saw nothing that interested me at all... BUT I DID FINALLY FIND A BATHING SUIT!!!! I could NOT believe there were NONE at Wally World... So, I had a coupon for 10.00 off at Beall's online or in the store, plus they had like another 50% marked off of their already marked down stuff, so I found a top that has the "bodice" on it, that fits nicely to the figure, but is not a one piece. It has a completely separate bottom with it, and I got them both even after tax for like 14.00! They were regularly 35.00 a piece!
So, we shall see when it comes in... but I did NOT want some "one piece" like I was 85 years old looking, yet, with the pain pump sticking out of my side dammit, I can no longer were just any 2 piece, and I've not had a swim suit in many years. So, I ordered it, and am anxious to see if it fits and what it looks like. Then, I had to finally break down and I have a new cell phone on its way. It should come in tomorrow. My other one has gotten to where I just don't have enough minutes, and to buy extra ones was costing me more than getting a new phone and an unlimited plan. Since I don't do a lot of "data" usage on a phone, I got a pretty good plan, for not much more than what I was paying anyway, plus yes, I will have an "Apple I-Phone now"....
I SWORE I did not need one and that it was a waste of money, but actually I got the "5" version, and they have a 6 plus or something out already, but I did not need all of those bells and whistles, thus I am going with this one, and I've already got my phone number for it. I chose to begin over with a brand new cell number, since things are so different now with Mom gone, and there are many that had my contact phone with all she was going through. So, I decided to go with a brand new phone, brand new phone number, and for now I will continue to keep my home phone. I am still getting it for a good price, so I shall see in a few months how things are with the cell phone, then make the decision whether to get rid of the home phone or keep it. I kind of was "tacky" over at Mom's house the other day. Some fool wanting to "sell her" something called and before I could get a word in, he began his spill... so when he shut up, I said' She is dead", shall I give her a message? OMG! Talk about silence at the other end of the phone...
I know it was harsh, but they were constantly calling her trying to sell her something all the time...that is like the DAY of the Funeral, we were all over at the house cleaning, and taking stuff out to the trash etc... and there were THREE PEOPLE, and more who drove by that had the audacity, to stop, and ask if the house was "for sale".... I and my daughter and son in law, and son were so pissed... these people go through the newspaper, see these elderly people who pass away, then drive by their homes and ask crap like that... talk about rude.... as my son in law said, next time I should say "Do YOU see a FOR SALE or FOR RENT SIGN?" Then tell them well I GUESS THAT ANSWERS YOUR QUESTION! People are morons... but I do know they specifically had her on some type of phone lists they get from people who are Social Security age etc...
and they bug the hell out of them calling to either sell them something, or for donations etc... she got them constantly... it was insane.... Anyway, I am still not feeling the best... I had nightmares, and that cold sweat mess just takes all of my energy away the next day.... so I did manage to get some "cleaning" done around here. I have not went over to the other house today yet. I may run over there, after I kind of see what this weather is going to do... it still looks like it could be bad out there, and now we are going to be hitting those TRIPLE DIGITS NEXT WEEK! I do NOT look forward to that at all. Happy 4th to all... Me....
"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
Showing posts with label #alzheimers. Show all posts
Showing posts with label #alzheimers. Show all posts
Monday, July 4, 2016
Saturday, February 13, 2016
Dealing with an Elderly Parent who also appears to have either Demenia or Alzheimer's when YOU are in Chronic Pain and have Chronic Illnesses.....
I took my Mom, (we have not been in almost a year due to both her and I being ill, so this was supposed to be an incredible trip!
Mom has been showing so MANY signs of either Dementia or Alzheimer's now for 2 years or so to me. Yet, the last 6 months have gotten terrible. I could write a book on just what I have been through due to her "diminishing" ability to "think, not be confused, not to almost burn the house down, to not be able to pay her bills, or even read her mail" and the list goes on and on... and remember I AM ALONE NOW, I AM CHRONICALLY ILL WITH SEVERAL AUTOIMMUNE ILLNESSES MYSELF, AND LIVE WITH HORRIBLE CHRONIC PAIN... so to have to also deal with some of these things with her some days is more than I can handle almost...
So, this is a bit about our overnight trip to the Casino at Winstar in OK....
(From Friday evening after getting home)
TOO WORN OUT, TO EXPLAIN all the HELL at the Casino the past two days, but yesterday ALL OF THE MACHINES WERE DOWN MOST OF THE DAY! TODAY MOM LOST ANOTHER credit card! I JUST HAD TO CALL ONE IN LAST WEEK SHE LOST here in town. So, today, she "discovers" she lost another one! Then she misplaced her cane about 10 TIMES at least... other than that, and HORRID nightmare traffic going especially but coming back also ROAD CONSTRUCTION EVERYWHERE!!! But, other that those things all in all, it was a GOOD TWO DAYS!!!! LOL!!! Oh and my kitchen was still standing when I got home. LOL... The pups were in the kitchen with their quilts, food, blankets, toys, water, etc... and actually I still had a house standing.... LOL!!!! More over the weekend, I am totally wiped OUT! But, I came home with only 20.00 LESS THAN what I went with... so I guess that is a good thing .....
(Today Saturday morning I continue) .......
Those issues, and that we had not really gotten to play much at all on Thursday, (can you imagine how much money the Casino lost?) Their "main server" went down for some weird reason that does everything for all of the slot machines! In fact I sat down and played, and was going to switch machines, and it would not print me a ticket with my money on it... so then I began to notice ALL of the machines were "blinking" and people we saying the same thing I did!!!! So they really had one heck of a mess. And of course the day we decide to go of all times!!!!! I am so totally worn out today thought... Mom "lost" can her cane 5 times. Once I had to go and ask about it. And "lost and found" brought it to me, someone had turned it in... the other times "I" finally found it, once she could try and recall which machines she had been at. It was a nightmare... then when she found out her credit card was GONE... I just went nuts almost. Thank Goodness it was a "credit" card and not a debit card for her checking account. They may have been much worse. I had to get home first, find an old statement of hers, so I could even find where to call to cancel it... and then bring her information home and call them. Then she could not decide to eat at the Casino (we did not eat breakfast at first like usual) and just played thinking we would play an hour or two, then eat and leave. This was like 6:30AM or so... so by about 10AM, even I started getting hungry. The night before she would not even eat down in the Casino like we usually do. She wanted to get something and take it to the room... which was fine with me, but just weird. We went up "early" about 7:00PM to the room, and had gotten some really good fish and fries, much, much more than either of us could eat... we should have ordered just one and split it. So, I turned on the TV and was watching a movie... the next thing I know she is in the bed, with the extra blanket, already asleep by about 8:30PM or so. I could not believe it, and she never woke up at all, and usually she is up and down several times a night.. I finally decided to lay down also, so I changed and got in bed, and I woke up by 5AM on Friday and HOPED the slot machines were okay... But. I was already drinking a cup of coffee, I had made their in the room (which sucks) but I needed something... and was almost dressed by the time she was up moving, ready and packing. Like I said it was just strange everything she did. Heck, when we were going to the Casino, she sat and spent like an hour almost going back and forth through her purse. I thought maybe she lost something... but she was just "confused" I think about everything... then she kept saying we should be there already, and I said YES, if we had not been in stop and go traffic for about 35 or 40 miles or more off and on, we would have been there in about 2 hours... it took almost 3 and a half or more hours to just get there this time! Anyway, I parked and again she began going through her purse, and taking stuff in and out... and I finally asked her Mom have you forgotten something? She just said I cannot get it all organized, and then she had her "Players club card" in her hand, or lap and started saying she "lost it"... I looked down and said Mom it is right there in your lap..... anyway, I knew then it was not going to be a incredibly exciting trip... and one time about 2PM on Thursday, I told her to "SIT" and do NOT move from a certain spot... I was headed to get some tea, and go to the restroom, which was a long ways down, and then I told her I was going to try and check in to the room... so DO NOT MOVE! I get back and she is GONE! So, I thought gosh knows where the hell she is now... so I started looking, and finally spotted her rambling around, and I said WHY DID you MOVE??? She said well you were taking a long time... and I said I TOLD YOU, it is a MILE almost to walk from where we were to the HOTEL to check in! So, yes by the time I got there, got something to drink and went to the restroom it took a while, but why the hell you did not STAY where i said to... and she just looked at me... LOL! Anyway, it was okay and I had a wonderful time JUST BEING AWAY FOR A DAY OR SO AND A NIGHT, from the house, dogs, and just "Life".. BUT, I FEEL Mom will not be going back there again... if we do go to one, we may have to go to one of the smaller ones, who has already grown huge also... but she even said it, I just don't think I can go through this again, OR put YOU through all of it... and I told her Mom, it is fine, I did not mind and We BOTH needed to be away for a day and night... I told her I have my OFF days also... BUT now she really sees what I have been seeing for several years, and really bad the past 6 months... she goes to our PCP on the 22nd, and I am going to have a huge discussion with him... this is not just "old age", this is definitely more than that... I just PRAY it is not Alzheimer's.... Dementia is severe and bad enough, but the other, I watched my Grandfather go through that, and I surely do NOT want anyone to have to deal with Alzheimer's it is a horrid illness for sure..
Mom has been showing so MANY signs of either Dementia or Alzheimer's now for 2 years or so to me. Yet, the last 6 months have gotten terrible. I could write a book on just what I have been through due to her "diminishing" ability to "think, not be confused, not to almost burn the house down, to not be able to pay her bills, or even read her mail" and the list goes on and on... and remember I AM ALONE NOW, I AM CHRONICALLY ILL WITH SEVERAL AUTOIMMUNE ILLNESSES MYSELF, AND LIVE WITH HORRIBLE CHRONIC PAIN... so to have to also deal with some of these things with her some days is more than I can handle almost...
So, this is a bit about our overnight trip to the Casino at Winstar in OK....
(From Friday evening after getting home)
TOO WORN OUT, TO EXPLAIN all the HELL at the Casino the past two days, but yesterday ALL OF THE MACHINES WERE DOWN MOST OF THE DAY! TODAY MOM LOST ANOTHER credit card! I JUST HAD TO CALL ONE IN LAST WEEK SHE LOST here in town. So, today, she "discovers" she lost another one! Then she misplaced her cane about 10 TIMES at least... other than that, and HORRID nightmare traffic going especially but coming back also ROAD CONSTRUCTION EVERYWHERE!!! But, other that those things all in all, it was a GOOD TWO DAYS!!!! LOL!!! Oh and my kitchen was still standing when I got home. LOL... The pups were in the kitchen with their quilts, food, blankets, toys, water, etc... and actually I still had a house standing.... LOL!!!! More over the weekend, I am totally wiped OUT! But, I came home with only 20.00 LESS THAN what I went with... so I guess that is a good thing .....
(Today Saturday morning I continue) .......
Those issues, and that we had not really gotten to play much at all on Thursday, (can you imagine how much money the Casino lost?) Their "main server" went down for some weird reason that does everything for all of the slot machines! In fact I sat down and played, and was going to switch machines, and it would not print me a ticket with my money on it... so then I began to notice ALL of the machines were "blinking" and people we saying the same thing I did!!!! So they really had one heck of a mess. And of course the day we decide to go of all times!!!!! I am so totally worn out today thought... Mom "lost" can her cane 5 times. Once I had to go and ask about it. And "lost and found" brought it to me, someone had turned it in... the other times "I" finally found it, once she could try and recall which machines she had been at. It was a nightmare... then when she found out her credit card was GONE... I just went nuts almost. Thank Goodness it was a "credit" card and not a debit card for her checking account. They may have been much worse. I had to get home first, find an old statement of hers, so I could even find where to call to cancel it... and then bring her information home and call them. Then she could not decide to eat at the Casino (we did not eat breakfast at first like usual) and just played thinking we would play an hour or two, then eat and leave. This was like 6:30AM or so... so by about 10AM, even I started getting hungry. The night before she would not even eat down in the Casino like we usually do. She wanted to get something and take it to the room... which was fine with me, but just weird. We went up "early" about 7:00PM to the room, and had gotten some really good fish and fries, much, much more than either of us could eat... we should have ordered just one and split it. So, I turned on the TV and was watching a movie... the next thing I know she is in the bed, with the extra blanket, already asleep by about 8:30PM or so. I could not believe it, and she never woke up at all, and usually she is up and down several times a night.. I finally decided to lay down also, so I changed and got in bed, and I woke up by 5AM on Friday and HOPED the slot machines were okay... But. I was already drinking a cup of coffee, I had made their in the room (which sucks) but I needed something... and was almost dressed by the time she was up moving, ready and packing. Like I said it was just strange everything she did. Heck, when we were going to the Casino, she sat and spent like an hour almost going back and forth through her purse. I thought maybe she lost something... but she was just "confused" I think about everything... then she kept saying we should be there already, and I said YES, if we had not been in stop and go traffic for about 35 or 40 miles or more off and on, we would have been there in about 2 hours... it took almost 3 and a half or more hours to just get there this time! Anyway, I parked and again she began going through her purse, and taking stuff in and out... and I finally asked her Mom have you forgotten something? She just said I cannot get it all organized, and then she had her "Players club card" in her hand, or lap and started saying she "lost it"... I looked down and said Mom it is right there in your lap..... anyway, I knew then it was not going to be a incredibly exciting trip... and one time about 2PM on Thursday, I told her to "SIT" and do NOT move from a certain spot... I was headed to get some tea, and go to the restroom, which was a long ways down, and then I told her I was going to try and check in to the room... so DO NOT MOVE! I get back and she is GONE! So, I thought gosh knows where the hell she is now... so I started looking, and finally spotted her rambling around, and I said WHY DID you MOVE??? She said well you were taking a long time... and I said I TOLD YOU, it is a MILE almost to walk from where we were to the HOTEL to check in! So, yes by the time I got there, got something to drink and went to the restroom it took a while, but why the hell you did not STAY where i said to... and she just looked at me... LOL! Anyway, it was okay and I had a wonderful time JUST BEING AWAY FOR A DAY OR SO AND A NIGHT, from the house, dogs, and just "Life".. BUT, I FEEL Mom will not be going back there again... if we do go to one, we may have to go to one of the smaller ones, who has already grown huge also... but she even said it, I just don't think I can go through this again, OR put YOU through all of it... and I told her Mom, it is fine, I did not mind and We BOTH needed to be away for a day and night... I told her I have my OFF days also... BUT now she really sees what I have been seeing for several years, and really bad the past 6 months... she goes to our PCP on the 22nd, and I am going to have a huge discussion with him... this is not just "old age", this is definitely more than that... I just PRAY it is not Alzheimer's.... Dementia is severe and bad enough, but the other, I watched my Grandfather go through that, and I surely do NOT want anyone to have to deal with Alzheimer's it is a horrid illness for sure..
Friday, January 8, 2016
Remember These New Clinical Trials - for Cushings Symdrome, Alzheimer's, Pediatric Asthma, and Severe COPD!
CUSHINGS SYNDROME CLINICAL TRIAL
http://curec.lk/1hKk5XN
|
ALZHEIMER'S CLINICAL TRIAL
- Description
- The purpose of this study is to investigate whether the study medication can help people with mild to moderate Alzheimer's Disease improve their mental abilities such as understanding, reasoning, and judgment. The study medication will be given together with an FDA-approved Alzheimer's medication: Aricept® (donepezil), Exelon® (rivastigmine) or Razadyne® (galantamine)
PEDIATRIC ASTHMA CLINICAL TRIAL
- Description
- Asthma is a common lung condition among children. Your child may already have the symptoms of asthma like coughing, wheezing and shortness of breath. Current asthma treatments don't work well for every child. Clinical researchers are studying research treatments that may better control asthma in children.
SEVERE TO VERY SEVERE COPD CLINICAL TRIAL
- Description
- This research study is testing whether a new investigational drug that targets eosinophils (a type of white blood cell) could help patients with COPD (chronic obstructive pulmonary disease) control symptoms and reduce exacerbations (flare-ups) that lead to hospitalizations. The new investigational drug will be compared to oral and inhaled corticosteroids, the current standard of care for COPD.
FOR MORE INFORMATION ON ANY OR AL OF THESE CLINICAL TRIALS VISIT THE LINKS BELOW THEM
SPONSORED BY "CURE CLICK
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