MONDAY STARTS THE KICKOFF OF WEGO HEALTH AWARDS CEREMONY! BE SURE TO GET INVOLVED, SUPPORT YOUR NOMINEES & ENJOY! #HAA Awards

The WEGO Health Patient Influencer Network is made up of thousands of health activists who are all working hard to raise awareness for their condition area. The people in our network are making their voices heard and we're here to amplify those voices by supporting them with amazing opportunities.
We created the WEGO Health Activist Awards to:

• Recognize patient influencers who have become leaders among leaders

• Connect patient leaders to each other, across conditions and platforms
• Give a big "Thank you!" to all the leaders impacting lives

Many times, these hard working individuals go unrecognized but we believe these individuals are the innovation of healthcare and deserve to be celebrated for the change they are creating.
We celebrate health activists across all condition areas and with 14 award categories, there is something for everyone!
So support your favorite community leaders by joining us for our Awards Week celebration, December 5th-9th, where we will be announcing our 14 winners and hosting a week full of tips, tricks and tactics to improve patient advocacy efforts.
Be sure to check out all of our 2016 nominees- it’s no wonder these awesome activists were nominated!

CELEBRATE THE PATIENT VOICE! 

 

Here are the schedule of Events for the Annual WEGO Health Activist Awards!

 

http://blog.wegohealth.com/2016/11/23/haawards-celebration-schedule-of-events/

Prizes, Fun, Support for WEGO Health and ALL of the Advocates and Activists that make this event, AND WEGO HEALTH MOVING FORWARD TO CONTINUE TO HELP ALL OF US, THE PATIENTS!

WEGO Bloggers Challenge for Monday November 14th 2016 - Monday, Monday.... "Purging what "burns me out", makes me upset, gets me down and out" so I can "deal" with it on Tuesday

This is an easy one. TOO MANY IRONS IN THE FIRE AND TRYING TO KEEP THEM ALL HOT AND READY TO GO! 

Trying to do 100 things at once, being ALL to everyone and not able to just say ENOUGH, I NEED HELP AND I NEED A BREAK FROM THE INSANITY, THE PAIN, I NEED THE SURGERIES, AND I WANT MY LIFE BACK WHERE I CAN DO MY WRITING, MY ADVOCACY AND BE READY TO HIT WASHINGTON DC IN MARCH, FOR THE AF SUMMIT READY TO "ROAR" AT ARE "NEW" CONGRESS!

Since my Mom getting so ill so quickly, and needing my help 24/365/7, and then passing away so suddenly this past June, my life has turned into a disaster beyond anything I could have ever imagined. Being an only child made that even more difficult because it was ME and only myself to do everything. When you are already chronically ill yourself and your own "caretaker" of 13 years suddenly has walked out a year before, I was left to try and hold on taking care of her, myself, and ALL that has gone with that, and then after she passed away, I am still reeiing from "wanting to get back to having some of my life, having surgeries I need, writing and doing my advocacy work. 

I thought once "most was settled" just before the funeral, then just after, some type of somewhat "normal" would begin to come to fruition. 

Boy, what a "slap" in the face I got, with paperwork, and all that STILL HAS TO BE DONE, even though she is no longer with us, I miss her dearly, and although I "thought" we had everything in order long ago, I found out that somehow things got "changed" that I was not made aware of. That has caused hard feelings, and those things were the very last I wanted for myself and my two grown children.

So, hopefully by "telling" this once again, and often what my writing can be for, is to "purge" some of what is stressing me so badly, and help to get my surgery on my neck done at least before the end of the year, and allow me to have back some of that normality I so need in my life.

I LOVE my Mom, and I MISS HER, but at times I am so UPSET AT HER, for "changing" things that did just what I told her it would leave harsh feelings for those left here to continue on. 

#HAWMC 

 

 

 

WEGO Bloggers Challenge for Saturday 12th - Time to "get real" with your doctor

Saturday Day 12, 2016 - WEGO HEALTH'S BLOGGER'S CHALLENGE - WHAT DO YOU REALLY WANT TO TELL SOME OF YOUR DOCTOR'S AND DON'T HOLD BACK!

Well for one, I am sick and tired of doctors thinking that just because I patient may do research on their illness(es) or look things up, I cannot fathom a doctor getting upset or calling a patient a "moron", Layman, and telling them "you do not know what you are talking about".

I agree there is a OVER ABUNDANCE of some really ridiculous information online for everything! Not just the medical field, but just about anything you want to search for.
One has to learn how to "think" about what you read or hear when it is NOT a specialist, and try to weed out what really is silly, or does not apply to your case.

Plus for myself, when I go into my doctors offices, and ask questions or tell them about something I've read online, often times "most" of my research, is usually almost right on target. Not always, and I have one physician that LOVES and "educated patient".

But, one is a complete jack-ass to put it like it is, he ignores anything I have to say, he tells me I am basically stupid, and leave the "doctoring up to those who do have the "knwledge and education" to do the "medical work".

I SO would love to tell him, that I have been to "some so-called" doctors, that not being narsaccist but I KNE more than they did about some things. When you are chronically ill, many of us DO KNOW more about our conditions than doctors. WE KNOW our bodies, we know what feels right and what feels wrong. We understand the articles, even bloggers posts we read, and they also know many things our physicians never are even taught, especially about autoimmune diseases. My own pain doctor will admit, that I know more than many medical workers, including doctors, nurses, PA's, and NP's when it comes to my own conditions, because I do research things, I do decipher what is "not right" and what may be deemed something critical in my situation.

I would love to tell every doctor I have been to and others, that they NEED to be EDUCATED MORE on autoimmune and rare illnesses, because in many cases now, WHAT WAS RARE, is NOT that rare anymore.


"THAT IS MY STORY AND I AM STICKING TO IT!"


#HAWMC

#HAWMC@wegohealth

WEGO Health Blogger Challenge 2016 for Day 8 "I think I I can" OR "I Know I CAN".....

WEGO Bloggers Challenge Day * 2016 - "I Think I Can OR "I know I Can?"

I "think" I can get over the "hump" of losing my Mom so suddenly, and find a renewed life ahead of me - I need to give myself more time.

I think I can get my home fixed up and it be everything I want it to be.

I think I can get back into my writing and blogging, and make my 3rd BOOK a "Best Seller".

I think I can finally face my cervical neck surgery, and my lumbar surgery and they will relieve more of my pain.

I think I can walk through this life, even with all of the medical issues that surround me, and continue to find people that care about me, I think I can find new friends, and move past all of the loss, of not just Mom, but the loss of a relationship, find understanding, the loss of my dear Tazzy, my Pug, who I still miss daily, and move past the emotional pain that continues to dwell within and make me feel as if all I've seen in life is loss.

I think I can do MUCH of the "renovations" to my home, myself, and then "face the facts" there are some things now, my body no longer will allow me to do.

I think I can become a much better activist, advocate, volunteer and "voice" for those who suffer from such horrendous chronic illnesses and pain.

I think I can live my life alone, with my pups, and find the place where I no longer feel "alone or abandoned".

I think I can continue to make great decisions about my future, and continue the path of knowing more about medical research, chronic ailments, and give others hope through my own research and going through what I have been through. 

"I Know I Can!"

I KNOW I can go back to Washington DC one day, and give Congress once again my own life's issues with chronic illness, chronic pain, and how many of us suffer horrendously, and make A DIFFERENCE!

I know I can find more time to write, to work on my painting, my quilting, my gardening, and be able to get on the path, of feeling good about myself again.

I know I can LOVE, my Kids, Grand kids, and family even more every day. I know I can show them that they are my entire world. 

I know I can get these two pups to QUIT peeing in the floor when they are upset with me!

I KNOW I can continue to make this journey through life by myself, take care of myself physically, mentally and emotionally, and gain more insight to myself in the process.

I KNOW I CAN STOP having HORRIBLE NIGHT TERRORS!

I know that although sometimes others do not say it, they are proud of my "charity" works, and I will learn that I DO NOT have to have a pat on the back from anyone else but myself.

I KNOW I CAN GET THE HECK WELL! I AM SICK AGAIN!

 

I know I now can face my own "day of reckoning" when that time comes, whether soon, or decades from now, and I am NOT frightened. 

#HAWMC

https://www.facebook.com/wegohealth/

Day 2 - WEGO Health Challenge BLOGS - #HAWMC - "How do we blog?" Inspiration, jus start writing, and so forth

#HAWMC Day 2 - of WEGO Health's Blog/Writer's Challenge

Usually I begin by something "hitting me". Like a post on a Facebook page, or something I hear on the news. Sometimes it is a personal issue that I am going through. I also have what I call " a voice".

I maybe sitting here doing something completely different, and the subject for a blog hits me, and I begin writing. My blogs, posts on Facebook, even E-mails tend to be "lengthy". Anyone who has read an email from me, or sees my blogs, or posts anywhere, knows to be ready to spend several minutes reading. I tend to "explain" in detail what I am saying, where it is coming from, why I feel it is necessary that I "tell" whatever that subject is. And until I feel that I've "said it all" on that one subject, I write. I am really bad about not even making "paragraphs". I've had to change that lately. I've come to realize is someone sees a very lengthy post, with no "breaks" in between, it can be confusing. So, I've began making sure I break it the post, blog, email or whatever it is, so it does not seem so long and so tedious.

I also tend to "write out" everything. In other words, if I am going to say, "I'm going to town", I write it out literally, "I am going to town". Oddly enough, I probably do not speak that way, when speaking, but when I am writing, I usually type it all out, without using other forms, like "I'm, I've, even numbers, I tend to type out ONE, Three, and so forth. Sometimes the reason I type numbers out in spelling them, is because I want to "emphasize" that particular number, so rather than 3 little chicks. I may want to write, "THREE Little chicks". So, by spelling the numbers out, I can USE them for emphasis in a sentence, or for some reason.

I know that typing in "ALL CAPS" is almost like "screaming" at someone. I find myself using "CAPS" but not so much as to be screaming in the readers face, but really showing that part, is coming from "deep inside" and it is crucial to understand how important that sentence, or portion of the blog, the post, and so on are to me. So, if you see a post of mine and something is in ALL CAPS, it is because I really want to make that stand out to who reads it.

Actually, I DISLIKE "editing". I know that sounds silly, but I try and make sure I am "saying" what I need to say, as I am writing it. So, I may read over a sentence or two as I finish them. But, I "spell check" as I write, so I give it a once over for spelling errors, then most of the time I hit the "send" button.

I am also not that great at "coming back" to a post that I have written, and "add" to it. If I know for sure, I want to say more on that subject, I usually make a new "Part 2" post about it, but once I am through with what I have said, for the most part, I don't edit and add to a post. Now, I may go in and fix a link, add a color, or a photo. But, if I want to say MORE, then another "post" will come and I add it as another "Part" of the original.

I was always an excellent speller in school. I won spelling bee's, had all 100's on my spelling tests, so when I am typing and writing, and a word is misspelled or I cannot for some reason spell it at that moment correctly, it will drive me CRAZY! I will go back and try to spell it myself correctly several times, without looking it up. There are times, I finally give in, and go do a search to spell it, and often as I am typing it to look up the correct spelling, then I do spell it correctly during my "search". I have to laugh and blame it on the "Lupus fog", because most certainly my "age" could not be a factor.