Showing posts with label #Lupus #RA #osteoarthritis #chronicpain. Show all posts
Showing posts with label #Lupus #RA #osteoarthritis #chronicpain. Show all posts

Monday, January 6, 2025

2025 Lupus, RA, and Life Happy New Year and Wishing Everyone a Well Year

 


I am trying to Updating my Blog and Finishing the Books I’ve been working on.



It has taken a while for me to get back into the habit of writing.

I have had so many issues with Rheumatoid Arthritis in my hands I have been struggling as to whether to begin dictating my writing rather than typing myself.


I recall not long ago when I actually wrote everything out long hand in ”journals”; which turned into what I transferred on the computer and thus became my books.  Much like “Stevie Nicks” who most know is my idol; she continues to write daily in journals of which some turn into songs. 


It’s been a long journey to get back to this place. Between doctor's appointments, finally getting a new Rheumatologist who is out of town about 25 minutes away,  beginning new medications, and I found “lumps” in the bends of my legs at the hip. I found out I have “inguinal lymphadenopathy”. I had an appointment with my PCP who told me what they were. He said most of the time they come from an infection somewhere in the body. The issue was I had no signs of an infection. He put me on an antibiotic for 7 days. It was at the holidays; so I waited to send him a message after the New Year.


Rather than try another antibiotic, he is referring me to a hematologist. Now the weather has gotten terrible. We are in 30-degree temperatures and the wind chill at 2 degrees this morning. It is supposed to continue for another 7 to 10 days and possibly get worse. Snow/rain is in the forecast for the next few days. There is no way I am driving even 15 miles in snow or possibly black ice on the highway. I may call and see how long it takes to get in to see him. I can also set the appointment for after this weather gets back to somewhat normal in the 50's or so.


My HOPE each of you are doing well. I pray this is a better year for many.


Pam Rhia Steele


Wednesday, January 3, 2024

Left Femur break - Update probably going to inpatient rehab a few days

Left Femur break -  Update probably going to inpatient rehab a few days


 I am making a decision to go in to inpatient rehab for a few days. My PCP is getting the orders ready. So, as soon as that is done, I will just go from home to about 5 miles away if that ti the same place that rehabbed my r. hip fracture in 2016. I am wearing myself out without proper pain control and the nerve pain and muscle have had me in tears for 24 hours.

I realize my two grown kids fear I could fall..and I am extra careful, and I do not get up at night etc, but I understand their feelings.
When I am there I will have my laptop etc...so I will try to keep in touch..The pain is excruciating. Which the surgeon told me it was one of the most painful breaks and surgeries.🥲🥲🥲 BUT, I tried... that was my main thing... needed to try and come home...



Thank you for the continued thoughts and prayers.. An extremely painful break and very painful surgery.