Great Article about "chronic pain" especially joint pain and the
weather. I know for myself, that like yesterday, the very sudden huge
drop in temp - from about 50 to 18 degrees yesterday a.m. sent me into
one of the worst days of my life with pain. Ironically we were going to
my pain doctor, BUT he was seeing Jim yesterday, not me. I wanted so
badly to tell him that I could sit in the floor and scream, I hurt so
badly, but I knew the appointment was not "about me", thus he knew by
looking at me I was hurting... anyway, I had a headache that is one of
the worst I've ever had even from years back with my migraines, and
NOTHING would stop it. Believe me I tried everything I could think of.
Then my neck was so stiff I could literally NOT turn my head to see over
my shoulders while driving. I had to turn my whole body and use mirror.
Then my lower back hurt so much, I honestly thought I had kidney
stones. And my legs, ankles, feet, wrists, and my thumbs were so
terribly bad, I felt they were stiff, and just was not able to move them
without horrid pain. Now, the weather I KNOW "in my bones" (no pun
intended) has effected me for years and years. Even when I would have
migraines in my 20's and 30's the dramatic weather change could bring
them on almost every time. No one quite believed me, and then when I
began to see my Orthopedic Surgeon and he did all of the joint
replacement and surgeries on me, he totally agreed the weather would
absolutely effect pain, especially joint pain. Even the "phantom" knee
pain I get with my knees, that seems like I never even had them replaced
will come on with a vengeance when we experience storms and so forth.
So, let not anyone make you think you are crazy, when your pain is worse
in weather fluctuations. I think it is definitely so. Yesterday was
living proof for me. But, I am also hurting today, so far not quite as
badly as yesterday, but I can tell if i were to get up and really start
moving around I would be in a world of hurt... which sucks. Because I
have to get out today cold, bitter weather or not, and pick up scripts
both of us have had filled. The visit with my pain doctor for Jim went
well yesterday. Finally someone that will work with him. But of course
this is ALL coming out of our pockets, and everyone knows office visits
and medications are NOT cheap. I dread picking his up, and then this is
my first time having anything filled since I had the new insurance start
on the 1st. So, I hope the hell I don't have major issues with United
Health and my MAP... I will be so pissed if I start having hell getting
meds etc paid for. That is why I dreaded the change from Humana so much
and just put it off the last two years. But, more and more of my
physicians were dropping Humana, even my PCP, thus I decided to change
over to United Health... is it a "Secure Horizons" AARP endorsed
Medicare Advantage Plan. This one hopefully will not be too difficult,
because I am already established and have been for years with all of my
physicians. So, they assured me since I've been on the meds, and have
been seeing these doctors for years things should go fairly smoothly
with the transition. I will believe it, when I go today and try to pick
up the scripts.....
Talking About "Good RX" card for prescriptions....
http://www.goodrx.com/
I
can guarantee ALL of you that either do not have insurance for
prescriptions, or need an extra amount off of your meds... I have used
this twice for Jim's meds since we have NO coverage for him, and the
meds even though "generic" are ALL expensive. There is no way we could
pay full price on them. Well, I got hold of this URL and found "GoodRX"
through a Google search. I can say that it is TOTALLY worth using. You
can use it in just about any pharmacy... all of our local pharmacies
take it and you get a better discount in some than others. But, you can
look up all of the prices at different locations right on their website,
so you know just about the cost before you even go to try and have them
filled. We have well over 200.00 or possibly more in costs for 4 of his
scripts and 3 of them came out to 69.00 rather than 150.00 or more. You
can either just pull the coupons or copy of the card online and print
it and they will also send you a regular card if you wish and request
it. Unlike some of the ones that save you a bit here and there, this one
truly so far has been a life saver for us. Between having to fork out
the cash for a damned expensive pain doctor in which he has to go
MONTHLY... and then medications that even in generic can be out of the
bounds of reasons, I have been as pleased as it is possible to be
pleased when having to spit out money you really don't have. But, there
is not much choice... we either pay for it out of our pockets, or he
just does not go, and does not have any meds either... so neither are
very good - so you choose the lesser of the both evils, as my doctor has
said about prednisone... I can either "take it" and it help with the
horrid pain and symptoms of these autoimmune diseases and then know I
will also have to contend with the crappy side effects, OR I can NOT
take the prednisone and then suffer like hell... so it is the "lesser"
of two evils.... anyway, this has been 2 days from mortal hell...
actually all week dammit... Mom's phone is out and I've had to put in
two work orders, then I took her a cell phone, that of course she has
hell using... and I found the problem, it is an almost complete break in
a line outside that is weather cracked, and worn almost through... and
then they tried to do an "automated" call and ask if she was satisfied
with the service... HELL what service???? They had not fixed a thing
when I was there yesterday or today yet... anyway, then of course the
weather sucks big time here... it is bitter COLD, and going to be
several days along with the possibility of sleet etc... not a good thing
for no driving idiots here... then Jim doctors appt and the meds
thing... THEN I GO to MY pharmacy (this is after calling and emailing)
them my new insurance information. Then I even TOOK THE CARD BY
YESTERDAY! and they said they would "rerun" everything through. I go in
today expecting issues for some reason and of course 3 SCRIPTS NOT RAN
THROUGH THE NEW INSURANCE! SO, THEY are trying to collect 44.00!!!
rather than 7.30!!! So, I had to wait for them to do what I had already
told them about 4 times in the past 2 days! I get home and another
script I had called in this morning, they STILL tried after I had been
there TO RUN IT through the old insurance!!! OMG!!! I was livid.... and
then I had to run errands, pick up stuff as far as for a couple of days
just in case the weather gets really ugly.... and I ruined my entire
day, almost yesterday and today... running around like a chicken with
its head cut off with errands and crap. So, it got me off track with my
writing and ALL I WANTED to accomplish over this past couple of days. I
swear if anything tries to get in my way this weekend to keep me from
doing WHAT I intend on doing, I am going to scream very loudly... plus
since the weather changed I hurt so badly it is a scale WAY OVER 10!!!
More like 17 .... everything on me hurts... I have actually thought that
I was coming down with something else... the pain is unbearable even
with my meds.... it sucks and now honestly, I am thinking the Orencia is
NOT helping the RA at all... I hate to say that, but I think I am going
to have to face the fact, that it may not be "the one" for me... and I
hate that... the very last thing I want to do is try yet another
biologic! Every time it is like starting all over again.... and it
sucks... and many of you know that....
"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
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