"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
Sunday, December 20, 2020
Monday, December 7, 2020
New Look to my Daily Newspaper - Bear with Me as I do some changing to what the newspaper themselves decided to do...
New Look to my paper right now NOT my choice - so I am working to do something different!
http://news.autoimmunearthriticsystemiclife.com/#/
Monday, November 30, 2020
All of the ANGELS AMONG US...
We have so many angels that walk among us! I am so grateful for their love, hope, caring and giving of themselves freely...
Thursday, November 26, 2020
Thanksgiving - "Stay At Home" - go to see others, or already ill? things are so very up in the air & confusing!
COVID-19 and FEAR are Running Rampant this Holiday Season and Year! Everyone is physically Mentally and Emotionally "Unwound" and Exhausted.
Saturday, November 14, 2020
Personal Invitation from Myself to see How WEGO Health can help you with resources for your health issues and others!
See How WEGO Health Can Help you with so many
resources you can pass
along to others.
https://www.wegohealth.com/register/invite/Rhia
Monday, November 9, 2020
Election 2020, Presidential Campaign goes to President Joe Biden & V.P. Kamela Harris Declared the Victors! The PEOPLE SPOKE! Finally, Dump Trump is OUT; BUT I'm Sure Sadly We haven't heard the last of him?!
PRESIDENT JOE BIDEN & KAMELA HARRIS WITH 1ST LADY, JILL BIDEN declared the HISTORY Making THEM VICTORS! THE PEOPLE SPOKE DUMP TRUMP IS KICKED OUT, YET SADLY I AM SURE WE'VE NOT HEARD THE LAST FROM HIM!
What a nail biting, frightening at times, yet victory declaring Election 2020! Many things considered 1st time happenings; from the V.P. being the 1st "Woman" to be V.P. & 1st WOMAN OF "COLOR" (as Kamela herself put it).
This election brought out MORE VOTERS than in any other election, more people of other races were also a 1st time happening. If that is not enough to put to memory, PEOPLE CAME OUT ALTHOUGH THE NUMBERS OF COVID-19 ARE WORSE THAN EVER! There were more "mail-in" ballots in just about every state than ever! The New President Elect Joe Biden is the "eldest in history" to take this office.
Now if each of us could take this and much more incredible positive, & relief from Trump on our plate; WE ALL KNOW THAT THIS ISSUE WITH "Trump will never put those big boy pants on" as one of the News People said, and concede as Joe Biden President. We also figure this is NOT the LAST of what we hear from that person, that absolutely has taken our country down, down, down almost to the bottom of all nations. He has spent more of the peoples money on "his own equipment, such as Air Force One, The Helicopter, Secret Service, FBI, and the CIA, that is not including all of the "trips" to his personal golf courses, casinos and lavish hotels.I WILL SAY HE SPENT MORE TIME AT HIS OWN "GOLF COURSES", ON TWITTER (TO which I will never understand how he was allowed o speak one word on there). He has NOT PAID HIS INCOME TAXES FOR 15 YEARS, from what the news has said and only paid $175.00 dollars, yes you read that right, he paid a whole one hundred Seventy Five Dollars and no cents (which he has no sense). How MANY of us Americans have not paid our income taxes within a few years, that are no found, asked to pay, or at least make arrangements to pay?
How many Americans have, when they owe only owe $175.00 to the IRS? How did he get by with all of the lies, the junk, the name calling, the temper tantrum taking, and have it put up on HIS TWITTER PAGE THAT HE HIMSELF POSTS? When President Obama could NOT even keep his OWN Personal "Black Berry" for things such as Doctors appts, & family information such as birthdays?
As I have continued to say, Stump's only solution to ANY ISSUE is to THROW GREENBACKS" at it, and it will go away, or get fired, or get ran threw, or get a "pandemic" started, declare a new person as a Member of the Supreme Court with the Presidential election within 2 or 3 weeks? How was HE allowed to "hire" and "fire" staff by the dozens depending on whether they "agreed" with him or "disagreed" with Him? He gave speeches, talked to the news, to the public and would not allow his staff to assist in making sure "FAQs" were in place? He was almost impeached, and should have been. He played "footies" with Russia, North Korea, China, & others, then talking trash about them after he had told everyone "Oh, they are great people!"
This "list" of the most hair raising, mind blowing events, in history by any other president is slim to none. Before I say more on that "fact" I will look more up. there are so many that he pulled as far as lies and stunts, I need to look the up to do my own "Fact checking". If much of the entire ordeal of the negative stunts he pulled ever comes out, people will be horrified, as to how he could have ever made 4 years as "Commander in Chief". I say he is a narcissistic, habitual liar, with OCD, and several other mental illnesses, that left our nation in ruination.
Shall I say more? I don't have to BUT I WILL be telling much more about this wondrous change in our country, the jackass that left, about COVID-19 (Corona virus). This blog post shall be the 1st portion of my next book, (which I don't have a title for yet").
I have continued to wonder why I have had such a "hole" in my thoughts for writing my next book, that I had been concerned that my book writing days were over. Yet, it was due to these other "events" that need to be marked in history... and I realize there will be MANY books written and published on these subjects. I want to give everyone a "feeling" if just how these types of horrible issues especially those who are disabled, chronically ill with many different severe illnesses and diseases. Those who are "below" poverty level or at the very least struggle week to week, paycheck to paycheck, or search everywhere for a job; all the while terrified of getting COVID-19 and/or bringing home to their families.
Friday, November 6, 2020
And as I said on my facebook - only one word to describe TODAY! & THE NEXT 4 YEARS!
Tuesday, November 3, 2020
ELECTION DAY NOVEMBER 3RD 2020! LOTS of PRAYERS NEEDED I FEEL!
"Election day 2020 November 3rd most important for you to VOTE & Pray Americans shall find Truth, Peace, Wellness and Healing with this Day of "Reverence" & Glory
I usually don't discuss politics" very much online or even in person. I feel everyone is allowed to their own personal beliefs, whether I or others believe in them or not. I have even heard of families "fighting or broken apart" due to "political beliefs". So, for me to each his own whether I feel the same or not. I just this t=year after ALL AND MORE each town, each city, each county, each state, the nation and the world have gone through, WE HAVE to SEE a DRASTIC AND DIFFERENT CHANGE IN ORDER TO REGAIN our Values, Morals, the health of our people and nation, as well as the world. From COVID-19, to severe droughts and wildfires, to floods hurricanes, tornado's, earthquakes, amid other difficulties caused from things such as COVID, loss of jobs, a filing of our investments, like Wall Street on a roller coaster ride. Prices going UP, UP, UP, all the while salaries going DOWN, OR STAYING THE SAME.
The NUMBER of us who have found ourselves in a deep depression both physically and financially. People, from families , friends and strangers rising up against each other, loss of respect for one another, as well as our law enforcement. Yet Law Enforcement so over wrought they are (some not all) are in such strain are beginning to unravel lso, and use their "power" unwisely. Yet, under the terrible situation we see just about any town or city is in, it's difficult to blame them, they are frightened also.
So, THIS IS A MAJOR MUCH NEEDED ELECTION TO BRING CHANGE FOR EVERYONE! To heal us, physically, mentally, financially, job wise, emotionally, in spirit and in one another.
We MUST FIND "TRUST" BACK WITHIN ONE ANOTHER AND OUR NATIONS AND GOVERNMENTS.. AS WELL AS COUNTRIES AS A WHOLE. I realize this is one of the most crucial yet difficult elections there is. with COVID here, with the mail service slowed to a crawl, & other hardships making it hard to get our votes out to count, but we desperately need those more than ever. Plus it's YOUR RIGHT TO GET YOUR VOICE OUT THERE AN HEARD!!!!
So, for those of YOU who have NOT voted yet, TODAY IS THE FINAL TIME! If you can't get to a polling place yourself, try to find a relative, neighbor, some towns maybe offering free rides especially for senior citizens, some way if possible to get to the place you vote..
BE SURE TO HAVE YOUR MASK, YOUR HAND SANITIZER, GLOVES IF YOU HAVE THEM OR PREFER THEM, & if your ity has long lines maybe a lawn chair to sit on, for those who can't stand for a long time, maintain the 6 foot social distancing if possible, & most of all BE RESPECTFUL OF OTHERS AROUND YOU!
TODAY THE ONE THING TO REMEMBER IS YOUR VOTING MATTERS"! and although many of us don't think it does due to the "Electoral College" YOUR VOICE DOES MATTER!!
https://history.house.gov/Institution/Electoral-College/Electoral-College/
Be Safe, Be Well, Stay Respectful, and Pray whatever the outcome, it shall be the right one or our Nation!
Wednesday, October 21, 2020
Come in Today, Join WEGO HEALTH to Advocate as a patient Advocate Leader & Help Hundreds and yourself!
Come and Join in being...
A Patient Leader with WEGO Health! Truly an amazing way to help others, yourself,
caretakers, or anyone who would like to take some time with advocacy! Let your voice,
and your words truly be heard and shall bring assistance, information and so much
more that could use your Patient Leader skills to change lives forever!
https://www.wegohealth.com/register/invite/Rhia
Tuesday, October 20, 2020
DEA NATIONAL TAKE BACK SATURDAY OCTOBER 24TH 10 A.M TO 2 P.M.
DEATAKEBACK.COM
Monday, October 19, 2020
FINALLY BRAVED THE STYLST AND SHE DID GREAT! NOW IF I CAN GET IT TO DO THIS!!!!
Saturday, September 26, 2020
NEW Clinical Trial Sponsored by Cure Click!
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More "SPAM" calls than ever, "waiver temporarily of registration in TX on title renewals, fed up with my doctor (rheumy) & as the "World of Rhia" turns
DOES IT EVER END????
Wednesday, September 16, 2020
We continue to, gripe, fuss, & be peeved over all happening in our nation not think but how much worse bit was & could be...
OH, how we gripe, fuss, whine, mope, and bitch about how bad things are, yet not really thinking how much worse it could get!
And (IMHO) in my humble opinion, if we do NOT get a tremendous change in our President and the Senate and House with this crucial election upcoming here very soon.. it IT BE MUCH MUCH WORSE THAN WHATEVER YOU COULD NAME SOMETHING LARGER THAN A "PANDEMIC"!
Don't get me wrong, things are HORRIFIC!! Even for those of us over the age of 55 plus, for the most part none of us have seen the likes of COVD-19, now facing a possible new flu strain, where the "old ones" are bad enough, now hurricanes, one after the other worse than any over the Gulf of Mexico especially (yet how many still claim we have no "Global Warming" or Earth that is warming our oceans, as they fill some places with so much plastic and items that will never go away & will continue to ruin many places that used to be reeths where now is nothing but gray and no fish)..
Now wildfires again, so bad they are taking millions of acres of land, forests, homes and even lives over CA, Or & WA state. We also had just enough rain which was desperately needed in places in TX, that now have mosquitos' 'causing the West Nile Virus to rear its ugly head. Not to mention other bugs, mice, snakes, spiders, and all types of bugs that ruin crops, and as the fire ants I had rid my lawn of earlier this spring, now are taking over my lawn like never before. They are far worse than I have ever seen. A small child, animal or even anyone "allergic" to their stings, which they just "attach" themselves to you, and can sting over and over again. I KNOW, I do my own mowing etc. and I am allergic to them. So, when I try and get rid of a bed the size of a huge bowl, that had not been there the evening before, it seems impossible, to see the hundreds of millions that "boil" out of just one bed! One bite for me means swelling, severe stinging, a knot that comes up hard, white and will stay for weeks, if I don't try and get them off my feet. Not to mention the larger number of wasps, yellow jackets, the HUGE hornets, that could put someone in the hospital if they are allergic. I know it sounds as if I am off subject, but not really. Many of the things that come, are from how the severe weather changes, and now the COVID-19 & other illnesses that come along with them put people out of jobs, close businesses, make people so ill they spend over 6 weeks in the hospital, kids that can't go to physical school yet & everything else that follows along with those. Higher grocery and all items. Having to "not go in" stores yourself but go "Curbside" or however your market does it to keep people as far away from one another as they can. Masks MUST be worn by everyone who walks in stores in many tows and cities. That is not including the billions spent on equipment for things such as resperators, more sterile "throw away" gowns, gloves, masks, for all staff at all nursing homes. What ever happened to the "wash in hot water, and wrap, put in an autoclave, rather than throw away all of the instruments, gowns and so forth as we used to? I know people will say it is not as "sanitary" or it is "higher price".
BUT it cannot be higher to throw away perfectly good tape, scissors, many instruments for surgeries, gowns, & items that are now taken out of a plastic package, maybe 1 or 2 things used, and the rest disguared in the trash! What a waste of money! Especially when we are running out of items doctors, nurses and medical staff could use. I've watched them open a "tray" of items, and throw away much of it just because they needed a "plastic pair: of tweezers, etc to possibly remove stitches. Tape is expensive, but can you imagine how much goes into those disposable tray? I know sometimes since my insurance and I am PAYING FOR what is going in the trash in I would like to grab and taken home with me. think of the amount of those items in just one COVID-19 day that are still sterile & I could certainly use at home for some purpose. It is ridiculous wha amount of dollars are thrown away. They tell us it is "cheaper" than having to wash, sterilize and autoclave instruments I think that is bull. It could help create jobs that went by the wayside, due to plastic items that are pitched in our landfills or thrown in special bins and burned into our air. I get furious when I already know the numbers of items pitched away just in one surgery. It's insane. Then they wonder why insurance it's so expensive & doctors charging so much.
The catastrophic human life, financial spending, the overspending that goes into our medical fields is crazy! Yet, we can't seem to keep "great" doctors, nurses and medical staff. they are "frightened", Hell scared to death they or their families could become infected with this still much unknown, no vaccine, not supportive care and education of those who do become severely ill for weeks and weeks, basically on "life support" with no family that can go in to help assist the mental stability of their loved ones. I feel we lose MANY people to COVID-19 to more "mental illness", where they are just "heartbroken" from not seeing those they love. They feel they have been left to "die". Then nurses and staff have t be their lifeline of caring & love to help them understand and know they have not been abandoned. It is the illness keeping loved ones from being at their side.
Then all of those that have lost family, lost homes, all of their livestock, crops and out natural forests due to "fire storms", that began with one cigarette butt thrown out a car window.
Then, the number of SEVERE HURRICANES that have moved across the Caribbean into the Gulf Coast waters, of Texas, Louisiana, Florida monumental! Never in most of history have these types of massive storms blown and washed away so much land, houses. so many that were never able to be rebuilt rom the last couple of those Hurricanes we considered the worst in history. Our entire "landscape" in some places have totally changed from waters, winds and fire damages, that they will never be the same a+
Our own childrens grandchildren will have something to certainly tell their own grandchildren about and how history was changed by nature itself "fire and water".
b by "fire and water"
Monday, September 14, 2020
How do you DEAL with ALL happening? COVID,FLU on its way,possible West Nile,Lupus,RA,Pseudo-gout,Chronic Pain, & now a "Death" of an Ex-Husband
How do you DEAL with ALL happening? COVID,FLU on its way,possible West Nile,Lupus,RA,Pseudo-gout,Chronic Pain, & now a "Death" of an Ex-Husband... and the List goes on and on, Severe Anemia... & WHAT IS NEXT?
and where do I begin? After over 290 "handwritten" pages about COVID-19 & the entire ordeal.. still there are many more typed, put on Facebook, on my Blog, in my blog, my head, & daily they come to me, at night they haunt me... Do I feel "guilt", pain, suffering, shame, am I supposed to be pissed off? Or am I supposed to "feel Sorry... should I tell the story, or do I stay quiet? Do I try and get hold people & let them know. Or do I just allow it to play out as it is?
After so many years of supposedly him thinking we were the perfect "match" he suddenly "packs" what little he has and was trying to LEAVE BEFORE my Mom and I got home from an overnight trip! To this moment, as well as all others NO ONE KNOWS why he just "left"? 10 years of marriage, 13 years together... none of it made any sense... And I KEPT QUIET for WAY too long on the really horrible things he did and said, to anyone.
Here I was, chronically ill, with Lupus, RA, Sjogren's, osteoporosis, then Pseudogout & other issues turning my fingers "crooked" over one another. I was the bone that took care of it all, Although he "led" others to believe, even his own Mom, that HE DID everything! Bull!!! He barely cooked a meal every once in a while. from laundry, to groceries to cleaning, he did none of that..
So in 2016 when he just ups' and leaves that was bad enough. But, to NEVER come out with the truth... then in 2020 only 10 days or so before his 60th birthday... he disappears... has even the law, out looking for him...b & they find him "deceased" in some stranger's apartment..or as far as his good friends from that area knew, he knew no one where he was found. But, "Meth" & many of you know my own night terror with someone close on Meth... he was a coward, chicken, & has no love for his family, what is left of it, nor his "Step-Mom" whom he had considered his Mom all his life. And the few friends, that some had no clue about one another... they are trying to get toxicology reports, and I suppose there could be an autopsy done. Since he was found without a bill fold, without his cell phone at 1st, he had no car, he had wrecked it a couple of weeks before... So, the "only" people that were close enough were out of town on vacation.. they did not find out till days after coming home. The law I guess finally found his cell phone to be able to try & find someone who knew for sure who it was.
I shall close this right now & give more as I find out, if I ever do...I feel for the few friends he had.. they will be totally in shock.
UPDATE December 23,2020
I spoke with my "ex-Mother In-Law" (she really will always be my Mother In Law, and a sweet lady, called me yesterday. I found out that although they never really found ALL of the DETAILS SHE WAS TOLD BY THE LAW ENFORCEMENT that Jim was found out in the country (lots of beautiful country side to drive through in WA State and admire) by himself, with on other evidence (I don't think they did an autopsy) that he had a massive Heart Attack. That was the reason I believe they ruled his death. It does not sound "right" to me... not like him to just drive off, and not take his daughter on an afternoon drive and not really tell her anything. Yet, I shall unless something else comes up, leave it at that hid died of a massive "MI".
Lord knows, I DROVE MYSELF 20 MILES to the hospital in 2001 (I was 40 yrs old) to the hearest hospital, and even walked into the Emergency Room, about the time, I was much worse.. they immediately got a wheelchair, and into the main trauma room there. As they hooked me to machines, gave me an aspirin, and asked me who was with me, and I said "no one". I drove myself from home in Rice TX which is just about 20 miles from the hospital. If I had waited the doctor told me for an ambulance, or to get someone there to take me I would have not made it. That for one in his life he can say even though he would never suggest it, I was right to do what I did in order to live.
They gave me the injection of the "clot buster and it literally stops a heart attack from being worse if given in time. But he was putting me in Cardiac ICU until I was table then sending me to the Main Heart Hospital in Dallas. NEVEr EVER do I WANT TO RIDE IN AN AMBULANCE AGAIN! I believe in all that was my 3rd ride in one and it is a horrible experience, especially if you are very inured or in pain.
As they say "Its like riding in an iron wheel wagon", it is so rough, bumpy and you are slipping and sliding, and everything back there is. But, I was fortunate to have great EMT's all 3 times that kept me calm on those rides.
So, as it went I did make it to the hospital in "mid-massive MI" BUT just in time for the medication to STOP most of the muscle damage to my heart. Knowing that, and knowing that I wanted to live badly enough, that I took the chance of driving on the Highway with blinkers on, and very slowly just in case I felt like I may pass out. Of course NOT a police officer in site when I really needed one. But. made it, things were not nearly as bad as they had 1st expected.. and it must be that it was my time to STAY HERE... I still had "work to do here on Earth first"
Knowing that, and knowing he may have known something was wrong, I believe he did not want her to try and save him (his daughter). I feel he "knew" and was almost like going ahead to "leave Earth" because he just could not handle anything else. ad, sad, sad, for everyone, but especially his daughter that he had came in contact with like 30 years after not seeing her.
So, I just pray she gets the help she needs to get herself back together and live on to know they had some time together.
Wednesday, September 9, 2020
Sunday, September 6, 2020
Saturday, September 5, 2020
Wednesday, September 2, 2020
Chronic Eczema Clinical Trial here
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Sunday, August 23, 2020
Tuesday, August 18, 2020
COVID-19, Upcoming 2020 Flu Upon Us, West Nile Virus & Adult Vaccines
As many of us know FLU season is almost upon us. Now we face a possible "new strain", PLUS as no other Flu season in History we are fighting the fight of our lives against (COVID-19) and the West Nil Virus has popped up also in some places as of the past 6 weeks or so. FLU??? GET VACCINATED!!! AS SOON AS YOU SEE THE SIGNS UP at your Pharmacies, Doctors offices, in the paper, and everywhere head over to get your vaccine! Of course with this being a "new "abnormal" for the flu make sure you ASK your doctor's office if you are okay to get the vaccine. Some like myself, get the "shot" that is NOT the "live" virus due to other chronic Illnesses. But, there are also those who can take the live vaccine, even though a nasal spray etc. Many of the "symptoms" of Flu and COVID-19 happen to be much the same. WE HAVE a medication to help lessen the flu symptoms, and get you protected from a much worse base, but you must start it quickly after being diagnosed with the flu. It will be one for the records when combing "several" illnesses at the same time. Also, those of you who are over 60 to 65 many can get a shingles vaccination, a pneumonia vaccination which protects against MANY different types of pneumonia, so be sure t ask your doctors and pharmacists about those. There are Hepatitis vaccines out also, and even especially for college kids that stay in Dorms, a Meningitis vaccine, since it can be extremely contagious especially in closed quarters like dorms. Here is a list of "recommended" vaccines by the CDC, showing who needs to get which ones and when, why etc. https://www.cdc.gov/vaccines/adults/vpd.html Some may be surprised at the types of vaccines available now for adults to STOP and prevent many what used to be very contagious illnesses.
With the upcoming Flu Season upon us and having heard we may have a new strain(s); plus this is an all time difference with COVID-19 still very much active, and finding West Nile Virus in some places, I felt it was a great time to REMIND everyone the Vaccines available, who may need them & to see if you should speak to your doctors, pharmacists etc. about whether you should receive some of these vaccines...
Sunday, August 9, 2020
Phi Theta Kappa Life in the past from 1978 to 2020, Chronic Illness, Family, & How we tend to shape" our lives even after all these years.
Even though my life did not go the way I had planned after high school, I did get a 2 tear degree and made Phi Theta Kappa with a 4.0 GPA, passed the Nursing Exam about 1994, & had a full scholarship for it. Alas, with 2 kids in school for several more years, & having at that time to work full time. I made the VERY difficult decision to pass it up. I was the main source of income at the time & couldn't quit my job for 2 years for nursing school. But later in life, I began to understand "why" my life took a different route. Yet, I was & still am very proud of my grown kids. They stayed out of trouble & went onto to their own great roles in life. As my own life progressed & I also then molded myself into a writer & published author; I gained much knowledge from living in 2 different states for good while till moving back "home".
It was now time for me to have a "role" as almost a "parent" to my Mom. After Dad passed away she needed me much more than she would admit. I still am in that "learning" phase of my life, which has helped me cope with some serious chronic illnesses, & onto become a "voice", advocate, and "Patient Leader for several large non-profits & living out both of my "dreams". To have 2 of now 4 books published. Seems the list of "writing them" grows more quickly every moment in life.
Plus I got the opportunity to stand on the steps of Capitol Hill in Washington D C to tell my story in order for my voice to become the voice for many! Certainly two proud moments in my life, along with the others before the before them. I remember walking across the stage at the college to accept the honor of being accepted into the Phi Theta Kappa. So, although my dreams of becoming a nurse, or a doctor, never panned out, they made me continue to "study" in these fields.
With my own chronic illness issues, and being able to help others life me. I also continue to write on the 2 or 3 more books to be published & gain more knowledge every day of just how much & how quickly our world & medical World changes. I found at this year milestone of 60 like many of my graduating class, we can look back & see why or not life took us down the paths it did, And to continue to looking into future & hope to gain more insight into out quickly changing places to behold.
Wednesday, August 5, 2020
Wednesday August 5th 2020 My Newspaper all things Autoimmune, COVID -19 and more
Wednesday August 5th 2020 My Newspaper all things Autoimmune, COVID -19 and more
Life Chronic Pain & Autoimmune Systemic
Diseases & Dementia
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Sunday, August 2, 2020
Sunday's Newspaper My Own Autoimmune , Pain, COVID-19 & other issues
Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®
Friday, July 31, 2020
New Post for Pseudogout, Blood transfusion, Severe Anemia, RA Severe Pain & COVID Virtual Visits & more...
I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things about COVID, my 2 unit blood transfusions RA, other meds, so many Lab tests, Virtual Visits and more...
More about my Life Living with RA, Lupus, Pseudo-Gout, Severe Anemia & Making My Home Put Together Alone, through the Pain and all that comes with these illnesses.
As I said day before yesterday I CAN HAVE THE STRANGEST MESS HAPPEN AT MY HOUSE!!! 1ST OF ALL I am so embarrassed to even talk about it..I HAD A "VIRTUAL VISIT SCHEDULED WITH MY RHEUMATOLOGIST AT 2:40PM OR 2:15 PM.. THEY SENT ONE THE 2:40 FROM HIS NURSE AND THE APPT. PART OF THE PORTAL SAID 2:15 OKAY as usual between my dogs up & down and the pain in my back & hips, and hands.. I was UP by 3:30AM yesterday morning...Well, I did several things during the day around the house, did laundry, I have even putting things "more in order" rather than scattered around, for instance al of my hand cleaners & sanitizers.. by the way I DID GET MY 2 CORDLESS NEW BLINDS UPAFTER 3 DAYS OVER THE KITCHEN SINK AND THEY ARE AWESOME!!! ANYWAY, I WENT AHEAD ORDERED 2 MORE FOR THE NORTH SIDE OF MY KITCHEN, SINCE INE OF THOSE WERE FALLING APART & I wanted 2 get them ALL THE SAME! So, those were so much easier than dealing with over the sink and around "rotten light fixture that is another story. I also KNOW I have to put up a new light over the sink, because it is so "rotten" where some of the plastic things are they have cracked, and after 14 years, it is just a mess. I spent some of yesterday trying to find one of those that was NOT $$$ of dollars! I also looked for a few other minor things for the house etc... Also I was HURTING LIKE HECK... THE HUMIDITY WAS HORRIBLE & AFTER UP AND DOWN THAT SNALL LADDER WITH THOSE BLINDS, AND THEN WORKING ON THAT DANGED ROTTEN TREE, THEY WERE AND ARE IN BAD SHAPE...Plus I of course have things around the house I can "work on" .. my HAIR is a mess to say the least and since I had that Virtual APPL. with my RHEUMY yesterday I had tried to do "something with it" Well it was about an hour till the computer visit and more, so I decided to it down with the pups for a few minutes, decide on dinner, then it would be time. NOW the fans are going, the A/C Unit is on and all are LOUD.. I had the TV on.. the dogs were right beside me and of course when I NEED them to BARK they don't.. So suddenly I jumped up & I had DOZED OFF & WASALREADY LATE FOR MY APPT!!!! and of all things it was with DR.Q. HIMSELF, AND I RARELY GET TO SEE HIM! I usually see his PA.. I was headed to the computer & to get the program pulled up and my home phones rings! It is MY DOCTOR!!!!! Plus after the call, I found out he tried 2 TIMES ON MY CELL (BUT IT WAS CHARGING IN THE OFFICE & I COULDN'T HEAR IT & I NEVER HEARD THE HOME PHONE THE 1ST IME HE TRIED EITHER... OMG!!! I WANTED TO CRAWL UNDER THE COMPUTER... I WAS TOTALLY MORTIFIED.. NVER , EVER HAD I DONE THAT.. NOW GET THIS.. HEB AND I WAS TALKING ABOUT MY MEDICAL STUFF ON THE PHONE WHILE I PULLED UP THE VIRTUAL PROGRAM THEY USE AND FINALLY ABOUT THE TIME I CAN EVERYTHING SET UP... MY DOG IS BARKING, BARKING AND MORE... & I KNOW SINCE IT WAS JUST IN THE NEXT ROOM in the living room, at the front door MY DR. COULD HEAR IT!!! Anyway, he did say that the program they use to do the visit had problems yesterday and he thought maybe I was having issues..plus he was working "from home" and not the office yesterday. He isSTILL very DISTRESSED over the ANEMIA... & wants to do some other types of blood tests, and he wants me to see a HEMATOLOGIST FOR A BONE MARROW BIOPSY. Which is what I thought also.. he put me back on the Colcrys for the Pseudo-gout.. and he thought "maybe" the "MTX" the Methotrexate I take and have been taking a long time off and on "maybe" making the anemia worse. We talked about some other meds etc, but 1st he wants that bone marrow biopsy. BUT RIGHT NOW I AM EXTREMELY FEARFUL OF HAVING THAT TYPE OF PROCEDURE DURING THIS PANDEMIC! He told me he would find a very reputable Hematologist but I also have to make sure my insurance TAKES THE DOCTOR. AND USUALLY HE LET'S DR. B.; MY PCP'S OFFICE DO MY BLOOD DRAWS, SEND THEM OFF & SEND THEM PCP AND MYSELF.Well he was at home & was not sure about getting the Lab orders over to my PCP's office, which he could send them to me on the portal & I can take them... I have CLUE where the closest Lab Quest is & I am NOT driving to Dallas for it... Quest picks up with my PCP.. so all I need is Dr. Q to give the orders to his office or over the portal.. anything to save me driving somewhere especially right now in a busy Lab office somewhere in Dallas.THEN to top it off after dinner I went outside like I always do and walked around & everything seemed to be 'Fine".. I went back in for about an hour & had my front door partially shut do to the heat but I walk out and my Bird Bath is completely turned over (it is anchored in the ground" even though it is fairly lite) then I see FEATHERS everywhere! Then I walk to the North side of the house & the cat that hangs around was laying in the neighbor's portion o the drive way but nothing like feathers so I figure the bird got away..Well SOMETHING TOLD ME to check the ground to the SOUTH side and look. Sure enough here is the remains of a large bird probably a dove, one wing one place and turn up another part of the bird further down right beside my house!!! Well by Now I am TOTALLY LOSING IT!!!
Friday, July 17, 2020
Latest in the REALMS of what is even more than Pandemic
What? Normal? Where did that word come from & wherever did it go???
https://www.dshs.state.tx.us/coronavirus/
Are we, will we, can we ever COPE with what is NOT a "normal lifestyle" ANY of us ever would have had a fondest dream of.. I know like myself, many have to wonder about how our great-grandkids, our relatives to come shall survive. What will THAT survival look like? Or shall they survive another 100 years? Will this be the very last 100 years this world shall ever see and some live through? Will they be underground, nor in some types of huge containers that keep food and people "safe" from hell on Earth types of viruses,. Or will the treatments be so strong they in turn harm us? SO many questions have to be through our minds. Each daily we tend to see and hear everything growing worse rather than better...
Saturday, July 4, 2020
Remembering what True Freedom Ringing is All About...
Happy Fourth of July to All!
May you find Peace, Joy, Hope, And a renewed Faith even though times are quite rough for everyone. Remember what our nation is all about. Take care of yourself and one another and although you maybe further apart than you like.. you can celebrate and have lots of hugs when COVID is over!!!! When it's safe for everyone, and your friends and family are HEALTHY long with you, rather than not here anymore!
Friday, June 26, 2020
COVID-19 ADVANCING to "Worse" again in many states & TX 1 of the "SEVERAL HOT SPOTS, INCLUDING HOUSTON, DALLAS & TARRANT COUNTIES & MORE"
Friday, May 29, 2020
Memorial Day & A Whole New Way to "celebrate" due to COVID-19 Making even Daily Life Difficult
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How can our kids feel safe when WE as adults don't???? I fear Wal-Mart or just walking across the parking lot at HEB in my small lo...
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I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things abo...
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I finally made a trip to Urgent Care with what I feel is a very bad Lupus and RA flare, but there are several "symptoms" strange t...